Lamictal side effects

I have been very concerned about my memory loss. It is so humiliating. I am a teacher. Today at work I said to my co-worker, "OMG, I forgot to mark Makayla absent!" She gave me that look. "We don''t have a Makayla this year." I feel like such an idiot and am afraid someone is going to tell my principal that I'm losing it. I am also unable to spell. This was never a problem before. And my vocabulary? I don't have words to describe it. LOL. I'm 44 and thought for sure that I had early onset Alzheimers and also severe arthritis because my hips hurt. So glad it's drugs, not me.

Has anyone noticed any vitamins, foods, etc. that helps? I will be devastated if I have to ditch my nighly glass of wine! Anyone relate?

I take Lamictal for seizures for 3 years. I had my first unexplained seizure at 25 and another 6 moths later. Both times I had drank heavily two nights in a row. After the second seizure I was put on the Lamictal. I was slowly ramped up to 100mg in the morning and 200mg at night. On occasion, I get horrible "poop pains" as I call them. It feels like my insides are being ripped apart. I can sit on the toilet and poop incredibly runny stool, then I have to wait up to 15 minutes for the second batch. The pain doesn't subside until the second batch but it is immediately gone. It usually only happens when I wake up in the middle of the night. I have tried to correlate it to foods that I have eaten and can't match anything up. I also have horrible short term memory. I sometimes tell the same person the same story twice and they will be like "you just told me that." Also, golfing is the best example. I have a hard time remembering my strokes. My long term memory is fine. As fair as hair loss, I was already on track to lose my hair before I was on the meds so I don't know if they made it any worse or if this is a natural progression. It seems somewhat rapid but I never loose it in quantities or clumps. I just notice it in my hats and beanies every once in a while. I also have a hard time falling asleep on occasion and if I wake up in the middle of the night I have troubles falling back asleep as well. The bottom line is that this drug WORKS. I can live with the side affects cause they are random and not that often. I am a volunteer Fireman and cannot risk loosing that again so I am too hestitant to change meds as the doctor said Lamictal has the least side affects of the seizure drugs.

I take 200mg for partial seizures, added it to neurontin about 9 months ago.
At 300mg I lost the ability to type correctly and would forget what I was saying in the middle of a sentence. I forgot phone numbers and lost a ton of weight. My doctor said that meant I was on too much. I'm glad he put be back to 200 instead of upping the dose, which is what I see most people doing - adding more. I am taking as little as possible to keep the seizures away, and I feel pretty good on it.

My side effects currently are constant movement of my jaw and tongue, and my new side effect is a strange involuntary movement of my arms and legs. I especially notice it when I'm on the computer and I move the mouse, my arm jerks. (At least it jerks in the direction I want it to!!)

Overall, I am happy with it and feel lucky that I'm not having any terrible side effects. The jerking thing is a bit concerning since it is new and I hope it doesn't get worse.

I do think my skin has gotten messed up - not quite acne, but redness under the skin. No bumps though.

Oh - the tip of my tongue gets numb about 15 minutes after I take it. Weird.

As I read all of these postings, I see I'm not alone in my side effects while taking lamictal. I started out on a very low dose (12.5 mg) and doubled this amount each week. It took a while to get to my current dosage of 150 mg per night. I've been experiencing mental confusion, more panic attacks and it's very hard to wake up in the morning. I've been more frequently tired and dizzy during the daytime. Also, at night, my dreams have been extremely vivid. Many have been nightmares leaving me in a state of severe confusion as I try to awake in the morning. Recently, I started having upper back pain that I've never experienced before.
I thought this drug was supposed to be safe with very little side effects (except the potential RASH). I think my life was better before lamictal. Or, do I need to give it some time to work???? Help Please

I have been on Lamictal for 8 years and take 200mg every night. I take it in combination with Lithium, Seroquel, & Wellbutrin. My diagnosis is rapid cycling bi-polar. There was also Depakote for about 12 years but that's gone, thank God. The Lamictal, combined with the Seroquel, can knock me on my butt, I feel like a drunk. I stagger and my speech is slurred, and I am very sleepy. I have dry skin in my ears that never resolves and that is itchy & painful. I have bowel issues. I also have vivid dreams but not violent ones. No sex drive but I'm single so that's not a problem. I also need a nap every day. I'm sure that there are others but it's hard to tell because of the other drugs I take. Glad that I'm not the only one with issues.

I'm having neck and shoulder pain on only 50 mg. of Lamictal. I've only been on the drug for 3 weeks.

I am also on lamictal, at the moment only 75 mg. My whole life I have had clear skin, and suddenly and getting these underlining bumps all over my face and chest. I am also processing information very slowly, have trouble finding the right words, and forgeting things constantly, and making mistake like crazy.
When I was first perscribed lamictal i felt great I felt like I was able to access my whole brain, and I had mental clarity. That lasted about 3 days and now I have had months of feeling like an idiot.. Let me tell you, this does not going over well in my job!

My son who is just 17 has been on the drug for just a week and the very first day he was on it he experienced severe back pain. He was not able to stand up. It got worse, he felt as though he had to eat continuously or he would vomit, the more he ate the more nauseous he became. This is not somatic, because he had no idea that I had added a new medication to his regimen. He has ADD and a mild mood disorder. I have stopped the medication and will notify the doctor tomorrow. He was only on the medication for 4 days. I am a nurse practitioner and this medication is not worth the multitude of severe side effects for the diagnosis of mood stabilization.

