Hi everyone - found your site tonight. This is my 1 year anniversary of taking lisinopril - took it for 5 days last year, developed SEVERE breathing problems & chest pains. I lost 6 weeks of work (I teach high school Latin) last year, and have not been pain-free or breathing-symptom-free since. I woke up all of a sudden tonight in the grips of a panic/anxiety attack feeling absolutely trapped in these symptoms - tonight I was sidelined by them. My mother is coming to visit on Thursday & I'm feeling stressed about getting the house in order, but I can't freaking move around without getting winded. My PCP & I fight all the time about pain management. I'm on vicodin but it doesn't work. Fentanyl pain patches help, but not always. The anxiety & fear are killing me. I don't sleep well most nights - haven't slept more than 5 hours straight in weeks. What do people do to manage the pain? I was up & down the cardio-pulmonary diagnostics last year - I had all the tests. You name it, they did it to me. Except for a lung biopsy. Which I will not agree to because I know why I am having these symptoms & I don't have enough evidence of tissue damage to warrant that kind of invasive procedure.
I'm going nuts. I have a 5-year-old who is NOT getting the kind of mom time I want to give him, my marriage is struggling along because most of the time I just can't do the same things I'm asking my husband to do (cleaning the house, walking the dog, that kind of thing). Work is really hard. We have also just moved (from Boston to Orlando) & I have to find a new PCP who is not going to freak out & send me through the same battery of tests I had last year. My nephro put me on lisinopril to micromanage my blood pressure. I have chronic renal failure due to focal glomerulosclerosis or however you spell it. My BP was fine until my nephros started screwing around with ACE inhibitors. Told me they'd slow the progression of my renal failure, which was slow anyways. Now, I think I"m dying from the meds. I'm 39 years old. I think if I hit 50, I'll be lucky at this rate.
Thanks in advance. I could sure use some support & advice right now. I just took an atavan so maybe I can sleep soon, but I am still having the anxiety symptoms.