May 16th
2009
8:34 PM
Hi, I have been reading all the postings and my heart goes out to everyone. I been there, done that. Myself, I have a seizure disorder and been on Lamictal since 2003 (I can't recall/remember) - I had tried 5 other seizure meds that didn't work for me. For quite a while now I take 600mg a day and Keppra 250mg to control my seizures. I lost my driver's license twice so far (I know that is the rule in CA) , and once not long ago (I got my license back) I got totally lost in my town, which I used to know like the back of my hand. I thought I had lost my mind. I asked my doc if I was getting demenia and he said oh no you are too young (53). I have also learned doctor's (for the most part) are idiots too. They don't think outside the box for us. I can't spell anymore, get depressed easily. I really want to work, but I can't. I have tried time and time again, but (yesterday) it just about did me in...people explained to me how to do things on the job many many times but I couldn't retain any thing. People just looked at me as if to say what planet did you come from. I cried on the job so hard I wanted to disappear. I am so sick of my family saying "I know you can't - don't remember this or that..... I can hardly bare that. Now I have a potential kidney problem. Suppose it is from these meds? I am really scared.
-- By deeverve | Reply | (2) replies | Private Message me
April 10th
2009
1:21 AM
Thanks, everyone! My (brand new) doctor had convinced me that I was simply experiencing anxiety to explain my side effects. After being off Lamictal and all medications for several months, and then restarting on Lamictal only, I noticed all the following side effects, some of which I've had before, and some completely new. Also, the ones I'd had before came back at a level of severity which I had never experienced.
One familiar side effect was hand tremors and general shakiness which sometimes also affected my speech. Even strangers would notice and ask me if I was ok. Luckily, this was during this past winter, so I would basically lie and just say I was cold and a bit shivery. Another familiar side effect that a lot of others are mentioning are cognitive issues and short term memory loss. Sometimes I felt like my tongue was lazy or I felt tongue-tied, and I couldn't get it to work right to say the words I was thinking. Sometimes, I just plain lost my train of thought or couldn't think of the words to express what I was thinking. I'd all my life been prone to mishaps of speech like occasional spoonerisms and such, but on Lamictal it was happening probably daily, and I'd even started stuttering. Teaching and explaining often difficult concepts and public speaking is part of my job, so this was causing me a lot of anxiety. I, too, completely blanked on spelling out words when friends and colleagues relied on my spelling abilities more than their computer's spellcheck. I also thought I was having sudden leaps in experiencing getting older (early 30's) because of my memory, I typically have an almost photographic memory and can picture where I saw my keys last or what have you, but all of the sudden I couldn't even piece the photo together anymore or it was foggy in my memory.
The newest side effect also experienced by others was clumsiness not only of my own body but of my surroundings. I suddenly noticed that I was doing things way more often like tripping, falling, stubbing a toe, nicking a finger, dropping things, etc. Where I was an excellent parallel parker before, I'd get out of my car and realize I'd parked 2 feet from the curb and crooked.
I decided to look up Lamictal's side effects after discussing this with my excellent talk therapist because I was extremely frustrated with my new doctor telling me I was just anxious and there was really nothing he could do for my (imagined) "side effects." And here everyone is experiencing the same thing. I don't think I should be made to feel like I don't know any better and that I should suffer the REAL side effects of this drug. I didn't study medicine, but I still have a degree in biology so I'm not so stupid that I'll believe anything any doctor tells me.
I think I would almost rather suffer a mild mood swing than suffer these side effects. I'm going to try to look for something else.
-- By tonguetied | Reply | (1) replies | Private Message me
May 24th
2008
4:06 AM
I have been on Lamictal and Topamax for approximately 4-5 years now. I also take effexor. I have a seizure disorder. At first everything was alright, however now I have been having double vision, staggering, memory loss that has occurred slowly within the last two years or so, and of course as with most meds the usual diarrhea or constipation. I wonder how long does it take being on medication for these side effects to kick in? I read all literature whenever I start a new medication even if it is a OTC drug. (over the counter). I just got out of the hospital and am being sent from one doc to another. I feel like a guinea pig in a lab! Please help!
-- By twtyfrk66 | Reply | (3) replies | Private Message me
April 21th
2008
11:43 PM
my son has been on it now for about 4 months and has tried to commit suicide in the process of a 5 week change from keppra to the lamictal.then had to take dilantin until reached full dose of the lamictal which for him is 150mgs 2 xs a day at first the keppra made him fly in to rages so that was blamed for the suicide attempt.but just a few days ago he said that he was having weird feelings again. so i don't know what to do. waiting to hear back from the dr.i would just like to know if anyone else has experienced such severe thoughts from taking this med or if passably it could be not a high enough dose.i don't really know anymore by the way my son is only 15 and he is on the lamictal for seizures.any feedback would be greatly appreciated.