I started the drug Lamictil about six weeks ago at the insistence of my Doctor and my wife because I suffer from SAD (Seasonal Depression brought on by long periods of darkness and cold - winter). Recently I noticed that I can barely get out of bed and that my feet hurt. I am a trained athlete and my workouts have been essential for controlling my sadness and now my depression is worse than ever and as a side benefit I have tremendous feet and leg pains, rage issues, thoughts of suicide and extreme sadness. I have also broken out in a rash which could be Johnson-Stevens disease - all because those two nitwits didn't want to deal with my occasional sadness. They just threw me under the bus -IF YOU ARE TAKING THIS GET OFF IT and if you are seriously depressed ask your health provider for something more stable. No matter what your condition is short of seizures, this medication is not the answer.

I started taking Lamictal about a year ago. When I began treatment, I immediately experienced really bad, vivid dreams. They got progressively worse and continue to this day. About 3 months after I began treatment, I began to experience severe hair loss. Several tiny clumps of hair (a hand-full of individual strands) would come out of my hair during washing, and when I combed it after showering. This has occurred every day, and continues. I've lost about 2/3 of my hair and spend more than 5 minutes each day teasing my hair in the bald spots so people can't tell, but the parts in my hair get wider every day. I can't swim in public, go dancing, or go anywhere that might lead to my hair getting sweaty and falling out of shape.

In addition, at the end of every day, I feel like I'm catching the flu. I have a fever of 100, feel achy and have the sniffles. It got so bad that I actually went to the doctor and he prescribed antibiotics for what he said was sinusitis, which is a side affect of Lamictal. I felt better for a few days, then went right back to feeling ill.

I've also experienced periods of intense anxiety and anger. Out of the blue, for absolutely no reason. Constipation is also a problem.

This is not what I signed up for. I'm talking to my doctor next week to get off this crap. There is no good alternative in this category of medication, either. They're all poison with multiple severe and sometimes life-threatening side effects. Screw that. I'd rather be slightly depressed.

I have been taking Lamictal for months (not really sure due to the memory loss from taking this drug).
I can't seem to remember ANYTHING. My spelling has been reduced to a 4th grade level and trying to find the correct words in a conversation is horrible. The lack of coordination is only a slight problem, mostly at night. I started on 25mg nightly and currently taking 400mg. Nausea, vomiting, depression, feeling guilty about everything I have everdone or said, headache.
I am going to tell my doctor about these symptoms and hopefully he will reduce my dosage. I didn't have all theses problems on lower dose.

Hi, I've never posted on one of these sites but here goes... Lamictal does indeed affect some vital nutrients. They are biotin, b12, b6, L-carnitine, folic acid, calcium, vitamin A, vitamin D, and vitamin K. My hair started falling out in clumps. I had my levels checked and I was VERY low on biotin, and L-carnitine. I was also low on zinc. I dropped my dosage from 150 to 100 to 75 to 50. With doctors approval. I started taking centrum silver and skin, hair, and nail vitamins and my hair stopped falling out and is starting to regrow. I am now back up to the 125 level and feeling better. I also started taking L-carnitine and that has helped as well although it had nothing to do with my hair loss. As to the other side effects...I have headaches, and neck stiffness, and sex headaches at the 100 plus level. And a buzzing/ vibrating in my right ear. For the migraines I take Advil. DO NOT TAKE TYLENOL WITH LAMICTAL. It lowers the level of lamictal in your system. I only take Excedrin when I must. I know this is long. I hope it helps. Even with all the side effects I still will take lamictal. It has made a huge difference for me. ( I also have occasional nausea and dizziness.) Hope this helps.

I have been taking Lamictal for a little over a year now.
My ears peal and get red and sore. This has been going on for a most of the year but thought it was nothing.
It's been a whole year and the ear problem and some blurred vision have been it.

huge involuntary tongue movements- unbearable tardive dyskinesia nonstop- even with ativan and clonipon

an update on my BF, now almost 3 months off lamictal and all other meds. he still feels great, for the 6th consecutive week he has lost a bit of weight as measured by WW. he finds that he is less forgetful. before, he was always losing his keys, his cell phone, you name it and he was so easily overwhelmed by everyday tasks that he assumed he had AADD.

as time passes, he is feeling better and better. the lack of headaches and muscle pain were the big pluses but now he is seeing a gradual restoration of his ability to think clearly, which is wonderful

My daughter, who is 22 yrs old now, has been on lamictal since January (seizures which came out of the blue after being ill for 2 years) this year. She ended up in the hospital for most of February with vomiting and diarrhea. She was first diagnosed with celiacs, then gastroparesis, all the time the neurologist is telling us it ABSOLUTELY CANNOT BE THE LAMITCAl...now, she has had some twitching and the doctor increased the lamictal from 100mg 2xs daily to 150mg 2xs daily. Well, the diarrhea, which she's already on all kinds of stomach/bowel medicine, never really resolved but now with the increase is worse. I just called and will take her back on Friday, but think we need to find a new doctor, Good luck to everyone. and God help us all.

