Danazol side effects

I was taking Danazol for 20years in alow dose for pressitant breast pain. I gradually began to suffer from muscle pains for no apparent reason. My doctor immediately stopped the Danazol, although wouldn't admit they were causing the problem. I ''fell apart at the seams''. None of my muscles worked properly, I had extremely high blood pressure, could barely walk, I was in constant pain and had to have massage for 2 hours per day. My eyes ached, I couldn't control my bladder and bowels very well. I thought I was going to die. My doctor sent me for numerous blood tests, endoscopes etc. But said I was depressed. I was depressed, because I felt so ill !
Its now 4 years since I stopped Danazol and I feel it has caused long term damage to my muscles. I have tried everything from massage to supplements. Things have improved a great deal, but I find it difficult to exercise as I tire very easily and particularly my back muscles seize up even after sitting for any length of time.

Has anyone else been on a low dose of Danazol for this length time. Have you suffered?

This medication, Danazol. seems to have NO side effects for me, and it is the ONLY remedy in several years of suffering from breast tenderness, heaviness, and pain, that has helped! (I have fibrocystic changes.) Danazol is Heaven-sent!!!