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have to agree with Mrsbarrett's post right below mine...I have b...

Posted at 1:20 AM on Feb 17, 2009 by takeouttheevil, #39030
have to agree with Mrsbarrett's post right below mine...I have been a lurker on this board for the past couple of months and thank God for it or who knows how crazy i'd be right now!! Here is a list of my side effects and pertinent information: DOI: October 2008 Side effects were gradual and most evident around the Christmas Holidays: Dizziness Weird eye/vision disturbance where i'd lose focus for a moment and then be okay. Constant spotting of "old blood" nothing much but did require pantiliners 24/7 Anxiety Hypertension (more than ever, like when I was pregnant, 150-170s/100) Panic Attacks Face Dryness ZERO SEX DRIVE No "natural" lubrication, but who cares when you have no drive, are spotting all the time, and it hurts to have sex Vaginal Odor Mood Swings Depression FATIGUE to the point of wanting to stay in bed despite having to care for my 7.5 year old. Chest pains (kept thinking maybe I had heart trouble, had cardiac workup that came up PERFECT and bloodwork was perfect, Thyroid test was perfect) Nausea (morning sickness type, would get slightly better in evening but not so much) IBS symptoms (diarrhea) DOR: January 23, 2009 2 days later heavy bleeding for a couple of days.....had somewhat of a "crash" the first week where I was still not better. By the 2nd week post removal I was still nauseated in the morning but improved in the late afternoon and got energy boost in late afternoon.By the 3rd week I was totally back to normal!!!!! (well what's normal for crazy me! hahahahha) My husband came with me to the doc, and she had no problem with removal. I went back for a follow up this past Friday and she saw how normal I am and that I have lost several pounds as well. She realizes I am extremely sensitive to hormone changes but says i'm the only one that she has seen like that. (how many have problems that don't think it is the Mirena...that's what I want to know???) Anyway, that's my story and i'm sticking to it!!! If anyone would like to chat or share please let me know. I will also add that I have a Masters in Physician Assistant Studies (just not practicing since becoming a SAHM) and so I looked up tons of information to figure out what was wrong with me, I really am thankful to have found this site....medical mumbo jumbo is NOTHING when you have your body telling you something and all you fine ladies......Thanks again! ~G
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Reply 9 months ago on Feb 17, 2009 by ljdavies, #17150

YES take out the evil is the perfect name for this device. My male GYN told me the same thing that none of his other patients complain - yeah right!! It just upsets me that no one seems to care - they only want the $500 fee. I am scared to try anything ever again concerning hormones. I even have a mystery phantom rash around my knees and elbows and was told it was probably my hormonal imbalance now. I just want to SCREAM!!

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Reply 9 months ago on Feb 17, 2009 by takeouttheevil, #17157

HAhahaha...ljdavies...thanks, I was SO SO very angry the day I came across this site and then later joined it, that was the name that first came to mind to use as a "screename". I am also scared to try anything ever again concerning hormones. I bet that rash IS from some hormonal imbalance. It is amazing what they can do to our bodies....I just really wonder how many women out there have crazy side effects and are going to all sorts of Docs and taking all sorts of pills for disease states they don't even have!! I am lucky that my Dr. seems to believe me now, but thinks i'm one in a million because she has had no other complaints, she even has Mirena too...and my husband commented when we walked out the other day "she has bad acne on her face....I bet it's from the Mirena". Could be very true, she never had it like that before...makes me wonder..

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Reply 9 months ago on Feb 19, 2009 by infoneeded09, #17209

I'm so glad you are feeling better! I finally made the decision to get it out! This Friday at 11:45! I'm so excited! I had just a few questions though. I went through a lot of pain when it was inserted ( I'm really tender from all my surgeries for endometriosis), so what can I expected in the days to follow taking it out? Pain wise. Also,It seems like I have a reaction to every birth control. What has worked for you? What do you think you are planning on using? Thank you

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Reply 9 months ago on Feb 19, 2009 by takeouttheevil, #17235

