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100 Side Effects posted for Lamictal

October 14th
2008
9:37 AM

I have been on 100 mg of Lamictal for 2 months I have an Essential Tremor and the drug has made it worse Anybody else?

-- By lenwex | Reply | (1) replies | Private Message me

October 6th
2008
12:31 AM

I have been on Lamictal now for 10 months, and I mostly love it.

But my IQ went down about 20 points. The first few months were very bad--I could hardly complete a sentence without forgetting one or two words. My short-term memory was scary bad--almost like blackouts where I wouldn't even remember events when reminded.

Those things have abated somewhat, but I am still having to adjust to a lower ability to think. I must make lists, I must repeat instructions and directions. Perhaps this is more about slowing down what was a hyperactive brain, but it is a side-effect that is hard to accept.

I am noticing a new side effect, though. I drop things all the time. I recently dropped a book I was reading--how does that happen?

Has anyone noticed this dropping, or any other clumsiness like this?

-- By marimac | Reply | (4) replies | Private Message me

September 29th
2008
11:29 PM

I have been on Lamictal for about 3 and a half yrs now for Bipolar 1. Overall, I have had a really great experience with the drug. I started with 100mg and then went to 200mg after a year and a half. Now I take 225mg as of a month ago. For about a year and a half I had the acne on my chin and then it went away suddenly (thought it was cutting out dairy from my diet though). I have been extremely fatigued for awhile now. 7hrs of sleep is not good enough for me so I end up taking long naps when I have the opportunity each day- I always want to sleep. I feel stupid and lack focus and motivation. I use to be a social butterfly and now I feel so exhausted when entertaining. I am a personal trainer and am in the business of making others feel better, but I seem to be feeling worse. I have experienced weight gain as well and that is hard for me since I use to be bulimic and have always had poor body image issues. I was on the NuvaRing for 5 months and it made me sooooo depressed so I finally got off that and feel better- don't mix those 2 drugs.
I am going to ask my doctor to take me off of it this week because I am ready to trust God with my mental health. I have a great support system to help me through the tough times and if I want to get pregnant, I have to go off it anyway.

-- By tinahansen08 | Reply | (2) replies | Private Message me

September 29th
2008
2:12 PM

I have been taking Lamictal for about 2 1/2 years now. I have been taking 200 mg for two years. I have experienced very few side effect. Except vivid dreams and not sleeping well. I have always had vivid dreams but there is one I have had since the medication it was so awful that I can't stop thinking about it and it makes me feel suicidal. I have had many ups and downs in my life but never thought suicide to be a positive option. I don't think I would do it but I can't stand these awful repetitive thoughts. I have had less and less energy in the last 6 months or so. I thought it was because I was working to much. I have quit doing most the things I love. I have always been a high energy person. So I thought it must be the Lamictal. When I had complained to my doctor he said that it sounded like depression and normally they would increase the dosage but he would decrease it if I wanted. I went to 150 and then 100. I felt awful just like I used to before the drug. So I went back up to 200 and at least I didn't feel so awful. So I increased it to 250mg and I started to fell less depressed. Sometimes I have taken to much in the past because I forgot I had taken it and repeated the does. That is when I had the first bad dream that has haunted me since. Then I started to forget to take my medication off and on and that is when the depression started. Now I took the 250 and I had another haunting dream. This drug really has been a miracle for me. I have never felt this stable in my entire life! In the past I was trying to self medicate but since the Lamictal I have quit smoking pot and drinking. I don't like alcohol and drugs anymore because I don't like to feel altered anymore. Most of the symptoms everyone has described are how I felt before Lamictal and I feel better since. I will never go below 200mg or above again without a suitable alternative. I still can't get rid of the repetitive thoughts on 200mg. Typical anti-depressants have the opposite effect for me. Has anyone found a suitable alternative. I have heard that other drugs for bi-polar such as Lithium and Depakote have a sedative effect and I don't like that. I want to be my normal energetic self!

