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I was diagnosed with Factor V Leiden after experiencing bilateral...

Posted at 9:11 AM on Jun 06, 2009 by stormie64, #42061
I was diagnosed with Factor V Leiden after experiencing bilateral PE's in February 2004. Since then, I have gained A LOT of weight. Not that I needed to but dang. I am at my highest ever & nothing I do will make it go down. I am almost 80 pounds heavier than I was in 2004. Something is not right. I suffer from depression (have for more than 15 years). My medication doesn't seem to have the same effect. My joints are killing me so it's hard to exercise. A side note, shortly after being hospitalized for the PE's for a week, I noticed my hair thinning. Doctor told me it was because of the "shock" to my system due to having the PE's. I will have to be on Warfarin for the rest of my life. I turn 45 in November. Ugh. Has anybody had the same problem with weight gain? Is there anything to do about it? I feel I am at the end of my rope & slowing losing my grip.
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Reply 5 months ago on Jun 06, 2009 by hosey, #20411

I have been on warfarin sodium now for about 5 years. And myself will be on it the rest of my life, I have what they call as Q X Facter 5, In other words my blood stream will clot for no reason. I have not had any side affects on these pills either.

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Reply 5 months ago on Jun 07, 2009 by ziggy1296, #20443

i was on warfarin for one year after bilateral PE and experienced hair thinning like you did. i did not, however, experience the weight gain (i eat a low carb diet, so i'm not sure if that played into it or not). i do think warfarin has bizarre side effects that are not mentioned in the prescribing information, so i don't think you are alone in this!!! talk to your hematologist...i told mine about the hair thinning and she said she'd heard that from other patients. it might make you feel better to know that there are other patients that your doctor is seeing that have experienced the same thing. good luck!

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