well i have no sexual desire and it is really hard for me to climax which sucks since im only 19 and i have been with my boyfriend for 4 yrs. he is so good to me and is really understanding. i am going to my doctor tomorrow to try something different ... i am only slightly depressed so this is completely not worth it .. it is really taking a toll on me and our sexual relationship. also i feel that with lamictal i am at such a constant experiencing euphoria is almost impossible. i just cant do it anymore ... it is more depressing then how i actually felt depressive wise before i took this medication. and let me tell u i have been on this for a while and it seems that the lack of desire seems to get worse everyday

My husband has been taking Lamictal now for 2 years. He had two seizures within 6 mo in his late 30's, one of which resulted in a car crash. Of course he is grateful for such medicine but as a partner and wife, I noticed lots of changes in him after he began the medication. He was irritable, had very low tolerance and a short fuse, was extremely distant and often mean - which in the end caused us to separate for some months. Although we are back together now and our relationship is doing very well, I notice other side effects, for example, he sleeps every time he sits still, etc.

HOWEVER, the real reason I am consulting this forum is to ask anyone (especially men) if they experience side effects related to sex. I know this is a tabu topic but things just aren't working as they used to and I am looking for solutions as he doesn't seem to question the side effects of this drug. This is starting to become an issue psychological issue now as well. Has anyone else experienced lower sex drives and complications during sex?

my BF has been taking antidepressants for 15 yrs- mostly a combo of lamictal and parnate. he is always depressed, has no energy, can't lose weight, suffers from chronic migraines (for which he downs handfuls of Tylenol and Excedrin) and constant muscle pain. i'm afraid to drive with him because of the road rage. his thinking is foggy, he is overwhelmed by every little thing and he constantly loses his keys, his phone- you name it. when he saw the commercials for AADD, he started to think he had that too and needed even more medicine!

i've had about all i can stand and in doing research, i found that niacin is useful for people with depression. it has to be the flushing kind and you need to take enough without flushing. some very depressed people have taken 12,000 mg a day and still not flushed!

so i started him on niacin and as we built up his dose, he cut down on the antidepressants. he got to 2000 mg of niacin a day and it took him 2 months to wean off the antiDs. he had minor brain shivers, but not nearly as bad or as many as when he has tried to get off the meds in the past

he has now been completely off the antiDs for 2 months and is taking between 300 - 500 mg of niacin daily.

here's what has happened: in 2 months, he has only had one headache and his muscle aches have gone; consequently he has only taken one Tylenol in the last two months as opposed to 10 a day like he used to. he has more energy- this Sunday when he got out of bed, he got active doing things instead of slumping on the couch for hours. i also almost fainted when i drove with him and he didn't scream when a pedestrian cut out in front of him. he is much more able to focus, he is not getting overwhelmed by everything.

and for the past 3 weeks at weight watchers, his weight has gone down a little

he is very happy about it.

Hello . . . why do we continue to take medications that cause us such physical and mental anguish . . . we hope for a life . . . I am one of those who takes a cocktail containing . . . Lithium, Lamictal, Cymbalta, Sequel, Topamax and other medications for high blood pressure, low thyroid and osteoporosis . . . down four medications . . . because I have a good doctor . . . it is impossible to distinguish which one or the synergism of the medications . . . which do what . . . what I want to say . . . there are more medications now . . . more doctors . . . change doctors . . . change medications . . . you might not feel great . . . but you will feel better about taking control . . . it has happened to me . . . M.

I had been on Lithium for a few months when the consistent weight gain and uncomfortable bloated feeling caused me to seek out a new treatment for my bipolar disorder. Deciding on Lamictal, I started the slow transition of lowering Lithium doses and increasing Lamictal doses. About one month ago, the transition was complete. I didn't seem to have any real noticeable side effects from the Lamictal but after about 2 weeks of being off the Lithium, my skin started breaking out with acne!! Terribly on my chin, cheeks and hair line. I am now wondering if the Lithium may have been keeping this symptom under control. Has anyone had an experience like this?

Hi all! I googled acne and lamictal and here I am. I'm so relieved to see that I'm not the only one that has experienced breakouts due to the meds. I had struggled with acne in college, but now i'm 24 and it's back worse than ever! Does anyone know what to do about it? My doctor said a dermatologist wouldn't help because the lamictal is messing with my hormones and I just have to wait to get adjusted to it - but I've just started on the 50mg and the plan is to go up to 200mg within the next few months, and I don't want this to get worse! Thanks!

Like many patients, I started out on a low dose of Lamictal. Eventually, I was taking 300 mg. This seemed fine for awhile. Then, I started feeling a bit down, so the doctor increased the dose to 400 mg. Increased dosage does not necessarily mean improvement in mood (bipolar). I began to experience a good number of the adverse side effects reported here, including excessive fatigue, gastrointestinal disturbances, cotton mouth and very bad taste in my mouth, muscle tension (particularly in my legs), forgetfulness and confusion, and sinus and chest congestion. At one point in time, I even had difficulty articulating words.

