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A year ago I was diagnosed with Sarcoidosis and began taking 50mg...

Posted at 1:18 PM on Jun 05, 2009 by travelseeker, #42037
A year ago I was diagnosed with Sarcoidosis and began taking 50mg Prednisone per day. The worst side effects in the beginning were weight gain, moon face, facial hair, hump-back neck, bruising (for example, just by my knees being together while I sleep,) excruciating joint pain and water retention to the point I felt my skin would split open. And poor vision which could have led to glaucoma, but an eye specialist put me on eye drops to reduce the pressure to normal levels. I've felt horrified and embarrassed by the change in my appearance but relieved that my sarcoid was being treated. I feel confident in my case that Prednisone was the necessary treatment. My pulmonologist, opthamologist and regular doctor all agreed on a course of treatment. But I really advise people to get a second or third opinion before they take it. A friend of mine was prescribed a weeks course of Prednisone for a severe sinus infection. Luckily she didn't have any side effects but I really question if it was necessary. I'd also like to stress that if you're on Prednisone and experience worsening vision, please see an opthamologist who is a glaucoma specialist because it can lead to blindness if not treated. And lastly, sorry this became a novel! I have been tapering off and I'm down to 20mg. But recently I've noticed my hair is thinning so much. I lose a ton when I brush it and it clogs the drain when I shower. Also my skin is shedding. When I shower and use a loofah sponge like I've always done and I lose layers of skin like a snake. I would really like to know if my hair will start to grow back when I'm finally off the Prednisone or am I going to lose it completely??
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Reply 5 months ago on Jun 17, 2009 by lajeanperry, #20727

okay im am starting to lose all respect for the medical field we go to our doctors and our lives are in the hands right? well i have been in severe joint pain and was not until prednisone and there reply is it cant be the steroids!!!!! OK WHAT i was fine and now i cant walk, muscle spasms, burning skin, and trust me there's more. I went back today and explain this to doc n he gave me depmedrol which is another type of steroid........... i'd just like to wake up without pain

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