Hi Infoneeded!!!!!
YAY I bet you can't wait until Friday.....just getting it out is a HUGE relief, it will make you feel so much better mentally, immediately. I too had TONS of pain when it was inserted, I almost made my husband take me to the ER the first night. I was hurting more than when I was having contractions before my epidural!!! I stayed on a heating pad and Ibuprofen for several days because of the pain.
So, now for my taking out story.....It felt just like getting a pap smear to me, which is no big deal.....it was a quick pinch and before I could get "eek" out of my mouth it was in the garbage. She said "it's out" and I said "no way, let me see it in the trash", I wanted to make sure it was OUT. I had my husband with me too and he assured me it was out and he saw it come out. LOL...Afterwards I had no cramping pain or anything like when I had it put in. I did still have all my other side effects mind you, but if you are patient (which I wasn't) they will go away as well.
I was on Mircette years ago for BC and it caused me Migraines...I am staying away from all of it now and going back to what my husband and I used for 7 years prior to Mirena....CROWN brand condoms that we order from drugstore.com. If he doesn't like it, then he can get snipped. LOL. I am also very in tune with my cycle and can usually know the exact day I ovulate, so that helps as well!!
Feel free to email me if you have any other questions or just need to chat!
Good luck tomorrow!! I wouldn't worry so much about the pain, I was worried about it because of how bad insertion was but like I said it was fine!

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Reply 9 months ago on Feb 22, 2009 by tamashan, #17361

Thank you takeouttheevil. Seriously thought I was going insane! I got the evil inserted in June of 2008. We had a death in the family so I assumed all this time the depression I have been experiencing was solely that. Fast forward to my wedding trip on 2/11 and I started spotting. Considering we were in Hawaii I was pretty annoyed. Anywho, on the 13th of February I started having severe vertigo and blurred vision which seemed impossible because I was on a motion sickness patch and then the nausea started. I have had vertigo ever since and now I am having some pretty bad cramps to accompany the nausea!

Oh yeah, about two months ago my husband and I were intimate and immediately following I had the worst cramps of my life. Worse than giving birth. My husband was tempted to call 911 because I couldn't stop shaking from the pain alone. I am so glad I found this site. I am calling my doctor tomorrow to get rid of this stupid thing! I think the crown condoms will work just fine for us too! Thank you again.

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Reply 8 months ago on Mar 18, 2009 by ahca3521, #18168

Thank you for describing your experience. I just had my Mirena taken out because for the last three years I have been looking at other medical explanations for low energy, fatigue, acne, poor concentration, low sex drive and recently discovered it was probably the Mirena. I had mine out one week ago and have hit this big crash in mood with bloating that feels like a beach ball is in my belly. I needed some hope that these symptoms will go away soon and I should get back to my "old self." I have been poked and prodded by so many physicians and tests in the last three years and all have stated I am perfectly healthy, but my intuition has continued to tell me something has been wrong. I am also in the medical community and have mixed feelings about having been a part of the process that has encouraged Mirena to so many women. I think that physicians often overlook the effect of hormones on women and the best way for women to be aware is to communicate openly with each other.

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Reply 3 months ago on Aug 12, 2009 by kjp421, #22213

i have had the mirena since 10/04, so it is due to come out soon. since april of 2008 i have not had one day without waking up with a headache. i have ignored them b/c i suffer from headaches and migraines. for the past 4 months i have become extremely moody and angry. a girl at work mentioned it could be mirena. i have been online for 2 days reading all of these symptoms that i think i had but never knew. i pee like i'm pregnant, i'm always bloated. my hair falls out but about 6 months ago started breaking. at the time i blamed my hairdresser for leaving my color in to long and found a new hairdresser. sorry old hair guy for the nasty post i made about you ruining my hair! i was going through a divorce when i first got mirena and a wicked custody battle. i have since had anxiety which i figured was because i didn't feel like my son was safe unless he was with me. i thought that's part of being a mom. maybe all of the anxiety and depression that i thought was post divorce stuff is really the mirena? the final straw has been the dr telling me i am suffering from panic attacks which started about 6 months ago. so now i just want it removed. the problem is 3 weeks ago i started taking accutane to cure the cystic acne i have which started 6 months after i got mirena. this is my second round. so i have to stop the accutane and wait 1 month before removal. i'm also worried now about the "crash". but hopefully removal will make me feel better. it would be so sad if all this time i ignored symptoms of the mirena thinking it was just stress.

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