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I am so glad that I found this site and to see that there are oth...

Posted at 11:51 PM on Feb 17, 2009 by chavezlv2, #39074
I am so glad that I found this site and to see that there are other women out there who are having problems with the Mirena. I thought it was just all in my mind! I had the Mirena inserted in February 2008. Started having problems with high BP when pregnant with first baby and when I went back on pill after his birth BP wasn't doing any better. After having my second child, I contemplated about Mirena vs. having tubes tied. My OB said the Mirena was the perfect thing for me and was pretty much like tubal ligation, but without the surgery. I had no problems when Mirena was inserted..just bleeding (seemed like forever for me to stop bleeding) and the normal dizziness. For the first three months, I never knew when my period was going to be, but I just kept remembering what my OB said "your periods will be like nothing after the first three months." My periods did get a little better...however not the "light" or spotting periods. After the first three months, I started noticing that my hair was starting to fall out more but thought it was part of postpartum. I started feeling really tired, skin started to break out, felt depressed, my mind was racing, couldn't sleep, had problems remembering things (simple things), migraines got worse and more frequent than what they used to be before, moody, agitated, had chest pains, nausea in the morning (at one point I thought I was pregnant again!), stomach pains, diarrhea/constipation, kept having vaginal discharge (like when you are pregnant), came down with bacterial vaginosis, UTI's were somewhat common,no sexual desire and my BP was out of control. Seven months after having Mirena inserted, I started having sharp pains near right ovary. I had problems with cysts in right ovary before and had them removed so when the pains started, I had a hunch that most likely it was another cyst. My OB closed her practice so when I went to new OB for annual pap, I mentioned all the things I was experiencing including suspicion of cyst. I told her I had been experiencing all symtoms since Mirena was put in. She told me that she has never heard of the Mirena to cause symptoms like these. Told me that perhaps I was still having effects of postpartum and that my body was trying to get "back to normal" and get used to Mirena. Had all these blood test done and everything came back normal. I did have a cyst on right ovary and was told that it should go away within 2 months. Just had a follow-up ultrasound today (2 months later) and cyst is still there along with other cysts on right AND NOW left ovary. Most of the time, I am in a lot of pain especially on the right side. I was told to just take Motrin for the pain, but that nor heat packs work at all. I am really considering to have the Mirena taken out. I REALLY believe that the Mirena is the cause of my cysts. Is there anyone out there who have gotten cysts while with the Mirena? And has anyone experienced having no problems with cysts after the Mirena was taken out? Since finding out that I have multiple cysts on both sides and knowing that my doctor will probably tell me they will eventually go away on their own (first one is less than 2cm and others are smaller), I don't know if it is even worth keeping the Mirena in. I hate having all these symptoms...I just want to be "normal" again. BUT, IT IS VERY COMFORTING TO KNOW THAT THERE ARE OTHERS WHO ARE OR HAVE EXPERIENCED THE SAME. Now I can tell myself that it is not all in my mind and I am not going crazy!
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Reply 9 months ago on Feb 18, 2009 by infoneeded09, #17181

I have just sat here and cried listening to your story and your side effects! Finally, I feel like someone gets what I've been going through! Hell! I had Mirena put in this past Aug. '08 for heavy periods and cramping after surgery in March for endometriosis (my 5th) and then two session of the worse drug in the world, Lupron. The Lupron had already made me gain weight and then the Mirena came along and made me gain more! I have taken 4 pregnancy test in the time I have been on it. Really convinced at times I was pregnant. I felt so bad, so tired, nausea. That was basically the whole months of Nov. and Dec. Now I have acne which I've never had, still horrible cramps, cramps in my legs, my period are back to every month, my pms is horrible. I can barely get out of the bed, I am so tired and when I do I can barely keep my eyes open. I feel like I have been hit by a truck. Cramping all the time! Headaches. I'm so swollen! Just feel miserable especially, when I'm about to start my period. I've started spotting again. My periods are heavy again and I have huge blood clots! MY breasts are engorged! Huge! So uncomfortable. I've felt so alone. My doctor said this will be so great for you because it will eventually leave you with no periods, but I'm really not sure that will ever happen! People don't understand how hormones can make you feel so awful! I have a 2 yr. old and I feel so guilty being so tired and feeling bad all the time! I just want to fell good for once since I've had him. It is the worse feeling when they just dismiss what ur saying to be something else and I'm smart enough to know and know my body well enough by now, with all the crap I've been through to know when it is the Mirena. Thank all of you for sharing your stories and making me feel that I'm not alone anymore!

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Reply 9 months ago on Feb 18, 2009 by mrsbarrett, #17194

Yes many or most of the women on this board have also had cysts on their overaries from teh Mirena and after removal, no more cysts. I know that since I had mine removed 3 weeks ago, all those same symptoms you are having went away. Now I just have to get this weight off. I hope you get it out because it only gets worse. All of our doctors said the same as yours..."couldnt be the Mirena". OH YES IT IS. The proof is right here on this board.

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Reply 7 months ago on Apr 20, 2009 by mommyofbug, #19030

I must be one of the luck ones because I have had little to no side-effects from the mirena. Which is actually quite funny, considering, I am the 1 in 1000 that had it perforate through my uterus and needed to have it surgically removed. I have had my mirena in for a year and a half and my only concern/complaint is that I haven't had a period in 8 months. I am actually having it removed in two weeks so my husband and I can try for a second child. As far as cysts go...I too, have had a history of cysts BEFORE mirena and from what I have been told by a few different doctors, is that, your ovaries actually produces little cysts on them every month, and burst when you ovulate. Some you may notice (could explain why some people have pain when they ovulate), and some you may not notice. Ovarian cysts are very common, with or without Mirena, it when they get too big and don't rupture on their own that grows concern.

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Reply 5 months ago on Jun 05, 2009 by tracyches, #20408

My periods stopped after 1 month of Mirena - had it three years now. I have had considerable hair loss since then - was told it couldn't possibly be the mirena. Also in those 3 years have put on 25lbs, yet work out a lot and run long distances. I just got diagnosed with adenomyosis and multiple large fibroids. Told I need a hysterectomy - although I have no bleeding, just cramping and my uterus is the size of a 22 week pregnancy. Was told the mirena probably slowed the growth of the disease and that I have been LUCKY!! Now the mirena has been pulled up inside my uterus and will have to be surgically removed. It's horrid - apart from not having the periods which has been good! Am deciding what I can do - lupron shots could shrink the uterus and then can have it vaginally removed. Lupron sounds awful to me though. Also trying to find a doc who would leave the cervix in place and just take the uterus, but have been told there is no point in leaving it in, and 'at least you won't get cervical cancer!' Even women gynaes just don't seem to be on my side!! Bet they would if it was them in this position.

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Reply 3 months ago on Aug 12, 2009 by delrio84, #22204

Oh my god, you are absolutely right, my jaw just dropped after reading this! I had Mirena put in on November 2008 and I just started breaking out like crazy, it is ridiculous the way my face looks! I feel like I am going through puberty all over again. I am having sharp pains near my pelvic area and after reading your post I am now scared. I am an emotional roller coaster and it is totally affecting my marriage. I went to my doctor today but he was no help said it was normal for this to happen and could not pin point it on the mirena since i am still in that "post partum" stage. What has happened with your situation?

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