I was diagnosed with ILC August 2007. I had bilateral mastectomy w/ reconstruction, chemo and started Tamoxifen. Then I had a hysterectomy and I started Aromasin about six months ago. Prior to starting Aromasin I had some muscle and joint pain from Tamoxifen but I could tolerate most days. Three months into Aromasin, I couldn't get out of my car. It literally took me 15 minutes one day and I had to trade cars with my daughter. Naproxen gave me upset stomach, ibuprofen wasn't enough, Tylenol wasn't enough, Hydrocodone kinda helped but makes you feel weird. My doctor decided to take me off of it and i haven't taken anything since. My side effects were: extreme stiffness, better with motion but joint pain was so bad i didn't want to move. I have been documented as having overall generalized weakness as a result. My doctor said Aromasin shouldn't make me feel this way but why is it doing this to everyone else (mostly) too? I am now being evaluated by a rheumatologist for arthritis. My joints still hurt so bad. I gained weight, cant concentrate, can't sleep, can't wear my shoes. my ankles hurt the worst after being on my feet. My ankles, knee joints, hip joints, neck, elbows, wrists, fingers, toes and jaw are all very painful now.
If i would have known all of this, i never would have had my hysterectomy and stayed on Tamoxifen. I can only hope at some point this will get better. I just pray the cancer doesn't come back in the meantime.