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How can I describe my thanks to this site and everybody telling t...

Posted at 10: 3 AM on Feb 26, 2009 by bokkie, #39371
How can I describe my thanks to this site and everybody telling their stories? Thank you oh soooo much!!! My not so short story: Im on my second Mirena, in total now for just over 8 years. The first Mirena was all joy, periods stopped, no side effects whatsoever. Then I got the second Mirena after I removed the first after over 5 years (my gyn recommended keeping it in for longer but I didn't want to take the risk). And for the past 2 years my ACNE problems started, first only one or two cystic acne once a month or a couple of small ones here and there. Nothing major. But for the past year, my skin / face makes me feel like a freak. So I went to the derm, got put on Accutane, more meds with a yard long list of side affects. Had to go of Accutane cos my right eye's sight deteriorated so bad I couldn't drive home at night. Went to my house doctor, he wanted to take me of the Mirena asap and refered me to a new gyn, cos mine moved away and I was stuck. But the new gyn did not want to take it out, but rather put me on a retinoid cream, cos it wasn't the acne that caused the acne.... yea right. So 5 months I gave this retinoid cream... I feel like a freak with my face, both cheeks inflamed red bumps under the skin, large cystic acne everywhere... sigh. But during this 5 months I found a web site acne.org and here I made friends and read stories and hoping and praying, even believing things are getting better, but they weren't. If I look at pics I took of myself 5 months ago and now... sadly things are worse. My self confidence is gone, and I don't even want to have sex with my husband with the light on!!! And then last week somebody posted on the acne site some posts regarding zinc supplements, and I read and researched more on zinc and acne and found that your skin needs zinc to be healthy and having no zinc could be because of to much copper or copper toxicity. So then I researched copper toxicity and found some web sites with references to birth control.... and a bright light went on... and I found this site... I am glad to say I saw my normal trusted house doc again last night, and made an appointment to have the thing, Mirena, removed first thing Monday morning. I have stopped using any meds like the retinoid cream for my face and cant wait for Monday. I just hope my face returns to normal quickly.... time lines anyone? I had no trouble with acne ever until now.... and Im 35!!! Udult acne my @#$ :) My right eye now needs laser surgery to remove a layer or something, Im seeing an eye specialist soon, and this was caused by the accutane drying up my eyes so much! :( I will report back to let other ladies know how it went and how I am progressing... thinking of taking a daily photo of my skin for reference purposes. Pray for me please, I really need it.... C.
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Reply 9 months ago on Feb 26, 2009 by bokkie, #17492

Oh, I just want to add another thing... I read here somewhere of someone's gyn that said that Bayer is looking into changing the Mirena and looking into this acne issues and I read here as well of other people that were too happy with their first one. Now I am wondering if Bayer didnt change the Mirena recipy and the later model now comes with a fresh set of free acne included? Just my thoughts.....

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Reply 9 months ago on Feb 26, 2009 by cw2bf, #17514

Hi,
You could be onto something with regard to the new recipe. I also had two Mirena. I thought that things were all fun and games with the first one, but in retrospect--NOT. During the first five years, I had some marital issues that were pretty bad and was put on antidepressants. I also had physical symptoms that doctors explained away. Looking back, Mirena was responsible for a lot of the problems I had.
How do I know?
I got a second one inserted after five years with the first. Immediately, it was different. I got the cystic acne you describe. It hurt so bad. I could not lose any weight, in fact I gained and gained (30 pounds total in 8mos) despite working out, eating the same (as when I was maintaining WW weight) and training for 1/2 marathons and running in two within 4 months time. I got super anxious, irritable, had panic attacks, insomnia, cried every morning on the way to work (alone in the car), suffered depression, thought no one wanted to be around me, etc. I could go on and on. After 3 months I googled mirena side effects and found this and other sites. But I decided to give it 6 months to see if it settled. IT JUST GOT WORSE. I had it removed Dec. 06, 2008. My motto is "Even my worst day without it, is better than my best day with Mirena."
It has been 83 days and I am so much better. I am not 100%, but I had the thing for so long, I know it's gonna take time to heal.
The acne was the first thing to go away, within a few weeks. I get normal breakouts before my period, but not hard painful boils under my skin.
Remember everyone is different, and healing takes time. Be patient, and prepared. YOU WON'T REGRET REMOVAL.
Best of health to you.
L.

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Reply 9 months ago on Feb 26, 2009 by evanjames1, #17521

post how your acne is affected once you have it removed. I am looking to do the same thing. Since I am getting mine removed next week.

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Reply 9 months ago on Feb 26, 2009 by saige27, #17526

You are in my prayers and you have answered mine. This terrible thing has been the reason I have had such issues in the past 6 months. I am beside myself. My boyfriend will be relieved. I have had moods, ACNE, hot flashes, and the amount of hair i am losing is unreal. And I just had it colored!! I am calling tomorrow to get this thing taken out. This is so relieving...I think I may spend the next couple days sleeping...if I could...I am always tired, but can't get to sleep.

I wish I could right now to get it out of this body. OMG!!

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