October 6th
2009
12:08 AM
Googled and found this site. Could not believe all that I read! I've been taking Lamictal for several years for Bi-Polar disorder. I also have GAD for which I control with another drug BUT...I guess it's been so long since I began taking Lamictal that I had forgotten, or did I ever even know, the side effects of it. First if all, the memory loss is incredible! Not being able to complete a sentence...never able to find a "word" that should be so simple to remember...going somewhere and within 2 seconds, forgetting what in the world I'm doing or where I'm going...happened today TWICE!
And to top it all off, my eyes are so bad...I didn't even attribute the L to this until I came to this site but it makes PERFECT sense! I feel such a sense of loss in my eyesight that it has begun to really scare me. I have not been to eye doc yet but plan too.
Also, someone mentioned in here that they feel the med just wears off before next dosage and that is exactly what I've been telling my doctor so at first, we just upped the dosage until I was on 450mg a day but even the, it still was not working. SO...now I'm decreasing and the doc added Depakote Er 250mg. But doc says I have to be almost completely off L to get fully on D. So...feel like crap a lot of the time!!
I'm like someone else on here who said, "just start fresh" and that is what I'd like to do but how do you go "cold turkey"? I know it isn't good! Even decreasing this L for the last several months has been hell!
I have been on a roller coaster of meds for 10 yrs. Have yet to find the "combo" that works! Sometimes I wonder if the diagnosis of BP was/is even correct.
Another person in here said he feels like he may have some side effects of OCD and I feel that way too. Nothing major but...enough for me to notice.
Damned either way, right?
One thing I DO KNOW is that I cannot take this eye problem anymore and now that I know my memory and all that other stuff has to do with L, I'm getting off it no matter what! I'm calling my doc tomorrow and we HAVE TO MAKE A PLAN!!!!!!!
I'm only 42 but my memory is that of an 80-yr old (except for my grandmother who died at 96 and could remember details of when she was 4 yrs old...lol) I guess it's good I can kinda laugh at all this but I DEF know it is not funny!!!
Anybody out there with insight to diff. meds...combo of meds?? I really am worn out!!
Right now, I am down to 375 mg of L and this has taken me several months now to decrease from 450mg...don't see the D working that well yet but it's only 250mg so...
I really am worn out!! My anxiety shoots through the roof bc of all of this! Esp. when I feel the L wearing off around 5p or so...
I'm game for any advice ( I did see where the one woman talked about changing the time you take this in the morning but that won't work for me)
Thanks!!
May 31th
2009
1:46 PM
I feel somewhat reassured that it's a possibility that my memory loss is a side effect of lamictal. I was diagnosed with BP I and the medication has done wonders. I still get very depressed sometimes, but not as severe as it was without the med. I experience(d) rapid-cycling which I was told is less common for this disorder.
My short-term memory is horrible. Sometimes have trouble remembering conversations and even things that happened a short time ago. For example, I recently played a few games of pool with my son and on our way home, I couldn't recall whether or not I won any of the 3 games. It's pretty embarrassing and scary when someone "catches" you or notices that you have completely blanked. I have to write things down if I want to discuss them with my therapist, because I won't remember what my issues were within the last week or two. Sometimes, when someone asks me if I remember something, I act like I do, because I probably should remember it. Again, I feel like an idiot because I don't. At work, it's not too much of a problem, because I insist that everyone sends me a reminder email, so I have a task list to work from instead of recalling things from memory. I also get completely lost in my train of thought during conversations. I tend to go off in tangents and completely forget what point I was trying to make.
I also have trouble focusing and my mind is always because obsessing over some thought, usually something negative. I feel like I waste a lot of time doing unproductive thinking. I'm not sure if this is a symptom of the disorder of not.
April 7th
2009
12:11 PM
My mood swings have improved dramatically. I have been on for 4 months now and I feel better than i have in years. But once i upped to the 150 my vision has been blurry. I think i will back down to 100 and pray my vision comes back and I continue stay stable with my BP
-- By hayleea | Reply | Private Message me
August 30th
2008
9:18 PM
I have to comment on some of the Lamictal "new comers". I've taken Lamictal for 1 1/2 years. For the first 6 months, this was the miracle drug. As months went by, I began all of the same symptoms: fogginess, weight gain, short-term memory loss, NO libido, headaches, and nausea, to name a few. As of this moment, I am weaning off of the Lamictal. HARD to do. This is not a drug that can be "stopped" immediately. On my fifth day of weaning off, I am dizzy, tired, weak, irritable, and have vomitted. Only about 3 days left. I am starting Topomax after. I'm anxious to see if there is any difference. Especially the weight gain part. I went from 120 to 135 in one year. (I run and eat healthy meals.) I will continue to take Effexor, which, in 2 years, has had little or no side effects. My advice to anyone just starting to take Lamictal is to GO SLOWLY. My doctor had my doses increase so rapidly that I didn't really see if the lower doses would have worked. (I take 200mg.) The bottom line is to do what feels right for YOUR body, rather than a specified dosage. Best wishes to you fellow BP-ers!