Though I did not suffer from rash, I have been up in the middle of the night with itching all over my body. I had a few episodes of mouth sores and one pimple on my chin. Many of these have improved since the doctor brought me back to 300 mg. However, they have not entirely disappeared. I continue to suffer from the excessive fatigue many of you have reported here.

I recently had a blood test and learned I have very low levels of Vitamin D and Vitamin B-12. I do not know if there is any relationship between long-term use of Lamical and these test results. However, I do know that low levels of Vitamin D can cause fatigue.

Though I am willing to follow through with further blood tests, I am beginning to understand why some people are tempted to discontinue their medications. I am so tired of being so tired and sleeping so much. When I finally get up, I am still tired and drag through the day.

Sometimes, I think I'd rather have a down day or two than take this medication. I should add, though, that my bipolar is not severe, and that I am only reporting how I feel. I'm certainly not recommending anyone discontinue medications for this or any other condition they may be suffering from. If I were to recommend anything, it would be to get a second opinion if one is concerned about his or her treatment.
If I were to make any suggestion to doctors, it would be this: more is not necessarily better. Send your patients for blood tests (mine were ordered by my M.D. and not by my psychiatrist). Increasing the dosage--at least of Lamictal--might result in a host of negative side effects. Your patients might then become disillusioned with their treatment and give up.

If anyone out there has suffered from B-12 and D deficiencies, let me know. I'll let you know what I find out.

And remember, most doctors are really trying to help us.

I have been on 100 mg of Lamictal for 2 months I have an Essential Tremor and the drug has made it worse Anybody else?

I have been on Lamictal now for 10 months, and I mostly love it.

But my IQ went down about 20 points. The first few months were very bad--I could hardly complete a sentence without forgetting one or two words. My short-term memory was scary bad--almost like blackouts where I wouldn't even remember events when reminded.

Those things have abated somewhat, but I am still having to adjust to a lower ability to think. I must make lists, I must repeat instructions and directions. Perhaps this is more about slowing down what was a hyperactive brain, but it is a side-effect that is hard to accept.

I am noticing a new side effect, though. I drop things all the time. I recently dropped a book I was reading--how does that happen?

Has anyone noticed this dropping, or any other clumsiness like this?

Has anybody had a problem with their gums thickening. It's actually the area behind my upper teeth not the gums around my teeth. As a result, my teeth are being pushed forward making me self conscious of my smile. I'd like to get off this medicine but the other medications seem just as bad. Has anybody had any luck finding alternatives to medication?

I have been on Lamictal for about 3 and a half yrs now for Bipolar 1. Overall, I have had a really great experience with the drug. I started with 100mg and then went to 200mg after a year and a half. Now I take 225mg as of a month ago. For about a year and a half I had the acne on my chin and then it went away suddenly (thought it was cutting out dairy from my diet though). I have been extremely fatigued for awhile now. 7hrs of sleep is not good enough for me so I end up taking long naps when I have the opportunity each day- I always want to sleep. I feel stupid and lack focus and motivation. I use to be a social butterfly and now I feel so exhausted when entertaining. I am a personal trainer and am in the business of making others feel better, but I seem to be feeling worse. I have experienced weight gain as well and that is hard for me since I use to be bulimic and have always had poor body image issues. I was on the NuvaRing for 5 months and it made me sooooo depressed so I finally got off that and feel better- don't mix those 2 drugs.
I am going to ask my doctor to take me off of it this week because I am ready to trust God with my mental health. I have a great support system to help me through the tough times and if I want to get pregnant, I have to go off it anyway.

Has anyone stayed at the 25 mg. dose? It's all they will have me taking.

Even so, after one week, I am noticing acne- I wondered about that; haven't had it in 20 years- and dry mouth.

I have been taking Lamictal for about 2 1/2 years now. I have been taking 200 mg for two years. I have experienced very few side effect. Except vivid dreams and not sleeping well. I have always had vivid dreams but there is one I have had since the medication it was so awful that I can't stop thinking about it and it makes me feel suicidal. I have had many ups and downs in my life but never thought suicide to be a positive option. I don't think I would do it but I can't stand these awful repetitive thoughts. I have had less and less energy in the last 6 months or so. I thought it was because I was working to much. I have quit doing most the things I love. I have always been a high energy person. So I thought it must be the Lamictal. When I had complained to my doctor he said that it sounded like depression and normally they would increase the dosage but he would decrease it if I wanted. I went to 150 and then 100. I felt awful just like I used to before the drug. So I went back up to 200 and at least I didn't feel so awful. So I increased it to 250mg and I started to fell less depressed. Sometimes I have taken to much in the past because I forgot I had taken it and repeated the does. That is when I had the first bad dream that has haunted me since. Then I started to forget to take my medication off and on and that is when the depression started. Now I took the 250 and I had another haunting dream. This drug really has been a miracle for me. I have never felt this stable in my entire life! In the past I was trying to self medicate but since the Lamictal I have quit smoking pot and drinking. I don't like alcohol and drugs anymore because I don't like to feel altered anymore. Most of the symptoms everyone has described are how I felt before Lamictal and I feel better since. I will never go below 200mg or above again without a suitable alternative. I still can't get rid of the repetitive thoughts on 200mg. Typical anti-depressants have the opposite effect for me. Has anyone found a suitable alternative. I have heard that other drugs for bi-polar such as Lithium and Depakote have a sedative effect and I don't like that. I want to be my normal energetic self!

