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I had my Mirena put in back in June of 2008 right after I got mar...

Posted at 11:53 AM on Jun 10, 2009 by ameigh, #42171
I had my Mirena put in back in June of 2008 right after I got married. I, too, was lead to believe that the effects of the progesterone were purely "localized" to the uterus and would not cause any symptoms at all. Since then I've experienced SEVERE migraines and dizziness, loss of libido, greasy skin and hair, weight gain (size 6 to size 10/12), numbness/tingling in my feet, crying, irritability, and SEVERE brain fog. For the migraines, I went to a neurologist who wanted to prescribe me topamax and said the only major side effect is cognitive difficulties! HA!!! I already have the worst brain fog, can't remember anything, am tired.... rather..... exhausted all the time, and can't function. This Mirena surely works well as birth control, seeing as I have NO SEX DRIVE at all! LOL. But seriously, it's great not to have a period, but I knew something was wrong when I was needing medication (antidepressants for the mood swings, provigil for the fatigue, botox nerve injections for the menstrual migraines) for this medication IUD! Since no OBGYN believes me when I say I think it's the Mirena, I've began to think I was crazy and this was all in my head. So I started on the internet and all my symptoms sounded like MS. So I had thousands of dollars in testing including a full body MRI/MRA. Negative. Had ENT see me for the vertigo. Lots of tests. Negative. Anemic? No. Thyroid? Normal. HOW MUCH MORE DO WE HAVE TO SPEND ON HEALTH CARE TO FIND OUT WE ARE "FINE" WHEN WE FEEL THE WORST WE'VE EVER FELT??? Then I found this site!!! I think it's the Mirena now! So I want to get it out. But then on the other hand, I feel SO GUILTY that my husband paid $900 for it and I only kept it 1 year. That's expensive birth control! But then again, all the tests, doctor's bills, and feeling lousy cost more! (Not to mention that my doctor cut my strings too short so we can't "check" them each month so to be certain that my IUD is in place he makes me get an ultrasound every 6 months for $250!!!) My ONLY FEAR is that I will have this out and the symptoms WON'T go away and it was NOT the Mirena after all. Then I will have gone through the pain of putting it in, taking it out, and the cost of "throwing one away" and then what am I supposed to do? I'm 29 but in school and can't get pregnant for a few more years. I don't want to go back on the pill because the mood swings were terrible. But I never had migraines or anything on those, so why is the Mirena causing problems? Any feedback or encouragement would be helpful right now. I need advise!
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Reply 5 months ago on Jun 10, 2009 by krh2009, #20495

I've had Mirena for 9 months and feel exactly the same as you. I told my doctor about depression/mood swings (said it was post partem depression), heart palpatations (she referred me to a cardiologist who I've seen off and on and wants to put me on heart medication at the age of 28), dizziness that included blacking out and movements similar to seizures, joint pain, headaches, acne, the list goes on. The last time I saw her I even said, "this is weird, before I was pregnant I was so healthy now I just feel like I'm falling apart". Well, last night I started having vision problems so badly I was having blind spots and blurring in my left eye. Our insurance has an "on call" nurse who told me to go to the ER. I kept saying I was fine but my boyfriend didn't believe me and starting looking into side effects of Mirena - finding nothing in the package insert or on their site related to these issues, he came across this site and many more like it. I called my obgyn's office and am having it taken out today. Like so many other women, I'm hoping to see results in the next few weeks.

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Reply 5 months ago on Jun 10, 2009 by rynn, #20517

I have had the same symptoms and my doctor said that it could be post partum depression,I even went to a pshycologist who put me on anxiety meds.I had enough with it and had it removed about five days ago and I have not took any meds and I feel I am regaining my old self already!I feel taking it out was the best decision I have ever made!Hope this helps,Rynn.

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Reply 5 months ago on Jun 11, 2009 by red1964, #20534

If you didn't have these issues prior to getting the Mirena, then you can feel quite certain that it is the Mirena causing them. I am older than you, 42 when I had the Mirena installed. I had it for just 5 months but had all the side effects you are having. Dizziness, fatigue, serious brain fog, the foot tingling, even heart palpitations....very, very scary. For some of us, this progestin does NOT stay local. My blood test results showed that! A lot of these symptoms have to do with low estrogen, an imbalance caused by this thing. I had it removed and little by little I started to feel better but I tell you, it took the better part of a year to feel "normal" again....but it screwed up my hormones so much that it thrust me into premature menopause at 43. Had I hoped to have more children, this would have devastated me. Instead, I have to take HRT for about 5 years now until I am a more normal menopause age. Now when my patch is running low and due to be changed, I notice some brain fog creeping in...and the foot starts tingling again!! Who knew that was hormones?? My bloating also went away after removal. Hopefully you are young enough to bounce back from this....I don't regret having it removed. Good luck to you!

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Reply 4 months ago on Jul 02, 2009 by domstar3, #21122

I have had the Merena for 4 years now. I have 2 children and didnt want anymore. I have been depressed, irratable, fatigued, HORRIBLE anxiety attacks,migraines, numbness, tingling, joint pain, and just altogether feel like crap. I have been hospitalized for fainting, and have very low blood pressure. The doctors have found absolutely nothing wrong with any part of me... My heart, my thyroid, my brain... All that is normal. I have an appt Mon to get the IUD out. I am praying I become "normal" again...

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