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I had a lap done last year in May and my doctor removed an adhesi...

Posted at 9:59 PM on Jul 17, 2009 by edanko, #43121
I had a lap done last year in May and my doctor removed an adhesion that was hanging above my uterus. Also a fibroid (3 cm) was found in the muscle and is located right against my bladder. My doctor could not remove the fibroid because of its location and because of a risk that I might have scar tissue and could be a problem to get pregnant. He also said that I could have some other complications, like lose a lot of blood. I feel like he is not being straight with me. I also have ovarian cysts which is common in the women in my family. Since a teenager, I always had really bad cramps and heavy bleeding. As I got older, it became worse. Before I had the lap done, I bleed for 6 weeks straight. I was changing pads every 30 minutes. Then my stomach extended so far out that I looked pregnant. I could not sit or stand. My husband had to take me to the E.R. An ultrasound was done and found that my uterus was enlarged (9 cm). I was put on Nothridone to control the bleeding and to treat endometriosis. After taking 2 months of this drug my doctor did a vag lap and abdomen lap. Everything was good that is what he said. I believed it. I was doing better. I was working and had no pain for 8 months. Then it all changed for the worse. I started to have really heavy menstrual bleeding and lots of blood clots. I felt week all the time and sick. The bleeding went on for 8 weeks and finally my doctor said that I had to take Lupron injections. I asked my doctor if he could just do a myomectmy and he said no because that was should be the last result. I could no longer stand the pain and I asked him what kind of side effects come with this drug. He made it sound like it was not bad and that there are very little side effects. He gave me a some information about the drug and I read the information and I did a lot of research. I was terrified but I had to make a choice. I was calling in sick because I could not work with the pain and worrying about embarrassing moments when my pads failed to keep me from overflowing. So I took the 1st shot in May along with add-bak therapy which is Nothridone. The bleeding tapered off slowly and the pelvic pain decreased. I did not feel any side affects right away until the second week. I started to forget things and would just stand in the middle of a room feeling confused. I always had headaches since a child but now they are pounding headaches, which I cannot stand any noise. I also can't stand the light. I have body aches like I have the flu and have problems with my right hip all of a sudden. I had a x-ray done because my doctor thought I might have fractured my hip. There was no sign of a fracture but my pelvis id tilted. I have some arthritis in my spine which I do not understand how that happened. Sometimes I cannot walk and I have to use crutches to get around. I cry all the time because I am extremely sensitive and confused. I use to be a very strong person and now I just cry all the time. I called my doctor to tell him what I have been experiencing and he said its all normal. I have already had a total of three Lupron injections and the symptoms just get worse. I have been spotting here and there, sometimes I have a pinkish discharge, and now the pelvic pain is back. My doctor knows this and he just says its normal. I requested for another ultrasound because I am worried something is wrong and he said that I have to wait until I get the 6th injection.I feel like my doctor is insensitive but he is supposed to be the best GYN doctor where I live. I also want to say that I have gained 20 pounds in three months. My sex drive is gone. My hair is thinning. I lost my job because I ran out of FMLA. This has been a nightmare! I am losing trust in my doctor. My poor husband and family are having to put up with what I am going through. I pray all the time to help be stay focused and think positive. I just do not know what to do anymore. Is there anyone out there that can give me some advice?
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Reply 4 months ago on Jul 20, 2009 by llk, #21698

You have got to be kidding me. Why why why haven't you seen another doctor yet? You quit your job, are having horrible side effects AND it doesn't even sound like your original issue has been resolved. What is it about this guy that is keeping you so loyal? I don't care what sort of reputation this guy has, he is not taking you seriously. You need to see another doctor (in a different practice) right away. When you call for an appt, say that you are "seeking a second opinion" as this will often get you in much quicker.
And I know this is a very sexist thing to say, but I find that for OB/GYN issues a female doctor can be more understanding and knowledgable. I've lived in several cities and always sought out the all-female practices. I'm currently doing IVF treatments, and it's the first time I've seen any men (or rather, they've seen me?) in over 25 years. The women are MUCH better with the ultrasound wand.

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Reply 3 months ago on Aug 10, 2009 by spidermum3, #22157

I know exactly how you feel. I had taken Lupron several years ago for "endo" and the pain in my legs is awful. I used to be an advid walker, now I can bearly make it one city block before my left leg, hip and thigh begin to ache like crazy. I know it's because of the Lupron.

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Reply 2 months ago on Sep 09, 2009 by kimmie_myjourneysofar, #22843

I am deeply saddened to read all of these posts! I have a dear relative of mine who is suffering due to Lupron shots as you all are! Same symptoms same everything!

I did not know much of Lupron until she contacted me. My family knows that all my life I have struggled with health issues so they call on me for advice. It casued me to research Lupron for months. I am so glad it did, bc I was not aware that Lupron was so MUCH like Synarel was for me in my youth (I am 44 now).

I was perscribed this new unheard of Synarel for endo. It medical induced menopause-shrinking my uterus to the size of a walnut. I didn't care much about all that bc I was in pain w endo & cysts and was having way too many laps done. So I took this Synarel! You sniff 1 shot in 1 nostril am, and 1 shot in other nostril in pm. Suffice it to say that day built up and led me to 2002 where I had my oopharectomy-salpingo total hysterectomy.

I am in surgical menopause - and ladies so are you!! That is why all the terrible, terrible side effects! Losing hair, arthritis, hip fracture, hotflashes, insomnia, no libido, prolapse, etc. Just look at your mom, grandma, great grandma - you are experiencing their (age) symptoms. And dr are saying that's a "normal" side effect of Lupron. Well of course it is your in Menopause!

THE GREAT NEWS is that there is help, answers, and health you just have to find it. I have been "finding" it since 2002 from all the resources I blog about and list on my blog (books, authors, doctors, pharmacies, websites, etc.). I am NOT a doctor just a woman who has been seeking answers to a life-long battle and who is FINALLY finding answers from those who have paved the way - Thank GOD!

I would be honored if you would visit my blog and perhaps empower and arm yourself with the same information I have spent years researching!

I wish you all health, happiness and peace in these terribly difficult times you are going thru - there is light at the end of this tunnel - DON"T GIVE UP!

Kimmie
www.kimmie-myjourneysofar.blogspot.com

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Reply about 1 month ago on Oct 21, 2009 by lupronvic, #23726

I had similar side effects please email me jlwinfo@nc.rr.com

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