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100 Side Effects posted for Lamictal

October 18th
2008
11:41 PM

I had been on Lithium for a few months when the consistent weight gain and uncomfortable bloated feeling caused me to seek out a new treatment for my bipolar disorder. Deciding on Lamictal, I started the slow transition of lowering Lithium doses and increasing Lamictal doses. About one month ago, the transition was complete. I didn't seem to have any real noticeable side effects from the Lamictal but after about 2 weeks of being off the Lithium, my skin started breaking out with acne!! Terribly on my chin, cheeks and hair line. I am now wondering if the Lithium may have been keeping this symptom under control. Has anyone had an experience like this?

-- By 86beamer | Reply | (2) replies | Private Message me

October 16th
2008
1:20 PM

Like many patients, I started out on a low dose of Lamictal. Eventually, I was taking 300 mg. This seemed fine for awhile. Then, I started feeling a bit down, so the doctor increased the dose to 400 mg. Increased dosage does not necessarily mean improvement in mood (bipolar). I began to experience a good number of the adverse side effects reported here, including excessive fatigue, gastrointestinal disturbances, cotton mouth and very bad taste in my mouth, muscle tension (particularly in my legs), forgetfulness and confusion, and sinus and chest congestion. At one point in time, I even had difficulty articulating words.

Though I did not suffer from rash, I have been up in the middle of the night with itching all over my body. I had a few episodes of mouth sores and one pimple on my chin. Many of these have improved since the doctor brought me back to 300 mg. However, they have not entirely disappeared. I continue to suffer from the excessive fatigue many of you have reported here.

I recently had a blood test and learned I have very low levels of Vitamin D and Vitamin B-12. I do not know if there is any relationship between long-term use of Lamical and these test results. However, I do know that low levels of Vitamin D can cause fatigue.

Though I am willing to follow through with further blood tests, I am beginning to understand why some people are tempted to discontinue their medications. I am so tired of being so tired and sleeping so much. When I finally get up, I am still tired and drag through the day.

Sometimes, I think I'd rather have a down day or two than take this medication. I should add, though, that my bipolar is not severe, and that I am only reporting how I feel. I'm certainly not recommending anyone discontinue medications for this or any other condition they may be suffering from. If I were to recommend anything, it would be to get a second opinion if one is concerned about his or her treatment.
If I were to make any suggestion to doctors, it would be this: more is not necessarily better. Send your patients for blood tests (mine were ordered by my M.D. and not by my psychiatrist). Increasing the dosage--at least of Lamictal--might result in a host of negative side effects. Your patients might then become disillusioned with their treatment and give up.

If anyone out there has suffered from B-12 and D deficiencies, let me know. I'll let you know what I find out.

And remember, most doctors are really trying to help us.

-- By lizardess | Reply | Private Message me

September 29th
2008
11:29 PM

I have been on Lamictal for about 3 and a half yrs now for Bipolar 1. Overall, I have had a really great experience with the drug. I started with 100mg and then went to 200mg after a year and a half. Now I take 225mg as of a month ago. For about a year and a half I had the acne on my chin and then it went away suddenly (thought it was cutting out dairy from my diet though). I have been extremely fatigued for awhile now. 7hrs of sleep is not good enough for me so I end up taking long naps when I have the opportunity each day- I always want to sleep. I feel stupid and lack focus and motivation. I use to be a social butterfly and now I feel so exhausted when entertaining. I am a personal trainer and am in the business of making others feel better, but I seem to be feeling worse. I have experienced weight gain as well and that is hard for me since I use to be bulimic and have always had poor body image issues. I was on the NuvaRing for 5 months and it made me sooooo depressed so I finally got off that and feel better- don't mix those 2 drugs.
I am going to ask my doctor to take me off of it this week because I am ready to trust God with my mental health. I have a great support system to help me through the tough times and if I want to get pregnant, I have to go off it anyway.

-- By tinahansen08 | Reply | (2) replies | Private Message me

September 22th
2008
2:07 AM

Since I haven't seen it documented, I thought I should not the constant popping of my ears. It's not unbearable, but I question whether the ongoing pressure is affecting my hearing. Also, perhaps related, I have begun to observe soreness in my right jaw. But I have not had any true inner ear problems, such as dizziness or nausea.

On another note, my short-term memory seems to be affected. I'd be very disturbed by this fact, except that I'm taking the Lamictal for bipolar disorder and the net effect is a higher level of functioning.

I'm happy overall, but it's only been two months. I'm concerned about more serious effects setting in later after reading this page. I should note, however, that certain side-effects have already come and gone, including the runny nose, aching muscles, and a brief scare of a serious rash.

One question: does Lamictal affect the immune system? I've taken two rounds of antibiotics now to beat a sinus infection and bronchitis, and I still have a cough....

-- By cassiel_az | Reply | Private Message me

September 12th
2008
3:29 PM

As a parent of a teenage girl diagnosed with Bipolar I as well as DID, I thought Lamictal would be a great change from Lithium and would contribute to her stability. Imagine my surprise when I saw this happening to my 17 year-old daughter; constant insomnia over the last three months; panic attacks; anxiety; and paranoia, especially at night. Finally, my daughter threw her Lamictal away, and she has been much better since. I don't think folks always are aware that anxiety can be a real side effect of this amazing mood stabilizer, and it's good to be on the look out for it when your kid is taking it. She also claimed it made her more depressed.

-- By annie62 | Reply | Private Message me

August 28th
2008
1:07 PM

I feel like I should share my positive experience with Lamictal to balance the negative reviews. I am on it for bipolar II. I sought help because of a mixed state that was causing me to deteriorate to the point of seriously considering suicide. I titrated up on Lamictal from 25 to 50 to 100 and now 200 mg. I started the 200 mg last week, and suddenly yesterday and today, it's like a cloud has lifted. I feel like myself again.

I've had very few side effects. I have the relatively-rare yawning issue--I yawn every few minutes even though I'm not tired. My dreams have been especially vivid, which I actually enjoy. My facial acne seemed to be a bit exacerbated at first, but it's calmed down. I have a couple of small blemishes on my chest and shoulders, which is unusual for me, but it's minimal and responds well to benzoyl peroxide. My weight has stayed the same.