-- By doriomom5 | Reply | (2) replies | Private Message me
August 28th
2008
12:40 AM
I have been taking Lamictal since October of 2007. I experienced some of the symptoms (muscle pain in the head and neck) before I started the medication. I have experienced panic attacks since July of 2005. I have had mild heart palpations since I was in my mid 20's (I'm 36 now). I have had what I would consider a below normal energy level since my mid 20's also. Ok so like everyone else I am thinking I'm a hypochondriac! However, I was diagnosed August 28th 2007 with having Lyme’s Disease and also Hyper-Thyroid (same time, same lab-work). Two weeks later I was diagnosed with Bi-Polar Disorder (this is one thing I knew I was battling but didn't know how to handle it). My physiatrist started me on Lamictal and I did the standard ramp up to 200mg. I also was started on a 90 day treatment of Dyoxicycline for the Lyme’s and Methimazole for the Hyper-Thyroid. I was very very weak and was only able to stay awake for short periods of time (4 to 5 hours max). Just an fyi, I am not overweight, lazy or unmotivated. I have the physical appearance of perfect health. This, I think works against me as the Dr's seem to think I'm just whining. Mater of fact; my Primary Care Physician never tested me for Lyme’s. I went to an Urgent Care Center which tested me for Lyme’s disease and I came back positive (they also tested my Thyroid levels and found the problem with my THS levels) I told my Dr the results and he insisted I have same test done again. Guess what, new tests, same results.
My symptoms today are very similar to what I have seen posted many times. Muscle pain (entire body, some areas worse than others), heart arrhythmia, racing heartbeat, intense palpitations, nausea, foggy “un-plugged” mind, fatigue, weak muscles, muscle cramping (especially after repetitive motion, such as strumming a guitar), panic attacks (much more severe) and the latest addition to the group, Insomnia. Muscles pain in my head, fore-head, jaw, temple, neck (front and back), shoulders, is terrible to say the least. The pressure in my fore-head (right under my brow) makes me feel like I need to close my eyes or rest (resting does not relieve anything). The front of my neck is so tight at times it feels like my jaw is being pried down. I could go on and on.
On my quest to find out what else is going on with my body I have had 2 Echocardiogram’s on my heart and abdomen, 2Nuclear Stress Tests, blood work out the wa-zoo, MRI of my brain, 2 CT’s of my Head and Neck, Chest X-rays, Endoscopy, Colonoscopy, and all revealing nothing.
Most doctor’s I have encountered seem to want to treat the symptoms, not the problem/disease. I believe I know why; we (the ones who are there for solutions) tell them what the symptoms are (how we feel). We of course are thinking “this will help with a diagnosis of the problem/disease”, when in fact (I feel); the doctor’s thought process stops there. They don't know what’s wrong with you but they do know what your symptoms are so....bingo, let's treat the symptoms. Don’t misunderstand what I am saying. I’m not saying, “Most doctor’s don’t know what they are doing” or “don’t take your meds”. I am saying you and I are one of the 20 to 30 patients most doctor’s see daily (100+ weekly). They may be caring and good people but they are just as human and fallible as you and I. My advice is this; (and I am taking my own advice) don’t always “pop” into your body what the doctor suggests/prescribes, without doing your own research. Heck most of us won’t buy a car or more importantly, send our kids off to a college with out doing your own research (we just don’t trust those shinny brochures). Your body and your health are worth you doing your own research. Just keep in mind, Pharmaceutical Reps are always at your Dr.’s office (sit in the waiting room for 10 minutes and I’m sure you will see one). Reps are paid to do one thing; encourage (push) the Dr.’s to promote use of the Pharmaceutical Companies drugs.
