Lamictal and headaches

an update on my BF, now almost 3 months off lamictal and all other meds. he still feels great, for the 6th consecutive week he has lost a bit of weight as measured by WW. he finds that he is less forgetful. before, he was always losing his keys, his cell phone, you name it and he was so easily overwhelmed by everyday tasks that he assumed he had AADD.

as time passes, he is feeling better and better. the lack of headaches and muscle pain were the big pluses but now he is seeing a gradual restoration of his ability to think clearly, which is wonderful

I've been on 200 mg Lamictal for 2 months now, after 4 month titration up from 25mg; Going off Lithium 900mg titration to 450mg this week. Since 1st day of lower Lithium, all the common Lamictal symptoms went from mild to extreme. Whole body muscle aches (like 24 hours after a heavy weightlifting workout) worse in neck & back/shoulders/calves, bad headaches, swelling in hands & feet, extreme blurred vision, loss of memory, halted speech while trying to figure out what to say, fuzzy. I called the Clinic to simply ask which NSAID (aspirin? ibuprofen? Excedrin? naproxin?) to use to manage the pain. They all freaked and made me come in for a blood test to check Lithium levels. I explained I wasn't "overly" concerned about it at this point, but just looking for a recommendation, and that they may be over-reacting (even though I did appreciate their concern). I also reminded them that I had just **decreased** Lithium when it happened, so I wasn't having a Lithium Toxic attack (I'm well-versed in that, having been on Lithium for 7 years). It didn't do much good to tell them I thought their diagnosis was a little off. I'll find out the blood test results today, but I'm pretty sure I know what they'll be. They also wanted me to see my PCP since it could be something else. Again, the problem was a ramp-up of existing symptoms the next morning after I lowered Lithium (the only change), so I'm conviced everything centers around that. I think they're a little inexperienced with this med. (Lamictal/Lamotrigine) and if they'd just read this blog they'd probably learn a lot. They had never heard of the muscle ache side effect. Pretty hard to believe after reading all of your comments! My theory is that Lithium was somehow holding back the side-effects of Lamictal and now they're expressing themselves more fully. I haven't read anything like this on any internet discussion, so maybe my body is very different. But maybe my experience will give someone else some insight in a similar situation.
I might also mention something that happened to me I have only seen (kinda) in one other "blog" about follicle (sweat gland) cysts. Yeah, I definitely got the jawline acne starting at the Lamictal 50mg level & increasing at 100mg. But I also got my first ever "cyst" that concerned me and sent me to my dermatologist for the first time in 30 years (I'm 47 and saw the old guy when I had acne at 17!). It started as a blind pimple on my chest the week I increased Lamictal to 200mg (final dose), but didn't go away. It continued to grow (not diminish) over 4 weeks to 3/8 inch round/pink/solid/itchy/burn-when-rubbed. So off to the "Doctor" like my father used to do on a regular basis (I know I'm getting old now) and scalpel/pop/stitch it was out. But it was real, not my imagination or hypocondria, and the timing of its appearance was right when Lamictal changed to full steam. Since acne appears to be a common effect with so many, it seems it's not unreasonable that this occurs occasionally as well to others. Let me be the 2nd to mention it. No "official" verification, but....
I'm not bagging on Lamictal, and have been very hopeful that this would be better than Lithium. It has eliminated the GastroIntestinal problems I had on Lithium, but I am getting discouraged that it has all the brand new symptoms that are discussed in this blog. Your "stuff" is real. I wish the Docs/Nurses/Case Workers would spend 5 minutes checking your comments out. It might bring about a better informed conversation than the shiny Glaxo flyers provide. That is all.

