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I can relate to many of these experiences. Started out in my 20's...

Posted at 1:52 PM on Mar 25, 2009 by endopcos, #40270
I can relate to many of these experiences. Started out in my 20's with very irregular cycles, went to my first gyn after a miscarriage - the emergency room dr referred me to a dr that was at a fertility clinic. I had no idea why until I was actual a little more "awake" I was diagnosed with polycystic ovaries. I went through at least 6 or 7 different birth control pills, depo provera shot, nuvaring, then back on another birth control pill. finally we started doing the continuous suppression as I was bleeding at least a little bit every single day... for 2 years. I would still have my full blown period every 4 weeks or so, which also included a monster migraine on day one of the menstruation. Not only was my life being altered but I was starting to get anemic. Finally after a month of the continuous suppression my bleeding stopped. As did the menstrual migraines. I continued this way for 4 years. Didn't have a single period or migraine, life was wonderful.. or so it seemed. I have been over weight for most of my adult life. Finally decided to do something about it. I joined the gym with a friend and started losing weight. I dropped 55 pounds until... the dreaded bleeding, pain and hormones got out of control. I started bleeding every single day again. Finally made an appointment with my dr. She stated that when you lose weight it releases estrogen out of your fat cells. Gee, I thought losing weight was supposed to make you feel better!! I went on with it for a while thinking it would stop eventually and it just HAD to get better. In fact, things got worse. I started having horrible abdominal pain, eventually it got to be daily. To the point where I could not stretch or even hyper extend my right leg backwards. My abdomen felt like something had a rubber band tied to it from the inside. My dr said that she suspected endometriosis. However, due to my anemia... we had to wait. So back on the iron pills and wait wait wait. Finally, October 15th I went in for my lap. Sure enough, stage 4 endo, huge cysts on both ovaries. My endo had gone all over the place and attached itself to anything it could. Including folding my bladder in half! Good grief. I thought that I was just getting the weak bladder from getting older (I am 35 by the way). For the next couple of weeks after my surgery I felt pretty good. Finally pain free (still a little bleeding but not much). But, the end of December rolls around and here it is, back with all its fury. The pain is again horrible, my migraines are back, my energy is dwindling. The good life was short lived. My doctor suggested a series of Lupron shots. One shot a month for 6 months. My first shot in January (took me a little bit of time to decide if I wanted to do it) finally bit the bullet and got the shot. First few days, fine, no problem, no relief either but no life altering experience. Then one morning I woke up and realized I was not in pain. It was a strange feeling actually. But the time I got the second shot, no more bleeding, no more pain... However, the hot flashes, night sweats and the emotions came on. Holy cow. Drama drama drama. I could find any reason on the planet to argue, with anyone. Thank god I have a very understanding family and an even more wonderful partner. I think he has the patience of a saint. I still don't know how he puts up with me. If I am not trying to find some reason to pick a fight then I am crying like a baby... for hours and hours. These hormones are so out of control. I honestly don't know what is worse, the pain or feeling like the world is going to end in the next 2 minutes if I don't get this spill picked up.. I literally cried for 2 hours Saturday because my cat knocked a stupid bottle of car wax off a shelf in the back room. Good lord, I had the most horrible feelings coming over me and just could not stop crying. I bought a new bed 2 weeks ago and let me tell you. If I am not on one of my 13 hour sleep fests then I am laying in it crying and feeling sorry for myself. Or the even better part of indegestion or my favorite part.. gas. I honestly don't know if I can go on like this. I made an appointment to see my doctorr this Friday to determine what she thinks will happen if I don't complete the other 3 shots. just give me back the pain if you have to!
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Reply 6 months ago on May 19, 2009 by miishaa, #19948

i am on lupron as well and have the same thing as u. i am 34 yrs old. i am happy i chose the lupron as the side effects ie the migranes and hot flashes are well worth my constant pain and bloat from the cysts and endo. i would rather have these probs them the pain i had before the surgery and going to the drs and them having no clue as to what was wrong. ct scans xrays dont help as the endo is covering all my abdomen and affected my kidneys and gall bladder, all they can see is the scar tissue. it is worth it i believe to endure this. i will have to have a hysterectomy eventually but my dr wants to wait as i am to young. if the lupron does not help me that is where i am at, i am willing to deal with all the side effects in hope of a year of relief. girl, from what you wrote i would be so happy not having a period and would be jumping for joy. m pain was so bad, i wanted to just kill myself so i would not have to endure i more second of the worst pain i have ever felt nor would i want anyone to feel! stick with it, u have nothing to lose but your endo shrinking and osteperosis. what a couple of lucky girls we are! lol keep ur chin up!

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Reply 4 months ago on Jun 24, 2009 by endopcos, #20932

I realized that I never updated the post after seeing my dr. She strongly advised to continue the treatment since I was so far into it. I had my 6th and final shot on June 10th. My side affects have tapered off quite a bit. Each month after my shot I would be very emotional and well, a little irrational I guess for about 5 - 10 days. Then by the end of the 4 weeks i would start feeling better. Its actually a little strange because you can feel it wearing off. Even now, 14 days past the shot, I can feel it tapering off. I am really hoping that all of the side effects are gone now (and lost forever!) so, we will see. Now, I am in for the battle of trying to lose the weight (the excess that I put on with the shot and the extra baggage that I already had) and to clear up my acne. I really don't think this is from the shot. I think its from not taking the birth control pills. That seemed to be the only time my face has ever really cleared up was when I was on an actual pill. My little sisters doctor has recommended the treatment for her as well. At first I told her not to do it. (granted this was during my irrational phase) We are going to wait for a couple of months and see how my body reacts afterwards. Granted everyone is very very different but I think so far her and I are quite a bit the same. Poor girl! All in all, the pain is gone. I have had zero abdominal pain in months. So that fact is very true. I am a little concerned about what will happen now. Will my pain come back? Will I be fertile? Will I have to go back on birth control to help the acne and PCOS? I should have mentioned before, but I have no desire to have children. Never really have. I have been pregnant before and after I lost them I realized that I don't know if I want to be a mom. I am perfectly happy with my carrier and life the way it is. I just want the pain and side effects from endo gone! Looking back now I can really see how much the Lupron had affected my emotions and body. But, the literature was accurate. It told me what would happen (it did) it told me that the pain should subside (it did) I wish you all luck.

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