My wife and I have been doing our own research on Lamictal (after a year of taking this stuff) and the side effects associated with this drug. We have searched through many (many,many) web sites for information and we have talked with pharmacists and Dr’s for opinions. Although I’m am not thoroughly convinced that Lamictal is the cause of all of my symptoms, my wife and I have decided to lower my Lamictal slowly from 200mg to 100mg. I am now taking 150mg daily (three days now) and plan on staying at this level for a total of two weeks before lowering to 100mg. I do fear dropping the dosage to quickly (potential side effects) or lapsing into a mania. To help avoid a manic episode my wife and my immediate family are all “up-to-date” with my course of action. They are on “Red Alert” and have promised to keep a close eye on my behavior patterns and moods. (I don't want to put them through another hyper-mania episode, its much too devastating). I do want so badly to feel healthy and alive again and at this point I am rather frustrated with the Dr.'s ability to help me achieve this goal. Remember it is called “Practicing” Medicine. So now I’m going to practice a little, very carefully and cautiously.
As a foot note; I have recently (past two weeks) been re-tested for Lyme's with a negative response. I am keeping in mind Lyme's test are very inaccurate (still hoping this one is accurate). My thyroid is under control and normal, so.... let's see if dropping below 150mg of Lamictal will eliminate some of these other symptoms. I will keep you posted.
Erik
August 19th
2008
3:22 AM
Hey, I cycle, so who knows if some of this is the meds or the BP roller coaster..
What I do know:
• Memory Loss ***
• Rash like Poison Oak if I increase too quickly *12.5 mg
• Heart Racing + Mind Racing (part of all this right)
GROUCHY at work regardless of meds.
-- By tamarrow | Reply | Private Message me
August 18th
2008
7:27 PM
I took lamictal alone for about 7 years it seemed to stabilize my BP, but always complained of fuzzy thinking; the doctors never took my concerns too seriously...8 years ago I said enough is enough to my new meds guy and went off of it. Having tried a few combinations since then and recently feeling depressed the doctor suggested lamictal. I was against it at first but it was his number one suggestion, so I tried it. This time in combination with other my meds.
Talk about fuzzy on 200 mgs I am down right daft. I was on my way out of it, but I think it may be helping my moods. I can't ask for any insight as this one is really up to me. thank you EHE
July 31th
2008
12:07 PM
I have been on this med (25 mg) for eight days to treat SSRI resistant depression. Three days ago I developed flu like symptoms, with fever and vomiting. While I have hypertension I have also seen an increase in my BP even though I am taking my BP medications. However the most difficult to deal with side effect is extreme tooth pain that started when the flu symptoms did. It is so painful I have to eat soft foods. I have had no dental problems in over 25 years. Has anyone else had this effect?
-- By me4taichi2 | Reply | (2) replies | Private Message me
June 10th
2008
8:46 AM
I have been on Lamictal for about five months for bipolar II. I has been increased slowly over these months and I am now up to 300 mg a day. I have a tendency to sometimes forget things but remembering numbers has never been a problem for me. In fact I can look at someone's tag number driving down the road and remember it for days. Phone numbers of people I have known for 20 years would stick and I wouldn't even have to call them on a regular basis to know the number. However, recently while trying to use my bank debit card at the store I was asked to enter my PIN number and totally could not remember. I tried it several times but it never came to me. I felt like a fool!. At this time, that was three days ago and I still cannot remember it!
This is very, very distressing to me. I feel like something has been wiped clean and that I will never get it back.
My Lamictal dose has been increased in the last couple of weeks and I thought maybe Lamictal or one of my other meds could be making this happen so I started researching and found this site where other people were complaining of memory loss while on Lamictal.
Headaches are another common side effect for me while on this med. It has really helped me emotionally and I need to know if the memory loss is just going to be a temporary thing and it will get back to normal or if I will be forgetting more and more over time. PLEASE HELP!!!
-- By jasonslilgal1 | Reply | (8) replies | Private Message me
June 8th
2008
6:00 PM
WOW. I have been taking Lamictal for about 4 months for my BP and up until now I have never known all the side effects. You see, I am uninsured and am forced to go through MHMR. They (at best) give you an idea of what the side effects are. It is very difficult to even get a one on one with an actual doctor. You sit in a chair for 2 minutes and walk out with a bad full of drugs. Needless to say, my mood hasn't been "stabilized", in fact, I think it's worsened. What's worse is that between the weight gain and the loss of my short term memory I feel FAT and STUPID; causing me to be even more depressed. I never even thought that the memory loss was related to the Lamictal; the weight gain, maybe. Today I thought, "let me check this out." and I stumbled upon this blog. THANK GOD! I mean I'm sorry that we are all suffering but I'm relieved to know that it's not ME. Thanks for sharing all, and good luck!