just thought i would put another post on to tell you how my autistic son brett is getting on with coming off his lamictal i told that he was on 750 mg a day we have had meetings with his doctors and they agreed we should start to reduce lamictal we are now 2 weeks into the reduction at 25mg a week he is now on 700mg a day the reduction does seem to have had a positive affect for brett his speech has become less repetitive his conversation is more meaning full the rash on his back is getting better he seems to be more settled in his self so at the moment things are ok i must say i make sure he has mis meds when he gets up in the morning around 7.30 then again around 7.00 on the night i will keep posting and letting people know how he is getting on

Since I haven't seen it documented, I thought I should not the constant popping of my ears. It's not unbearable, but I question whether the ongoing pressure is affecting my hearing. Also, perhaps related, I have begun to observe soreness in my right jaw. But I have not had any true inner ear problems, such as dizziness or nausea.

On another note, my short-term memory seems to be affected. I'd be very disturbed by this fact, except that I'm taking the Lamictal for bipolar disorder and the net effect is a higher level of functioning.

I'm happy overall, but it's only been two months. I'm concerned about more serious effects setting in later after reading this page. I should note, however, that certain side-effects have already come and gone, including the runny nose, aching muscles, and a brief scare of a serious rash.

One question: does Lamictal affect the immune system? I've taken two rounds of antibiotics now to beat a sinus infection and bronchitis, and I still have a cough....

I've been on 200 mg Lamictal for 2 months now, after 4 month titration up from 25mg; Going off Lithium 900mg titration to 450mg this week. Since 1st day of lower Lithium, all the common Lamictal symptoms went from mild to extreme. Whole body muscle aches (like 24 hours after a heavy weightlifting workout) worse in neck & back/shoulders/calves, bad headaches, swelling in hands & feet, extreme blurred vision, loss of memory, halted speech while trying to figure out what to say, fuzzy. I called the Clinic to simply ask which NSAID (aspirin? ibuprofen? Excedrin? naproxin?) to use to manage the pain. They all freaked and made me come in for a blood test to check Lithium levels. I explained I wasn't "overly" concerned about it at this point, but just looking for a recommendation, and that they may be over-reacting (even though I did appreciate their concern). I also reminded them that I had just **decreased** Lithium when it happened, so I wasn't having a Lithium Toxic attack (I'm well-versed in that, having been on Lithium for 7 years). It didn't do much good to tell them I thought their diagnosis was a little off. I'll find out the blood test results today, but I'm pretty sure I know what they'll be. They also wanted me to see my PCP since it could be something else. Again, the problem was a ramp-up of existing symptoms the next morning after I lowered Lithium (the only change), so I'm conviced everything centers around that. I think they're a little inexperienced with this med. (Lamictal/Lamotrigine) and if they'd just read this blog they'd probably learn a lot. They had never heard of the muscle ache side effect. Pretty hard to believe after reading all of your comments! My theory is that Lithium was somehow holding back the side-effects of Lamictal and now they're expressing themselves more fully. I haven't read anything like this on any internet discussion, so maybe my body is very different. But maybe my experience will give someone else some insight in a similar situation.
I might also mention something that happened to me I have only seen (kinda) in one other "blog" about follicle (sweat gland) cysts. Yeah, I definitely got the jawline acne starting at the Lamictal 50mg level & increasing at 100mg. But I also got my first ever "cyst" that concerned me and sent me to my dermatologist for the first time in 30 years (I'm 47 and saw the old guy when I had acne at 17!). It started as a blind pimple on my chest the week I increased Lamictal to 200mg (final dose), but didn't go away. It continued to grow (not diminish) over 4 weeks to 3/8 inch round/pink/solid/itchy/burn-when-rubbed. So off to the "Doctor" like my father used to do on a regular basis (I know I'm getting old now) and scalpel/pop/stitch it was out. But it was real, not my imagination or hypocondria, and the timing of its appearance was right when Lamictal changed to full steam. Since acne appears to be a common effect with so many, it seems it's not unreasonable that this occurs occasionally as well to others. Let me be the 2nd to mention it. No "official" verification, but....
I'm not bagging on Lamictal, and have been very hopeful that this would be better than Lithium. It has eliminated the GastroIntestinal problems I had on Lithium, but I am getting discouraged that it has all the brand new symptoms that are discussed in this blog. Your "stuff" is real. I wish the Docs/Nurses/Case Workers would spend 5 minutes checking your comments out. It might bring about a better informed conversation than the shiny Glaxo flyers provide. That is all.