Everyone's body is different and reacts to every medicine differently. After experiencing depression for some years i was finally put on an antidepressant (cymbalta). My dosage was continually increased because I wasn't feeling any better. Eventually I changed psychologists and she diagnosed me as being bipolar II and said that anti-depressants have an adverse effect on people who are bipolar. so for about a year and a half i was on 200 mg of lamictal. It worked wonders and i felt no negative side effects other than if i forgot to take my second dose during the day. Eventually i took myself off of it (slowly, in the same fashion that i had started it) and was off of it for about a year. Getting off of it was hard, but eventually i felt ok. Then a year later i felt i needed it again. So after a 3 months of being on it again my doctor took me off of it because i experienced extreme head pressure-to the point that i felt like my head was going to explode. i had a checkup at my regular doctor and nothing was wrong. once i had the lamictal out of my system i felt fine again. well now a year and a half after that, i started the lamictal again in hopes that it would work like it did the first time for me. Unfortunately that has not happened yet. As i write this, my head has so much pressure. I ve experienced headaches on and off for the past 4 days. This is not a common side effect so im not sure whats going wrong.. Has anyone else experienced this or know why that is happening? Anyways like i said the first time i was on lamictal for a yr and a half and i felt fantastic. I would tell people i "loved it"---which sounds silly but when you go from absolutely miserable to feeling alive again and having motivation, that phrase doesnt sound so silly. so take everything you hear with a grain of salt. experience it for yourself because everyone's body is different and who knows, maybe you will feel better on it. I however am stopping this drug tomorrow because of the rare head pressure i experience while on it!

I have been on Lamictal for a few months and I started out on 50 mg and went up two 100 mg within two weeks time - Everything was fine until I went off of it for 5 weeks and then back on it pretty suddenly. Ever since then I have had chronic nausea (constant feeling of car sickness). There are times when I wake up with it in the morning and go to sleep with it at night. Nothing will help except fountain coke (I don't know why, but it works) but the pain always winds up coming back within a few hours.

I ALSO HAVE BEEN EXPERIENCE THE FOLLOWING AS WELL

• Memory Loss ***
• Messing Up Words + Speech Comes Out Backwards ***
• Loosening of Teeth
• Sores and Blisters on Inside of Mouth
• Soreness and Heaviness in the Legs + Occasional Muscle Aches
• Headaches (Not so much anymore)
• Heart Racing + Mind Racing
• Trouble Writing + Spelling ***

wow! lamictal. im taking it for bipolar and it sounded so great due to the fact that it concentrates on the "lows" more than the "highs" and since i've been battling depression and suicidal thoughts since the 4th grade i thought this would be a wonderful addition to my medication. i would keep the seroquel at night and only take during the day "as needed" i was told there weren't very many side effects, just following starter kit exactly and i wont get that terrible rash. i didn't have access to a computer until a few days later after my first dose. so i didn't really get a chance to do much research. the first night i was surprised i felt a little loopy. didn't thank much of it. BUT several day late i felt i had the mind of a child. my speech slowed, my motor skills were off i felt heavy in body but light in the head. i could produce simple words. i knew the meanings of the words just had know actual word for them and would have to try to explain these words. stupid me started a new medication just before having to study for an exam( i was not expecting such a quick start of side effects) wow! i had no short term memory. could barely function. it was hard to even order a cup of coffee. of course there were other side effects such as pounding headaches and muscle soreness but they were nearly as annoying as the mental side effects. i started out at a low dose of just 25 mg. i had to stop taking it so my head would clear up and i could actually function just to take my exam. im not cleared up all the way yet but i do feel better. im sure my psych teacher will understand. ....but something im curious about is a weight limit issue. it really seems the side effects shouldn't have started so quickly and so intensely. i haven't been able to find anything about weigh a certain amount to take certain dosages. does any one know about this? should lower weights start even slower? im am a few pound below 100 and im thinking that might be why it hit so hard. considering its the weekend im not going to talk to my pdoc until maybe after my exam about stopping than restarting, but i do plan on restarting and giving it more time for the side effects to clear up

I have been on Lamictal for one week and feel terrible!! I'm using the meds to treat bipolar. My chest feels tight...I am exhausted all day...feel as if I am in a daze...headaches...muscle aches. I don't know if this is just side effects seen in the beginning and will subside with time?? I really feel bad.

I have been on Lamictal for about five months for bipolar II. I has been increased slowly over these months and I am now up to 300 mg a day. I have a tendency to sometimes forget things but remembering numbers has never been a problem for me. In fact I can look at someone's tag number driving down the road and remember it for days. Phone numbers of people I have known for 20 years would stick and I wouldn't even have to call them on a regular basis to know the number. However, recently while trying to use my bank debit card at the store I was asked to enter my PIN number and totally could not remember. I tried it several times but it never came to me. I felt like a fool!. At this time, that was three days ago and I still cannot remember it!

This is very, very distressing to me. I feel like something has been wiped clean and that I will never get it back.

My Lamictal dose has been increased in the last couple of weeks and I thought maybe Lamictal or one of my other meds could be making this happen so I started researching and found this site where other people were complaining of memory loss while on Lamictal.