My bipolar has affected every aspect of my life, and I feel more stable now than I have in years. I'm sure there are still rough times ahead, but the relief Lamical has given me is a huge gift. I feel hopeful for the first time in months.

Also, it seems to have increased my libido. Like, a lot. I'm not complaining about that!

-- By crackrabbit | Reply | (1) replies | Private Message me

August 28th
2008
12:40 AM

I have been taking Lamictal since October of 2007. I experienced some of the symptoms (muscle pain in the head and neck) before I started the medication. I have experienced panic attacks since July of 2005. I have had mild heart palpations since I was in my mid 20's (I'm 36 now). I have had what I would consider a below normal energy level since my mid 20's also. Ok so like everyone else I am thinking I'm a hypochondriac! However, I was diagnosed August 28th 2007 with having Lyme’s Disease and also Hyper-Thyroid (same time, same lab-work). Two weeks later I was diagnosed with Bi-Polar Disorder (this is one thing I knew I was battling but didn't know how to handle it). My physiatrist started me on Lamictal and I did the standard ramp up to 200mg. I also was started on a 90 day treatment of Dyoxicycline for the Lyme’s and Methimazole for the Hyper-Thyroid. I was very very weak and was only able to stay awake for short periods of time (4 to 5 hours max). Just an fyi, I am not overweight, lazy or unmotivated. I have the physical appearance of perfect health. This, I think works against me as the Dr's seem to think I'm just whining. Mater of fact; my Primary Care Physician never tested me for Lyme’s. I went to an Urgent Care Center which tested me for Lyme’s disease and I came back positive (they also tested my Thyroid levels and found the problem with my THS levels) I told my Dr the results and he insisted I have same test done again. Guess what, new tests, same results.
My symptoms today are very similar to what I have seen posted many times. Muscle pain (entire body, some areas worse than others), heart arrhythmia, racing heartbeat, intense palpitations, nausea, foggy “un-plugged” mind, fatigue, weak muscles, muscle cramping (especially after repetitive motion, such as strumming a guitar), panic attacks (much more severe) and the latest addition to the group, Insomnia. Muscles pain in my head, fore-head, jaw, temple, neck (front and back), shoulders, is terrible to say the least. The pressure in my fore-head (right under my brow) makes me feel like I need to close my eyes or rest (resting does not relieve anything). The front of my neck is so tight at times it feels like my jaw is being pried down. I could go on and on.
On my quest to find out what else is going on with my body I have had 2 Echocardiogram’s on my heart and abdomen, 2Nuclear Stress Tests, blood work out the wa-zoo, MRI of my brain, 2 CT’s of my Head and Neck, Chest X-rays, Endoscopy, Colonoscopy, and all revealing nothing.
Most doctor’s I have encountered seem to want to treat the symptoms, not the problem/disease. I believe I know why; we (the ones who are there for solutions) tell them what the symptoms are (how we feel). We of course are thinking “this will help with a diagnosis of the problem/disease”, when in fact (I feel); the doctor’s thought process stops there. They don't know what’s wrong with you but they do know what your symptoms are so....bingo, let's treat the symptoms. Don’t misunderstand what I am saying. I’m not saying, “Most doctor’s don’t know what they are doing” or “don’t take your meds”. I am saying you and I are one of the 20 to 30 patients most doctor’s see daily (100+ weekly). They may be caring and good people but they are just as human and fallible as you and I. My advice is this; (and I am taking my own advice) don’t always “pop” into your body what the doctor suggests/prescribes, without doing your own research. Heck most of us won’t buy a car or more importantly, send our kids off to a college with out doing your own research (we just don’t trust those shinny brochures). Your body and your health are worth you doing your own research. Just keep in mind, Pharmaceutical Reps are always at your Dr.’s office (sit in the waiting room for 10 minutes and I’m sure you will see one). Reps are paid to do one thing; encourage (push) the Dr.’s to promote use of the Pharmaceutical Companies drugs.
My wife and I have been doing our own research on Lamictal (after a year of taking this stuff) and the side effects associated with this drug. We have searched through many (many,many) web sites for information and we have talked with pharmacists and Dr’s for opinions. Although I’m am not thoroughly convinced that Lamictal is the cause of all of my symptoms, my wife and I have decided to lower my Lamictal slowly from 200mg to 100mg. I am now taking 150mg daily (three days now) and plan on staying at this level for a total of two weeks before lowering to 100mg. I do fear dropping the dosage to quickly (potential side effects) or lapsing into a mania. To help avoid a manic episode my wife and my immediate family are all “up-to-date” with my course of action. They are on “Red Alert” and have promised to keep a close eye on my behavior patterns and moods. (I don't want to put them through another hyper-mania episode, its much too devastating). I do want so badly to feel healthy and alive again and at this point I am rather frustrated with the Dr.'s ability to help me achieve this goal. Remember it is called “Practicing” Medicine. So now I’m going to practice a little, very carefully and cautiously.
As a foot note; I have recently (past two weeks) been re-tested for Lyme's with a negative response. I am keeping in mind Lyme's test are very inaccurate (still hoping this one is accurate). My thyroid is under control and normal, so.... let's see if dropping below 150mg of Lamictal will eliminate some of these other symptoms. I will keep you posted.
Erik

-- By coasterman | Reply | (3) replies | Private Message me

August 12th
2008
4:03 AM

Everyone's body is different and reacts to every medicine differently. After experiencing depression for some years i was finally put on an antidepressant (cymbalta). My dosage was continually increased because I wasn't feeling any better. Eventually I changed psychologists and she diagnosed me as being bipolar II and said that anti-depressants have an adverse effect on people who are bipolar. so for about a year and a half i was on 200 mg of lamictal. It worked wonders and i felt no negative side effects other than if i forgot to take my second dose during the day. Eventually i took myself off of it (slowly, in the same fashion that i had started it) and was off of it for about a year. Getting off of it was hard, but eventually i felt ok. Then a year later i felt i needed it again. So after a 3 months of being on it again my doctor took me off of it because i experienced extreme head pressure-to the point that i felt like my head was going to explode. i had a checkup at my regular doctor and nothing was wrong. once i had the lamictal out of my system i felt fine again. well now a year and a half after that, i started the lamictal again in hopes that it would work like it did the first time for me. Unfortunately that has not happened yet. As i write this, my head has so much pressure. I ve experienced headaches on and off for the past 4 days. This is not a common side effect so im not sure whats going wrong.. Has anyone else experienced this or know why that is happening? Anyways like i said the first time i was on lamictal for a yr and a half and i felt fantastic. I would tell people i "loved it"---which sounds silly but when you go from absolutely miserable to feeling alive again and having motivation, that phrase doesnt sound so silly. so take everything you hear with a grain of salt. experience it for yourself because everyone's body is different and who knows, maybe you will feel better on it. I however am stopping this drug tomorrow because of the rare head pressure i experience while on it!

