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Lamictal and blurred vision

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50 Side Effects posted for Lamictal

September 17th
2008
9:57 AM

I've been on 200 mg Lamictal for 2 months now, after 4 month titration up from 25mg; Going off Lithium 900mg titration to 450mg this week. Since 1st day of lower Lithium, all the common Lamictal symptoms went from mild to extreme. Whole body muscle aches (like 24 hours after a heavy weightlifting workout) worse in neck & back/shoulders/calves, bad headaches, swelling in hands & feet, extreme blurred vision, loss of memory, halted speech while trying to figure out what to say, fuzzy. I called the Clinic to simply ask which NSAID (aspirin? ibuprofen? Excedrin? naproxin?) to use to manage the pain. They all freaked and made me come in for a blood test to check Lithium levels. I explained I wasn't "overly" concerned about it at this point, but just looking for a recommendation, and that they may be over-reacting (even though I did appreciate their concern). I also reminded them that I had just **decreased** Lithium when it happened, so I wasn't having a Lithium Toxic attack (I'm well-versed in that, having been on Lithium for 7 years). It didn't do much good to tell them I thought their diagnosis was a little off. I'll find out the blood test results today, but I'm pretty sure I know what they'll be. They also wanted me to see my PCP since it could be something else. Again, the problem was a ramp-up of existing symptoms the next morning after I lowered Lithium (the only change), so I'm conviced everything centers around that. I think they're a little inexperienced with this med. (Lamictal/Lamotrigine) and if they'd just read this blog they'd probably learn a lot. They had never heard of the muscle ache side effect. Pretty hard to believe after reading all of your comments! My theory is that Lithium was somehow holding back the side-effects of Lamictal and now they're expressing themselves more fully. I haven't read anything like this on any internet discussion, so maybe my body is very different. But maybe my experience will give someone else some insight in a similar situation.
I might also mention something that happened to me I have only seen (kinda) in one other "blog" about follicle (sweat gland) cysts. Yeah, I definitely got the jawline acne starting at the Lamictal 50mg level & increasing at 100mg. But I also got my first ever "cyst" that concerned me and sent me to my dermatologist for the first time in 30 years (I'm 47 and saw the old guy when I had acne at 17!). It started as a blind pimple on my chest the week I increased Lamictal to 200mg (final dose), but didn't go away. It continued to grow (not diminish) over 4 weeks to 3/8 inch round/pink/solid/itchy/burn-when-rubbed. So off to the "Doctor" like my father used to do on a regular basis (I know I'm getting old now) and scalpel/pop/stitch it was out. But it was real, not my imagination or hypocondria, and the timing of its appearance was right when Lamictal changed to full steam. Since acne appears to be a common effect with so many, it seems it's not unreasonable that this occurs occasionally as well to others. Let me be the 2nd to mention it. No "official" verification, but....
I'm not bagging on Lamictal, and have been very hopeful that this would be better than Lithium. It has eliminated the GastroIntestinal problems I had on Lithium, but I am getting discouraged that it has all the brand new symptoms that are discussed in this blog. Your "stuff" is real. I wish the Docs/Nurses/Case Workers would spend 5 minutes checking your comments out. It might bring about a better informed conversation than the shiny Glaxo flyers provide. That is all.

-- By baldwindj | Reply | (1) replies | Private Message me

August 20th
2008
12:23 PM

My sister was started on Lamectal several months ago. She THOUGHT that she was feeling OK except that her mouth had begun twitching uncontrollably. Her family thought that she was acting "kinda weird". She saw a neurologist about the twitching and to make sure it was not Parkinsons Disease or such. It was not so the Psychiatrist put her on Cogentin. After less than a week she was not sleeping, had slurred speech and was running into walls. She was cooking spaghetti for breakfast and began seeing witches and angels and talking on cell phones that were not ther. We took her to the hospital and all tests were negative. The Cogentin was stopped, the hallucinations stopped and her balance improved but she remained with the following symptoms...she had difficulty mentally focusing on anything for longer than about 5 minutes, blurred vision and forgetfulness. I sent a note to her Psychiatrist and the Lamectal was stopped. She has been off of it for a few weeks now and says that she has large periods of "missing time" or amnesia for events of the past several months since she began taking the Lamectal. Her speech has returned to normal and she is focused again...

-- By saracafe | Reply | Private Message me

August 18th
2008
11:09 PM

Blurred vision, 15 lb weight gain, irritability, insomnia, excess hair growth (exacerbating my PCOS), nausea, nightmares, fuzzy thinking, bad memory, lose train of thought mid-sentence. Been on 100mg for 3 months. Doctor upped to 200mg but after 3 days on it and 3 days of no sleep, I dropped back down. Helps a bit with my depression, but I feel sort of numb. Not as bad as on some, but not good.

