| Posted at 9:33 PM on Aug 23, 2009 by traby21169, #43950 |
Unfortunately, most drs. push too many drugs., since that's all they know. I suggest that you change drs. or , find a natural doctor.
BEST WISHES.
Sorry to hear about the Factor V. Your post interests me because you can't get your INR to stabilize. This is a long-shot but it might help. Have you ever been checked for Celiac disease? It is a reaction to gluten and it affects your small intestine and that affects how your gut absorbs not only nutrients, but drugs. I have it, and it took three months for them to find the right dosage for me. I follow a very strict diet (and have for two years) and it still took three months. They can check you with a blood test, called a Celiac Panel, if you are interested. Also, you can research Celiac Disease on the web and see if you have any symptoms. It's just a hunch, but it could explain why your body is reacting the way it is.
I was diagnosed in May 2009 with multiple, massive PE's. I know exactly what you're feeling. I was initially put on Coumadin/Warfarin and went into anaphylactic shock from a reaction to the drug. For 8 days I was in the hospital while my doctors could not believe that I was actually allergic. Then I was put on lovenox 2x day 100mg. It's been rough. Lots of injection site bruising, and now the hair loss is becoming really bad. I have been reading, and most all sites do say that the hair loss does reverse itself within about a month after stopping the lovenox. I hope it's true. Quite honestly, the dr says if I get pregnant I'll remain on the lovenox, and I'm no longer sure which I want! I do get depressed from time to time, usually after an appt with the doctor. I may not be offering any advice, but I can totally sympathize with your feelings. I do sometimes think others look at me like I'm crazy!
I too am on warfarin for factor V and I feel like a 90 year old with severe arthritis and my doctor says it is a side effect.
As is the hair loss. I am not a doctor but my doctor suggested I talk to a hemotologist as they know more than he does about alternatives. Avoid vitamin K at all costs.
I also just read an article about how people with Celiac Disease are more likely to have deep vein thrombosis. Which is what I have. both of those things. Get yourself checked for Celiac. It might help.
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