-- By kickychic9 | Reply | Private Message me

August 6th
2008
10:51 AM

I have been taking this since October of last year. not only is it my complete miracle cure, but the side affects vanished long ago. For people who have suffered as long as I can, I'll take some queasiness, horniness, and blurry vision over wanting to die DAILY any time. I love it. Love it love it love it.

Incidentally, I lost my job a few months back and stopped taking it and IMMEDIATELY went back to the worst I ever felt mentally. if you are taking this and would like to stop (or need to cause of lack of ins.) talk to your doctor. My experience with the immediate lack of mood control was awful.

-- By soyouthinkyourenuts | Reply | (1) replies | Private Message me

August 2th
2008
11:13 AM

I've been on Lamictal 200mg for a couple of months and let me tell you, I haven't had a f^@#!&g good night sleep since! I am a 33 y.o. male with Bipolar Disorder (hate that label) and I have a "slight" case of paranoia. The drug has allowed me to refrain from acting out on certain impulses, but not suicidal tendencies. OK... now I do have fully functioning parts (one in particular) which worked fine before this drug (you see where I'm going with this?). It SUCKS!!! Let's just say that there are certain things I'd rather not have happen prematurely (I am not laughing). I do happen to be great in that particular category, yet this strips me of any natural ability to fully indulge in such activities. Uuggghhhh... Give me my mojo back or just shoot me!

-- By five5five5five5 | Reply | (1) replies | Private Message me

July 27th
2008
7:29 PM

I was on 100 mg Lamictal for about 3 months and all I can say is this medication was a nightmare for me. I do have a history of depression, and have recently been diagnosed for Bipolar 2 (which by the way I believe I am not bipolar and that what I had was extreme stress and anxiety from a high pressure job), anyway the medication put me in the hospital. I was at work feeling OK and next minute carried out on a stretcher into an ambulance. I experienced confusion, more anxiety, hair loss, tremors. I also had seizures at work during the few months of taking the medication. My eyes were rolling back and forth. How scary! I also had sores in my mouth and my doctor said it was probably an infection or tooth problem. I never had these kinds of mouth sores before and surprise surprise they (and all other symptoms) went away after I stopped the medication.

I am only feeling normal now and it has been about 5 months after my hospital incident.

The hospital was very scary as well.

I have two children and I do not need to get all messed up on medication.

I am taking another path now and feel much better these days.

No more Lamictal or any other "Mood stabilizers" for me.......

-- By nomeds7 | Reply | (1) replies | Private Message me

July 17th
2008
12:31 PM

Think long and hard BEFORE you take this medication. I was prescribed a psychotropic cocktail by an irresponsible doctor and was on 200 mg of Lamictal a day ... I am not bipolar ... was part of depression treatment. Like a fool, I continued to take it. It took away my ability to think, my motivation ... it robbed me of my life for nearly two years UNTIL I saw an article on the BBC website that literally saved my life. I am now medication free and happier than I've been in years!
There are NO long term studies out there for Lamictal yet ... you are playing with fire if you are taking it for anything other than epilepsy and even then it's sad, but has to be taken to control the seizures.

-- By chele | Reply | Private Message me

July 12th
2008
11:47 PM

I'm sorry to hear all the bad side effects you all had with lamictal. I was on lamictal for depression for about a month and a half. I started low, 25mg. But when I got up to 100mg I started to itch! No rash, just itch, about a half hour after I took it! I was in denial, of course, because I had been feeling on top of the world! I had a loss of appetite, which I needed due to the fact my migraine meds had me gain 40 lbs over the last 2 yrs and NOTHING would take it off. My energy level had come back....something the Abilify had taken away a year ago....I'm getting off that very soon. I hate it. It takes away mania for bipolar disorder, so they say, but I'm slightly different....borderline bipolar II,so it takes away my personality, my get up and go, my motivation, you name it. I'm only on 5mg. When I was on 10mg, it knocked me out....I'd get the kids to school, come home and sleep, and be in and out like a drug addict all day til it wore off in the afternoon. Anyway.....lamictal.....I'm back on it.........starting at 12.5mg a day, then 12.5mg 2x a day, etc up to about 50 or 75mg, no more than that. It was a great help to me so I'm not going to let myself get those darn itches again. I did notice a little bit of intestinal irritation in the beginning last time, but that was only for a few days. I take Wellbutrin and also take Topamax 250mg.....and have a ton of hair falling out....and acne, so i feel for those of you with those symptoms. And yes, I still get migraines and still am depressed. But life goes on....I have kids to raise. I just cry in the shower and in the car. The best to all of you....good luck with your meds! Keep on trying!

-- By robin43 | Reply | (1) replies | Private Message me

July 8th
2008
6:46 PM

I am on the second week of the orange starter pack. It was prescribed for bipolar. After about the 3rd or 4th day of taking Lamictal, I noticed a side effect that I haven't seen mentioned elsewhere. I seem to stay in a permanent state of sexual arousal (In other words, horny). Has anyone else had this side effect and does it go away? Except for this, the Lamictal has helped my bipolar tremendously. Please help!!!

