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My son was put onto 4mg Singulair when he was three years old. H...

Posted at 2: 1 PM on Jul 28, 2009 by bronwynt, #43358
My son was put onto 4mg Singulair when he was three years old. He is now six years old. For the past three years he has been a very quiet child, to the point that people commented on how shy and withdrawn he was. He never wanted to go anywhere or do anything. His favorite activity was lying on the couch watching tv. He was always thirsty, frequently went to the toilet,often complained of a sore stomach & had several bowel movements every day, did not sleep well at night, was often grumpy, could not concentrate for very long, was frequently ill with cold-like symptoms and did not really like you to touch/hug him. At the beginning of the year he was diagnosed by an occupational therapist as having low muscle tone. In March of this year, his pediatrician increased his singulair to 5mg. He began having terrible pains in his legs, to the point that he would cry and be unable to walk to the toilet at night. I took him to my GP who did every blood test under the sun and x rays of his pelvis and legs. He could find nothing wrong. The only thing that had changed was the increase in Singulair. I had a look on the internet and found this website. I immediately decreased his dose to 1/2 a tablet for a week and then 1/4 tablet for a week before taking him completely off it. Within a few days our whole family and his teacher and therapist noticed a huge change in his personality! He talks all the time now, he laughs a lot, he loves playing outside and has lots of energy. He teacher says he is much more receptive at school. His occupational therapist says his muscle tone has improved. He has not had one single leg pain since coming off the medication. He is sleeping well at night, his stomach is never sore and he has not been sick at all. Not even one little sniffle!! Best of all he is a normal, affectionate little boy. I feel very angry with the manufacturers of Singulair and with his pediatrician, it feels as though my son has lost three years of being a child. He felt terrible all the time and I had no idea! I have told everyone I know who has a child on singulair to look at the side effects.
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Reply 3 months ago on Jul 28, 2009 by zsmom, #21876

I understand exactly how you feel - my son had a very similar experience with Singulair. Our children did lose years of their childhoods - and it is an outrage. There is no excuse for what has happened to them.

Please join us at www.parentsforsafety.org for comprehensive information about Singulair and learn what we are doing to help increase awareness of Singulair's side effects to spare other children from suffering like ours did.

While you're on our site, PLEASE report your son's adverse reaction to the FDA. The link to MedWatch is on our homepage. And don't forget to check the bottom of our homepage for different ways you can help.

Congratulations on making the connection. Now your son has a whole new life for you both to look forward to!

Jenna

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Reply 3 months ago on Jul 28, 2009 by momof1son, #21880

you are about to experience an amazing journey. it will be amazing to see your child recover from the assault of singulair. i can tell you from experience that it will take a full 3 weeks to see the most changes. you will start to see other things improve that you didnt even realize were connected.

my son was on singulair from age 4 to 7. it was after they increased his dosage to 5mg that it became loud and clear what was wrong. he suffered 3 yrs on singulair. i feel guilty every day for not recognizing it sooner but thankful every day for this website. when i made the discovery there were 700 side effects listed. i probably read every one of them in one weekend. now there is over 2400.

my son suffered from anxiety, restless sleep, nightmares, fears, leg / stomach pains, poor appetite, quick to tears, dark circles under his eyes etc... on the higher dosage, he began to have a facial tic, dilated pupils, hallucinations, cold sweats and extreme fears and anxiety. after discontinuing the singulair, he made an amazing recovery.

feel free to contact me if you have any questions or need support.

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Reply 3 months ago on Jul 29, 2009 by massmomof3, #21896

We, too, had an experience very similar to yours. My son started Singulair at age 3, experienced trouble sleeping, stomach aches and leg pains which we attributed to growing pains and/or stages of his development. He started out friendly and a little shy as a toddler and slowly got more and more shy, more and more withdrawn. When he started Kindergarten (also the dose was upped to 5 mg at this time) he almost stopped speaking in public and developed severe anxiety and his behavior became very irrational. At age six after he began obsessing about death we finally stopped the Singulair and saw a dramatic change, as you did - laughing and skipping - happy and sociable. Like you, we were angry and felt that our son had lost years of childhood. Please do report your experience and join us in the effort to publicize these dangerous and insidious side effects at www.parentsforsafety.org.

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