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Thank you so much for all your posts guys!! I just googled Mirena...

Posted at 4:40 PM on May 29, 2009 by mommyof3beautys, #41862
Thank you so much for all your posts guys!! I just googled Mirena side effects today just trying to check ANYTHING that would explain my recent experiences. I sat her bawling while calling my doctor to insist it's removed immediately. I had it inserted in December after having baby #3 in October. I finally got my girl after 2 boys and a few miscarriages and wasn't certain what to expect. I am only 25 and didn't want something permanent or really any drugs put into me on a consistent basis. When the doctor pushed Mirena I happily said okay! Sounded like a god send. I have extremely high blood pressure and his strong sale point would be that it would remove the need for meds. Liar! My regular doctor flipped out when she found that he had removed me and of course, I went back on meds a few weeks after having it inserted, after 4 readings 200+/110+... amazing he didn't cause me a stroke. That should have been red flag #1 but I figured it was just an error in judgment on his part. I felt no pain with it going in and didn't cramp at all.. spotted for a few hours then it was over.. My first cycle lasted 2 1/2 weeks and the next started a week later.. All side effects I was warned of so didn't really concern myself. I started having phantom kicks (uterus contractions) and stabbing labor pains back in February which I figure was it doing its job trying to get my system on track. I had numbness and pain down my left side and would constantly find myself hunched over in pain.. The bleeding had slowed down so much that I was so grateful and just kept popping pain pills like candy hoping it would go away soon. These last few days have been a flu from hell. Can't leave bed, can't speak, constantly throwing up, loose stools followed by extreme constipation, achy muscle tingling skin.. you name it!! Went to the bathroom earlier and when I wiped, had a small bout of black blood.. Old blood that sometimes you will find at the end of your cycle! I checked the calendar and had indeed finally skipped a cycle.. The cramps and pains have been there as though I was going to start, but no bleeding for a week now.. So apparently to skip a cycle I'm going to be bed ridden with the flu.. I have a 5 year old, a 2 year old and a 7 month old who can't have mommy sick. This has been hell.. I too have experienced terrible headaches, stomach pains, DEPRESSION, short fused tantrums, sitting and crying for hours on end, no passion for life, numbness of limbs, tingling skin, sinus infections, yeast infections, temporary blindness and now spots in my eyes which aren't regaining vision, 5 months ago I dyed my hair and it came out by the chunks, now that the dye is gone, I'm still losing hair and have bawling spots which I blamed on the dye.. Now I wonder..I also look like I'm about 6 months pregnant and people keep asking.. I HATE IT!! its been devastating to my self esteem. I lost so much weight after my boys so I blamed the weight gain on having a girl.. Now I wonder about that too.. The weight is only about 10 pounds but ALL in my belly.. I wonder so much.. I got about 5 posts into this horrified before I called to insist it will come out.. I have to wait 4 weeks.. but I can't wait to find me again.. I'm gonna just stick with condoms until I get my body back. Thank you so much for speaking out on this.. I know the doctor is going to insist that it's not to blame.. but I now know better.. Thank you so much for helping me find answers.
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Reply 24 days ago on Oct 15, 2009 by butterscotch, #23581

I had the mirena inserted in October, 2008. My side effects weren't nearly as numerous as yours but still pretty serious.

For the first couple of months, mood swings. Crying at the drop of a hat for no reason. That's not like me. I'm not a cryer. Went through a sweating bout that lasted about a month. Sweat was just dripping from my armpits as I was sitting at my desk drinking a diet pepsi.

I did not have a period in March or April. My hands and feet started to tingle and go numb at any given time of the day. I had constant nausea and unexplained diarrhea everyday.

Then in May, I began to lose my vision. By June, I started seeing specialists. I went through the entire routine of scans (MRI's, blood work, spinal tap, etc.) and was diagnosed with papilledema (stage 3) caused by pseudo-tumor cerebri (cause - unknown).

I had my Mirena removed 2 weeks ago. A week later I got the paraguard. My personality has returned to normal. All of the other side effects have gone away - EXCEPT for the blindness. The optic nerves have been damaged by fluid retention in the brain and it is unlikely that I will ever be able to see again. I have remained on the diamox but with no results (for the better). Vision also has not gotten worse since the removal.

There is NO DOUBT IN MY MIND THAT THE HORMONES IN THE MIRENA CAUSED MY BLINDNESS.

Please holler out LOUDLY if anyone else has had this experience. I am just devastated!!!

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