As a parent of a teenage girl diagnosed with Bipolar I as well as DID, I thought Lamictal would be a great change from Lithium and would contribute to her stability. Imagine my surprise when I saw this happening to my 17 year-old daughter; constant insomnia over the last three months; panic attacks; anxiety; and paranoia, especially at night. Finally, my daughter threw her Lamictal away, and she has been much better since. I don't think folks always are aware that anxiety can be a real side effect of this amazing mood stabilizer, and it's good to be on the look out for it when your kid is taking it. She also claimed it made her more depressed.

my son has been on lamictal for over ten years for the control of petit mals
he is also autistic and has associated learning difficulties he is on 750 mg a day and we seem to have reached this level due to the doctors uping his med when he was having behavior problems and now over a period of time he has been having anxiety. agretion .hostility. frenzied abnormal excited moods .loss of balance and coodination problems . museal problems in legs which is leading to his ability to walk.. poor gate nervousness . irritable.and these symptoms are not there all the time but have been rearing up on a more regular basis and after a lot of research on line and reading i have come to the conclusion that its time to remove him from this medication with medical supervision i must add the problem is that lamictal has only be on the market for about 16 years and there is not much information on long term use and also my son just gets on with his life the best way he can and can not tell you what is happening to himself due to his autisum but these problems have been going on now for some time and gets put down to behavior problems which is not the case i believe it is the lamictal that is doing this to him so he is coming off it the absences are a less problem then the side affects i think over ten years on lamictal is enough.

I have to comment on some of the Lamictal "new comers". I've taken Lamictal for 1 1/2 years. For the first 6 months, this was the miracle drug. As months went by, I began all of the same symptoms: fogginess, weight gain, short-term memory loss, NO libido, headaches, and nausea, to name a few. As of this moment, I am weaning off of the Lamictal. HARD to do. This is not a drug that can be "stopped" immediately. On my fifth day of weaning off, I am dizzy, tired, weak, irritable, and have vomitted. Only about 3 days left. I am starting Topomax after. I'm anxious to see if there is any difference. Especially the weight gain part. I went from 120 to 135 in one year. (I run and eat healthy meals.) I will continue to take Effexor, which, in 2 years, has had little or no side effects. My advice to anyone just starting to take Lamictal is to GO SLOWLY. My doctor had my doses increase so rapidly that I didn't really see if the lower doses would have worked. (I take 200mg.) The bottom line is to do what feels right for YOUR body, rather than a specified dosage. Best wishes to you fellow BP-ers!

I feel like I should share my positive experience with Lamictal to balance the negative reviews. I am on it for bipolar II. I sought help because of a mixed state that was causing me to deteriorate to the point of seriously considering suicide. I titrated up on Lamictal from 25 to 50 to 100 and now 200 mg. I started the 200 mg last week, and suddenly yesterday and today, it's like a cloud has lifted. I feel like myself again.

I've had very few side effects. I have the relatively-rare yawning issue--I yawn every few minutes even though I'm not tired. My dreams have been especially vivid, which I actually enjoy. My facial acne seemed to be a bit exacerbated at first, but it's calmed down. I have a couple of small blemishes on my chest and shoulders, which is unusual for me, but it's minimal and responds well to benzoyl peroxide. My weight has stayed the same.

My bipolar has affected every aspect of my life, and I feel more stable now than I have in years. I'm sure there are still rough times ahead, but the relief Lamical has given me is a huge gift. I feel hopeful for the first time in months.

Also, it seems to have increased my libido. Like, a lot. I'm not complaining about that!