Headaches are another common side effect for me while on this med. It has really helped me emotionally and I need to know if the memory loss is just going to be a temporary thing and it will get back to normal or if I will be forgetting more and more over time. PLEASE HELP!!!

What side effects? I have taken Lamictal for 6 weeks. I am on a steady dose of 100mgs. I started out with severe depression (unipolar), and have also been diagnosed as bi-polar and borderline personality disorder. So who knows what I have other than to say that I have felt like a train wreck for 3 yrs. All the other meds I have taken did not help my constant cycles of severe depression. I felt like I was in a fish bowl and the world was going on around me, I could see it but was not a part of it. It was hell on earth. Other meds would help somewhat on certain symptoms, but nothing ever brought my life back to a level where I could say I felt joy and was truly happy until I started Lamictal. 2 weeks into the start of Lamictal (50 mgs), I woke up to a miracle. I realized I felt joy, I was laughing without trying to. I felt refreshed and prepared to go out in the world and face the day with a positive outlook on everything. My side effects so far have been nil. Not one thing...no pain, no headaches, no weight gain, no memory loss, no dizziness, no hairloss. Am I the only one? I know these meds effect people differently but wow, I am in heaven. I hope all of you eventually find something that works for you because I really felt ( before Lamictal) that I would never feel good again! Hallelujah! I do! bless you all!

I was prescribed Lamictal strictly for migraine prevention. I'm up to 200mg/day and have been for 3 or 4 months now. I honestly don't think I see enough of a reduction in headaches to justify the breakouts. It's not severe but irritating to always have a couple of pimples when my skin is normally clear. Additionally, my skin is remarkably DRY, despite the acne.

My chronic pain has really increased since being on Lamictal for 15 months for bipolar. I have had fibromyalgia for years. The bipolar developed after that. Since starting Lamictal, I have developed headaches so severe that I have been off work 3 times in the past 7 months, inc. 5 weeks recently. I've always had headaches, but these new, more severe headaches are non-stop. I have to take 3 time-release 100 mg codeine tablets every day, plus Gravol to keep the headaches bearable. Even then, many days I end up bed-ridden. I've also developed chronic, very bad plantar facsiitis in my left foot since starting Lamictal. I did weeks of intensive physio, plus swimming therapy to no avail. Finally had to get a cortisone injection in my foot.

I hate being like this; I like my job and was used to leading a very active life, despite the fibromyalgia, before I went on Lamictal. I briefly tried Lithium recently, but it had a whole other set of side effects, so I am really frustrated.

Has anybody else had increased or new pain since being on Lamictal?

Rosslyn

I went blind on 150 mg of Lamictal. I couldn't see anything. My eyes were blurry all the time. I couldn't figure out what it was and when I weaned off of the Lamictal, my sight came back. Not to mention, it did absolutely nothing for my mood whatsoever.

I haven't taken this drug yet I am about to go get it from the store and I do not know when to take this medication. Morning or night? I already have racing thoughts at night so I do not want to be more awake at night than I already am. I also suffer from a weight issue, is this medication going to help me loose or gain weight? I cant afford to gain a few, I can afford to loose a few. I also suffer from back pain now so I do not want that to increase. Anyone have any helpful tips for me?

This is a total nightmare and i need advice! I was on Lamictal for a year and about six months into my health began to slowly deteriorate. It started with shortness of breath and heart palpitations and eventually attacked every system of my body. My symptoms are muscle pain, spasms and knots to the point that i can't turn my neck sometimes, joint pain (mostly knees), stabbing floating pain everywhere, headaches, frightening tingling in my extremities and a few times my entire body, sore throat, flu-like feelings, stomach cramps, bloating and heartburn. The list goes on. I have been off of it now for two weeks. My psychiatrist has never seen this type of reaction before and is not convinced it is the Lamictal. I have been to every single type of doctor and the ER twice, had extensive lab work, CT scan and two MRIs. I have been off Lamictal now for two weeks and am not feeling much relief. I am so scared and frustrated and please need advice. Has anyone else experienced this? Does it ever go away? I feel like I am literally living a nightmare with no-one to turn to for advice because no-one seems to know ANYTHING!!!!