-- By sarcasticme | Reply | (2) replies | Private Message me

June 28th
2008
11:29 AM

wow! lamictal. im taking it for bipolar and it sounded so great due to the fact that it concentrates on the "lows" more than the "highs" and since i've been battling depression and suicidal thoughts since the 4th grade i thought this would be a wonderful addition to my medication. i would keep the seroquel at night and only take during the day "as needed" i was told there weren't very many side effects, just following starter kit exactly and i wont get that terrible rash. i didn't have access to a computer until a few days later after my first dose. so i didn't really get a chance to do much research. the first night i was surprised i felt a little loopy. didn't thank much of it. BUT several day late i felt i had the mind of a child. my speech slowed, my motor skills were off i felt heavy in body but light in the head. i could produce simple words. i knew the meanings of the words just had know actual word for them and would have to try to explain these words. stupid me started a new medication just before having to study for an exam( i was not expecting such a quick start of side effects) wow! i had no short term memory. could barely function. it was hard to even order a cup of coffee. of course there were other side effects such as pounding headaches and muscle soreness but they were nearly as annoying as the mental side effects. i started out at a low dose of just 25 mg. i had to stop taking it so my head would clear up and i could actually function just to take my exam. im not cleared up all the way yet but i do feel better. im sure my psych teacher will understand. ....but something im curious about is a weight limit issue. it really seems the side effects shouldn't have started so quickly and so intensely. i haven't been able to find anything about weigh a certain amount to take certain dosages. does any one know about this? should lower weights start even slower? im am a few pound below 100 and im thinking that might be why it hit so hard. considering its the weekend im not going to talk to my pdoc until maybe after my exam about stopping than restarting, but i do plan on restarting and giving it more time for the side effects to clear up

-- By sloans | Reply | Private Message me

June 24th
2008
8:10 PM

I have been on Lamictal for one week and feel terrible!! I'm using the meds to treat bipolar. My chest feels tight...I am exhausted all day...feel as if I am in a daze...headaches...muscle aches. I don't know if this is just side effects seen in the beginning and will subside with time?? I really feel bad.

-- By tlauren | Reply | (1) replies | Private Message me

June 10th
2008
8:46 AM

I have been on Lamictal for about five months for bipolar II. I has been increased slowly over these months and I am now up to 300 mg a day. I have a tendency to sometimes forget things but remembering numbers has never been a problem for me. In fact I can look at someone's tag number driving down the road and remember it for days. Phone numbers of people I have known for 20 years would stick and I wouldn't even have to call them on a regular basis to know the number. However, recently while trying to use my bank debit card at the store I was asked to enter my PIN number and totally could not remember. I tried it several times but it never came to me. I felt like a fool!. At this time, that was three days ago and I still cannot remember it!

This is very, very distressing to me. I feel like something has been wiped clean and that I will never get it back.

My Lamictal dose has been increased in the last couple of weeks and I thought maybe Lamictal or one of my other meds could be making this happen so I started researching and found this site where other people were complaining of memory loss while on Lamictal.

Headaches are another common side effect for me while on this med. It has really helped me emotionally and I need to know if the memory loss is just going to be a temporary thing and it will get back to normal or if I will be forgetting more and more over time. PLEASE HELP!!!

-- By jasonslilgal1 | Reply | (8) replies | Private Message me

May 12th
2008
10:06 PM

What side effects? I have taken Lamictal for 6 weeks. I am on a steady dose of 100mgs. I started out with severe depression (unipolar), and have also been diagnosed as bi-polar and borderline personality disorder. So who knows what I have other than to say that I have felt like a train wreck for 3 yrs. All the other meds I have taken did not help my constant cycles of severe depression. I felt like I was in a fish bowl and the world was going on around me, I could see it but was not a part of it. It was hell on earth. Other meds would help somewhat on certain symptoms, but nothing ever brought my life back to a level where I could say I felt joy and was truly happy until I started Lamictal. 2 weeks into the start of Lamictal (50 mgs), I woke up to a miracle. I realized I felt joy, I was laughing without trying to. I felt refreshed and prepared to go out in the world and face the day with a positive outlook on everything. My side effects so far have been nil. Not one thing...no pain, no headaches, no weight gain, no memory loss, no dizziness, no hairloss. Am I the only one? I know these meds effect people differently but wow, I am in heaven. I hope all of you eventually find something that works for you because I really felt ( before Lamictal) that I would never feel good again! Hallelujah! I do! bless you all!

-- By nickimouse42 | Reply | (3) replies | Private Message me

May 3th
2008
2:27 AM

Hi. I went on Lamictal April 2007 after being diagnosed w/ BiPolar. The key issue that brought me to the psychiatrist to begin with was acute depression following a divorce, move cross country, losing my job and my only son going off to college. All the big stress factors - short of death in family. Nonetheless, I was nervous that one year after all these crises that I was, if anything, feeling worse. I had been able to handle all the changes during them, but now that they were over all I wanted to do was sleep all day.... Anyway, I had been on Paxil for years re anxiety, and my psychiatrist decided to keep my on the Paxil till I tolerated the Lamictal, then get me off the Paxil..... Well, the 20 mg of Paxil and the 100 mg of Lamictal worked great, I thought; the Lamictal really raised the bottom.... BUT, apparently Paxil fuels mania, so after a few months, I was taken off the Paxil completely and my Lamictal went up to 200 mg. Almost IMMEDIATELY upon going to 200 mg Lamictal my ankles / feet / legs got enormously swollen. Plus, I noticed that my hair started to fall out // thin out.... Plus -- and I don't know if this is the Lamictal or the absence of the Paxil, but I sob uncontrollably almost 24/7. The sobbing and anxiety and sense of dread and sadnessness has persisted even when the Lamictal was dropped to 100 mg and the shrink added first Clonazepam .5 mg, then when that wasn't calming me, changed me to 1mg Xanax -- each as needed. The Xanax isn't helping me either, and now I also feel paranoid. So, in short: Lamictal at 200 mg makes my feet / ankles / legs swell or suffer edema; Lamcital as low as 100 mg makes my hair thin out; and either the Lamictal or the loss of the Paxil or these anti-anxieity meds (Clonazepam or Xanax) are making me paranoid, profoundly sad and depressed, panicked, anxious, stressed out and, most urgently, make me sob uncontrollably 24/7... My shrink says that we should use anti-depressants with bipolar, and that Paxil fuels the mania, but I tell you, I'd rather be manic and screaming at everyone than so depressed that I'm fearful and sobbing constantly.... Any answers out there: Any anti-depressants for your bipolar?