-- By kellgaer | Reply | (2) replies | Private Message me
April 12th
2008
9:20 AM
Behold the rash. I was doing so well on this med (compared to Topamax and Keppra). I finally thought, "Hey, I am on a med that isn't going to make me stupid or psychotic.". I woke up this morning with a rash on my neck. I've phoned my neuro's service and am waiting for a call back.
I'm wonder what the early systems of SJS are? What does the rash look like? Mine is (and I looked via a cell phone pic because it's not visible due to its location) red with these bumps all over it. It doesn't itch but it burns a little bit.
-- By lintriago | Reply | (1) replies | Private Message me
April 3th
2008
5:09 AM
lamictal controls seizures if you take it at the right time. i am on 200 at night and 200 in the morning plus epilim. sometimes i just sit and cry wen im trying to concentrate on reading books i have to study or trying to remember work i learnt at school which has left my brain. im failing school not matter how hard i try, i study all the time then the next day i have forgotten it. im so young and i havnt even started my future yet and i may have screwed it already. failing exams because i forgot wat i learnt the night before hurts so bad. its hard to say "hey everyone the reason i failed is because lamictal screws my memory" i know thats what it is. i was extremely intelligent before i started taking it, but now im a failure. i guess deep inside i know really im not a failure, but lamictal makes me one. : ( p.s add a constant hand tremor and sudden jerking movements every now and then.
-- By noddy123 | Reply | (7) replies | Private Message me
March 16th
2008
11:26 AM
I started taking Lamictal about six weeks ago for epilepsy. Now keep in mind, I was on Dilantin which worked great for 17 years and then suddenly stopped working. I have been in medication hell since then. First Topamax made me dumb as a rock. I would space out all the time. Worst drug ever. Then Keppra which was better in that my memory/ability to speak came back but I had these intense ups and down. I had rages constantly. Now I'm on Lamictal. So far, it's better than the Topamax and the Keppra, however the dreams are very intense as are the night sweats. I'm also experiencing much hair loss. Fortunately I have a full head of hair but I'm afraid I will eventually lose it all.
-- By lintriago | Reply | (10) replies | Private Message me
August 23th
2007
7:30 AM
I have been on Lamictal for 6 weeks, working up to 100 mg once a day for seizure control in addition to Topamax (100 mg) and Keppra (3,000 mg). As the dosage has increased, the side effects have become unbearably worse. I am so sick to my stomach, I can't eat. My headaches are horrible, and all I want to do is sleep. The only thing that keeps me from sleeping is my pounding pulse rate and shallow breathing... I'm still waiting on a phone call from the neurologist to see what I'm supposed to do about this.
I noticed several other mentions of a lack of ambition. I'm now noticing my own lack of will power. Good luck to all of you.
August 21th
2007
9:26 AM
I have been prescribed Lamictal for seizures, and am currently taking 400mg daily, with my 300mg of Dilantin. Had horrible side effects this weekend-nightmares, exhausted, worsening depression, crying jags, difficulty swallowing. Has anyone else experienced mood changes for the worse while on this drug?
-- By gusgus | Reply | (6) replies | Private Message me
August 20th
2007
9:27 AM
Light Rash, dizziness, BAD blurred vision making it hard to drive, BAD heavy bleeding(changes in menstrual cycle lasting three weeks with spotting then heavy bleeding) easy bruising sometimes black and blue ...headache,cant think, kidney pain I have (VUR) and am not sure if i should have been givin Lamictal.... I just stopped taking it went from 200mg to 100mg for a week now not taking any its been two days. and im hoping I start to feel better soon.
-- By lorriebeardsley | Reply | (2) replies | Private Message me
July 18th
2007
1:56 PM
I recently was given 200mg over the recommended pharmaceutical dose of Lamictal. My dr.'s partner prescribed this after a trip to the ER for a seizure to get me by until I could see my regular neurologist at the beg. of the week. The extra dose caused major blurred vision side effects, inability to walk, extreme sensitivity to light, and nausea. I am now at 400mg of Lamictal and starting Topomax with it so I hope this works. Any thoughts from anyone else taking this med combo?
-- By krusen | Reply | (1) replies | Private Message me
July 7th
2009
10:57 AM
I am taking a very small dose of Lamictal (along with Keppra) for absence seizure disorder. When I first started taking it I was feeling slightly dizzy and nauseous (that has since gone away for the most part.) The worst side-effect for me is horrible insomnia and night sweats. It does seem to be helping my seizures though so I'll probably stick it out and hope that the insomnia goes away.
-- By bichon1 | Reply | Private Message me