-- By scarpetta1978 | Reply | Private Message me

July 19th
2008
6:37 AM

I have been trying to come off this medication after being on it for several months up to 150 mg. I didn't realize I needed to taper off so gradually, so I started cutting up my pill for several days at smaller dosages and then I just tried to go two days without and the withdrawal symptoms are horrendous. My head feels like it has imploded, high blood pressure feeling, dizziness, high anxiety, confusion, pressure all over, blurred vision, constant tick in my eye over the past few days, insomnia, trouble breathing, body aches, sick feeling, extreme fatigue, nausea. I just had to go back and take some more out of desperation. It's so frightening.
Taper off this drug S L O W L Y!!!!

-- By allysonlynne | Reply | Private Message me

March 24th
2008
1:27 PM

I built up to 150mg and was on it for 6 months. I couldn't feel a difference on the medication, but did experience the side effects mentioned above -- blurred vision (had lasik treatment and had to have one eye enhanced as my vision changed so much), dizziness, trouble falling and staying asleep (need to take a pill) and trouble formulating my words. I thought at 39 I was going through menopause. I took myself off of the Lamictal and Abilify last Monday - one week ago, and would really like to know how long these drugs stay in your system. Most recently, my teeth have started to hurt and I feel very shaky.

-- By dducrocq | Reply | Private Message me

November 14th
2007
9:48 AM

I'm having serious side effects currently. The onset of the side effects began after taking Lamictal for over 2 months. I started slowly on 25 mg and gradually increased to 200. I felt a great improvement in Bipolar disorder-mood swings- at 100mg but was told that is not the theraputic dose, so we increased to 200mg.

I had no side effects until the rash began to appear. At first only on legs, then arms, then neck, then face...and surprisingly in private areas. Unbearable itching. Rash continued to rage even after a pack of steroids. Swelling became apparrent in face and entire body. Slight difficulty breathing. Went to the ER and received another dose of steroids intravenously. The rash continues to improve but is still extremely itch. The swelling improved for a couple of days but is back. Had one day of severe headache. It has been 14 days and today I am experiencing blurred vision in the left eye, and new swelling in the tongue.
I sit at home with an Epi Pen next to me waiting to hear back from the doctor.

All of this is so unfortunate because I felt more stable than I have in years while on the medication. I'm feeling very concerned about my continuing side effects. Don't know what to expect.

-- By unfortunate | Reply | (2) replies | Private Message me

August 20th
2007
9:27 AM

Light Rash, dizziness, BAD blurred vision making it hard to drive, BAD heavy bleeding(changes in menstrual cycle lasting three weeks with spotting then heavy bleeding) easy bruising sometimes black and blue ...headache,cant think, kidney pain I have (VUR) and am not sure if i should have been givin Lamictal.... I just stopped taking it went from 200mg to 100mg for a week now not taking any its been two days. and im hoping I start to feel better soon.

-- By lorriebeardsley | Reply | (2) replies | Private Message me

July 21th
2007
12:05 PM

100mg 2x daily for complex partial siezures.. Initially thought this was great after dealing with dilantin and feeling like a tired zombie. The only side effect I had was a chronic runny nose. I then started having low back pain, then nearly unbearable muscle spasms down the back of my legs. It was so bad I was setting alarms so I could take ibuprophen round the clock. I began having stomach issues from the ibuprophen, so I scaled back to only taking it in the am. Muscle spasms are now tolerable, but I've developed a new issue - I'm often dizzy and have random blurred vision. I waited 6 months to get my license back (after one minor siezure). Now I don't drive because of the side effects. I don't know whether cutting back the dose of lamictal would help, but I intend to ask.

-- By dquinn2600 | Reply | Private Message me

July 18th
2007
1:56 PM

I recently was given 200mg over the recommended pharmaceutical dose of Lamictal. My dr.'s partner prescribed this after a trip to the ER for a seizure to get me by until I could see my regular neurologist at the beg. of the week. The extra dose caused major blurred vision side effects, inability to walk, extreme sensitivity to light, and nausea. I am now at 400mg of Lamictal and starting Topomax with it so I hope this works. Any thoughts from anyone else taking this med combo?

-- By krusen | Reply | (1) replies | Private Message me

August 29th
2006
9:01 AM

I was taking Lamictal for BP disorder for about 4 months. By the time I got to 200mg my vision went bad. Could not focus on anything. My vision has always been perfect so I this was upsetting. I tried backing down to find a dosage that did not impact my vision but could not find one. After 4 months off Lamictal, my vision is still bad, trouble focusing, blurred vision. I am convinced that Lamictal has permanently ruined my vision.

-- By clammy | Reply | Private Message me

April 7th
2006
2:13 PM

Iv'e been taking lamictal for about a year now. I switched from my previous medication to lamictal because I got pregnant and lamictal seemed to be the safest for baby. Baby was born fine but after the delivery I started experiencing dizziness and blurred vision, just recently though I'm starting to get a burning sensation in the upper abdominal area, shortness of breath and racing heartbeat. I've read that certain antiseizure medications can cause ulcers. Has anyone experienced any of these symptoms???? Please let me know!

-- By solmirin | Reply | Private Message me


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