October 30th
2009
3:43 AM
MAJOR loss of short-term memory and inability to concentrate.
I have been on Lamictal (for bipolar tendencies) for 3 or 4 years now. Overall it has been really great for me -- really calmed me and leveled me out like no other medication has.
Except that it has made me embarrassingly dumb. I have a graduate degree in electrical engineering, which is pretty worthless at this point because I cannot add two simple numbers in my head. My grammar and spelling skills have taken a nosedive. I took a grammar refresher class to try to boost it again, but I couldn't concentrate and can't remember what I learned. And even worse, sometimes I can't remember basic things like which way to flip the turn signal lever to signal left or right when I am driving.
I went up to 350 mg and it worked great (for the bipolar), but I could barely function at my job. So I've lowered it slowly to 150. My brain works a bit better, but still not well. Today in a meeting I was explaining something important and realized a couple minutes later that I was totally wrong -- I'd remembered incorrectly. So I had to interject later and explain that I'd been wrong. Things like this are very embarrassing and ruin my credibility at work.
But as I said the Lamictal has been amazing in other aspects. Ultimately I don't know if trading my brain for that is worth it, but for now it is because no other medication has worked. I worry though that even if I stop it in the future, my brain may not be able to recover, from lack of use.
Thank you all for your information. I am relieved to know I am not alone.
-- By magneto123 | Reply | (1) replies | Private Message me
October 22th
2009
11:07 PM
i have a friend who went after her husband in a ctalsudden rage after starting the Lamital, she loss huge amounts of hair and it conytinues to fall out , was put out of her house,broke up her family and is a complete mess. She was on adderall, suboxone and the n the dr gave her this,i was trying to figure out what was going on with her and i looked up the newest of her drugs lamital and found out what was going on . Mt advice to all you bipolar people find GOD no one is ever happy all the time and we all go through really hard times . I am sober and take nothing for the last 20 yrs. When i first got sober doctor tried to tell me to take antidepressant, I said ," the difference between us is when all else fails i go to GOD and you go to meds"" YOU wont break. We live in a society run by drug companies that you are not allowed to have emotion, they flat line everyone.and when it doesn't work they give you more drugs till you are a blob of a person. Get off everything{ except if you need it for ceisures } It could take a yr to completely detox, be patient and go to na meetings
-- By mmarzell | Reply | (3) replies | Private Message me
September 30th
2009
2:14 PM
I am on 75mg in the morning and 50mg in the evening (125mg/day total), for my seizure disorder. If I could get off of it I would because I know how bad psychiatric drugs are. I used to be on various antidepressants for about 4 or so years, until I learned that "mood disorders" are all a crock, and drug companies are making a killing off of all the psychiatric drugs. Did you know that it has never been proven that depression or bipolar or whatever is caused by chemical imbalances?? It has been proven, however, that psychiatric drugs mess up the brain. Do some research on this. Go to the sight ****** I am so thankful I am off antidepressants but my life will never be as good as it was before I ever put the first one in my mouth. I would encourage everybody who has been diagnosed with "bipolar" to slowly and gradually withdraw from your medication and don't give up until 6 months have past. It takes a very long time for the drugs to get out of your system and you will feel like you are going through hell as you withdraw but in the end it is all worth it. Back to the Lamictal, I have now been on it for about 4 years. It does not control my myoclonic jerks completely (I have Juvenile Myoclonic Epilepsy) but controls my grand mal seizures as long as I take care of myself. I have pretty much no side effects, except for possibly poor memory/forgetfullness/can't find the word I'm looking for/etc, and possibly some slight "ocd" tendencies. It is hard to distinguish from the leftover effects of being on antidepressants (which caused me a lot of anxiety, panic attacks, depression, etc), because I do have some mild anxiety left over from them, but has drastically improved. The man problem I am suffering now from the Lamictal is feeling the effects of it wearing off in the evenings. In the last few months I have been feeling that feeling on and off throughout the whole day!! And my myoclonic jerks are increasing. I really don't want to go up on my dosage due to the brain damage psychiatric drugs cause and all the bad side effects I could experience, but neither do I want to change medications because I am at a very stressful time in my life where I am already going through a lot of changes. No idea what to do. Just wish that God would heal me of my seizure disorder!!! (it is a kind I am told I will never grow out of) Even if I had to go through the withdrawal from the Lamictal it would be worth it! If only...
-- By smacky | Reply | (1) replies | Private Message me
July 30th
2009
6:57 PM
**I found something that helps the foggy head, forgetfulness, short term memory, and sleepiness that comes with taking Lamictal!!**
I want to pass this along , because it has helped me SO much. I was diagnosed bipolar II recently and was put on Lamictal. I'm a writer, so my biggest concern was being able to find the words I need and having the concentration for my work, but suddenly I lost my ability to string words together when speaking OR writing. The words weren't even close to coming to me. I felt like I was sleepwalking half the time, along with other symptoms, but the bouts of spacehead were hardest to take. I felt pretty desperate and kept researching until I came across a post on a message board that claimed to have the answer.
If you can manage, do not take Lamictal at night. The following is so simple that it might seem strange that it works (it did to me):
All you have to do is set your alarm for a half hour to an hour before you would normally get up. Then take your Lamictal and go back to sleep for a half hour to an hour (it takes a little practice to get used to this morning routine at first, but it's totally worth it). For some reason, it's ESSENTIAL that you do go back to sleep for that short period and do not just rest with your eyes closed until it's time to get up.
I tried this, not really expecting anything from it, but on the very first day it seemed that at least 85 percent of the foggy-head was gone. Just gone. It has continued to work every day that I have managed to do it, and when I don't do it, the foggyhead is back again with a vengeance. I finally feel great, as if the medicine is doing exactly what it's supposed to.
Taking Lamictal at night (like doctors often recommend) can make the fogginess worse than any other time. The person who posted about this originally said he told his psychiatrist about his experience, and the psychiatrist told his other patients on Lamictal to try it. It worked for them too.
I hope this is helpful to others as much as it is to me, though I know everyone's body and brain are different, so it's possible that it won't work for everyone. I do hope if it works for you that you'll spread the word, because this is such a debilitating side effect.
Best wishes to you all.
-- By christietoo | Reply | (2) replies | Private Message me
July 17th
2009
5:34 PM
Hello I was diagnosed with Bi polar about 2.5 months ago and I am taking 100mg of Lamictal after being on Lithium after a nervous breakdown, in which the inpatient facility tried to have me committed beyond my will. My side effects include high sex drive, headaches, sleepiness, nausea as I increased the dosage, and being itchy but I'm not sure that is due to the Lamictal. At first bipolar was a horrible diagnoses for me, but now I am not so intimidated by the diagnoses. However, I seriously doubt that I will have a normal life or kids. I'm 24 and haven't got it right yet, perhaps my 30's will be something to be proud of. I also got into legal trouble on my way to my nervous breakdown I'm kinda scared of what else this freakin illness has pour moi!
-- By lizqueen07 | Reply | Private Message me
July 13th
2009
11:23 PM
Hello. I just finished the one month starter pack of Lamictal for depression. I've been noticing some strange things going on with me lately but did not make the connection to the Lamictal until I spoke with my pharmacist (while picking up my official prescription). Mainly the info warned of dizziness, sleeping issues, heart racing and sinus issues. I have had ALL of these. Two weeks into taking the medication I can't sleep well at night. I wake up and my heart is racing. I have to go watch TV to settle down. Plus, I'm extremely EXHAUSTED all day. And finally, the worst symptom is my sinus issues. I have constant mucous in my throat and pressure in my sinuses. I have the worst headaches. I'm popping Advil to deal with my sinus pressure. It's agony. Plus, I'm not motivated and I think I'm a little depressed. I'm going to discuss getting off this medication with my doctor tomorrow.
