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Like most of you all I am on Topamax 100mg. I am a 27 year old fe...

Posted at 9:40 PM on Mar 09, 2009 by marfam23, #39759
Like most of you all I am on Topamax 100mg. I am a 27 year old female that has suffered from severe migraines for over 20 years that would last up to 2-3 days and completely debilitated me. I would bleed from my tear ducts from the extreme pressure and I would need to be in a quiet, cold, closed off room to be left alone until the migraine was gone to continue on with my life. It was ruining my life and taking over my day to day routine. I could never really commit to anything without the constant worry in the back of my mind about a possible migraine until I found Topamax. Now on Topamax I went from 4-5 migraines weekly to 1-2 monthly, it is truly amazing, however there is a catch. Although the medication is wonderful and I will never get off of it at the rate of success that I am at, I do have side effects. I have extreme tingling in my extremities, (hands, feet) along with my face. It feels like they are constantly asleep. I also have noticed the poor tasting carbonating drinks along with my taste buds changing with certain foods that I use to be so fond of. I also have a very smokey haze where it almost feels euphoric if I wake up in the middle of the night. I have horrible nightmares of people that I have not seen in or thought of in years, memory loss and spelling issues-all goes away after 3-4 months of uses. I had shortness of breath, however that subsides as well with the use of the medications along with several other side effects. I have lost over 30lbs that is along with diet, so I can't say it is all Topamax. I have noticed little nodules that have been showing up on my hands since I stared taking the medication that I am in ? about I have a call in to my neurologist to see if he has heard of any such thing. Other than that I love the medication, because if not having migraines is one of the side effects-lol I can handle the side effects. I hope that this will help anyone that might have anything similar to what I am going through. If you can shed some light on my nodule situation please let me know. Thanks
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Reply 8 months ago on Mar 19, 2009 by kaykehm57, #18219

i just found 2 cysts on my fingers and one on my spine and have been on 400 mg. of topomax for mood stabilization for several years. i also have joint burning in my elbow and knees and i was thinking perhaps i was going crazy and then i thought perhaps it was a side effect of topomax....perhaps it is......hopefully, this helps you....Kay

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Reply 5 months ago on May 28, 2009 by kitten80, #20200

I also have positive effects in weight loss as regards Topomax but the same loss of "fizz" in my carbonated drinks, also tingling in my hands and feet, which actually is a common side effect. Although I have not had any nodules grow anywhere, I have had some memory issues but these are mostly attributed to my epilepsy which is why I take Topomax in the first place.

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