-- By mcgreek | Reply | (2) replies | Private Message me

April 7th
2008
3:16 AM

I was on Lamictal for 4 years and after the first year I suddenly started having all kinds of teeth and gum problems for no discernible reason. But since Lamictal has the possible side effect of "sores or blisters on the inside of the mouth" I wondered if it could be related.

I did a Google search and am coming up with no experts yet, but lots and lots of posts connecting anticonvulsant meds, particularly Lamictal, Topamax, Neurontin, and Depakote, with dental problems. Dilantin is well known for causing gum disease and breaking down tooth enamel, loosening of teeth, and even breaking down of jawbone tissue.

I don't think the experts have connected the dots yet, but is anyone else having this problem?

-- By absisback | Reply | (11) replies | Private Message me

April 4th
2008
4:34 PM

My chronic pain has really increased since being on Lamictal for 15 months for bipolar. I have had fibromyalgia for years. The bipolar developed after that. Since starting Lamictal, I have developed headaches so severe that I have been off work 3 times in the past 7 months, inc. 5 weeks recently. I've always had headaches, but these new, more severe headaches are non-stop. I have to take 3 time-release 100 mg codeine tablets every day, plus Gravol to keep the headaches bearable. Even then, many days I end up bed-ridden. I've also developed chronic, very bad plantar facsiitis in my left foot since starting Lamictal. I did weeks of intensive physio, plus swimming therapy to no avail. Finally had to get a cortisone injection in my foot.

I hate being like this; I like my job and was used to leading a very active life, despite the fibromyalgia, before I went on Lamictal. I briefly tried Lithium recently, but it had a whole other set of side effects, so I am really frustrated.

Has anybody else had increased or new pain since being on Lamictal?

Rosslyn

-- By rosslyn | Reply | (1) replies | Private Message me

April 3th
2008
5:09 AM

lamictal controls seizures if you take it at the right time. i am on 200 at night and 200 in the morning plus epilim. sometimes i just sit and cry wen im trying to concentrate on reading books i have to study or trying to remember work i learnt at school which has left my brain. im failing school not matter how hard i try, i study all the time then the next day i have forgotten it. im so young and i havnt even started my future yet and i may have screwed it already. failing exams because i forgot wat i learnt the night before hurts so bad. its hard to say "hey everyone the reason i failed is because lamictal screws my memory" i know thats what it is. i was extremely intelligent before i started taking it, but now im a failure. i guess deep inside i know really im not a failure, but lamictal makes me one. : ( p.s add a constant hand tremor and sudden jerking movements every now and then.

-- By noddy123 | Reply | (7) replies | Private Message me

March 28th
2008
1:21 PM

I have been taking Lamictal for a few months now. I have horrible pains, tingles in my feet and legs. At times I feel like I am getting electric shocks in my feet. I started at low dosage of 25mg and now up to 175mg. I am taking this medication with Lexapro 10mg for depression and bipolar. I am also diabetic and thought maybe these pains are from neuropathy. I got tested for neuropathy and it was negative. I am not weening myself off of Lamictal and my leg pains are subsiding a bit. I now have a bad headache. My nose has been running to and I have bad waives of nausea throughout the whole time I am on this medication. I hope when I am fully weened off that this side effects will go away.

-- By dusti54 | Reply | (1) replies | Private Message me

February 28th
2008
9:27 AM

I've been on Lamictal since December, i started out with 25mg, then to 50mg and now at 100mg which is where my doctor said I should be. I am taking Lamictal for a seizure disorder. Now I'm not bashing the drug but when I was taking 25 and 50mgs it was fine, I loved it. Seemed to work instantly. But now that I'm at 100mg the weight gain problem started. I have always tried to watch my weight so the only thing i can blame for not being able to take the weight off now is the Lamictal. I have been eating right, got back into the gym, watch my caloric intake as well as fats and carbs. Seems like for every pound i lose i gain right back in a day, it is awful. I did go thru a bad depression around the beginning of the year which I gained some weight from, but trying to get it off now is the hardest I've ever tried in my life. I am now 20 lbs heavier than I was since December. Has anyone experience this? And please tell me the outcome. I want to know if its me or is that a common effect that is now really greatly expressed as a side effect.

-- By mmc43068 | Reply | (2) replies | Private Message me

February 26th
2008
4:34 PM

I have been taking Lamictal for about 2 months now. Started at 25mg and now at 150mg. I also take 10mg Lexapro and 1 mg of Ativan daily. I was diagnosed with bipolar-2 about 3 months ago. I'm not sure if this is the right combo for me. Most of my problem is with severe irritability followed by moderate anxiety and mild depression. I have never had a Manic episode just Hypomania which the doctor said is my anger and Irritability. I have been on every SSRI (anti-depressant) for the last 12 years, which does help the depression, but it increases the anger and irritability. Another Dr told me I am not bipolar-2, I just have GAD (generalized anxiety disorder). Not sure what to do anymore, the Lamictal is giving me bad headaches and dizziness and nausea. So now I take Meclizine for the those symptoms. Is there just one pill to help all these symptoms? Has anyone had any luck with Buspar??

-- By 1hybernator | Reply | (3) replies | Private Message me

February 23th
2008
4:19 PM

I have not taken a drug with so few side effects. Dose up to 200mg. Outstanding med for bipolar disorder.

-- By iqman41 | Reply | (1) replies | Private Message me

February 19th
2008
1:17 AM

I've been on Lamictal for about a year (for bipolar). Tried lots of anti-depressants and this has made a huge difference. I take it with Effexor. The big thing I want to add here is that I have done better on only 75 mg of Lamictal a day. They tell you it isn't a therapeutic dose but who knows what is for sure for each of us!? When I went up to 100 mg many of the things people say here happened worse. I went back down to 75 and have been so relieved to be semi-normal feeling--the best I've felt in many years. If you feel better at a certain dose, why do they insist on going up so far? Something to think about. I do have more acne, jawline rash that itches and definite sore muscles. I too have gained at least 15 lbs this year, not eating any differently--and they say it doesn't create weight gain! For me, the side affects are the lesser of the evils for now. I know it's made me more sane and that is huge.