-- By amber0008 | Reply | (2) replies | Private Message me
July 7th
2009
12:49 AM
I have been taking 25mg per day of Lamictal for five days now. I am also on (and have been for five years) 200mg Zoloft per day. I was recently diagnosed bipolar (no surprise) and after seeing a psychiatrist, this was the med I chose, Lithium and Depakote being the other two choices, I felt that Lamictal would be the most appropriate in my case, because it is supposed to help with anger/rage issues, according to the leaflet provided by my Dr., as well as the 'rapid cycling' of my moods. So far I dislike this med, despite the fact I started it with optimism. Side effects are as follows:
Sleepiness - started the first day, I took the first dose the night before.
Lack of energy/motivation - I was doing ok as far as motivation was concerned until I started Lamictal, I was on a positive mood swing at the time, now, it's taking all my effort to stay focused and finish this.
Feelings of disassociation - I don't want to go anywhere, or see anyone, take any calls, etc..this is a problem I have had prior to Lamictal, but it suddenly got worse upon starting it.
Sudden anger/rage - I have felt overly aggravated at times, fast to discipline my son without taking a minute to think it over, it's pretty spontaneous. Day two scared me a bit, I have been making a serious conscious effort to not lose my temper or react suddenly. Today I actually had a spontaneous thought of suicide during a moment of anger, which also alarms me.
Loss of appetite - I'm a skinny guy, can't afford to lose any weight or go without eating, this stuff has pretty much killed my appetite, I'm forcing myself to eat at least once a day...and it isn't easy, I tell you.
Hypersensitivity to noise - Seems like the volume on everything has been amplified, it's making me nuts..
Unpleasant taste in my mouth - since day two. Hard to describe, sort of metallic.
Decreased urge to smoke - I have been smoking for 23 years, a pack per day regularly. I noticed at day two the urge to smoke was dramatically decreased, I smoked about eight cigs total today. Being asleep helped with that too, I'm sure...gotta be conscious to smoke, right? This would be the only positive effect I have noticed thus far.
At this point, I'm really not sure if I will continue with this med due to the above effects. I am a bit disappointed because I had hoped this would do the job and I could avoid the Lithium (icepick up the nose is the only thing left if Lithium doesn't work) and the Depakote, because the effects of those are far more serious by comparison according to what I have read and heard from others who have taken it.
I don't know what to do next, honestly. I have taken nearly every type/kind of antidepressant, Zoloft seems to do the most good, but I'm still having mood swings/cycling while using it, so a mood stabilizer was the plan to fix that...seems like I'm pretty much hosed.
July 4th
2009
3:19 AM
My third day taking lowest dose of Lamictal. Have been taking Adderall and Cymbalta with no negative effects. I expressed to my doctor, that I am still sleeping a lot and sometimes don't even feel like getting up to taking my meds. When I do take them, I'm pretty great for about 6 hours, then right back to the couch.....
My doctor told me to stop the Cymbalta and start taking Lamictal. The first day I was my usual self, second day: dizzy, cloudy head with bad headache in temples. Weird throbbing in head. If I turn my head to fast, it feels like I need a extra second for the rest of me to catch up. I've been in bed, lifeless for the past two days. Don't feel that I can do much with my head like this. My hip bones and lower back ache.
My main concern is "Will these side effects subside?" I'm not Bipolar. I suffer from long term Depression/Anxiety triggered by abuse and trauma.
Please if anyone out there has felt similar effects from this drug, let me know. I want to give the drug a chance, but also would like to hear other's experiences.
June 17th
2009
3:57 PM
Hey, am I glad I ran across this. I too had BAD experience with Lamictal; anything over 75mg gave me depressive / fatalistic dreams if I took it at night. Doctor suggested taking it in the morning, that helped, eventually up to 150mg. All this for *suspected* bipolar II. All that really happened is that the med flattened me out too much- I didn't care much about anything, no passion or motivation. Optimism? What's that? Then the OTHER fun part - coming OFF the drug. Whoooo boy. Wasn't so bad coming down from 150mg to about 75mg. THEN I got hit with a LOT of anger, anxiety, insomnia, tremors.... I wound up going into a Partial Hospitalization Program for 5 weeks. I am now 100% OFF Lamictal. Thank God.
-- By lightningguy | Reply | Private Message me
June 8th
2009
9:08 PM
I have pretty serious memory problems, and I notice the problems at work. Maybe the stress of work makes it worse at work than at home. But my boss and i talked the other day, and I said I felt scattered - she said I come across as very scattered, forgetting stuff, not following through, etc. I said I would write things down more to help me remember, and she said maybe I might try a different drug (she knows about my bipolar - I told her, and I use a service dog to help with anxiety and tardive dyskinesia from another psych drug). When your boss tells you to maybe try a different drug, it's a bit scary - am I going to lose my job?! But when I forget to take the Lamictal even one day (I take 200 mg. in the morning) I can feel the difference within 24 hours - agitated, depressed, irritable, impatient, etc.). So I have to be careful to take it every day. Along with my other meds...
I don't want to go off the drug, but the memory and cognitive crap is really hard. It's nice to hear I'm not alone.
May 23th
2009
11:53 AM
In late May of 2008 I had a pretty severe bipolar II crash. I was prescribed Lamictal but can not recall how much; it seemed like my doctor had a healthy fear of Stephens Johnson syndrome, Subsequently my dosage was slowly increased until, one day, I began to notice a rash. I went to the ER as directed and before I knew what hit me I was in bad shape. The good news: it wasn't Stephens Johnson, Bad news: It was something even more rare and almost fatal. Fortunately, I recovered in about 7-10 days. This ordeal seemed to throw my bipolar II for a loop, and I struggled with depression/anxiety for many months. Ever since I " came to" after the Lamictal event, I have had pain in both shoulders of all things. Imaging turned up nothing unusual
-- By georgeiii | Reply | Private Message me
May 19th
2009
12:18 PM
I was diagnosed as having Bipolar Disorder/with severe panic and anxiety disorder in 2000. I had been sick realistically since I was around 11 years old. Suicidal thoughts, and uncontrollable mood swings. I have been on Lamictal (200-400mg) per day along with Klonopon for my panic disorder, since 2001. I do experience a slight memory loss from time to time, but feel that it is not the medicine but that sometimes I am not really focused on the conversation, or my environment. I have also experienced very vivid dreams, sometimes nightmares that are overwhelming. But I think it is cool that I can remember my dreams now, because sometimes they are worth remembering. I would never consider going off of the medication, for it has saved my life. I am a completely different person now. I am very happy. I do experience sleepiness a few hours after taking Lamictal, but if I take it at around 3pm, by the time I get off work at 5, I am not tired yet and have no problems driving. Some of you should try this method. I think a lot of other side effects are just in people's heads.
