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Hi all! Was just reading through all your experiences with the Mi...

Posted at 3:30 PM on Jun 18, 2009 by afuller03, #42374
Hi all! Was just reading through all your experiences with the Mirena IUD, and let me just tell you, I am so happy I found this site! I had my Mirena IUD inserted about 6 weeks after my son was born (he will be turning one next month). I noticed my world literally falling apart within the first week of having it in. Of course when I talk to my Doc about what I've been going through, she says there is absolutely no link between my symptoms and Mirena. So then tell me why I am reading all your stories and it feels like I am reading my story back to myself? We can't all just be crazy here!!! I mean, some of my symptoms are so dead on with what others have shared, and the only thing in common is that we all have/had the Mirena IUD!! I honestly think people think that Doctors are Gods and that what they say is the word. Don't get me wrong, it takes a lot to be a doctor, and there are many many great ones out there, but in the end, you know your body more than anyone else!! So anyways, going back to the hell I have been dealing with: Within a week of having my Mirena put in, I got a MAJOR kidney infection. I have never had any problems with my kidneys whatsoever. The infection got so bad (I had no idea what it was) that I almost got Sepsis from it, which can be fatal. Since then, I have had 2 more kidney infections, as well as passed a kidney stone (which may or may not be related). Also, within that first week, I went from being a happy, active, energetic human being to being depressed, moody, panicked, weak, lethargic, and EXTREMELY fatigued all the time. I look in the mirror and don't even recognize myself anymore: I can't keep up with my son, the housework, cooking dinner and taking care of my family. I have watched my whole world literally fall apart. My partner and I split over a month ago, and I lost my job. I feel like the most worthless person on the face of the planet. I feel so horrible for my son because I just can't do the things he wants to do. All he wants to do is play, and I just can't do it. I can't be a normal mother to my child because I have no energy at all. I feel tired and weak CONSTANTLY, and just getting out of bed in the morning takes an act of God. I have to nap when my son does, because if I don't, I won't make it through the day. Even when I do get my naps in, they are not energizing naps, they are just to keep my head above water so that I can at least do the bare minimum to take care of my son. This is the complete opposite of the person I once was. I used to love life! I used to run and hike, and treat the world like it was my playground. Now all I do is sleep, and schedule my life around sleeping and just try to get by. The depression and anxiety attacks are new to me too. Some days I am in such fear of the anxiety attacks that I don't even leave the house. I have become a total hermit, and it's not fair to my son at all. I have also experienced pretty significant weight gain, and am still gaining. I have always been very fit, active and petite with an average weight of 110, and now here I am pushing 130! That just is not me!! With my small height of 5'3" it just doesn't look right. No wonder why my husband doesn't want me anymore!! I'm chubby, I sleep all day, I'm depressed, moody, and afraid to get out of the house!! I would do anything to have my life back. I would do anything to have my family back!!! That's why I ended up coming across this site in the first place. Like so many others, I have spent hundreds of dollars going to the doctor, and having all these expensive tests done just trying to figure out what the hell is wrong with me! You name it, and my doctor has tested for it, only to have everything come back looking fine. I can't even begin to tell you how extremely frustrating it is to sit there in my doctor's office feeling the way that I do, and knowing something is definitely not right, only to have her tell me, "You're fine. It's all in your head. Take this anti-depressant and you'll feel better." So, my initial intention was to go online and try to find some tips on how to increase my energy level, and suddenly all these links started popping up about Mirena and chronic fatigue. I started reading your stories on here and it was like a light suddenly went on in my head! And for the first time in almost a year, I felt the relief that I have been literally praying and praying for!! I have already called my doctor's office and made an appointment to have the damn thing taken out next week! I am actually excited for it! I keep thinking: What if this is it? What if this is the reason why I have been feeling so bad? What if they take it out and I become ME again? The me who used to camp and hike and fish and run and hold down a freakin job and play with my kids and take care of my family and have passions and hobbies?!!! What if??? Well, I am going to find out! I will post again and let you ladies know how it goes! If it does turn out that it was the Mirena that caused all this, you bet your booty I'm gonna be the world's biggest advocate on getting that thing pulled off the market!!!
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Reply 5 months ago on Jun 18, 2009 by calybo, #20761

Hi afuller03,
Just read your post so sorry to hear what you're going through. I don't want to discourage you but.... it has been 9 months since I had mine removed and have just started feeling "normal". Although the weight gain is still an issue. My symptoms didn't totally disappear after removal but they started getting better. It was the anxiety type symptoms that continued for me. I finally went to get accupuncture because all the conventional doctors could not figure out what was up and were trying to put me on anti-anxiety meds.
that is when things really started to turn around for me. I also went to a holistic health clinic where they actually tested my hormone levels and found that my progesterone levels were extremely low. They believe that the synthetic hormones in the mirena caused my body to not produce what it should on it's own(Hormone imbalance). It has been a long hall, believe me. I wish I had been a little more aggressive in dealing with my health problems right after removal. I thought that just removing it would be the cure, but I needed help to get to where I am now. I remember when I posted back in October '08 that I got a reply back from a woman who said she could have written everything I had word for word about her experience with Mirena and she said that she was 11 months post removal and was just feeling 95% better. It was kind of discouraging at the time but it has comforted me these last 6 months or so knowing that the road to well- being was longer for someone else as well. Keep your chin up. And if you continue to not feel quite right, be aggressive about seeking help. And seek outside the conventional medical circles. Best of Luck!!!!

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