My 3 yr old son has been taking Singular for about 1 1/2 years. H...

My 3 yr old son has been taking Singular for about 1 1/2 years. He has been diagnosed with eosinophilic esophagitis. That dx came after an upper endoscopy. From about 10 months until starting Singular he vomited after every meal. Eventually had failure to thrive. He was on the Singular about 1 wk when he stopped vomiting. I am scared to take him off this med because it seems to work for him (with decreasing the vomiting). It doesn't actually decrease the eosinophils in his esophagus but somehow stops him from vomiting.He is a more difficult child but it is all we have really ever known from him. By difficult I mean- overly emotional, has trouble controlling impulses, occasionally mean. Does anyone have insight?