-- By klsmith2 | Reply | Private Message me
May 16th
2009
8:34 PM
Hi, I have been reading all the postings and my heart goes out to everyone. I been there, done that. Myself, I have a seizure disorder and been on Lamictal since 2003 (I can't recall/remember) - I had tried 5 other seizure meds that didn't work for me. For quite a while now I take 600mg a day and Keppra 250mg to control my seizures. I lost my driver's license twice so far (I know that is the rule in CA) , and once not long ago (I got my license back) I got totally lost in my town, which I used to know like the back of my hand. I thought I had lost my mind. I asked my doc if I was getting demenia and he said oh no you are too young (53). I have also learned doctor's (for the most part) are idiots too. They don't think outside the box for us. I can't spell anymore, get depressed easily. I really want to work, but I can't. I have tried time and time again, but (yesterday) it just about did me in...people explained to me how to do things on the job many many times but I couldn't retain any thing. People just looked at me as if to say what planet did you come from. I cried on the job so hard I wanted to disappear. I am so sick of my family saying "I know you can't - don't remember this or that..... I can hardly bare that. Now I have a potential kidney problem. Suppose it is from these meds? I am really scared.
-- By deeverve | Reply | (2) replies | Private Message me
May 15th
2009
2:44 PM
"Bipolar cocktail" is an excellent way to articulate my medication regimen as well lol. I've been on Wellbutrin for about 8 years, and recently increased my dosage of Lamictal dramatically. (I'm on Lexapro too, but I don't think it's relevant to this situation.) Immediately after the increase in dosage, I started having greater difficulty with my cognitive abilities, a whole lot of trouble speaking (that pulling the word out of my head issue), short-term memory worsened beyond the little ability I had left from the rest of the side effects of my other medications, and other examples of brain mushiness :) Anyway, I recently brought this up to my doctor- she said these symptoms sound more like side-effects of Wellbutrin, and Lamictal is supposed to have few to none except a rash. But I haven't had a change in my Wellbutrin dosage in something like 5 years. Has anyone heard anything similar to this from their doctor? It doesn't make as much sense to me as it being a side-effect of Lamictal does...
-- By jenshinefiery | Reply | Private Message me
May 15th
2009
2:30 PM
"Bipolar cocktail" is an excellent way to articulate my medication regimen as well lol. I've been on Wellbutrin for about 8 years, and recently increased my dosage of Lamictal dramatically. (I'm on Lexapro too, but I don't think it's relevant to this situation.) Immediately after the increase in dosage, I started having greater difficulty with my cognitive abilities, a whole lot of trouble speaking (that pulling the word out of my head issue), short-term memory worsened beyond the little ability I had left from the rest of the side effects of my other medications, and other examples of brain mushiness :)
Anyway, I recently brought this up to my doctor- she said these symptoms sound more like side-effects of Wellbutrin, and Lamictal is supposed to have few to none except a rash. But I haven't had a change in my Wellbutrin dosage in something like 5 years. Has anyone heard anything similar to this from their doctor? It doesn't make as much sense to me as it being a side-effect of Lamictal does...
-- By jenshinefiery | Reply | Private Message me
April 13th
2009
2:00 PM
50 y.o. female suffering from severe depression (or so I thought) since mid-teens. Finally sought professional help 8 mos. ago - diagnosed w/ bipolar disorder/depression/anxiety. Lamictal (now up to 300mg/day) has literally been a life-saver for me. I feel calm, rarely depressed, a bit more patient w/ myself and others, and the suicidal thoughts I've had for 30+ years are gone. I feel happy. The side effects, however, are disturbing. W/ the higher dose, I feel emotionally well but the memory problems are scaring me. When I write, I know which words I should use, but now I frequently omit or misspell words - not a problem before. I've always been a fast, accurate typist but I feel clumsy when typing and frequently hit the wrong keys. I misplace things and since I'm a bit OCD about losing paperwork, etc., it's happening. My job requires me to handle important financial docs. for people and I'm worried that I'll miss or lose something. Some days I can be very articulate w/ great use of vocabulary and other days I feel lucky to put a string of words together that will make sense. I'll lose a thought in mid-sentence. My doctor recommended that I take 1 mg of folic acid per day; it seems to help the memory issues and I may increase that amount. I grind my teeth at night so badly that I'm wearing a night guard to avoid ruining my molars. I find myself frequently rubbing parts of my hands together - especially when my hands aren't otherwise occupied. My dreams are vivid and I recall most of them, which is a pleasant side effect because I went many years without remembering my dreams (maybe due to alcohol abuse?). Another unpleasant side effect is clumsiness. I'll reach for something and miss it or jam my hand into a solid object, I drop things, I hurt myself more often - stubbing toes, smashing fingers, and cutting my hands more often in the kitchen. My doctor has put me on two different anxiety meds but the side effects were not acceptable so I stopped them. I'm considering lowering the Lamictal dosage to see if the memory issues improve; I can deal o.k. w/ the other side effects. I can't imagine not taking this drug, so I'll most likely endure the side effects for as long as possible.
-- By sphilpott | Reply | Private Message me
April 6th
2009
12:10 PM
I have been on Lamictal for Bipolar II for a little over two years now. The first side effect I really noticed was that I had zero desire to exercise anymore. I used to be pretty athletic, loved to go on hikes, now I could care less. Also, my brain is mush. I am a former honors/ Dean's list student; I had one professor in college tell me I was the only person in class who would ever be able to write professionally, and I have been trying to write the same novel for three years now. I forget how to spell words and how to formulate sentences. I can never find the right word. I forget what the plot is, what I wrote in the last chapter, so I am constantly re-reading what I wrote. I started to think that I had ADD because I couldn't focus on anything, and I couldn't remember if I had always been this way or not. Granted, I think I have always had a bit of a problem with executive functioning- organizing, prioritizing, completing tasks- but it has always been more of a problem with keeping my house clean, etc, NEVER with writing. Also, I have always been very good at remembering names, dates, events in history- the random sort of information that makes a person stellar at Trivial Pursuit- and all I can say now is, 'Uhhh... oh, man, I KNOW THIS.' Also, I am becoming incredibly antisocial, which I think probably has something to do with the fact that I no longer know how to talk. (A sidenote: I'd say chances are good that I have Asperger's; socializing has always been a challenge for me. My point here is that I'm wondering whether Lamictal is making the things I have problems with worse, ie, executive functioning, socialization..., etc. I used to be able to overcome these impairments intellectually; now that my brain doesn't function the way it used to, it's way harder to compensate.) I had a conversation with my husband the other day about all of it, whether he thought Lamictal was truly helping me. He told me that I no longer seem interested in doing anything anymore; that I am no longer sharp like I used to be; that I lack the vitality I used to have; that I no longer get excited about anything anymore. Now I know that Lamictal is a mood stabilizer, that I am on it to stabilize my moods, so obviously there are no longer going to be the highs that there once were. But now I feel so flat and dumb I just don't know. By the way, I have worked my way down to 75mg at night from 200mg. (Which is an improvement, I'll give you that- before I was scared to drive because I'd practically forget I was driving, that's how crappy my short term memory was.) Just so you know, I don't feel depressed, so it's not that my dose is too low and I'm experiencing depression. I just don't feel much of anything at all anymore.
-- By ida | Reply | Private Message me
April 1th
2009
1:08 PM
hi i have posted before you i have been through all you said what to do then there are some positive points r there this tab lamictal generally suits the people who does not react to other med as vaporate ,carbamazine,lithium it works differently from other tabes i think people say that while you take a medication there are side effects and there r problem so with every every thing you put into your stomach why you eat food it is because it is necessary to keep you alive wee r leaving in science age people in the past the people who use to have symptoms like bipolar disorder and schrizophenia use to either suicide or where burned to death thinking they r wiked thingk even positive side of this and friend look at each problem separately don't mix them and try to find answer increase your reading learn more about this disease read self help books and eat the tabes you need to eatwe r not wrong people just taking this tablets to feel well but normal people to live normally live life and enjoy it fully ............i have acne problem thinking of using accutane i hope it will work
-- By harry_potter | Reply | Private Message me
March 24th
2009
1:42 PM
Hi ! I'm French and bipolar 2 rapid cylcing (every 2/3 months for about 3 weeks each taking anafrani)l. I'm 50 years old and I had lithium for many years. Since July I have lamictal. It's very recent in France and my doctor doesn't know if my problem to sleep I get since I have lamictal will go away or not and if lamictal is responsible.
