Hello, my daughter who just turned 13 in March 09 was just diagnosed with Nephrotic Syndrome too. Drs. had her on 60mg of Pred as well and she was still spilling proten. They put her on other med called Prograf along with Pred. She tested within a few days of taking this med and was in remission.So, now her dose for pred is 4 on/4off for 11 doses. My question is have you ever had leg pain ? She has been having very bad pains in her knees for a few day and didn't know if you had the same.
She too has all the side effects like you. She also was a very fit 7th grader who ran track and now the kids just make fun of her because of her moon face and weight. So, I know just how you feel and as a mother it sucks to have your daughter go through this. Take care and best of luck to you.
nephrotic mom
moon face sophomore year mood swings preds bad mood hair growth meds headaches dancer appetite nightmare sleep prograf leg pain pred best of luck drs knees few days mom