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I'm a 25 year old female and I was diagnosed with Grave's Disease...

Posted at 8:48 AM on Jul 08, 2004 by leti1028, #5350
I'm a 25 year old female and I was diagnosed with Grave's Disease during my pregnancy at the age of 21. The following year I was treated with radioiodine and subsequently was placed on synthroid. Since I have been on the medication (3 years now on varying doses) I have experienced severe to moderate anxiety, alarming hair loss, loss of appetite, piercing headaches, dry skin, fatigue, leg pain (mostly at the joints), dry mouth and eyes, and I feel I react very slowly (thinking and physically). THe most predominant symptoms at the moment are the dry skin which has never gone away, I still notice my hair hasn't stopped falling out at the rate it was when first starting the medication, sleeping isn't very restful, anxiety attacks and tight chest. I have told my doctors both primary and endocrinologist of my symptoms and was basically told to put on lotion (which I do religiously), see a psychiatrist, and buy a better mattress. I could almost make out a question mark hovering over my primary doctor's head as she thought of what could be the source of my afflictions. When i had my yearly visit with my endo recently, he became agitated by my question asking and basically brushed me off. He told me point blank "There are no side effects with this medication". I asked, "None?" and he insisted, "None." I found out later that week (He's an Associate Professor at a local University) by a research statement I found on his website "Review of Graves' Disease outcomes comparisons, antithyroid drug therapy vs. radioactive iodine treatment". He's funded by the makers of Synthroid. Needless to say, I'm calling around for a new Endocrinologist. In his haste to administer radioiodine, (he said my white blood cell count was very low due to the PTU i was taking for Hyperthyroid, mind you, I had an infection not too long before his findings) he may have miscalculated how much radioiodine I should be given and now I am taking varying doses because he can't seem to get it right. I just found out today that soy bean decreases absorption of levothyroxine sodium. I have been taking my synthroid with soy milk for the past few months, which may account for my thyroid hormonal change. I'm thoroughly disappointed.
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