-- By ngf98 | Reply | (3) replies | Private Message me

September 17th
2008
9:57 AM

I've been on 200 mg Lamictal for 2 months now, after 4 month titration up from 25mg; Going off Lithium 900mg titration to 450mg this week. Since 1st day of lower Lithium, all the common Lamictal symptoms went from mild to extreme. Whole body muscle aches (like 24 hours after a heavy weightlifting workout) worse in neck & back/shoulders/calves, bad headaches, swelling in hands & feet, extreme blurred vision, loss of memory, halted speech while trying to figure out what to say, fuzzy. I called the Clinic to simply ask which NSAID (aspirin? ibuprofen? Excedrin? naproxin?) to use to manage the pain. They all freaked and made me come in for a blood test to check Lithium levels. I explained I wasn't "overly" concerned about it at this point, but just looking for a recommendation, and that they may be over-reacting (even though I did appreciate their concern). I also reminded them that I had just **decreased** Lithium when it happened, so I wasn't having a Lithium Toxic attack (I'm well-versed in that, having been on Lithium for 7 years). It didn't do much good to tell them I thought their diagnosis was a little off. I'll find out the blood test results today, but I'm pretty sure I know what they'll be. They also wanted me to see my PCP since it could be something else. Again, the problem was a ramp-up of existing symptoms the next morning after I lowered Lithium (the only change), so I'm conviced everything centers around that. I think they're a little inexperienced with this med. (Lamictal/Lamotrigine) and if they'd just read this blog they'd probably learn a lot. They had never heard of the muscle ache side effect. Pretty hard to believe after reading all of your comments! My theory is that Lithium was somehow holding back the side-effects of Lamictal and now they're expressing themselves more fully. I haven't read anything like this on any internet discussion, so maybe my body is very different. But maybe my experience will give someone else some insight in a similar situation.
I might also mention something that happened to me I have only seen (kinda) in one other "blog" about follicle (sweat gland) cysts. Yeah, I definitely got the jawline acne starting at the Lamictal 50mg level & increasing at 100mg. But I also got my first ever "cyst" that concerned me and sent me to my dermatologist for the first time in 30 years (I'm 47 and saw the old guy when I had acne at 17!). It started as a blind pimple on my chest the week I increased Lamictal to 200mg (final dose), but didn't go away. It continued to grow (not diminish) over 4 weeks to 3/8 inch round/pink/solid/itchy/burn-when-rubbed. So off to the "Doctor" like my father used to do on a regular basis (I know I'm getting old now) and scalpel/pop/stitch it was out. But it was real, not my imagination or hypocondria, and the timing of its appearance was right when Lamictal changed to full steam. Since acne appears to be a common effect with so many, it seems it's not unreasonable that this occurs occasionally as well to others. Let me be the 2nd to mention it. No "official" verification, but....
I'm not bagging on Lamictal, and have been very hopeful that this would be better than Lithium. It has eliminated the GastroIntestinal problems I had on Lithium, but I am getting discouraged that it has all the brand new symptoms that are discussed in this blog. Your "stuff" is real. I wish the Docs/Nurses/Case Workers would spend 5 minutes checking your comments out. It might bring about a better informed conversation than the shiny Glaxo flyers provide. That is all.

-- By baldwindj | Reply | (1) replies | Private Message me

August 31th
2008
5:42 PM

my son has been on lamictal for over ten years for the control of petit mals
he is also autistic and has associated learning difficulties he is on 750 mg a day and we seem to have reached this level due to the doctors uping his med when he was having behavior problems and now over a period of time he has been having anxiety. agretion .hostility. frenzied abnormal excited moods .loss of balance and coodination problems . museal problems in legs which is leading to his ability to walk.. poor gate nervousness . irritable.and these symptoms are not there all the time but have been rearing up on a more regular basis and after a lot of research on line and reading i have come to the conclusion that its time to remove him from this medication with medical supervision i must add the problem is that lamictal has only be on the market for about 16 years and there is not much information on long term use and also my son just gets on with his life the best way he can and can not tell you what is happening to himself due to his autisum but these problems have been going on now for some time and gets put down to behavior problems which is not the case i believe it is the lamictal that is doing this to him so he is coming off it the absences are a less problem then the side affects i think over ten years on lamictal is enough.

