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I've been on the fentanyl patch for almost 3 years. I started on ...

Posted at 11:22 AM on May 02, 2009 by sherrih41, #41123
I've been on the fentanyl patch for almost 3 years. I started on the 25 patch, then went up to the 50. Now I've weaned myself back down to the 25 patch. I was put on it for chronic back pain caused from a car accident. I'm determined to get off this drug, so any and all suggestions are welcome! In the last few months I've been experiencing some odd side effects that seem to be becoming worse by the day. Firstly, it seems like I can feel the effects of the patch more so, like when I first started using it. I also started experiencing nocturnal problems, my legs in particular felt like they were burning up and the muscles were really tight. If I stretched them it only seemed to worsen the problem. The only solution, weirdly enough, seemed to be jumping into the tub for a half hour. In the last couple of weeks I have been experiencing MY FULL BODY HEATING in the middle of the night, as though it's the middle of summer in the middle of a big heatwave. I move around on the sheets and try to find a cool spot. I manage to sleep for only minutes at a time. For awhile this was only happening the second day with the patch (I only wear it two days at a time). Now it's the first and second. It's disrupting my sleep and I'm exhausted. My doctor gave me some sleeping pills which worked rather well but now I've run out and I really don't want to start depending on another drug. I NEVER should have started on this drug and though it does work and work very well for chronic pain, I still highly recommend finding any other option out there for dealing with your pain. The withdrawal effects are horrendous. The first time I went through withdrawal I could not believe how terrible the symptoms were. Vomiting, diarreah (never could spell that one right, lol), and the pain was amplified times 100. My Doctor seems to not understand how scary it is to even contemplate getting off this drug, the withdrawal is that scary! I managed to get down a patch size by cutting a tiny sliver of the plastic backing on the patch (NOT THE PATCH ITSELF!!!! The backing that you remove!) and sticking it on the patch before transferring the patch to my skin, so in essence, I was blocking out part of the patch and just made the plastic a little bigger until I had finally blocked out half the patch at which time I went down to the 25 patch with zero side effects. I'm on percocet for the fallout pain and take up to 8 per day, although some days I can take as little as 3. After I'm off the patch I'm determined to get off of this drug as well and learn to manage my pain in a different way.
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Reply 6 months ago on May 02, 2009 by propsguy, #19436

please try accupuncture. western medicine is not very good with chronic pain, except as you well know, with chronic drugs. other healing traditions are more effective, less destructive

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Reply 4 months ago on Jun 30, 2009 by jb123, #21060

I hope you are doing OK! That was pretty clever of you on reducing your dosage with the protective covering. My husband removed his patch 2 days ago, after we reduced him from a 50 to a 25. He did the 25 for about a week. We were worried about the dog finding it on his leg while he was sleeping at night, especially since they always don't stick to your skin. One morning we woke up and found it balled up on the floor. Thank god the dog didn't find it before we did! I went into a total freak out and told him these patches have to go. So far, so good, just some muscle pain. He started taking the patch, because all the pills were giving him stomach spasms, so we thought. We finally figured out it wasn't the pills, but an inflammation of his abdominal artery pressing on his spine. The doctor prescribed prednisone for his inflammation and all the pain went away. Now our next task will be prednisone withdraw, when the doctor starts reducing his dosage. I went out in the garage the other morning at 4am and found him rotating the tires on my car! He had been suffering from backpain for 6 months 24/7. He is now making up for lost time! He needs to slow down before he really hurts himself. He's 68 years old!
JE

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Reply 4 months ago on Jul 10, 2009 by joeprinter, #21371

I have been on the patch for 8 years currently still @ 75 I too have in the past tryed to get off , for me, its not worth it the withdrawls is terrilble, The patches for me still work however I do change them more often @48 hours. I try to change at night then any side effects are limited since Im sleeping an feel rested in the AM, but I still sleep 12 hours a day even at the lower dosage of 75 mgh.

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