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This registry is a place to share positive or negative side effects of using Danazol. If you directly experienced a side effect while using Danazol, then we encourage you to enter it here. Please note that entries here are the experiences of individual users, and in no way means that you or anyone else will experience the same side effect, since the same medication affects people in different ways. Please always contact your physician.
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My sun has suffered from three years of age with stomach pain and discomfort uppon eating he is now 12 years old. We have seen many doctors all of whom are very vague. His blood work consistantly comes back with low amylase and lipase. Yet they dont see any need for further investigation. I have been told he has a sensitive stomach. As a mother I see more. I live with him and see him every day. He eats very little, (i think it still hurts) he says he's not in pain anymore. At nine he was still thr...
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by michellebf, 6 replies, updated 1 day ago.I have a son who now is 12 from birth on he had constipation,with the years it didnt get any better,i went to differant doctors with him and they him medications like mineral oil,miralax,stoolsoftner,nothing help sometimes he has terible pain and needs to go to the ER they give him a enema and IV to hydrate him now when he needs to go to the bathroom maybe 1 a week he doesnt feel it anymore only when he start to go into his pants and feels the stools against his bottom skin does he realize whats hapenin...
by celine302002, 3 replies, updated 1 day ago.
November 20th
2007
10:23 AM
I was taking Danazol for 20years in alow dose for pressitant breast pain. I gradually began to suffer from muscle pains for no apparent reason. My doctor immediately stopped the Danazol, although wouldn't admit they were causing the problem. I ''fell apart at the seams''. None of my muscles worked properly, I had extremely high blood pressure, could barely walk, I was in constant pain and had to have massage for 2 hours per day. My eyes ached, I couldn't control my bladder and bowels very well. I thought I was going to die. My doctor sent me for numerous blood tests, endoscopes etc. But said I was depressed. I was depressed, because I felt so ill !
Its now 4 years since I stopped Danazol and I feel it has caused long term damage to my muscles. I have tried everything from massage to supplements. Things have improved a great deal, but I find it difficult to exercise as I tire very easily and particularly my back muscles seize up even after sitting for any length of time.
Has anyone else been on a low dose of Danazol for this length time. Have you suffered?
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