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I have been reading these posts for awhile now and am so glad to ...

Posted at 3: 3 AM on Oct 11, 2009 by pippy, #45059
I have been reading these posts for awhile now and am so glad to have found them. I am a 25yr female with epilepsy and have been on lamictal for the past 4yrs. I changed from epilim because I was getting married and heard that lamictal was safer in case of pregnancy. Not long after I found myself getting very angry over small things and not being able to sleep. I thought this was just me so I tried to get myself together. It went on for some time before I gave up and got help. I was diagnosed with depression and given fluoxetine. This helped me get back on my feet but I did not want to be on it long term and have been of the fluoxetine 2yrs. I still struggle with my mood but is manageable which I am happy for. I did not realize that the headaches and the memory loss I had were from the lamictal until I found this forum then it all made sense. I had always thought that I was staying up too late and hence getting headaches. As for the memory I often feel like a blithering idiot. Cant remember words and often the wrong ones come out its so embarrassing. So often I feel like I'm in a daze and life is passing me by. After all this said I have not heard of any other drug that would be any better. I have found comfort in knowing that I am not alone in this. There are a lot of people that do not understand the effects of medication or take it seriously when I try to explain. If there is anyone out there that is keen to chat about epilepsy or lamictal I would love to talk.
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Reply about 1 month ago on Oct 14, 2009 by concepcion, #23535

I myself take lamictal and have the same symptoms that you mention. I have been taking them for 9 yrs and my doctor told me I can't stop taking them because of my condition so I don't have a choice . Are you still taking them?

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Reply about 1 month ago on Oct 15, 2009 by pippy, #23583

Yes I am. It is controlling the seizures well so long as I consistently take them and avoid stress. Lol easier said then done. I don't think I will ever be med free but its better than seizures.

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Reply 17 days ago on Nov 04, 2009 by t1nkerbell, #24198

Hi there. I can't tell you how happy i was to read your post. I'm sorry you're going through all this but am happy that i am not alone. I changed to lamictal about 4 years ago, I'm 34 and opted to change from Tegretol to lamictal for a safer pregnancy. I wasn't pregnant at the time but was doing some research for medication with less side effects before trying for a baby. My little girl is 2 now and since the pregnancy it's been all down hill for me, she's the only thing that keeps me sane. About 4 or 5 months into my pregnancy my seizures increased dramatically and was advised to take sick leave. I never returned to work as i am still unable to stabalise my seizures and to add insult to injury my shoulders dislocate during seizures and my left one can dislocate anytime due to wear and tear. Painful is an understatement and in January I'm having my 3rd shoulder reconstruction done in 3 years. Hopefully this will be the last of that. My memory though has me really worried. When I read your post I really felt that I could have been reading my own symtoms. Loss of sleep, headaches, the memory loss is embarrassing - I cant remember the simplest things. As for 'losing my words' mid-sentence, it's so inconvenient and of course tying to explain your way out of it is futile, i think i make matters worse. I have to go now, will write again if that's ok, but had to drop you a line now as i was so relieved to know i wasn't alone.

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Reply 5 days ago on Nov 16, 2009 by lamictanov2007, #24410

I have been taking Lamictal for 2 years now. My short term memory has been getting worse and worse. It is truly scary. I now find that my Long term memory is also being affected. A year ago I brough it up to my Dr. but he said memory loss was not a side effect of this drug.

Thank you! Thank you! I am so glad I am not the only one experiencing this memory loss.

What to do? What to do? Lamictal has stablizing my depression, in 10 years it is the only drug that has worked. But I know I have to get off this drug.

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