I have been taking Lamictal since October of 2007. I experienced some of the symptoms (muscle pain in the head and neck) before I started the medication. I have experienced panic attacks since July of 2005. I have had mild heart palpations since I was in my mid 20's (I'm 36 now). I have had what I would consider a below normal energy level since my mid 20's also. Ok so like everyone else I am thinking I'm a hypochondriac! However, I was diagnosed August 28th 2007 with having Lyme’s Disease and also Hyper-Thyroid (same time, same lab-work). Two weeks later I was diagnosed with Bi-Polar Disorder (this is one thing I knew I was battling but didn't know how to handle it). My physiatrist started me on Lamictal and I did the standard ramp up to 200mg. I also was started on a 90 day treatment of Dyoxicycline for the Lyme’s and Methimazole for the Hyper-Thyroid. I was very very weak and was only able to stay awake for short periods of time (4 to 5 hours max). Just an fyi, I am not overweight, lazy or unmotivated. I have the physical appearance of perfect health. This, I think works against me as the Dr's seem to think I'm just whining. Mater of fact; my Primary Care Physician never tested me for Lyme’s. I went to an Urgent Care Center which tested me for Lyme’s disease and I came back positive (they also tested my Thyroid levels and found the problem with my THS levels) I told my Dr the results and he insisted I have same test done again. Guess what, new tests, same results.
My symptoms today are very similar to what I have seen posted many times. Muscle pain (entire body, some areas worse than others), heart arrhythmia, racing heartbeat, intense palpitations, nausea, foggy “un-plugged” mind, fatigue, weak muscles, muscle cramping (especially after repetitive motion, such as strumming a guitar), panic attacks (much more severe) and the latest addition to the group, Insomnia. Muscles pain in my head, fore-head, jaw, temple, neck (front and back), shoulders, is terrible to say the least. The pressure in my fore-head (right under my brow) makes me feel like I need to close my eyes or rest (resting does not relieve anything). The front of my neck is so tight at times it feels like my jaw is being pried down. I could go on and on.
On my quest to find out what else is going on with my body I have had 2 Echocardiogram’s on my heart and abdomen, 2Nuclear Stress Tests, blood work out the wa-zoo, MRI of my brain, 2 CT’s of my Head and Neck, Chest X-rays, Endoscopy, Colonoscopy, and all revealing nothing.
Most doctor’s I have encountered seem to want to treat the symptoms, not the problem/disease. I believe I know why; we (the ones who are there for solutions) tell them what the symptoms are (how we feel). We of course are thinking “this will help with a diagnosis of the problem/disease”, when in fact (I feel); the doctor’s thought process stops there. They don't know what’s wrong with you but they do know what your symptoms are so....bingo, let's treat the symptoms. Don’t misunderstand what I am saying. I’m not saying, “Most doctor’s don’t know what they are doing” or “don’t take your meds”. I am saying you and I are one of the 20 to 30 patients most doctor’s see daily (100+ weekly). They may be caring and good people but they are just as human and fallible as you and I. My advice is this; (and I am taking my own advice) don’t always “pop” into your body what the doctor suggests/prescribes, without doing your own research. Heck most of us won’t buy a car or more importantly, send our kids off to a college with out doing your own research (we just don’t trust those shinny brochures). Your body and your health are worth you doing your own research. Just keep in mind, Pharmaceutical Reps are always at your Dr.’s office (sit in the waiting room for 10 minutes and I’m sure you will see one). Reps are paid to do one thing; encourage (push) the Dr.’s to promote use of the Pharmaceutical Companies drugs.
My wife and I have been doing our own research on Lamictal (after a year of taking this stuff) and the side effects associated with this drug. We have searched through many (many,many) web sites for information and we have talked with pharmacists and Dr’s for opinions. Although I’m am not thoroughly convinced that Lamictal is the cause of all of my symptoms, my wife and I have decided to lower my Lamictal slowly from 200mg to 100mg. I am now taking 150mg daily (three days now) and plan on staying at this level for a total of two weeks before lowering to 100mg. I do fear dropping the dosage to quickly (potential side effects) or lapsing into a mania. To help avoid a manic episode my wife and my immediate family are all “up-to-date” with my course of action. They are on “Red Alert” and have promised to keep a close eye on my behavior patterns and moods. (I don't want to put them through another hyper-mania episode, its much too devastating). I do want so badly to feel healthy and alive again and at this point I am rather frustrated with the Dr.'s ability to help me achieve this goal. Remember it is called “Practicing” Medicine. So now I’m going to practice a little, very carefully and cautiously.
As a foot note; I have recently (past two weeks) been re-tested for Lyme's with a negative response. I am keeping in mind Lyme's test are very inaccurate (still hoping this one is accurate). My thyroid is under control and normal, so.... let's see if dropping below 150mg of Lamictal will eliminate some of these other symptoms. I will keep you posted.
Erik

Am suffering from severe shortness of breath (along with bloating, weight gain, palpitations, inability to sleep). On Lamictal when it started. Went off Lamictal for about 6 weeks. No change. Dr. Had me go back on it as it did do well. Am trying to find anyone who has had their shortness of breath and other symptoms directly linked to Lamictal and what did you do? Am at the end of my rope unable to breathe and can't get treated.
Please respond. Thank you!!

My sister was started on Lamectal several months ago. She THOUGHT that she was feeling OK except that her mouth had begun twitching uncontrollably. Her family thought that she was acting "kinda weird". She saw a neurologist about the twitching and to make sure it was not Parkinsons Disease or such. It was not so the Psychiatrist put her on Cogentin. After less than a week she was not sleeping, had slurred speech and was running into walls. She was cooking spaghetti for breakfast and began seeing witches and angels and talking on cell phones that were not ther. We took her to the hospital and all tests were negative. The Cogentin was stopped, the hallucinations stopped and her balance improved but she remained with the following symptoms...she had difficulty mentally focusing on anything for longer than about 5 minutes, blurred vision and forgetfulness. I sent a note to her Psychiatrist and the Lamectal was stopped. She has been off of it for a few weeks now and says that she has large periods of "missing time" or amnesia for events of the past several months since she began taking the Lamectal. Her speech has returned to normal and she is focused again...

Hey, I cycle, so who knows if some of this is the meds or the BP roller coaster..

What I do know:

• Memory Loss ***
• Rash like Poison Oak if I increase too quickly *12.5 mg
• Heart Racing + Mind Racing (part of all this right)

GROUCHY at work regardless of meds.

Blurred vision, 15 lb weight gain, irritability, insomnia, excess hair growth (exacerbating my PCOS), nausea, nightmares, fuzzy thinking, bad memory, lose train of thought mid-sentence. Been on 100mg for 3 months. Doctor upped to 200mg but after 3 days on it and 3 days of no sleep, I dropped back down. Helps a bit with my depression, but I feel sort of numb. Not as bad as on some, but not good.

I took lamictal alone for about 7 years it seemed to stabilize my BP, but always complained of fuzzy thinking; the doctors never took my concerns too seriously...8 years ago I said enough is enough to my new meds guy and went off of it. Having tried a few combinations since then and recently feeling depressed the doctor suggested lamictal. I was against it at first but it was his number one suggestion, so I tried it. This time in combination with other my meds.
Talk about fuzzy on 200 mgs I am down right daft. I was on my way out of it, but I think it may be helping my moods. I can't ask for any insight as this one is really up to me. thank you EHE

Has anyone experienced Melasma with this drug? I am trying to identify if this is the cause of my melasma, because it worsened when we increased from dose from 150 up to 250mg a day.

