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Hi...Am 33 years and had been on prednisone for 4 months till ab...

Posted at 6: 0 AM on Mar 25, 2009 by te75, #40257
Hi...Am 33 years and had been on prednisone for 4 months till about a month ago. It was in June last year that I was down with Viral hepatitis along with pyelonephritis. I was eventually diagnosed with Autoimmune hepatitis and therefore administered this drug with an high of 40mg for two and gradually tapered subsequently. Two months of medicines and I had this pain in my thighs especially when I had to get up after lying sedentary. After 1.5 months subsequently the pain worsened to now include all my joints including the leg muscles. Things have really become more painful now. The gastroentorologist who put me on this drug has advised me to see a rheumatologist. Now I am torn between trying to understand whether this is a part of my treatment or my ailment (rheumatoid arthritis is also an auto immune disorder) and only praying that it is a part of the treatment. The Doctor's have not been clear on how long this pain will persist. Regular walking, getting up, getting out of the car, turning the cap of a bottle is painful and getting worse with my ankles and knees swelling. The moon face, the hump, the acne are all ebbing. However this pain is killing. Anybody has any idea how long the pain will last? Thank you and best wishes to you.
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Reply 7 months ago on Mar 25, 2009 by ddeboer, #18491

Hi,

I was on it longer then you but it can take 6 months after your off it all to stop or begin to stop. I don't want to scare you but Dr's truly know nothing about the side effects of this drug. I was told at least a 100 (Really) different things about my recovery off this med. What you want is to get off it at all cost. It has ruined so many lives including mine that it's simply not worth it unless perhaps your on deaths doorstep.

If you want to speak privately contact me @ ds3175@comcast.net I truly
care and have a vast knowledge of this horrible drug. You name it it's happened to me.

Good luck!

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