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I've been searching for answers on LONG TERM side effects of Lupr...

Posted at 11: 3 AM on May 22, 2009 by dcurtis, #41689
I've been searching for answers on LONG TERM side effects of Lupron hoping that it could give me answers as to what's going on in my body now! 23 yrs ago my fertility dr. gave me Lupron to inject MYSELF EVERY DAY (experimental back then). I had SEVERE endo since the age of 16 and was fighting that as well as trying to get pregnant thru invetro. I was 26. At 29 I had an emergency hysto. Now at 48plus I have chronic tendonitis where the tendons will shred off of the joints. I have been diagnosed with C spine and T spine disease, osteoarthritis and a mystery that I'm going to have to go to the Mayo to figure out (hopefully). I have tumors that are growing in my lower back...growing around nerves, tendons and bone, They aren't sure why they are there, why they are growing, or even what they are. Surgery removed 2 of them...but pathology shows foreign matter other than tissue/bone. All they DO know is that it is not cancer. One year ago I started losing weight (25 pds) for no reason. I'm now holding my own at 112 and hoping to figure all of this out. I can't help but wonder if Lupron or any other experimental drugs I was on has something to do with this. Is there anyone out there that used this drug so long ago??
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Reply 4 months ago on Jul 04, 2009 by mar40, #21163

Just wanted to share with you a little bit about my expierence with Lupron
injections. I Decemeber of 2007 I was diagnosed with a Disease called
Benign Metastatic Lieomyoma which is a very, very rare form of cancer.
Doctors told me that the only way they could describe this disease was that
my tumors were benign but they spread and act like cancer. My disease
spread to my lungs and now I have very small lesions in my lungs, liver and
one ovary. I am being treated with Lupron injections and a drug called
Femara which is a drug that doctors use to treat breast cancer. All I can
tell you is that my body has not been the same. My side effects from the
drugs have been hot flashes,fatique, occasional body aches and weight
gain. My tumors have shrunk and I am just greatful to God that my treatment
does not require chemo. My doctors can not promise me anything, but I have
faith and I pray everyday. I am so happy to hear that your tumors are also
benign. My feeling about Lupron is that if this is the required treatment for
our treatment I will take it symptoms and all over chemo anyday. Good
luck with your treatments and keep a positive attitude.
our treatment

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Reply 3 months ago on Aug 03, 2009 by lriley70, #22021

I'm not an expert, but I do know that endo is just one on a list of autoimmune diseases and related problems, so if you have endo, you're more likely to get another autoimmune related disease (i.e. tumors, etc.) It probably has nothing to do with the Lupron and everything to do with your personal body chemistry/make up. I have endo, and Reiter's syndrome (thanks to a horrible surgeon). All the women in my family, on both sides, have endo or uterine tumors, along with Lupus, Fibromyalgia, etc.
Good luck.

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