My doctor prescribed lamictal after I reported hypomanic symptoms from prozac. The first couple of days on lamictal I thought it was the miracle drug; it really eliminated my mood swings. But as the days progressed, I began to have the following disturbing side effects:
- terrible insomnia (waking in the middle of the night and can't go back)
- horrifying violent dreams (of animals and people being hacked to death with machetes... interestingly, I reported this to my doctor and her response was, that just means your brain is adjusting to the chemicals...easy for her to say, she's not waking up with terrible memories of these disturbing dreams)
- weird pains and stiffness in my neck with swollen lymph nodes in the neck
- increase in anxiety and feelings of panic
- increase in feelings of anger and agitation
- feeling of detachment
- thoughts of suicide and the meaninglessness of life
- carbohydrate cravings and weight gain of nearly 4 pounds in 2 WEEKS!!
(weight had previously been stable for years)

These symptoms all appeared after taking the lamictal after only 2 weeks. Even though my doctor recommended actually INCREASING the dose of lamictal and/or adding prozac, I decided to wean off the lamictal (I was on the smallest dose of 25 mg) as an experiment to see if the symptoms would go away...
YES they did!! Every single one of them went away and were COMPLETELY gone after the second day of discontinuing the lamictal.

I know that this medication is being touted as the new miracle cure for bipolar II especially, but I think more clinical studies need to be done on lamictal. This experience was a very scary one and not unlike that reported by others on this site.

hair loss, memory loss, weight loss, confusion, hand shaking

Everyone's body is different and reacts to every medicine differently. After experiencing depression for some years i was finally put on an antidepressant (cymbalta). My dosage was continually increased because I wasn't feeling any better. Eventually I changed psychologists and she diagnosed me as being bipolar II and said that anti-depressants have an adverse effect on people who are bipolar. so for about a year and a half i was on 200 mg of lamictal. It worked wonders and i felt no negative side effects other than if i forgot to take my second dose during the day. Eventually i took myself off of it (slowly, in the same fashion that i had started it) and was off of it for about a year. Getting off of it was hard, but eventually i felt ok. Then a year later i felt i needed it again. So after a 3 months of being on it again my doctor took me off of it because i experienced extreme head pressure-to the point that i felt like my head was going to explode. i had a checkup at my regular doctor and nothing was wrong. once i had the lamictal out of my system i felt fine again. well now a year and a half after that, i started the lamictal again in hopes that it would work like it did the first time for me. Unfortunately that has not happened yet. As i write this, my head has so much pressure. I ve experienced headaches on and off for the past 4 days. This is not a common side effect so im not sure whats going wrong.. Has anyone else experienced this or know why that is happening? Anyways like i said the first time i was on lamictal for a yr and a half and i felt fantastic. I would tell people i "loved it"---which sounds silly but when you go from absolutely miserable to feeling alive again and having motivation, that phrase doesnt sound so silly. so take everything you hear with a grain of salt. experience it for yourself because everyone's body is different and who knows, maybe you will feel better on it. I however am stopping this drug tomorrow because of the rare head pressure i experience while on it!

I've been on Lamictal for about 5 months now. I recently have had some horrible side effects. I've had the acne, brain fogginess and weight gain all along. About a month ago I was hospitalized for having a blood phosphorus level of 0.6 which is dangerously low. The symptoms around that day were nausea, feeling like I couldn't breathe, hyperventilation, heart rate of 120-130, tingling sensations from my nose to my toes, diarrhea and almost blacking out. Of course, the ER doc thought I was having a panic attack and told me to breathe into a bag and try to breathe slowly. NOT from a panic attack. Granted, I was panicking because I was scared. Has anyone experienced this low phosphorus problem?? I will be coming off of Lamictal in the next week. Hasn't made my depression, panic attacks or sex drive any better. thanks.

I have been taking this since October of last year. not only is it my complete miracle cure, but the side affects vanished long ago. For people who have suffered as long as I can, I'll take some queasiness, horniness, and blurry vision over wanting to die DAILY any time. I love it. Love it love it love it.

Incidentally, I lost my job a few months back and stopped taking it and IMMEDIATELY went back to the worst I ever felt mentally. if you are taking this and would like to stop (or need to cause of lack of ins.) talk to your doctor. My experience with the immediate lack of mood control was awful.

memory loss, panic attack, vision, speech, chest pain, tiredness, loss of sex, headache 3-4 days, loss of food, weight gain, acine, leg pain, swollen feet, muscle problem, hair fall out, hair gets thinner, stomach ach,, double vision, staring.

The only side effect that I have experienced with Lamictal (300 mg's a day), is memory loss. My short term memory is like Swiss cheese. Unless there was a major event, I can't remember what happened two weeks ago. Anything that is over a month ago, I will remember the event, but not which month it was in. I write everything down and I mean everything that I will have to remember at some point in time. I even have problems finding my way around my neighborhood if I'm under any amount of stress.
Other than that, the drug is great. I have no mania and or weight gain. It's really helped me a lot.