I describe the problem : I have difficulty to get asleep, I wake up during the night and I wake up very early in the morning even if i go to bed late. So I'm obliged to go to bed before 10 pm. It's very hard but since I take lamictal I had no down since September (6 months it's wonderful for me)
I only had some variations during the day at the beginning but it seems to be better. I feel really better than with lithium. But there is this problem of sleeping. In France nobody could answer to me and my doctor told me to go on internet with USA of Canada where you use for long time lamictal. Do you know something about that and do you know if it can be better after a few month more ?
Could you please answer me here or on my email : ******
Thanks a lot in advance and sorry for my bad English. I hope you will understand me.
Kind regards
N.
March 10th
2009
1:15 AM
Reading over some of these posts and wanted to share my experience w/Lamictal. Been on it over 2 year, 400mg/day. Sever bipolar with mixed & rapid cycling episodes. Oh YEA...I have side effects too: blurred vision that comes and goes, super klutziness, confusion, hard to complete sentences sometimes (just can't find the words sometimes for the simplest sentence!), dizziness, prone to broken blood vessels under the skin when bump into something or carry loaded grocery bag over my arm, jittery, short term memory loss, feeling really stupid like my brain isn't working sometimes. BUT...I will stay on this med because it rally works for me and the above effects are and bad, just frustrating. It took me a good 5-6 months for the meds to work as they should. Be aware that it won't make things perfect, mood swings and even moderate episodes can be expected. I am pretty much in a constant state of mild/moderate mania (2 hr sleep/night, hi energy, talk to fast, mind racing,etc), which is fine for me, as it really curbed the depression (maybe only 1 day every 2 months now and its NOT a BAD downer) I have found the drug is a good "stabilizer" keeping me mostly in a normal to moderate swing...never any severe swing. If the side effects are not unbearable, stick with the med, just be patient. It sure works for me. Learn to laugh at the klutziness and stupid moments and understand its the med and you. GOOD LUCK TO YOU ALL!
-- By lcsocorso | Reply | (3) replies | Private Message me
February 27th
2009
5:18 PM
I have been on Lamictal now for almost 3 months for bipolar. I'm still not sure if it is helping or not. My husband says I seem better, but I feel almost the same as before if not worse. Has anyone noticed any major changes in their menstrual cycle? I'm on the pill and it would usually last 4-5 days with moderate bleeding. Now I get more annoying cramps than before but my period only lasted 2 days and it was more like spotting than a period. This makes me nervous, but my doctor said that it is more likely the risperdal that I had taken for a month when I also started taking the lamictal, but I don't agree. I recently went up to 200mg (1 morning, 1night). The morning one knocks me out but the night one has been keeping up!? I also feel less coordinated (hard to balance, knocking stuff down, klutzy). Also, it has been hard to put words together and recall correct information. Now I have to say" I think I heard or I think I remember". If I really need to remember something I have repeat it or really concentrate on the information. I used to not have to do that. Another thing I've noticed lately is hand and knee pain. Makes it difficult exercise to lose the 20 lbs I've gained. I don't know, personally I think I will give it one more month and if I still feel the same, I'm going off of it and looking into natural alternatives.
-- By diddlesquat | Reply | (1) replies | Private Message me
February 22th
2009
8:23 PM
Hi Everyone...I've been on a bipolar cocktail for 3 years and one ingredient is LAMICTAL along with Lithium and Wellbutrin. Overall the drug has worked and I feel pretty healthy mentally. Of course I am particularly concerned about my memory loss, putting a sentence together and finding the simple words for basic objects. I really do feel dumb, especially at work, as I am in sales. Many times I stutter, fumble and go blank in front of customers. I have not told my boss or anyone else that I'm on the meds, so I know they think I'm just a dumb-ass. I'm ok with that. I also quit going to school for my master's because of the short term memory loss and general mushiness of the brain. I was once an honor student and very outgoing, now I just keep my mouth shut when I can in fear of making a fool of myself. My balance is off and as weird as it sounds I have trouble parking my car straight in a parking space. My co-workers have commented a few times that I don't know how to drive. At first I thought it was my car, the tires, alignment, etc...but when I got another one, it's still happening no matter where I park. I'm 43 and have acne and underlying bumps on my face, chin and neck. I did lose weight though! So, I can empathize with most of you. I'm not thrilled with being on these drugs for what may be forever, so I guess I need to decide whether to stay on this stuff, reduce, taper or change drugs. LOL to all.
-- By meojessup | Reply | Private Message me
February 12th
2009
2:02 PM
i suffer from bulimia and bipolar 2. i started lamictal today and all this weight gain talk is freaking me the HELLLLL out!!! does anyone know of any alternatives?????
-- By lillucy2003 | Reply | Private Message me
February 10th
2009
11:22 PM
I ran across this post as when I got really sick renovating a house I ended up a neurologist who recommended lamictal and that I was bipolar. My symptoms were bad neurological defect inability to concentrate intense burning headache, muscle aches, neurological pain in my arms and general stiffness and fatigue with twitching muscles, heart arrhythmia and anxiety. I couldn't understand how all of a sudden I had become bipolar however was under an extreme amount of stress (living in a half torn apart moldy house with no heat while serving as my own contractor under 300K of debt with no job as my arm pain interfered with my computer consulting practice ). I tried taking anti-depressants. My headaches got much worse and I turned a pale whitish yellow and developed fatty lumps under my skin called lypomas (wellbutrin) my friends (later) said I look like a cadaver. I felt like my symptoms did not match what was generally diagnosed as depression or bipolar but my regular doctor and neurologist insisted that I was depressed in some form or another. After another year or so of being really ill and trying different AD meds and finding no way out I was getting pretty desperate. I heard of a plce in Hawaii that a friend recommended cleans and unbllocks your interal organs using nothing but water. As a scientist and engineer and builder I was skeptical but felt like something like that might be the best path - it was a shot in the dark. I sold the house and dropped $5K on the treatment and trip to the big island It was like being let out of a cage my body turned from yellowish white to pink and healthy looking in less than 5 days. I dropped 20 lbs of the unrecognizable stuff out of my colon and liver. I believe I had a problem with cholestasis - stagnant liver bile that solidifies when you work too hard without drinking enough water causing bad digestion and absorption of nutrients leading to all sorts of problems incldung toxic liver and portal hypertension and jaundice. It's now two years later. The only thing that is wrong with me now is a small amount of fatigue and irritation in my frontal lobe when I work long hours at the computer. I continue the cleasing process and may go back. Contact me if you might be interested in the details. Drugs may be helpful to some and I may try an antidepressant to get me over the top but if you start medicating while your organs are not working well due to a lifetime of bad eating and lack of exercise ( or in my case working physically to exhaustion and then ordering out pizza and eating on the run for months on end) you might want to try another way. Oh and I'm not bipolar. Lamictal taken in the state of health I was in would probably have killed me. I'm now 41 and have a new life to look forward to and a whole lot wiser. There's a book called the amazing liver and gallbladder flush. It's the real deal.
