I just recently posted about my experience with mirena and had th...

Nickel,

I also felt very alone until I found this site. Now I feel empowered. I have already begun to take action. I am a medical student and had the Mirena placed before I knew nuch about it. Now I know much more and even spoke with a Drug Rep 2 days ago about my problems, and he blatently stated "YES, WE KNOW THE HORMONES GET INTO THE BLOODSTREAM AND MANY WOMEN ARE TOO SENSITIVE TO PROGESTINS AND CAN'T HANDLE THEM." I was relieved to hear someone own up to it. I was also PISSED they admitted it AFTER I spent the money and suffered terribly.

I gathered literature from him, other OBGYNs which I work with, and have initiated a research study. I just created www.MirenaResearch.com which will be up and running in a few days. I am going to post surveys and ask women around the world to submit their response. With that, I can use data to demonstrate that WE ARE NOT CRAZY AND THERE ARE TERRIBLE SIDE EFFECTS WHICH *MAY* OCCUR IN *SOME* WOMEN USING MIRENA.

I will formulate a manuscript to submit to medical journals, as well as submit the findings to Bayer. Since the 72-page document I found from Bayer's research on Mirena demonstrates MANY KNOWN SIDE EFFECTS during their clinical trials, but NONE OF THEM WERE LISTED IN THE PATIENT PAMPHLETS, this clearly demonstrates lack of disclosure. If I can work with them, perhaps a settlement will come.

I will post more about this one my website. In the meantime, good luck to you. Also, feel free to email me at MirenaResearch@aol.com. Perhaps I could use your help with getting the word out about the website. In order to have any impact, medical research must have a "broad representation" of the population. This means I will need hundreds of women to complete the survey... both those who DO and DO NOT like the product. (Fair and Balanced). I think the only way to do this is to get the word out about the website by:

- posting flyers
- radio announcements
- email forwards
- calling OBGYN offices and requesting permission to have the pts told of our site
- word of mouth

I can use all the help I can get on this one!

Take Care!