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I've been on Topamax (100 mg 2x per day) for 5 years as mono ther...

Posted at 11:57 AM on Jun 03, 2009 by dylansmomlv, #41970
I've been on Topamax (100 mg 2x per day) for 5 years as mono therapy for epilepsy. I switched over from Depakote which was a *nightmare* and it has been great, no seizures. I've had the pins and needles, diminished vocabulary and memory, and intermittent eye twitching but this week my right eye (why is it always the right eye?) has started twitching almost constantly. It is frightening and embarrassing and I am not sure what I should do.. I guess it's back to the neurological drawing for me because I am not sure why it's happening now. Has anyone else had the eye twitching occur after long term use?
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Reply 4 months ago on Jun 23, 2009 by laurajane, #20885

My left eye twitches occasionally, sometimes for hours (have been on 800mg for nearly 5 years) but then many 'healthy people have twitching eyes. Yes there is some short term memory loss (my spelling is now so much worse, but technology is wonderful when I deign to use it), and extremity pain can be brutal and yes it is annoying, however, the benifits far outway the any of these things. I feel alive and free of chronic pain and disability, and so the trade off..nothing is perfect....we only search for a better way

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