-- By lisarv | Reply | Private Message me
April 29th
2008
12:15 PM
I HAVE BEEN ON THE LAMICTAL FOR 5 MONTHS NOW( FOR MINOR BI POLAR EPISODE). AT FIRST I FELT A LITTLE "SPACEY" AS I HAVE INCREASED MY DOSAGE EACH TIME I NOTICED VERY PAINFUL MENSTRUAL CRAMPS, WORSE PMS, EXTRA LONG MENSTRUATION CYCLE, JOINT PAIN IN THE HIP, FORGETTING EVERYTHING( LOSS OF SHORT TERM MEMORY), AND EXTREME TIREDNESS IN THE DAY AND NOT SLEEPING AT NIGHT. I HAD BEEN ON 75MG A DAY ( 2 IN AM, 1 IN PM) AND THEN UPPED MY DOSE TO 100MG(2 IN AM, 2 IN PM). THE SIDE EFFECTS ARE WORSENING, ESPECIALLY THE JOINT PAIN. I HAVE ALSO NOTICED PANIC ATTACKS AND IRRITABLENESS THAT I HADN'T HAD BEFORE. WORST OF ALL, IS THAT I HAVE GAINED ABOUT 27 LBS WHILE TAKING THIS MED. HAS ANYONE ELSE HAD ANY OF THESE SYMPTOMS? PLEASE REPLY TO TELL ME THE BEST REMEDY.
-- By babybee2002 | Reply | (4) replies | Private Message me
January 9th
2008
12:23 AM
Is this a forum for trashing Lamictal? I've been on it for a year and it probably saved my life. If you have negative effects from taking it, why not drop it and try something else? I'm glad I never read all of these horror stories, as I'm sure it would have scared me enough never to have tried it. That would have been a shame .. I've never felt as symptom free as I do now; I sleep well and dream well, put in long days in my business and never have a problem remaining focused and alert. The perfect cocktail for me turned out to be 250mg Lamictal twice a day, 25mg Trazodone at night, and 40mg Citalopram. I feel really fortunate that my psychiatrist only feels the need to visit with me once every 6 months just to check in. If I miss a day, my wife notices immediately as I start to swing "up" again. Drawbacks? The cost (about 7 bucks a pill), and some weight gain which may have happened anyway .. (I'm 52). If you have the insurance to cover it, I say give it a try.
-- By better_off_with_lamictal | Reply | (2) replies | Private Message me
October 30th
2007
12:23 PM
I have been on Lamictal for almost a year now and everything seemed to go okay until almost three weeks ago when I had to increase my dosage from 100 to 150mg and my Lexapro to 15mg. In the last couple of weeks, I have gained 7 pounds and I am really depressed. I have an eating disorder (bulimia) and because of this, I profusely purge my food in fear of gaining a dramatic amount of weight again. I am going to see my psychiatrist next week because all of this is going to cause me to crash.
-- By leaforever32 | Reply | (4) replies | Private Message me
October 6th
2009
12:17 AM
BTW...also have had major weight gain with Lamictal...loss of sex drive, tired all the time (there could be other things that affect this but)
I also take high BP med, acid reflux med but I don't feel they contribute to this problem with Lamictal. I've been on those meds way longer than L so...I think I just would like to "start over" and see how I can feel better.
I used to think L was exactly what "the doctor ordered" (no pun intended...again, glad I can sorta laugh at this but...) BUT I DON'T FEEL GOOD!!
Another doc prescribed me Provigil and didn't really explain what it was. She said I needed it bc I was tired all the time. I actually went there bc I thought I had Fibromyalgia and all I got was a 'script for Provigil and sent on my merry way. Got it filled, took my first 200 mg pill and thought I was goin' out of my freakin mind!! OMG!! Told my psych doc and he was like, "P not good for BP patients" so...BUT I did cut the dosage down bc it was SO nice to have energy to make it through the day but still, I do not suggest taking the stuff.
Anyways....just thought of this after I posted walla go...tx!
ps Im not sure the L works that great on the depressive side of BP
-- By kittykittysno | Reply | Private Message me