-- By lloyd213 | Reply | (1) replies | Private Message me

February 9th
2008
9:40 PM

so far i like it, but me being on this med does this mean I'm bipolar?? doc said i was not but thinking he thought i would freak if i was... Also he gave me a sample pack, I have great insurance but what is the cost of this med??

-- By benedict26 | Reply | (2) replies | Private Message me

February 8th
2008
12:20 AM

Where do I start? For as far back as I can remember, I have been taking antidepressants. I have tried them all. Celexa, Wellbutrin, Effexor, Cymbalta, etc.. About 3 years ago, I crashed. You all know what that feels like. I went to see the "pill doctor" which is what I call the psychiatrists. He prescribed more antidepressants, Lithium 600mg per day along with Lamictal 200 mg per day for moods and Ambien CR-12.5mg to sleep. Side effects included, weight loss and gain, hair loss, memory loss, confusion, thyroid issues, no sex drive and sleeping too much with wako dreams. BUT is was better than what I was feeling at time. Last month I could not take it any more so I had a second opinion by another Pill Dr. Oh my God! This Pill Dr REALLY opened my eyes. He diagnosed me with a resistant to antidepressant type of depression. No bipolar but mood disorders. He warned me off of Cymbalta 60mg to 30mg to 0mg (antidepressant), and took me off the Lithium and increased my dose of Lamictal from 200mgs per day to 300mgs per day. What a difference it made. I have never felt better. I am sleeping less, have more energy and a much more positive outlook on life. I am scared that this won't last but I hope it will. Lamictal has been a godsend for me. My lesson is get a second opinion on your condition. A fresh set of eyes can see things that others don't.

I also have to remember that every case is unique. Every person has their own set of problems to deal with. Kids are emotionally demanding and draining. You are not different from others who suffer.

-- By gurapf | Reply | (1) replies | Private Message me

February 7th
2008
4:30 AM

I started taking Lamictal in September 07 for bipolar. Started with 25mg and now on 150 daily. I\ Since being on the medication, I feel like Ive lost my sense of self. I find it difficult to keep a conversation going and i lack creativity, I'm just not as witty and sharp as i used to be. I used to write and draw a lot but i have trouble creating inspiring works like i used to. I sleep away too much and have too many weird dreams.

I never really struggled with bad depression but have had some manic episodes. Lamictal has stabilized me, but i fear too much stabilizing. haven't had any manic episodes, but I feel my self and my life slipping away. Theres gotta b something better out there.

-- By calikid86 | Reply | Private Message me

January 24th
2008
4:35 PM

I take 5 diff. drugs and am trying to figure out which side effect is associated with which drug. I have a really shotty memory now where I have lost perception of time. I thought I had spoken to my friend two weeks ago and I spoke to her two days ago. I read the news all day at work and can't remember any of it. This could be from the Ativan, Ambien, Geodon or Provigil that I am also taking, but I have no idea which or if its the combo of a few. I am on all of these drugs because i have Bipolar 1 disorder. I take 400 mg of Lamictal at night. Any insights? Thanks.

-- By bp1 | Reply | (1) replies | Private Message me

January 14th
2008
4:34 PM

I have only been taking Lamictal for one week and so far I have had no severe side effects. I have been sleeping better at night (I take it in the morning) and am starting to feel better. Less angry and irritable. I was diagnosed with bipolar ll. The last few days I have had pain in my hips and have had to take Advil for the pain and now I am having a little bit of chest pain. Overall so far though I would say that the benefit of feeling better is worth the pain....

-- By rlethomas | Reply | Private Message me

December 28th
2007
8:40 AM

I am currently restarting Lamictal for my bipolar disorder. I was on it for about a year and gained 15lbs. I started feeling very depressed about my weight. I was very fatigued and would take naps every day and sleep all though the night. I didn't have a whole lot of energy. My husband and I are wanting to have children so I discontinued Lamictal for the reason and because I thought it was making me depressed. However, after having Lamictal fully out of my system I realized that I was having a depressive episode that got worse because I wasn't on my Lamictal. I am not starting Lamictal again and I am going for a higher dosage now since I am in a depressive episode. As far as weight gain goes, my doctor is also putting me on Topamax which I start this evening. It could possibly counteract the weight gain issue.

I am also on a vitamin regime to help with my mood and Clonazepam for anxiety attacks.

-- By cmbandrwb | Reply | Private Message me

December 26th
2007
12:15 AM

Been on it for almost 5 years, 400 mg a day. Don't know what the official word is on long-term use, but I have had the following problems: recent weight gain and long-term extreme exhaustion/fatigue. Although I haven't changed the dose in years, the fatigue seems to be getting worse. I am on other meds, so I don't know if it is for sure the Lamictal causing these effects, but there is a good chance. I'll see as I lower the dose, under doc supervision, of course. Take care, all.

-- By julesy | Reply | (2) replies | Private Message me

December 22th
2007
1:03 PM

I think a very, very important thing to keep in mind is how differently medications will work for different people. While it seems many of you have had horrible experiences with it, I surely don't think this is the case for everyone, including myself. I've been diagnosed with bipolar-II and have been on Lamictal for several months, currently at a dose of 150mg. I've found it had dramatically brought down my rapid cycling and decreased the severity of my depressive episodes. Though I still have mood swings, they are less frequent and less intense/disabling.
As far as side effects go, I've never been one to experience many side effects from any medication I've been on. With Lamictal I've begun having headaches and also difficulty with focus, concentration, and short term memory. I'm much more spacey than usual and often will get distracted while having a conversation with someone and forget what we were talking about. My psychiatrist believes these indicate ADD and has prescribed me Ritalin, which I refuse to take because I'm convinced that these problems are side effects of the Lamictal. I've experienced weight loss, but this also may be due to the 200mg Wellbutrin I am also taking.
Although I've experienced more side effects with Lamictal than any other drug, for me I'm willing to continue giving it a try because of its effect on my moods.

