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I had my last of 3 Lupron injections in March of 2003. I am stil...

Posted at 12:29 PM on Mar 23, 2004 by mlange2, #4142
I had my last of 3 Lupron injections in March of 2003. I am still having mild symptoms that I think are the result of the medication. Initially the Lupron wasn't really a big deal. I had blurry vision/dizzyness for about 2 weeks during the 1st month, but I didn't have hot flashes until the 2nd injection and thought it was going to be a breeze to get through. We all read such terrifying things when researching Lupron and I did the same. After my Myomectomy which was in July of 2003, I began having much more dramatic symptoms. I eventually lost all sensation in my hands, had swelling in them and couldn't really pick things up or type at my job nor wear my wedding ring. I had traveling parasthesia throughout my body, in my arms, legs and feet, but the worst was my hands. The parasthesia lasted until about December of 2003. I still occasionally have the same sensation in my arms or legs but my hands have finally returned to normal. I've had 2 MRIs in hopes of ruling out MS (parasthesia is a very common side-effect of MS) but am stilling working with a neurologist based on the symptoms I've had. Doctors aren't convinced of the strength of Lupron. I still think that the Lupron caused these symptoms but there is no way to prove it. Anyway, my advice to current and possible Lupron users is to, as strange as it seems, stay positive. It is hell during and unfortunately can stick around for quite a long time, but I am finally starting to get rid of the symptoms I've experienced, and I have tried to keep a positive mental picture throughout. I really thought I might never be able to use my hands again, it was very scary, but things are very gradually getting better. It took me about 6 months to have a regular cycle again, and I now believe that our hormones are powerful! I think it just takes a while for everything to return to normal. Good luck!
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