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Does anyone here ever had any tingling issues? I had total thyro...

Posted at 11:38 PM on Aug 01, 2009 by lubblady38, #43469
Does anyone here ever had any tingling issues? I had total thyroidectomy in Feb. 2009. Felt good the first month or two and have gone down from there! Some days are good, some are bad. Never know from day to day how Im going to feel! I started out for about a month and a 1/2 on 125 levothyroxin.....then my doc lowered it to 100.......as of July 14th, Im now taking .88. The tingling Im getting is all over my body, different places, here and there. Ive had some heart rate issues for a couple of months now too and finally had my regular doc send to me see a heart doctor. Thought maybe the tingling could be from low calcium.....it was normal, CBC was normal, ECHO was normal.....waiting on the holter test results right now. The heart doc gave me a prescription for Toprol. I told him I wasn't going to take it cuz sometimes my heart feels like its barely beating and Im afraid it will make it worse. Im glad I didn't get it! Ive read of too many side effects. Palpitations, kinda fast heart beat with pounding.....sometimes it feels likes its barely beating! Most of this occurs when first laying down......every now and then while sitting, etc. I do not exercise.....and should but just don't find the time. I switched jobs around the time I found out I had several nodes on each side of my thyroid. I was getting tired a lot and just thought i worked too much. I went from a physical job to a sit down, 12 hour, graveyard shift. Since the surgery, Ive felt it more. Im tired of feeling like crap all the time......I was already going thru some perimenopause stuff before all of this! Before I ever found out about my thyroid, I did have real light pounding of heart when laying down and tingling every blue moon, but very mild as well. Now with no thyroid.......and medicines with all the side effects......IM GOING NUTS!!! Right now the moodiness and tingling are whats bothering me the most. Some days Im really tired, others Im ok. My body gets hot off and on, no fever. The past 3 days my calves, feet, and ankles have started to swell........never before! Plus I get some throbs and pains in my legs and arms and under my arms here and there. I probably need a new doc and I change of medicine......but Im afraid. For one, Ive decided to go back to a physical job........and hopefully it wont screw with my heart rate even more. Ive read up on tingling........Im guessing maybe its from all the damn stress since my calcium was normal. Does anyone here have any suggestions?????
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Reply 3 months ago on Aug 06, 2009 by tracy1, #22095

OH my gosh you sound just like me...I have tingling all the time especially in my hands and feet...I had a total thyroidectomy back in October due to tumor. I am moody and tired all the time...never know what I am going to be like from one day to the next.
I have alway had heart irregularities with palpitations and such...and they got worse with my thyroid issue...once removed I only have them once in a while, however, I am on a beta blocker due to my high blood pressure, and my heart rate is very slow at times. I sometimes wonder if that is why I have no energy to even shower sometimes. I am very lucky that I was able to leave my job to take care of my health, but I feel like I am not getting anywhere because I am tired all the time, and have all these strange sensations in my feet and hands. And I too, have had all the tests for calcium and such and they never find anything. I really hope that we don't have to feel like this forever, this is not a quality of life that is very pleasing.
keep in touch,
Tracy

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Reply 3 months ago on Aug 13, 2009 by missygary38, #22229

I am 39yrs old almost 40 - you must be my twin. I had my thyroid removed in 2002, 2004 hysterectomy, 2006 hernia repair sugery, 2007 diagnosed with granuloma annulare, 2007 discharge from both breasts. I do not take HRT. I feel like I am pregnant, constant tired, nausea, hot off and on (the SURGE is what I call it), unable to sleep. I have finally had enough when I feel over thinking I had a heart attach and was taken by ambulance. I keep asking does MY THYROID have something to do with this -I get no straight answer. I am waiting for my appt. with Mayo of Jax, Florida. I hope they can figure it out before I just die..

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Reply 3 months ago on Aug 16, 2009 by lubblady38, #22275

missgary38,
Are you saying u dont take anything for thyroid replacement?? If thats the case, then no wonder you are not feeling well at all!

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