Welcome to Medications.com

I am a 42 year old woman. I started taking Topamax in March of 2...

Posted at 12: 3 PM on Apr 10, 2009 by gskinner, #40523
I am a 42 year old woman. I started taking Topamax in March of 2008 for severe migraines. The migraines often caused vomiting and for my body to jerk similar to having seizure. I have had migraines for the last 15 years, but prior to starting Topamax I was having migraines almost every day (for about 6 months). My life had come to a stop. I had been through all of the neurological tests, and CT scans, etc. with no results. Topamax has nearly halted my migraines. I have a severe "head-ache" about every 6 weeks now that last 3 days. A huge improvement! However, my doctor had said that I should not be on Topamax long term so I have tried going off of it twice in the last year, each time on the 5th day to be hit with an all consuming migraine. I had come to this website to find out why I should not be on Topamax long-term to discover that many of the other health problems that I have been complaining about in the last year are probably a result of Topamax and the doctor did not ever suggest that was the case. I have TINGLING IN MY HANDS AND LIPS...the doctor thought this might be my thyroid, but that test was normal. I have had REDUCED VISION, the doctor said it is due to age and working on a computer all day. I have had JOINT PAIN which they are treating with an anti-inflammatory and suggested it’s probably the onset of arthritis. I have had WEIGHT LOSS, SHORTNESS OF BREATH, and the PAIN IN THE BACK OF THE HEAD. These are all things that I see others describe as symptoms of Topamax! Wow! I wish my doctor would have told me this so I didn't think there was something else wrong. I WILL NOT STOP TAKING TOPAMAX. Even if taking Topamax meant that my life would be 2 years shorter or something like that, there is no living in that kind of daily pain. But I am grateful to know that the symptoms are normal. Topamax has giving me back my life.
REPLY TO THIS POSTING | Private Message me | Add as friend | Flag as inappropriate
 
Reply 7 months ago on Apr 13, 2009 by topamaxsurvivor, #18822

You are very lucky. I had most of your sysmptoms too. It is too bad doctors do not read the basic imformation sheet what comes with the drug from the manufacturer. I had a severe psychotic reaction that occurs in 1% of patients on Topamax. If I can find this information with little effort after the fact, why the hell don't doctors pay any attention to what they are doing? Anyone taking any new medication should consult a copy of the PDR since the doctors don't bother.

Private Message me | Add as friend | Flag as inappropriate
 
Reply 7 months ago on Apr 20, 2009 by dlb, #19033

Hi all I understood the relief Topamax can give for severe headaches as this was the cause with my daughter. However, please be aware at what cost that relief is going to cost you. Topamax can cause severe vision problems. My daughter recently was dx with acute glaucoma and TOPAMAX can and has caused permanent BLINDNESS!!! Good luck and know there are other medications that can help with headaches such as Frova.
Best Wishes

Private Message me | Add as friend | Flag as inappropriate

Make a reply to this posting:

Type your reply to this side effect post:


Medical advice disclaimer
© 2002-2007, Skylabs Inc.  |  About Us  |  Disclaimer/Terms of Use  |  Advertise  |  Contact Us  |  Site Map  |  Developed by: W3matter.com | Sleep Apnea