May 7th
2008
2:43 AM
I felt suicidal and got migraines/nausea/vomiting when I was first started taking Lamictal. Then I was on a steady dose of 100mg and I felt better than I've felt in my life with no other side effects except the tendency toward minor skin irritations. I've just gone up to 150mg just to see if that's better, but I'm having suicidal urges, migraines, nausea, vomiting. I expect that will clear up soon and then I'll know if this is a good dose for me.
My psychiatrist warned me about feelings of suicide as a possible side effect. She also told me that as the dose goes up, mental disorganization increases. So we're trying to find the right balance of anti-depressant effect and spaciness.
-- By 31yocaucmale | Reply | (2) replies | Private Message me
April 21th
2008
11:43 PM
my son has been on it now for about 4 months and has tried to commit suicide in the process of a 5 week change from keppra to the lamictal.then had to take dilantin until reached full dose of the lamictal which for him is 150mgs 2 xs a day at first the keppra made him fly in to rages so that was blamed for the suicide attempt.but just a few days ago he said that he was having weird feelings again. so i don't know what to do. waiting to hear back from the dr.i would just like to know if anyone else has experienced such severe thoughts from taking this med or if passably it could be not a high enough dose.i don't really know anymore by the way my son is only 15 and he is on the lamictal for seizures.any feedback would be greatly appreciated.
-- By kellgaer | Reply | (2) replies | Private Message me
February 20th
2008
11:06 PM
This is a total nightmare and i need advice! I was on Lamictal for a year and about six months into my health began to slowly deteriorate. It started with shortness of breath and heart palpitations and eventually attacked every system of my body. My symptoms are muscle pain, spasms and knots to the point that i can't turn my neck sometimes, joint pain (mostly knees), stabbing floating pain everywhere, headaches, frightening tingling in my extremities and a few times my entire body, sore throat, flu-like feelings, stomach cramps, bloating and heartburn. The list goes on. I have been off of it now for two weeks. My psychiatrist has never seen this type of reaction before and is not convinced it is the Lamictal. I have been to every single type of doctor and the ER twice, had extensive lab work, CT scan and two MRIs. I have been off Lamictal now for two weeks and am not feeling much relief. I am so scared and frustrated and please need advice. Has anyone else experienced this? Does it ever go away? I feel like I am literally living a nightmare with no-one to turn to for advice because no-one seems to know ANYTHING!!!!
-- By humphrsa23 | Reply | (10) replies | Private Message me
September 14th
2007
7:08 AM
My 14 year old son began Lamictal 2 weeks ago for absent seizures, starting at 12.5 mg at night for one week, then 25 mg for one week and then will increase by adding a morning dose at this rate; ultimately to titrate up to 100 mg at night and 100 mg in the morning. The slow increase in dosing is supposed to avoid the life-threatening Stevens-Johnson syndrome (indicated initially by a rash).
I have noticed he is moody, angry and tearful now. I find this concerning since it is also prescribed for mood stabilization. He complains of body aches and especially leg pains/soreness. I think his short-term memory difficulties are worsened. He has made comments that he doesn't care if he lives or dies.
I noticed that his lymph nodes in his neck and just below his skull are a little enlarged, though he saw his pediatrician yesterday and they are not big enough to be considered outside normal range.
I am a nurse, and drew blood work at home today to rule out infection and look at liver function. There are no tests which quantify a therapeutic range for lamictal--it's very individualized.
I want to take him off of the lamictal and am looking for alternative ways to minimize seizures, such as exercise, diet, vitamin supplements, omega oils, perhaps neurofeedback, massage therapy, music therapy--any and all things which may help.
I feel like my child is sliping away from me with this personality change; I want to find out why he is having seizures rather than just treat symptoms which are the siezures. I'm reading--night and day and will not give up until I am convinced there are no natural approaches which are better than drugs. It's exhaustive to put the work into it, but I think it is necessary.
It is recommended that Lamictal be tapered off over about 2 weeks, to prevent siezures--whether you are taking it for this or not. I don't know how his neurologist will respond to this request to take him off. I think it's important to have a good working relationship with your doc. However, in my view a good doc is open to individualized concerns and alternative treatments.
My heart goes out to all of you who are struggling with your own problems and suffering side effects. I wish I could do something to help you. In my journey to learn, I will post any things which I discover to be helpful to my son, though they may not pertain to your particular problems, they may also be of help to you.
I have learned that seizures cause oxidative stress to tissues, just like an apple browns once you have bitten into it--it does so due to oxidation. Vitamins C, E and selenium may help, since they are antioxitants. Siezures disrupt the metabolism of essential fatty acids, so supplementing with omega 3 and 6 oil may be helpful--these oils also stabilize cellular membranes, because cell membranes are constructed of phospholipids derived from these essential oils. At minimum, I would do these things.
Exercise may help, and also a modified Atkins diet. I have always struggled with depression, and nothing helps me other than exercise and eating a diet restricted in simple carbs and sugars. I think this is important for everyone, as this is the way to prevent and sometimes also reverse type 2 diabetes. Everyone should eat like this and exercise--this is the best mood stabilizer of which I know.
I think that most illnesses are related to metabolism, and in this day, we are exposed to unhealthy foods continuously and our lifestyles/jobs make it difficult to get physical activity. I believe our bodies are screaming at us to make changes in this, and that is why we are having so many problems with illness in general.
I know it is hard to exercise when you are depressed, but if you can do it, you will see the changes in the quality of your lives. Be careful though, becuase the meds you all are taking may put you at unknown risks for injuries that I have no knowledge of.
I wish you all well.
Sherry
I believe that it is best to try to find natural ways to help
-- By sherryrn | Reply | (1) replies | Private Message me
October 6th
2008
12:31 AM
I have been on Lamictal now for 10 months, and I mostly love it.
But my IQ went down about 20 points. The first few months were very bad--I could hardly complete a sentence without forgetting one or two words. My short-term memory was scary bad--almost like blackouts where I wouldn't even remember events when reminded.
Those things have abated somewhat, but I am still having to adjust to a lower ability to think. I must make lists, I must repeat instructions and directions. Perhaps this is more about slowing down what was a hyperactive brain, but it is a side-effect that is hard to accept.
I am noticing a new side effect, though. I drop things all the time. I recently dropped a book I was reading--how does that happen?
Has anyone noticed this dropping, or any other clumsiness like this?
-- By marimac | Reply | (4) replies | Private Message me