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My symptoms started with aches in my ankles and I thought I shou...

Posted at 2:10 PM on May 18, 2009 by trlee, #41573
My symptoms started with aches in my ankles and I thought I should stop wearing heals for a while. But then the tingling pain moved up into my lower legs and then my arms/wrists over a period of a few days. I felt like I was having constant shin-splints. I was heavy joint/muscle pains. Then the back of my head hurt really bad on the left side, just at the top of my neck/bottom of my head, and was also really sore to the touch. Then massive headaches. Probably migraines, although I have never had them before. My MD immediately put me on celebrex, which did nothing. I was eating Advil and Tylenol like candy and couldn’t sleep. So the doc put me on steroids (prednisone). That took the pain away. After a few days, while at work, the vision in my left eye went in and out (perfect vision to completely gone). I have never had any issue with my eyesight before - perfect vision. Then at one point (actually while I was in for my first MRI) my vision never came back. No one thought it was serious enough until I demanded to go to the hospital. I spent three days in the hospital, where they ran tests after tests (including MRI, Lumbar Puncture, blood work, neurological tests, echogardiogram, dobblers, etc). Upon leaving the hospital actually diagnosed me with Optic Neurosis, and gave me a 15% chance of getting MS later in life. We were all relieved it was not MS, like they originally suspected. After going to the Eye Dr, they told me that was not the case. This kind of eye stuff only happens to people in their 80’s! I will never regain my vision. If my diagnosis had been optic neurosis, it would not explain the joint pain. I have seen specialist after specialist over the last two months, and they still have no idea. Every test I have undergone has come back clear and I am perfectly healthy. My doc said we might have to go with the retinal specialists theory - which was a piece of cholesterol that clogged the artery in my eye. I just don’t get why a piece of cholesterol would have caused me so much pain over the rest of my body. After viewing this site and the Mirena pamphlet that I found online they give to the doctors, I really think it was the cause. The packet even notes, if you have symptoms like visual loss and headaches/migraines for the first time, to remove it immediately! I did not get mine removed until a month after my vision loss. Every doc I have seen I have asked if it was Mirena and not one of them thinks that could be the cause. But it is ironic, that when you see someone for the first time, the first question they ask is if you are on birth control or any other medications! I think I need to show them this site, so they can read other women’s symptoms. I did also have all the other symptoms as well - weight gain, irritable, oily skin, cramps, moodiness, vaginal odor, gross discharge, headaches, nausea, low sex drive, hot flashes, anxiety, restlessness at times, fatigue, and the list could really go on and on.
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Reply 5 months ago on May 18, 2009 by lisa0819, #19925

Hello,
Your not alone! When did you get your Mirena put in? When did you have it taken out? Are you feeling better?
I am post-mirena since April 30, 2009 and am right now having tingling in my lips. I thought my side effects would go away!!!!
I had the mirena put in Oct. 2007 and nursed my daughter for a year until Sept. 2008. Just the last 6 weeks started having these symptoms and went to my MD/Osteopath because when I called my OB-GYN she said it has nothing to do with the mirena and to see my regular MD. He has been fabulous and I have had several tests that I have listed as well as taken the mirena out! (Looks similiar to your list)
My symptoms:
Lower back pain
tingling in my arms, feet and lips
cramps
I had my mirena taken out on April 30, 2009 and am just starting to feel better post mirena. I had these tests:
* MRI on back/spine
* MS test(Vision Evoked Potential)
*blood work
*Thyroid (it's been low since Oct. so I'm taking Synthroid)
*Vitamin D
ALL NEGATIVE ...Thankfully!:)
You never know....I just pray I continue to improve and get my life back and feel healthy!:)) From other posts it sounds like it takes a little while. Does this sound familiar? All the tests we've had sure are hard on the nerves. I have a 20 month old daughter who is my joy and this has been so hard to deal with. Another great resouce is cure zone.com...There are several posts that sound identical to us.
Please respond....

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Reply 5 months ago on May 26, 2009 by lisa0819, #20115

How long did you have your mirena in before you started feeling the weird symptoms? I have posted earlier with very similiar side effects and been tested for MS ...negative:) Cheers! I still have a little tingling in my face and it moves around "post removal 1 month and feel alot better"
How are you feeling and are you Post Removal??
Lisa

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