-- By jonnoshaw | Reply | Private Message me
January 27th
2009
3:04 PM
45 years old, female, diagnosed bipolar II in 2006. On Lamictal for 2 years. Initially, very positive effects of Lamictal - felt "normal" and stable for the first time in years. Didn't notice any side effects. Gradually increased from 200 to 400 mg per day 6 months ago as I still experienced mood swings with a tendency towards depression. I have been on 400 mg/day since August 2008. It is difficult to say what are the side effects of the medication, and what are "natural causes". Since doubling the dosage, I experience memory loss and increasing cognitive problems (slow thought process, difficulty putting together coherent sentences in discussions, fumbling for words. I have spent more than one hour on this posting!). I sometimes wake up during the night drenched in sweat. It could be that I'm menopausal, but I find it unlikely. Mood swings have perhaps become less pronounced, but I would like to regain my mental capacity. I plan to cut back to 200 mg of Lamictal - and perhaps some day learn to live with bilpolar II without medication and a lot of help from my friends and loved ones.
-- By siri | Reply | (1) replies | Private Message me
October 18th
2008
11:41 PM
I had been on Lithium for a few months when the consistent weight gain and uncomfortable bloated feeling caused me to seek out a new treatment for my bipolar disorder. Deciding on Lamictal, I started the slow transition of lowering Lithium doses and increasing Lamictal doses. About one month ago, the transition was complete. I didn't seem to have any real noticeable side effects from the Lamictal but after about 2 weeks of being off the Lithium, my skin started breaking out with acne!! Terribly on my chin, cheeks and hair line. I am now wondering if the Lithium may have been keeping this symptom under control. Has anyone had an experience like this?
-- By 86beamer | Reply | (2) replies | Private Message me
October 16th
2008
1:20 PM
Like many patients, I started out on a low dose of Lamictal. Eventually, I was taking 300 mg. This seemed fine for awhile. Then, I started feeling a bit down, so the doctor increased the dose to 400 mg. Increased dosage does not necessarily mean improvement in mood (bipolar). I began to experience a good number of the adverse side effects reported here, including excessive fatigue, gastrointestinal disturbances, cotton mouth and very bad taste in my mouth, muscle tension (particularly in my legs), forgetfulness and confusion, and sinus and chest congestion. At one point in time, I even had difficulty articulating words.
Though I did not suffer from rash, I have been up in the middle of the night with itching all over my body. I had a few episodes of mouth sores and one pimple on my chin. Many of these have improved since the doctor brought me back to 300 mg. However, they have not entirely disappeared. I continue to suffer from the excessive fatigue many of you have reported here.
I recently had a blood test and learned I have very low levels of Vitamin D and Vitamin B-12. I do not know if there is any relationship between long-term use of Lamical and these test results. However, I do know that low levels of Vitamin D can cause fatigue.
Though I am willing to follow through with further blood tests, I am beginning to understand why some people are tempted to discontinue their medications. I am so tired of being so tired and sleeping so much. When I finally get up, I am still tired and drag through the day.
Sometimes, I think I'd rather have a down day or two than take this medication. I should add, though, that my bipolar is not severe, and that I am only reporting how I feel. I'm certainly not recommending anyone discontinue medications for this or any other condition they may be suffering from. If I were to recommend anything, it would be to get a second opinion if one is concerned about his or her treatment.
If I were to make any suggestion to doctors, it would be this: more is not necessarily better. Send your patients for blood tests (mine were ordered by my M.D. and not by my psychiatrist). Increasing the dosage--at least of Lamictal--might result in a host of negative side effects. Your patients might then become disillusioned with their treatment and give up.
If anyone out there has suffered from B-12 and D deficiencies, let me know. I'll let you know what I find out.
And remember, most doctors are really trying to help us.
September 29th
2008
11:29 PM
I have been on Lamictal for about 3 and a half yrs now for Bipolar 1. Overall, I have had a really great experience with the drug. I started with 100mg and then went to 200mg after a year and a half. Now I take 225mg as of a month ago. For about a year and a half I had the acne on my chin and then it went away suddenly (thought it was cutting out dairy from my diet though). I have been extremely fatigued for awhile now. 7hrs of sleep is not good enough for me so I end up taking long naps when I have the opportunity each day- I always want to sleep. I feel stupid and lack focus and motivation. I use to be a social butterfly and now I feel so exhausted when entertaining. I am a personal trainer and am in the business of making others feel better, but I seem to be feeling worse. I have experienced weight gain as well and that is hard for me since I use to be bulimic and have always had poor body image issues. I was on the NuvaRing for 5 months and it made me sooooo depressed so I finally got off that and feel better- don't mix those 2 drugs.
I am going to ask my doctor to take me off of it this week because I am ready to trust God with my mental health. I have a great support system to help me through the tough times and if I want to get pregnant, I have to go off it anyway.
September 22th
2008
2:07 AM
Since I haven't seen it documented, I thought I should not the constant popping of my ears. It's not unbearable, but I question whether the ongoing pressure is affecting my hearing. Also, perhaps related, I have begun to observe soreness in my right jaw. But I have not had any true inner ear problems, such as dizziness or nausea.
On another note, my short-term memory seems to be affected. I'd be very disturbed by this fact, except that I'm taking the Lamictal for bipolar disorder and the net effect is a higher level of functioning.
I'm happy overall, but it's only been two months. I'm concerned about more serious effects setting in later after reading this page. I should note, however, that certain side-effects have already come and gone, including the runny nose, aching muscles, and a brief scare of a serious rash.
One question: does Lamictal affect the immune system? I've taken two rounds of antibiotics now to beat a sinus infection and bronchitis, and I still have a cough....
-- By cassiel_az | Reply | Private Message me
September 12th
2008
3:29 PM
As a parent of a teenage girl diagnosed with Bipolar I as well as DID, I thought Lamictal would be a great change from Lithium and would contribute to her stability. Imagine my surprise when I saw this happening to my 17 year-old daughter; constant insomnia over the last three months; panic attacks; anxiety; and paranoia, especially at night. Finally, my daughter threw her Lamictal away, and she has been much better since. I don't think folks always are aware that anxiety can be a real side effect of this amazing mood stabilizer, and it's good to be on the look out for it when your kid is taking it. She also claimed it made her more depressed.
-- By annie62 | Reply | Private Message me
August 28th
2008
1:07 PM
I feel like I should share my positive experience with Lamictal to balance the negative reviews. I am on it for bipolar II. I sought help because of a mixed state that was causing me to deteriorate to the point of seriously considering suicide. I titrated up on Lamictal from 25 to 50 to 100 and now 200 mg. I started the 200 mg last week, and suddenly yesterday and today, it's like a cloud has lifted. I feel like myself again.
I've had very few side effects. I have the relatively-rare yawning issue--I yawn every few minutes even though I'm not tired. My dreams have been especially vivid, which I actually enjoy. My facial acne seemed to be a bit exacerbated at first, but it's calmed down. I have a couple of small blemishes on my chest and shoulders, which is unusual for me, but it's minimal and responds well to benzoyl peroxide. My weight has stayed the same.
My bipolar has affected every aspect of my life, and I feel more stable now than I have in years. I'm sure there are still rough times ahead, but the relief Lamical has given me is a huge gift. I feel hopeful for the first time in months.
Also, it seems to have increased my libido. Like, a lot. I'm not complaining about that!