-- By mayabee | Reply | Private Message me

December 18th
2007
6:54 PM

I take Lamictal with Wellbutrin 300 XL for bipolar with OCD tendencies. Some side effects are doubled due to this. Leg pain, especially my hips, forgetfulness (talk about annoying!), off balance and a bit clumsy, and some irritability. HOWEVER, my mood swings are almost non-existent. I still get sad/mad/depressed but it doesn't linger for days/weeks like it used to. I don't like the side effects and they do affect my quality of life but not nearly as much as my condition used to. I simply try to do things to make up for the side effects - stretching, taking things slower, forgiving myself when I forget things and not being afraid to tell people that I forgot something (tho IMO it isn't any of their business why).

-- By ultraaman | Reply | Private Message me

November 3th
2007
11:25 AM

I was diagnosed bipolar a year ago and worked my way up to 200 mg of Lamictal a day but recently desided to wean myself off of it as I have found some chinese herbs that will stabilize my moods without the side effects. Since being on Lamictal, I have had horrible pain in my left foot when I walk and it just kept getting worse. The pain got so bad I could not stay at work. I am a welder and have to be on my feet all day but after two hours I would be in so much pain and have to take tylenol 3 with codeine just to make it through an 8 hour shift. I am now down to 25mg of lamictal and soon to be totally off. My foot is now healing and I feel great personally. I am not irritable or moody but am taking Chinese herbs . I noticed when I got myself down to the 100 mg level then went to 75 mg of Lamictal, I got really sick like I had pnuemonia and I had severe chills, bad headache, swollen lymphnodes and very nauseated with no appetite for three days. I lost 5 pounds during this time. I got through it but felt like I was haveing a illegal drug withdrawal big time.
Lamictal was poison to my system. I feel great now. I can now start to run and exercise again. For anyone who has interest, go to Ron Teegaurdens Dragon Herbs web site and find a natural way. you will be much happier.
Lamictal is bad stuff.

anonymous

-- By dragonwitch | Reply | (1) replies | Private Message me

October 29th
2007
8:20 AM

I have started Lamictal and I have numbness on the right side of my face.

-- By creativewz | Reply | (1) replies | Private Message me

October 26th
2007
8:25 AM

I am so glad I am not alone. I started this horrible drug 2 months ago for bipolar. Started with the starter pack. I was up to 100mg when I really started feeling ill. I had BAD leg pain. Joint pain,back pain, all the time. I had a never ending appitite and gained 12 pounds in 2 months. All my labs were normal and my primary doctor looked up the side affects and immediatly took me off of Lamictal. I have to admit though my depression got better but my body hurt so bad I almost lost my job due to not being able to walk as the pain was so bad.It has been only one day of being off lamictal and the pain is still unbearable. My doctor says it will take a good 5 days to feel relief. God help us ! This was a horrible experience for me and I feel for all who have used this for bipolar.

-- By ilovecats | Reply | (1) replies | Private Message me

October 19th
2007
4:41 PM

Funny that there is someone saying they have experienced weight gain w/ lamictal -- I've actually experienced the opposite. I've lost a few pounds since starting it and I'm already on the thinner side so I've actually been trying to put them back on and can't. The only thing I've noticed is that when I take it later in the day, I have a hard time falling asleep at night. I've been on lamictal almost 6 months, and I am on about 200mg right now. I'm not saying that this is the perfect anti-bipolar/depressant drug, but I don't want people to be afraid of weight gain and not take it if they need it.

-- By haley458 | Reply | Private Message me

October 19th
2007
3:41 PM

I started taking Lamictal for bi-polar disorder. I did the starter pack about 6 months ago. Then went up to 200mg. I felt like crap. My head was foggy, couldn't remember things, easy stuff like how to spell words that I know I can spell. Upset stomach, blurry vision terrible headaches abd migraines.
I stopped taking it and went back to my shrink and he said it's like have high blood pressure I have to keep taking it.

So I started the starter pack again and I'm up to 100 mg. I ache all over. My bones hurt so bad and after reading all of the info on here I'm going to talk to my doctor about other trestments.

My primary dr. has sent me for blood work and results were normal so she wants addition blood work done, but I think it has a lot to do with the lamictal. I'm glad I found this site, I don't feel like I'm alone.

It's hard feeling this way and friends and family think your faking or crazy, and I'm not. My mood has stabilized on this med but all the side affects suck.

Oh yeah and the weight gain! And no matter what I do I can't lose any weight. The vivid dreams are wild too. One night I woke up sweating with my heart pounding so hard from a nightmare I was having.

Thanks for all the info. I wish you all well and good luck finding the right meds.

-- By ponyislandgirl | Reply | (2) replies | Private Message me

October 19th
2007
1:55 PM

I have never had any sid effects with this medication and have taken it for 3 year now. I guess that it depends on your chemistry that you have side effects, I go to thereapy for bipolar and there are some that have had effects and there are some that I havent. For those that have had side effects that are not serious, they will go away in a couple of days, but for those that have had serious effects should contact your dr. In order for it to work, or for any medication to work, you have to take it to get into your system, so I have nothing but postive things to say about it... there are somethings that you can not take with the lamictal which may increase side effects, for example you can not drink grape fruit juice, or orange juice , because it decreases the strengh of the medication..

I hope that those have stopped taking Lamictal ( which is a big no no anyway, and have been advised to ask your doctor to futher assist) that will give another try and take it longer than a couple of days.

Since i have been on it, I have had no problems with all of what bipolar traits are, there is a difference between bipolar and being depressed.

Flbipolarcub

-- By flbipolarcub | Reply | Private Message me

October 18th
2007
6:49 PM

I am so glad I am a research junkie, and that you all posted this for me to find. I just started on Lamictal about 3 weeks to one month ago. I just increased the dose to 100mg at night along with 150 mg of Wellbutrin XL. So far I have experienced hair loss, constant fatigue, excessive yawning, hacking cough, stuffy nose, dizziness, acne on my back, shoulders and face, terrible nightmares, waking with my heart pounding in the middle of the night, extreme rage, continued depression with racing thoughts, lack of energy/desire, general mental fuzziness and some trouble expressing myself verbally and literally.

I have tried several times to contact the doctor who prescribed this for me. But I can't get him to call me back. I desperately want to get off of this drug as soon as possible. That heart episode the other night nearly scared me to death! I didn't know what to do.

I was diagnosed with bipolar, but I still believe it's depression. I hope that I can get it figured out here soon before things get even worse. I had increased my level of exercise initially but for the last week I have been so tired and out of it I don't want to do anything.

