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Have been on Welchol for IBS for many years. It stopped my IBS s...

Posted at 3:59 PM on May 14, 2009 by threefifteenam, #41478
Have been on Welchol for IBS for many years. It stopped my IBS symptoms but does cause constipation. I try to eat healthier in order to help with that. About 3 months ago, I began having pain in my fingers. I thought it was probably due to carpal tunnel syndrome. In the last two weeks, the pain intensified and spread to all the knuckles on my hand; I also had swelling and redness. The pain then spread to my toes, the rest of the bones in my feet, wrists, elbows, shoulders, knees, and ankles. Next came stinging and burning and then sporadic numbness. By late afternoon, the fatigue was incredible, and I would become dizzy. I went to the doctor, and he ran every blood test available. Everything came back normal, which was great, but my doctor couldn't pinpoint what was causing my problems. He said none of my medicines would cause such symptoms. My boss asked me if I was taking any cholesterol medication, and I told her I took Welchol for IBS. She said she had read article upon article connecting cholesterol medication to joint paint and encouraged me to check online to see if I could find any answers. This site was one of the many I found where other people mentioned symptoms very similar to my own. My boss suggested I mention this to my doctor. I was thrilled at the prospect of finding such an "easy" solution since my other medications are not easily replaced. My doctor instantly said that there was "no way" that Welchol could cause these symptoms since -- as so many of your doctors have told you -- that it is not absorbed into the bloodstream. However, he approved my stopping Welchol as an "experiment". I noticed that many of you mentioned it took a few weeks or more for the symptoms to reduce. My doctor warned me again that this was not the solution and that in a couple days, he wants me to consider taking Neurontin or going on a sedative for stress. He thinks, since all the tests have come back negative, that stress is the real culprit. I know that stress can cause many health problems, but it just seems too coincidental that so many of you have experienced the same symptoms I'm facing. Do you think I'm making the right decision? My symptoms are difficult to cope with at times, but they are not incapacitating. I would really like to try staying off of Welchol and see if it helps in the weeks to come instead of adding yet another medication to my list. I would appreciate your advice and thoughts. Thank you for your posts -- they have given me real hope for a solution.
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Reply 4 months ago on Jun 24, 2009 by threefifteenam, #20919

I have been off of Welchol for 6 weeks now. My symptoms have not improved, so it was not the culprit. Am glad to be off at least one of my medications, though, anyway, and am going to try to eat better so as not to aggravate the IBS.

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