-- By crackrabbit | Reply | (1) replies | Private Message me
August 28th
2008
12:40 AM
I have been taking Lamictal since October of 2007. I experienced some of the symptoms (muscle pain in the head and neck) before I started the medication. I have experienced panic attacks since July of 2005. I have had mild heart palpations since I was in my mid 20's (I'm 36 now). I have had what I would consider a below normal energy level since my mid 20's also. Ok so like everyone else I am thinking I'm a hypochondriac! However, I was diagnosed August 28th 2007 with having Lyme’s Disease and also Hyper-Thyroid (same time, same lab-work). Two weeks later I was diagnosed with Bi-Polar Disorder (this is one thing I knew I was battling but didn't know how to handle it). My physiatrist started me on Lamictal and I did the standard ramp up to 200mg. I also was started on a 90 day treatment of Dyoxicycline for the Lyme’s and Methimazole for the Hyper-Thyroid. I was very very weak and was only able to stay awake for short periods of time (4 to 5 hours max). Just an fyi, I am not overweight, lazy or unmotivated. I have the physical appearance of perfect health. This, I think works against me as the Dr's seem to think I'm just whining. Mater of fact; my Primary Care Physician never tested me for Lyme’s. I went to an Urgent Care Center which tested me for Lyme’s disease and I came back positive (they also tested my Thyroid levels and found the problem with my THS levels) I told my Dr the results and he insisted I have same test done again. Guess what, new tests, same results.
My symptoms today are very similar to what I have seen posted many times. Muscle pain (entire body, some areas worse than others), heart arrhythmia, racing heartbeat, intense palpitations, nausea, foggy “un-plugged” mind, fatigue, weak muscles, muscle cramping (especially after repetitive motion, such as strumming a guitar), panic attacks (much more severe) and the latest addition to the group, Insomnia. Muscles pain in my head, fore-head, jaw, temple, neck (front and back), shoulders, is terrible to say the least. The pressure in my fore-head (right under my brow) makes me feel like I need to close my eyes or rest (resting does not relieve anything). The front of my neck is so tight at times it feels like my jaw is being pried down. I could go on and on.
On my quest to find out what else is going on with my body I have had 2 Echocardiogram’s on my heart and abdomen, 2Nuclear Stress Tests, blood work out the wa-zoo, MRI of my brain, 2 CT’s of my Head and Neck, Chest X-rays, Endoscopy, Colonoscopy, and all revealing nothing.
Most doctor’s I have encountered seem to want to treat the symptoms, not the problem/disease. I believe I know why; we (the ones who are there for solutions) tell them what the symptoms are (how we feel). We of course are thinking “this will help with a diagnosis of the problem/disease”, when in fact (I feel); the doctor’s thought process stops there. They don't know what’s wrong with you but they do know what your symptoms are so....bingo, let's treat the symptoms. Don’t misunderstand what I am saying. I’m not saying, “Most doctor’s don’t know what they are doing” or “don’t take your meds”. I am saying you and I are one of the 20 to 30 patients most doctor’s see daily (100+ weekly). They may be caring and good people but they are just as human and fallible as you and I. My advice is this; (and I am taking my own advice) don’t always “pop” into your body what the doctor suggests/prescribes, without doing your own research. Heck most of us won’t buy a car or more importantly, send our kids off to a college with out doing your own research (we just don’t trust those shinny brochures). Your body and your health are worth you doing your own research. Just keep in mind, Pharmaceutical Reps are always at your Dr.’s office (sit in the waiting room for 10 minutes and I’m sure you will see one). Reps are paid to do one thing; encourage (push) the Dr.’s to promote use of the Pharmaceutical Companies drugs.
My wife and I have been doing our own research on Lamictal (after a year of taking this stuff) and the side effects associated with this drug. We have searched through many (many,many) web sites for information and we have talked with pharmacists and Dr’s for opinions. Although I’m am not thoroughly convinced that Lamictal is the cause of all of my symptoms, my wife and I have decided to lower my Lamictal slowly from 200mg to 100mg. I am now taking 150mg daily (three days now) and plan on staying at this level for a total of two weeks before lowering to 100mg. I do fear dropping the dosage to quickly (potential side effects) or lapsing into a mania. To help avoid a manic episode my wife and my immediate family are all “up-to-date” with my course of action. They are on “Red Alert” and have promised to keep a close eye on my behavior patterns and moods. (I don't want to put them through another hyper-mania episode, its much too devastating). I do want so badly to feel healthy and alive again and at this point I am rather frustrated with the Dr.'s ability to help me achieve this goal. Remember it is called “Practicing” Medicine. So now I’m going to practice a little, very carefully and cautiously.
As a foot note; I have recently (past two weeks) been re-tested for Lyme's with a negative response. I am keeping in mind Lyme's test are very inaccurate (still hoping this one is accurate). My thyroid is under control and normal, so.... let's see if dropping below 150mg of Lamictal will eliminate some of these other symptoms. I will keep you posted.
Erik
August 12th
2008
4:03 AM
Everyone's body is different and reacts to every medicine differently. After experiencing depression for some years i was finally put on an antidepressant (cymbalta). My dosage was continually increased because I wasn't feeling any better. Eventually I changed psychologists and she diagnosed me as being bipolar II and said that anti-depressants have an adverse effect on people who are bipolar. so for about a year and a half i was on 200 mg of lamictal. It worked wonders and i felt no negative side effects other than if i forgot to take my second dose during the day. Eventually i took myself off of it (slowly, in the same fashion that i had started it) and was off of it for about a year. Getting off of it was hard, but eventually i felt ok. Then a year later i felt i needed it again. So after a 3 months of being on it again my doctor took me off of it because i experienced extreme head pressure-to the point that i felt like my head was going to explode. i had a checkup at my regular doctor and nothing was wrong. once i had the lamictal out of my system i felt fine again. well now a year and a half after that, i started the lamictal again in hopes that it would work like it did the first time for me. Unfortunately that has not happened yet. As i write this, my head has so much pressure. I ve experienced headaches on and off for the past 4 days. This is not a common side effect so im not sure whats going wrong.. Has anyone else experienced this or know why that is happening? Anyways like i said the first time i was on lamictal for a yr and a half and i felt fantastic. I would tell people i "loved it"---which sounds silly but when you go from absolutely miserable to feeling alive again and having motivation, that phrase doesnt sound so silly. so take everything you hear with a grain of salt. experience it for yourself because everyone's body is different and who knows, maybe you will feel better on it. I however am stopping this drug tomorrow because of the rare head pressure i experience while on it!
-- By kickychic9 | Reply | (1) replies | Private Message me
August 6th
2008
10:51 AM
I have been taking this since October of last year. not only is it my complete miracle cure, but the side affects vanished long ago. For people who have suffered as long as I can, I'll take some queasiness, horniness, and blurry vision over wanting to die DAILY any time. I love it. Love it love it love it.
Incidentally, I lost my job a few months back and stopped taking it and IMMEDIATELY went back to the worst I ever felt mentally. if you are taking this and would like to stop (or need to cause of lack of ins.) talk to your doctor. My experience with the immediate lack of mood control was awful.
-- By soyouthinkyourenuts | Reply | (1) replies | Private Message me
August 2th
2008
11:13 AM
I've been on Lamictal 200mg for a couple of months and let me tell you, I haven't had a f^@#!&g good night sleep since! I am a 33 y.o. male with Bipolar Disorder (hate that label) and I have a "slight" case of paranoia. The drug has allowed me to refrain from acting out on certain impulses, but not suicidal tendencies. OK... now I do have fully functioning parts (one in particular) which worked fine before this drug (you see where I'm going with this?). It SUCKS!!! Let's just say that there are certain things I'd rather not have happen prematurely (I am not laughing). I do happen to be great in that particular category, yet this strips me of any natural ability to fully indulge in such activities. Uuggghhhh... Give me my mojo back or just shoot me!
