Danazol and great deal

I was taking Danazol for 20years in alow dose for pressitant breast pain. I gradually began to suffer from muscle pains for no apparent reason. My doctor immediately stopped the Danazol, although wouldn't admit they were causing the problem. I ''fell apart at the seams''. None of my muscles worked properly, I had extremely high blood pressure, could barely walk, I was in constant pain and had to have massage for 2 hours per day. My eyes ached, I couldn't control my bladder and bowels very well. I thought I was going to die. My doctor sent me for numerous blood tests, endoscopes etc. But said I was depressed. I was depressed, because I felt so ill !
Its now 4 years since I stopped Danazol and I feel it has caused long term damage to my muscles. I have tried everything from massage to supplements. Things have improved a great deal, but I find it difficult to exercise as I tire very easily and particularly my back muscles seize up even after sitting for any length of time.

Has anyone else been on a low dose of Danazol for this length time. Have you suffered?