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I have no idea if these are side effects from Remicade or not- be...

Posted at 4:28 PM on Aug 17, 2009 by scaredycat, #43802
I have no idea if these are side effects from Remicade or not- because doctors always dismiss it as "probably just you". Definitely HEADACHES. I would occasionally get headaches before, but since being on Remicade the past year, I get really bad headaches. Neck/scapula pain/strain. I have woken up with immobile neck 3 times now in past 2 months. It's getting ridiculous. The doctors just say I need PT or to stretch. But I really wonder what's up and why I've never had that in my life until now. Also flushing with inital infusion, but that really is no biggie. I definitely feel STUPID. I've heard of "chemo brain"- does the same thing happen with Remicade? I am 31 and taking this for inflammatory condition NOS. I have an autoimmune/inflammatory eye condition NOS that left me with significant Retinopathy. I did Prednisone, Methotrexate, Humira, Cyclosporine, Tacrolimus, Cellcept all for a few years- and nothing helped except steroids. Which obviously you shouldn't take long-term. Plus I HATE them, they make me fat, hairy and psycho! So Remicade has been a god-send in some ways. But I am a mother of 2 and love my husband, and worry that I may not go blind but will die young from side effects of this medicine. But why should I worry? Every health care professional says there are "NO" side effects. What's the deal?
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