-- By five5five5five5 | Reply | (1) replies | Private Message me
July 27th
2008
7:29 PM
I was on 100 mg Lamictal for about 3 months and all I can say is this medication was a nightmare for me. I do have a history of depression, and have recently been diagnosed for Bipolar 2 (which by the way I believe I am not bipolar and that what I had was extreme stress and anxiety from a high pressure job), anyway the medication put me in the hospital. I was at work feeling OK and next minute carried out on a stretcher into an ambulance. I experienced confusion, more anxiety, hair loss, tremors. I also had seizures at work during the few months of taking the medication. My eyes were rolling back and forth. How scary! I also had sores in my mouth and my doctor said it was probably an infection or tooth problem. I never had these kinds of mouth sores before and surprise surprise they (and all other symptoms) went away after I stopped the medication.
I am only feeling normal now and it has been about 5 months after my hospital incident.
The hospital was very scary as well.
I have two children and I do not need to get all messed up on medication.
I am taking another path now and feel much better these days.
No more Lamictal or any other "Mood stabilizers" for me.......
-- By nomeds7 | Reply | (1) replies | Private Message me
July 17th
2008
12:31 PM
Think long and hard BEFORE you take this medication. I was prescribed a psychotropic cocktail by an irresponsible doctor and was on 200 mg of Lamictal a day ... I am not bipolar ... was part of depression treatment. Like a fool, I continued to take it. It took away my ability to think, my motivation ... it robbed me of my life for nearly two years UNTIL I saw an article on the BBC website that literally saved my life. I am now medication free and happier than I've been in years!
There are NO long term studies out there for Lamictal yet ... you are playing with fire if you are taking it for anything other than epilepsy and even then it's sad, but has to be taken to control the seizures.
July 12th
2008
11:47 PM
I'm sorry to hear all the bad side effects you all had with lamictal. I was on lamictal for depression for about a month and a half. I started low, 25mg. But when I got up to 100mg I started to itch! No rash, just itch, about a half hour after I took it! I was in denial, of course, because I had been feeling on top of the world! I had a loss of appetite, which I needed due to the fact my migraine meds had me gain 40 lbs over the last 2 yrs and NOTHING would take it off. My energy level had come back....something the Abilify had taken away a year ago....I'm getting off that very soon. I hate it. It takes away mania for bipolar disorder, so they say, but I'm slightly different....borderline bipolar II,so it takes away my personality, my get up and go, my motivation, you name it. I'm only on 5mg. When I was on 10mg, it knocked me out....I'd get the kids to school, come home and sleep, and be in and out like a drug addict all day til it wore off in the afternoon. Anyway.....lamictal.....I'm back on it.........starting at 12.5mg a day, then 12.5mg 2x a day, etc up to about 50 or 75mg, no more than that. It was a great help to me so I'm not going to let myself get those darn itches again. I did notice a little bit of intestinal irritation in the beginning last time, but that was only for a few days. I take Wellbutrin and also take Topamax 250mg.....and have a ton of hair falling out....and acne, so i feel for those of you with those symptoms. And yes, I still get migraines and still am depressed. But life goes on....I have kids to raise. I just cry in the shower and in the car. The best to all of you....good luck with your meds! Keep on trying!
-- By robin43 | Reply | (1) replies | Private Message me
July 8th
2008
6:46 PM
I am on the second week of the orange starter pack. It was prescribed for bipolar. After about the 3rd or 4th day of taking Lamictal, I noticed a side effect that I haven't seen mentioned elsewhere. I seem to stay in a permanent state of sexual arousal (In other words, horny). Has anyone else had this side effect and does it go away? Except for this, the Lamictal has helped my bipolar tremendously. Please help!!!
-- By sarcasticme | Reply | (2) replies | Private Message me
June 28th
2008
11:29 AM
wow! lamictal. im taking it for bipolar and it sounded so great due to the fact that it concentrates on the "lows" more than the "highs" and since i've been battling depression and suicidal thoughts since the 4th grade i thought this would be a wonderful addition to my medication. i would keep the seroquel at night and only take during the day "as needed" i was told there weren't very many side effects, just following starter kit exactly and i wont get that terrible rash. i didn't have access to a computer until a few days later after my first dose. so i didn't really get a chance to do much research. the first night i was surprised i felt a little loopy. didn't thank much of it. BUT several day late i felt i had the mind of a child. my speech slowed, my motor skills were off i felt heavy in body but light in the head. i could produce simple words. i knew the meanings of the words just had know actual word for them and would have to try to explain these words. stupid me started a new medication just before having to study for an exam( i was not expecting such a quick start of side effects) wow! i had no short term memory. could barely function. it was hard to even order a cup of coffee. of course there were other side effects such as pounding headaches and muscle soreness but they were nearly as annoying as the mental side effects. i started out at a low dose of just 25 mg. i had to stop taking it so my head would clear up and i could actually function just to take my exam. im not cleared up all the way yet but i do feel better. im sure my psych teacher will understand. ....but something im curious about is a weight limit issue. it really seems the side effects shouldn't have started so quickly and so intensely. i haven't been able to find anything about weigh a certain amount to take certain dosages. does any one know about this? should lower weights start even slower? im am a few pound below 100 and im thinking that might be why it hit so hard. considering its the weekend im not going to talk to my pdoc until maybe after my exam about stopping than restarting, but i do plan on restarting and giving it more time for the side effects to clear up
-- By sloans | Reply | Private Message me
June 24th
2008
8:10 PM
I have been on Lamictal for one week and feel terrible!! I'm using the meds to treat bipolar. My chest feels tight...I am exhausted all day...feel as if I am in a daze...headaches...muscle aches. I don't know if this is just side effects seen in the beginning and will subside with time?? I really feel bad.
-- By tlauren | Reply | (1) replies | Private Message me
June 10th
2008
8:46 AM
I have been on Lamictal for about five months for bipolar II. I has been increased slowly over these months and I am now up to 300 mg a day. I have a tendency to sometimes forget things but remembering numbers has never been a problem for me. In fact I can look at someone's tag number driving down the road and remember it for days. Phone numbers of people I have known for 20 years would stick and I wouldn't even have to call them on a regular basis to know the number. However, recently while trying to use my bank debit card at the store I was asked to enter my PIN number and totally could not remember. I tried it several times but it never came to me. I felt like a fool!. At this time, that was three days ago and I still cannot remember it!
This is very, very distressing to me. I feel like something has been wiped clean and that I will never get it back.
My Lamictal dose has been increased in the last couple of weeks and I thought maybe Lamictal or one of my other meds could be making this happen so I started researching and found this site where other people were complaining of memory loss while on Lamictal.
Headaches are another common side effect for me while on this med. It has really helped me emotionally and I need to know if the memory loss is just going to be a temporary thing and it will get back to normal or if I will be forgetting more and more over time. PLEASE HELP!!!
-- By jasonslilgal1 | Reply | (8) replies | Private Message me
May 12th
2008
10:06 PM
What side effects? I have taken Lamictal for 6 weeks. I am on a steady dose of 100mgs. I started out with severe depression (unipolar), and have also been diagnosed as bi-polar and borderline personality disorder. So who knows what I have other than to say that I have felt like a train wreck for 3 yrs. All the other meds I have taken did not help my constant cycles of severe depression. I felt like I was in a fish bowl and the world was going on around me, I could see it but was not a part of it. It was hell on earth. Other meds would help somewhat on certain symptoms, but nothing ever brought my life back to a level where I could say I felt joy and was truly happy until I started Lamictal. 2 weeks into the start of Lamictal (50 mgs), I woke up to a miracle. I realized I felt joy, I was laughing without trying to. I felt refreshed and prepared to go out in the world and face the day with a positive outlook on everything. My side effects so far have been nil. Not one thing...no pain, no headaches, no weight gain, no memory loss, no dizziness, no hairloss. Am I the only one? I know these meds effect people differently but wow, I am in heaven. I hope all of you eventually find something that works for you because I really felt ( before Lamictal) that I would never feel good again! Hallelujah! I do! bless you all!