Good luck to all of you as well, hopefully they'll get better at these treatments eventually!
~A

-- By lamictalscaresme | Reply | (1) replies | Private Message me

October 8th
2007
2:22 PM

I have been using this med for 18 months going up to 400mg and now back to 200 mg with the hope of coming off totally. I am concerned however with the labwork I had recently as compared to routine labs in April.. My WBC and neutrophils are lower. I just recently had 2 CT's of the abdomen and pelvis with an ultrasound scheduled on Friday. I am so aggrevated with this and I am glad I investigated this drug a little more due to feeling hopeless the physical and mental problems I am having. My mood swings never really stablized and are still the same. Has anyone come off of this with positive results and did they treat your bipolar with a different med with better results? Thanks

-- By heatherm71 | Reply | Private Message me

September 28th
2007
9:45 AM

13 year old daughter is on lamictal for seizures. Hse has experienced the loss of memory and the muscle aches in her legs, another side affect that she has had was anger and aggitation and one day she actually got so bad she started to hit kick and bite me
anyone else have that side affect?
good luck all

-- By jillseline | Reply | (2) replies | Private Message me

September 21th
2007
8:23 PM

I have been taking 200 mg of lamictal for about 3 years. I am on no other medication. I too have the dry hacking cough that never ever goes away. All day and all night. Dry hacking cough that sometimes leads to gagging. It is terrible. I have had chest xrays, breathing tests and no one can find a reason for the cough. It started about the same time I started this medication and I believe it is the cause. I also experience pain in muscles, it's a roving pain that seems to show up in different places daily, sometimes muscle spasms. My stomach is always nauseated. Very little short term memory, runny nose all the time, constant feeling of having a cold, blurry vision, sensitive to light, little red bumps that appear on my skin, itch, then when they disappear, a scar is left like a cigarette burn. I am reducing the amount of lamictal I take as of this week. I am now only taking 175 mg and will for another week then go down to 150 mg. I am hoping some of these side effects will go away, if not I have to get off of it altogether. It's funny, because I didn't have all these side effects when I first started taking it. Seems the longer I take it the worse it gets. Just can't handle it anymore. wf

-- By wfount | Reply | (2) replies | Private Message me

September 9th
2007
10:50 AM

I was on Lamictal to treat my Bipolar for a year and a half. I discontinued it since I got nailed with the freaky side effect of Hearing loss and Tinnitus. If I would have known things would end up like this I would have never taken it. It has been 4 months since I last took it. My hearing loss has stabled out well below the normal.

-- By hambon | Reply | Private Message me

August 15th
2007
2:48 PM

I used to take Lamictal 150mg at night, no problems, but started feeling anxious in the afternoon/evening. My Dr. Rx'd 300mg lithium at night to see if it would help the anxiety, but I had very fitfil, unrestful sleep to the point where I was not sleeping much and very tired all day. So, the Dr. took me off lithium and substituted Tripletal 300mg in the evening. That worked, but I was still a little depressed & she increased my Lamictal to 200 mg at night. I started waking up after about 4 hours with horrible nightmares. I thought the nightmares were from Trileptal because that was a new med, but even after I discontinued it, I still get the nightmares/panic feeling that wakes me at night. I took 2mg Lunesta for a while to help me sleep, but then I slept too much 10-12 hrs. I take the Lamictal now in the morning & don't get those nightmares & I sleep fine now, but I feel anxious & dizzy and have trouble concentrating, again about 2-4 hours after I take it in the morning. Dr. says I can take ativan to help the anxiety, but I feel like I need to get off Lamictal and try something else. Maybe lithium will help if try to take it now witout the Lamictal.

-- By viola739 | Reply | (3) replies | Private Message me

August 13th
2007
11:42 AM

Started Lamictal after a suicide attempt. Thinking this drug would help, I took the medication with anticipation. I have been taking it for 2 1/2 years, and starting having night terrors, weight gain, exhaustion, don't have the drive I used to, and now it is affecting my sexual behavior (and not in a good way). I used to come home from work, and want to work in my yard and be proud of what I accomplished. However, within the past 3 or so months, I've almost given up. Beings I'm best known for my ambition, and attention to details, (probably on the anal side) I have been told that I have changed. I have had memory laps, trouble focusing at work, feeling as though I am inferior to others, and trouble with the driving aspect also. Sometimes I'll forget where I'm going, and take the exact opposite turns than I should. Although my income just meets my billings, and my credit score is excellent, I am having trouble keeping track of when they should be paid, even though I put them on my calendar. I do find my credit score is falling, and fast. I am seeing my MD, and the psycho-therapist on a regular basis. I am weaning off this medication, but have only been doing this for 1 week. I can't wait til the end of all this depression and still don't understand why they mark me as a bio-polar person. Also, I have never experienced seizures. I wish all of us luck and patience in our endeavors. Let's all think of each other, and thanks for letting me know that I am not alone.

-- By itzmeee2003 | Reply | (2) replies | Private Message me

August 6th
2007
10:15 AM

I am on 300mg for bipolar. I am having trouble concentrating, remembering (i forget what i'm doing while i am doing it!), I often worry about driving-just don't feel like i can focus well enough-riding down the road thinking "hope i know what i'm doing". It is like i daydream constantly with periods of not daydreaming. I feel pretty cheerful and not having any real emotional problems, but the physical problems are a mess. I am so tired that i feel like every single day is a "well i'm sick today, i'll give myself a break, maybe i'll feel better tomorrow". i do have better days sometimes, but for the most part, i feel kind of useless-not "useless" like i'm depressed-i mean "useless" like i get nothing done and it takes me two hours to get some lunch for myself and my three-yr-old child, and i mostly sit around because i'm "taking a break" and my legs are so sore or i have a headache or i feel shaky, or nauseated - each day, i feel so sleepy i am desperate for my husband to get home to care for my daughter (and me)-it feels like i took NyQuil or Benadryl or something! So, i am literally pretty useless. It's such a shame. I can't find a medicine to help me cope, it is always a trade-off...and going on and off them to try another is a nightmare. At least, right now, it is just a daydream...

-- By llgrenn | Reply | (1) replies | Private Message me


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