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I am a female in my mid-to-late 30's. I was on Topamax for about...

Posted at 8: 0 PM on Jun 15, 2009 by maverhe, #42294
I am a female in my mid-to-late 30's. I was on Topamax for about a year. The memory, vocabulary, concentration, focus, loss of words and 'confusion' got so bad it became a real problem at work and the rest of my life. When I started forgetting how to get home, the neuro doctor took me off of it. Those problems decreased a bit, but never entirely disappeared. After weening off the medicine, the full-blown headaches/migraines returned (Topamax only moderately relieved pain). So now in addition to the pain in my head, I have the lingering sides-effects to deal with. It cost me my job. I've been off Topamax for over a year and still have not regained control of my own thought processes. Among other things, it's embarrassing because I feel stupid. I no longer understand about half of what I read, have trouble following (and remembering) conversations, habitually forget what I'm supposed to do/have done/am doing. Forget being able to follow a series of directions. I am afraid Topamax has caused permanent damage to my cognitive brain functions and I have no idea what to do about it. Has anyone else experienced this problem?
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Reply 4 months ago on Jul 03, 2009 by suzieq1958, #21139

Two years ago I stopped Topamax. I am on disability due to cognitive damage caused by the drug. I have difficulty with short & long term memory, have problems reading and staying focused, I lose track of conversations, I get lost, I have difficulty learning new information, have difficulty with spelling, math, typing, repeating words (spoken & written). I was in advanced placement math & English in college and was working as an executive assistant to the VP of National sales for a major publishing company, handling 80% of their major accounts when this was first prescribed. Two years later I lost my job.

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Reply 4 months ago on Jul 06, 2009 by isamused, #21227

http://en.wikipedia.org/wiki/Hydrocephalus

Hydrocephalus may have caused the problems. I recommend that anyone who begins to experience any cognitive problems go off the drug immediately.

I just started it today and so far the only thing I have noticed is a bit of nervousness (very minor) and medium-grade nausea. I'm taking it in the hopes that it helps three things: Migraines, bipolar type 2, and quitting smoking. So I hope I don't have any of the bad side effects. I'm not going to go above 50 mg/day as I am highly sensitive to medications and they work for me at small doses. As it is, the amount I took today was only about 10 mg, a level most doctors would probably say shouldn't effect me at all.

I know there are many people who do fine on Topamax, but all people should be careful when taking any new medication. I research everything I possibly can.

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