-- By nickimouse42 | Reply | (3) replies | Private Message me
May 3th
2008
2:27 AM
Hi. I went on Lamictal April 2007 after being diagnosed w/ BiPolar. The key issue that brought me to the psychiatrist to begin with was acute depression following a divorce, move cross country, losing my job and my only son going off to college. All the big stress factors - short of death in family. Nonetheless, I was nervous that one year after all these crises that I was, if anything, feeling worse. I had been able to handle all the changes during them, but now that they were over all I wanted to do was sleep all day.... Anyway, I had been on Paxil for years re anxiety, and my psychiatrist decided to keep my on the Paxil till I tolerated the Lamictal, then get me off the Paxil..... Well, the 20 mg of Paxil and the 100 mg of Lamictal worked great, I thought; the Lamictal really raised the bottom.... BUT, apparently Paxil fuels mania, so after a few months, I was taken off the Paxil completely and my Lamictal went up to 200 mg. Almost IMMEDIATELY upon going to 200 mg Lamictal my ankles / feet / legs got enormously swollen. Plus, I noticed that my hair started to fall out // thin out.... Plus -- and I don't know if this is the Lamictal or the absence of the Paxil, but I sob uncontrollably almost 24/7. The sobbing and anxiety and sense of dread and sadnessness has persisted even when the Lamictal was dropped to 100 mg and the shrink added first Clonazepam .5 mg, then when that wasn't calming me, changed me to 1mg Xanax -- each as needed. The Xanax isn't helping me either, and now I also feel paranoid. So, in short: Lamictal at 200 mg makes my feet / ankles / legs swell or suffer edema; Lamcital as low as 100 mg makes my hair thin out; and either the Lamictal or the loss of the Paxil or these anti-anxieity meds (Clonazepam or Xanax) are making me paranoid, profoundly sad and depressed, panicked, anxious, stressed out and, most urgently, make me sob uncontrollably 24/7... My shrink says that we should use anti-depressants with bipolar, and that Paxil fuels the mania, but I tell you, I'd rather be manic and screaming at everyone than so depressed that I'm fearful and sobbing constantly.... Any answers out there: Any anti-depressants for your bipolar?
-- By mcgreek | Reply | (2) replies | Private Message me
April 7th
2008
3:16 AM
I was on Lamictal for 4 years and after the first year I suddenly started having all kinds of teeth and gum problems for no discernible reason. But since Lamictal has the possible side effect of "sores or blisters on the inside of the mouth" I wondered if it could be related.
I did a Google search and am coming up with no experts yet, but lots and lots of posts connecting anticonvulsant meds, particularly Lamictal, Topamax, Neurontin, and Depakote, with dental problems. Dilantin is well known for causing gum disease and breaking down tooth enamel, loosening of teeth, and even breaking down of jawbone tissue.
I don't think the experts have connected the dots yet, but is anyone else having this problem?
-- By absisback | Reply | (15) replies | Private Message me
April 4th
2008
4:34 PM
My chronic pain has really increased since being on Lamictal for 15 months for bipolar. I have had fibromyalgia for years. The bipolar developed after that. Since starting Lamictal, I have developed headaches so severe that I have been off work 3 times in the past 7 months, inc. 5 weeks recently. I've always had headaches, but these new, more severe headaches are non-stop. I have to take 3 time-release 100 mg codeine tablets every day, plus Gravol to keep the headaches bearable. Even then, many days I end up bed-ridden. I've also developed chronic, very bad plantar facsiitis in my left foot since starting Lamictal. I did weeks of intensive physio, plus swimming therapy to no avail. Finally had to get a cortisone injection in my foot.
I hate being like this; I like my job and was used to leading a very active life, despite the fibromyalgia, before I went on Lamictal. I briefly tried Lithium recently, but it had a whole other set of side effects, so I am really frustrated.
Has anybody else had increased or new pain since being on Lamictal?
Rosslyn
-- By rosslyn | Reply | (1) replies | Private Message me
April 3th
2008
5:09 AM
lamictal controls seizures if you take it at the right time. i am on 200 at night and 200 in the morning plus epilim. sometimes i just sit and cry wen im trying to concentrate on reading books i have to study or trying to remember work i learnt at school which has left my brain. im failing school not matter how hard i try, i study all the time then the next day i have forgotten it. im so young and i havnt even started my future yet and i may have screwed it already. failing exams because i forgot wat i learnt the night before hurts so bad. its hard to say "hey everyone the reason i failed is because lamictal screws my memory" i know thats what it is. i was extremely intelligent before i started taking it, but now im a failure. i guess deep inside i know really im not a failure, but lamictal makes me one. : ( p.s add a constant hand tremor and sudden jerking movements every now and then.
-- By noddy123 | Reply | (7) replies | Private Message me
March 28th
2008
1:21 PM
I have been taking Lamictal for a few months now. I have horrible pains, tingles in my feet and legs. At times I feel like I am getting electric shocks in my feet. I started at low dosage of 25mg and now up to 175mg. I am taking this medication with Lexapro 10mg for depression and bipolar. I am also diabetic and thought maybe these pains are from neuropathy. I got tested for neuropathy and it was negative. I am not weening myself off of Lamictal and my leg pains are subsiding a bit. I now have a bad headache. My nose has been running to and I have bad waives of nausea throughout the whole time I am on this medication. I hope when I am fully weened off that this side effects will go away.
-- By dusti54 | Reply | (1) replies | Private Message me
February 28th
2008
9:27 AM
I've been on Lamictal since December, i started out with 25mg, then to 50mg and now at 100mg which is where my doctor said I should be. I am taking Lamictal for a seizure disorder. Now I'm not bashing the drug but when I was taking 25 and 50mgs it was fine, I loved it. Seemed to work instantly. But now that I'm at 100mg the weight gain problem started. I have always tried to watch my weight so the only thing i can blame for not being able to take the weight off now is the Lamictal. I have been eating right, got back into the gym, watch my caloric intake as well as fats and carbs. Seems like for every pound i lose i gain right back in a day, it is awful. I did go thru a bad depression around the beginning of the year which I gained some weight from, but trying to get it off now is the hardest I've ever tried in my life. I am now 20 lbs heavier than I was since December. Has anyone experience this? And please tell me the outcome. I want to know if its me or is that a common effect that is now really greatly expressed as a side effect.
-- By mmc43068 | Reply | (2) replies | Private Message me
November 12th
2009
2:17 PM
I have been on Lamictal for 4 years for type II bipolar disorder. It saved my life. It evened me out without flattening me, and I can have a life. But it has given me these horrible brain-mind problems. I am a professor, and I am supposed to be sharp. It is really embarrassing when I can't comprehend student work and I make wrong-headed comments. Or I forget to grade papers altogether. The students don't respect me and my colleagues must think I am incompetent. And I don't have tenure yet!
The stress of my job is bad enough without this. I feel like I am on the verge of a breakdown every time there is a bump in the road. I am considering trying anti-anxiety meds, but I am afraid of potential interactions with Lamictal.
Does anyone have any suggestions?
-- By invinoveritas | Reply | Private Message me