I think a very, very important thing to keep in mind is how differently medications will work for different people. While it seems many of you have had horrible experiences with it, I surely don't think this is the case for everyone, including myself. I've been diagnosed with bipolar-II and have been on Lamictal for several months, currently at a dose of 150mg. I've found it had dramatically brought down my rapid cycling and decreased the severity of my depressive episodes. Though I still have mood swings, they are less frequent and less intense/disabling.
As far as side effects go, I've never been one to experience many side effects from any medication I've been on. With Lamictal I've begun having headaches and also difficulty with focus, concentration, and short term memory. I'm much more spacey than usual and often will get distracted while having a conversation with someone and forget what we were talking about. My psychiatrist believes these indicate ADD and has prescribed me Ritalin, which I refuse to take because I'm convinced that these problems are side effects of the Lamictal. I've experienced weight loss, but this also may be due to the 200mg Wellbutrin I am also taking.
Although I've experienced more side effects with Lamictal than any other drug, for me I'm willing to continue giving it a try because of its effect on my moods.

I've had side effects of hearing conversations and thoughts but, I can not tell from what because I was on so many things. Monday, my lamictal went up from 75mg to 100mg and over the past few days my mood has gotten worse, my headaches have increased in frequency, my appetite has increased and my hallucinations have returned.

I have been on Lamictal for 6 weeks, working up to 100 mg once a day for seizure control in addition to Topamax (100 mg) and Keppra (3,000 mg). As the dosage has increased, the side effects have become unbearably worse. I am so sick to my stomach, I can't eat. My headaches are horrible, and all I want to do is sleep. The only thing that keeps me from sleeping is my pounding pulse rate and shallow breathing... I'm still waiting on a phone call from the neurologist to see what I'm supposed to do about this.
I noticed several other mentions of a lack of ambition. I'm now noticing my own lack of will power. Good luck to all of you.

I have been prescribed Lamictal for seizures, and am currently taking 400mg daily, with my 300mg of Dilantin. Had horrible side effects this weekend-nightmares, exhausted, worsening depression, crying jags, difficulty swallowing. Has anyone else experienced mood changes for the worse while on this drug?

I was on Lamictal 125MG at night for PTSD and anxiety for over 4 years - it took over 6 weeks to come off of it and it was very difficult - I felt sick most of the time - nauseaus, dizzy, migraine, tired, joint pain, anxious, mood swings. I have been off of it for 2 weeks now and I am still having headaches, dizziness, tired all the time, horrible dreams, difficulty sleeping and I wake up in the middle of the night gasping for air with out of control heart palpatations. I have not had night terrors in years. Is this a side effect of coming off of the medication? I learned in my research that this had not been FDA approved until I had been taking it for quite some time - is that ethical medical practice?

I have just recently started taking Lamictal for my epilepsy. I am weaning off the drug phenytek. I am on 100 mg a day of Lamcital and next week that will increase to 200mg a day. Since I have started the Lamictal, my period has come two weeks early, I feel tired all the time and I feel dopey. I will be sitting in a room of people and they are all talking, but it's as if I am not actually present with them. I am nauseous alot and have terrible headaches particulary in the evening. My emotions seem to be eradic. I just don't feel myself.

I'm on seroquil, lamictal, trazodone and I have all of these side effects.....increase in blood sugars, great anxiety, irritation, agitation, memory loss, heart racing, difficult breathing and swallowing, retention of water, headaches that cause me to have to stop all activities, jerky movements that keep me awake or eliminates even short drives in the car, hot vs cold, my perception of things are not as they use to be, muscle aches that keep me from even getting out of a chair or in and out of a car sometimes, nausea, vomitng, nasal swelling, mind racing, memory loss, hair loss, nails thin, no energy great fatigue!

i am currently at 100 mg at night. Have had chronic issues with keeping food in or down. Have gone through dramatic weight loss and fluctuation. The acne I can deal with, the headaches are bearable, and even the muscle aches I am growing used to. It is the severe dizziness that is getting to me. I will get lightheaded so quickly, and on several occassions have lost my hearing and twice have actual passed out. I thought perhaps this was due to lack of sleep and food deprivation, but continued once got both those a bit more on track.
Additionally, have been extremely irritable, anxious, unsettled and ANGRY. I have had horrible nightmares, fear, and when I sleep, only do it for periods of 1/2 hour or so before I wake up sweating, with heart racing and often yelling. I have had issues with extreme anxiety in addition to the diagnosis of bipolar variation. I want to try to stick with it till I am up to 200 mg per dr, but am growing discouraged.