November 4th
2007
6:07 AM
I have just been reading the list of, what I am considering to be "possible", side effects from Dilantin . Doesn't everyone, whether on Dilantin or no drugs at all experience headaches, nausea, stomach pains or depression from time to time?
After being on this medication for over 30 years there are some things which I've experienced. Just about everyone complains of hyperplasia but it has been my experience that if I maintain a clean healthy mouth, there is no hyperplasia. If, for one day, I do not brush my teeth, hyperplasia sets in immediately & it then takes a week or so to get it under control. So, brush, brush & brush your teeth.
As far as memory loss or difficulty learning, I suppose it happens to everyone at one time or another. However I have graduared from high school with honours & became a registered nurse (top 5 in my class of 56) all while I was on Dilantin.
The only true adverse side effect from taking Dilantin for over 30 years which I experience is that whenever I am tired, my speech can easily slur. I am very aware of this & it's become habit to pay close attention to my pronounciation & correct it so I may articulate normally. Not a big deal & a very small price to pay.
I'm not one for pity trips or blaming my seizures or medications for my downfalls in life. I am so grateful to have my seizures under control & hate to think where I would be today if not for Dilatin. Remember, if you look for it , you will likely find it. So try not to look for all these adverse side effects (crutches)& see the benifits. We have enough to handle keeping this under control & educating the sometimes ignorant world.
I took control of the epilepsy that attacked my system. I would never allow it to control me. Good luck to all of you. Sincerely :)
September 20th
2005
6:30 PM
I take 400mg of dilantin daily for the control of nocturnal seizures. I'm experiencing some memory loss. I have been on this medication for 3 years.
-- By echotss | Reply | Private Message me
August 30th
2008
7:18 PM
To the person above me who claims Dilantin is being used as a "crutch" for people, congratulations on graduating with honors and being a nurse, but please do not assume your non-reaction to this medication is how we all react. I was diagnosed with seizures at age 20 and have been on dilantin for 2 years. At 22 years old, I have no recollection of my junior or senior proms, my high school graduation, many huge events in my life. I can't recall even ATTENDING these functions. Dilantin has erased my life from my memory. I had a 3.8 GPA in high school, did not do drugs or drink. No actions that would have caused my memory loss. Now, I stutter, I am constantly tired, forgetting things very often, studying is nearly impossible and I have no sex drive at age TWENTY TWO. My doctor refuses to change my medication insisting side effects of other medications would be even worse. I've considered weaning myself off Dilantin to end these effects but am afraid to do so. I wish we could all be as symptom free as you have been, but please do not look down upon those who have legitimate side effects.
-- By notyourstar54 | Reply | Private Message me