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IF YOU FEEL/EXPERIENCE ANYTHING ABNORMAL FOR YOU OR DO NOT FEEL Q...

Posted at 8:20 AM on Apr 08, 2009 by debbi18, #40475
IF YOU FEEL/EXPERIENCE ANYTHING ABNORMAL FOR YOU OR DO NOT FEEL QUITE YOURSELF SEE YOUR G.P./NURSE AND SERIOUSLY CONSIDER GETTING THE MIRENA COIL REMOVED This medication may be suitable for some people but if you experience any of the following, I urge you please, please please, 'demand' that you want the Mirena removed. My symptoms were noticeably worse around my time of ovulation. I've also found out that people previously treated for/suffering from depression should not be prescribed this medication. (I've been on Prozac in the past). I had it fitted in Aug 2007 to combat very heavy periods and severe PMT at the recommendation of my G.P.and had it removed Sept 2008. Symptoms I experienced :- Dry/furry mouth Headaches (over time these became migraines) No concentration Poor memory Lethargy (constantly tired and drained) Smelly discharge (still noticeable straight after washing) Very heavy legs Numbness in my legs Joint pain and clicking (mainly in my shoulders and knees) Developed facial hair (mainly under chin and jawline) Hair loss Weight gain around my stomach (without increasing my food intake) Feeling constantly bloated. Spotting randomly for duration of Mirena being fitted. (Brown spotting) Panic Attacks ( awoken in the middle of the night with them) escalating to the following:- Palpitations (for no apparent reason) Clammy/sweating palms and feet Aggitation ( during an episode if someone was talking to me I wanted to really yell at them 'Just shut the **** up! You're doing my head in!) Feelings of madness (actually wanted to run away from my own mind) Pins and needles/Tingling in my hands and feet Electric shock like surges going through my body (my nerve endings were obviously suffering) Muscle tremours/shaking (mainly arms and legs) Eyes became extremely light sensitive Heightened awareness of sound Insomnia Terrible nightmares Depression Feelings of detachment from the real world. Visual disturbances Episodes of blurred vision These symptoms did not appear straight away but appeared gradually and with more veangance the longer I had the coil. The more concerning episodes I experienced happened after about 3 months and very erratically. I could not predict when or what time of day I was going to have an episode or pinpoint any reason for bringing on an attack. I had no control over the effects, was absolutely petrified when I experienced a panic attack and just had to ride it out. All my G.P. did was prescribe me anti-depressants to which I reacted badly. Blood tests also failed to show anything abnormal. I even tried herbal medicines as an alternative and experienced similar reactions to the prescription drugs. I've now become very pill-phobic and would rather ride out and get over symptoms myself. Paracetamol & Ibuprofen being the only medicine I trust to take now. I had a horrendous year and everyone suffered. Not only my family, but I was signed off of work for 3 months. It was a very worrying time for my husband and my children, who all had to keep an eye on me and witness the effects of my symptoms. On looking back now, I don't know how I managed to function at all and even do my job. Most of the time my energies were spent concentrating on trying to appear normal and held-together to the outside world. Although I feel 100% better in myself, I noticeably experience more migraines and headaches than I ever did in the past, along with palpitations, usually during my week before. Two days before it I often really feeI like I'm losing the plot! I also really bloat up now a week before my period, feel sick and have a feeling of being ' very full', so am hungry but don't really want to eat. One of my big toe-nails has gone black over the past few months and not through injury. This has just been sent away for analysis. The one on the other foot is raised/ridged/thick/yellow, but normal growth has resumed half-way up now, which I feel co-incides with the state of my health on having Mirena removed. The nurse I saw recently explained that it is true that nails and hair show the history of our health so, for me, this would seem true. I wish I'd been made fully aware of all possible side-effects of this medication and am now actually concerned that the effects I've suffered may have left some permanent damage. In spite of all this, it's so good to be me.
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Reply 7 months ago on Apr 09, 2009 by candacef83, #18728

i have had every single side effect that you mentioned, and i mean every single one.. 2 months ago i went to hospital because the entire left side of my body went numb, it also felt like there was shock going through my brain every time i moved my eyes.. i had to have a ct scan and it turned out that everything was fine, i told them that i had a mirena and not one of the 3 dr's i that i saw said that it could be the culprit... i had it removed on friday, i am still not back to myself but i am sure it will take some time asi had it for over 3 years... i never even thought that the iud could be to blame for all my problems, not oncce did it cross my mind, i just thought that i was crazy... my whole life i have had anxiety but since i got the iud it has gotten so much worse, it is so bad that i had to stop working, i hate leaving my house now, going out with my girlfriends something i enjoyed so much is now something i can't stand doing...
anyway thank you for posting your story, it is important to women to know that they are not crazy...
just one question after you had the mirena removed did you have bleeding?

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Reply 7 months ago on Apr 09, 2009 by hopefulnow, #18732

Wow, you did have it bad....

i had mine taken out nearly two months ago.. it took me four weeks to the day for me to have a period, it then lasted a week, it was heavy but manageable.... luckily i didnt have the huge clots that others have mentioned... i think i am due on again, the dizziness has returned with a vengence, i feel like i did when i had mirena in!!!

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Reply 7 months ago on Apr 14, 2009 by anxiousmother, #18893

I am so grateful for your posting. You have probably changed my life. I am a single mother of three small children under the age of six and I have not been the best mother I could be since they put this device in. Every sympton you described is what I am feeling. I have had palpitations for the last week, and high levels of anxiety that made me want to crawl out of my skin. My best friend of 18 years (a male) has even noticed the change in me. He has heard me at one point or another complain of backaches, depression, joint pain, headaches, moodiness, tingling in hands and feet. He even says that I have not been the same person in the last 5 months. I had it put in 8 months ago. I am so relieved that there is a chance to get my life back. I have been so scared that there was something so wrong with me. Because of you, I am not going to take the long road around this. I am not going to let a doctor call me crazy. I have always been a full a life person even through my divorce and I have become a person who wants to just quit. Thank you.

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Reply 7 months ago on Apr 16, 2009 by isabell320, #18927

hello please let me know how you have been feeling since you had the mierna removed!!! i have the same effects and also the toe thing!!!! i still have mine in after a 1 year and i'm calling dr today after reading all about this.

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Reply 4 months ago on Jul 04, 2009 by domstar3, #21160

This is the perfect explanation to the symptoms I've had. I have had every single one of these. I've also been hospitalized for them, and my doctor thought I was going crazy! Thank you, for making me feel like I am not a hypocondriac, and other people are going through the same thing!

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Reply 2 months ago on Sep 14, 2009 by marz76, #22972

i feel the actually the same im gald i read this im now going to have my removed horrible experince never again thank for posting this as it has helped me to deciede to get it removed i thought it was just me feeling like this

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