-- By andywoodall2005 | Reply | (1) replies | Private Message me

August 28th
2008
12:40 AM

I have been taking Lamictal since October of 2007. I experienced some of the symptoms (muscle pain in the head and neck) before I started the medication. I have experienced panic attacks since July of 2005. I have had mild heart palpations since I was in my mid 20's (I'm 36 now). I have had what I would consider a below normal energy level since my mid 20's also. Ok so like everyone else I am thinking I'm a hypochondriac! However, I was diagnosed August 28th 2007 with having Lyme’s Disease and also Hyper-Thyroid (same time, same lab-work). Two weeks later I was diagnosed with Bi-Polar Disorder (this is one thing I knew I was battling but didn't know how to handle it). My physiatrist started me on Lamictal and I did the standard ramp up to 200mg. I also was started on a 90 day treatment of Dyoxicycline for the Lyme’s and Methimazole for the Hyper-Thyroid. I was very very weak and was only able to stay awake for short periods of time (4 to 5 hours max). Just an fyi, I am not overweight, lazy or unmotivated. I have the physical appearance of perfect health. This, I think works against me as the Dr's seem to think I'm just whining. Mater of fact; my Primary Care Physician never tested me for Lyme’s. I went to an Urgent Care Center which tested me for Lyme’s disease and I came back positive (they also tested my Thyroid levels and found the problem with my THS levels) I told my Dr the results and he insisted I have same test done again. Guess what, new tests, same results.
My symptoms today are very similar to what I have seen posted many times. Muscle pain (entire body, some areas worse than others), heart arrhythmia, racing heartbeat, intense palpitations, nausea, foggy “un-plugged” mind, fatigue, weak muscles, muscle cramping (especially after repetitive motion, such as strumming a guitar), panic attacks (much more severe) and the latest addition to the group, Insomnia. Muscles pain in my head, fore-head, jaw, temple, neck (front and back), shoulders, is terrible to say the least. The pressure in my fore-head (right under my brow) makes me feel like I need to close my eyes or rest (resting does not relieve anything). The front of my neck is so tight at times it feels like my jaw is being pried down. I could go on and on.
On my quest to find out what else is going on with my body I have had 2 Echocardiogram’s on my heart and abdomen, 2Nuclear Stress Tests, blood work out the wa-zoo, MRI of my brain, 2 CT’s of my Head and Neck, Chest X-rays, Endoscopy, Colonoscopy, and all revealing nothing.
Most doctor’s I have encountered seem to want to treat the symptoms, not the problem/disease. I believe I know why; we (the ones who are there for solutions) tell them what the symptoms are (how we feel). We of course are thinking “this will help with a diagnosis of the problem/disease”, when in fact (I feel); the doctor’s thought process stops there. They don't know what’s wrong with you but they do know what your symptoms are so....bingo, let's treat the symptoms. Don’t misunderstand what I am saying. I’m not saying, “Most doctor’s don’t know what they are doing” or “don’t take your meds”. I am saying you and I are one of the 20 to 30 patients most doctor’s see daily (100+ weekly). They may be caring and good people but they are just as human and fallible as you and I. My advice is this; (and I am taking my own advice) don’t always “pop” into your body what the doctor suggests/prescribes, without doing your own research. Heck most of us won’t buy a car or more importantly, send our kids off to a college with out doing your own research (we just don’t trust those shinny brochures). Your body and your health are worth you doing your own research. Just keep in mind, Pharmaceutical Reps are always at your Dr.’s office (sit in the waiting room for 10 minutes and I’m sure you will see one). Reps are paid to do one thing; encourage (push) the Dr.’s to promote use of the Pharmaceutical Companies drugs.
My wife and I have been doing our own research on Lamictal (after a year of taking this stuff) and the side effects associated with this drug. We have searched through many (many,many) web sites for information and we have talked with pharmacists and Dr’s for opinions. Although I’m am not thoroughly convinced that Lamictal is the cause of all of my symptoms, my wife and I have decided to lower my Lamictal slowly from 200mg to 100mg. I am now taking 150mg daily (three days now) and plan on staying at this level for a total of two weeks before lowering to 100mg. I do fear dropping the dosage to quickly (potential side effects) or lapsing into a mania. To help avoid a manic episode my wife and my immediate family are all “up-to-date” with my course of action. They are on “Red Alert” and have promised to keep a close eye on my behavior patterns and moods. (I don't want to put them through another hyper-mania episode, its much too devastating). I do want so badly to feel healthy and alive again and at this point I am rather frustrated with the Dr.'s ability to help me achieve this goal. Remember it is called “Practicing” Medicine. So now I’m going to practice a little, very carefully and cautiously.
As a foot note; I have recently (past two weeks) been re-tested for Lyme's with a negative response. I am keeping in mind Lyme's test are very inaccurate (still hoping this one is accurate). My thyroid is under control and normal, so.... let's see if dropping below 150mg of Lamictal will eliminate some of these other symptoms. I will keep you posted.
Erik

-- By coasterman | Reply | (3) replies | Private Message me

August 13th
2008
2:34 PM

My doctor prescribed lamictal after I reported hypomanic symptoms from prozac. The first couple of days on lamictal I thought it was the miracle drug; it really eliminated my mood swings. But as the days progressed, I began to have the following disturbing side effects:
- terrible insomnia (waking in the middle of the night and can't go back)
- horrifying violent dreams (of animals and people being hacked to death with machetes... interestingly, I reported this to my doctor and her response was, that just means your brain is adjusting to the chemicals...easy for her to say, she's not waking up with terrible memories of these disturbing dreams)
- weird pains and stiffness in my neck with swollen lymph nodes in the neck
- increase in anxiety and feelings of panic
- increase in feelings of anger and agitation
- feeling of detachment
- thoughts of suicide and the meaninglessness of life
- carbohydrate cravings and weight gain of nearly 4 pounds in 2 WEEKS!!
(weight had previously been stable for years)

These symptoms all appeared after taking the lamictal after only 2 weeks. Even though my doctor recommended actually INCREASING the dose of lamictal and/or adding prozac, I decided to wean off the lamictal (I was on the smallest dose of 25 mg) as an experiment to see if the symptoms would go away...
YES they did!! Every single one of them went away and were COMPLETELY gone after the second day of discontinuing the lamictal.

I know that this medication is being touted as the new miracle cure for bipolar II especially, but I think more clinical studies need to be done on lamictal. This experience was a very scary one and not unlike that reported by others on this site.

-- By lrs38 | Reply | (1) replies | Private Message me

August 13th
2008
5:57 AM

hair loss, memory loss, weight loss, confusion, hand shaking

-- By xomajenta | Reply | (2) replies | Private Message me

August 10th
2008
10:11 PM

I've been on Lamictal for about 5 months now. I recently have had some horrible side effects. I've had the acne, brain fogginess and weight gain all along. About a month ago I was hospitalized for having a blood phosphorus level of 0.6 which is dangerously low. The symptoms around that day were nausea, feeling like I couldn't breathe, hyperventilation, heart rate of 120-130, tingling sensations from my nose to my toes, diarrhea and almost blacking out. Of course, the ER doc thought I was having a panic attack and told me to breathe into a bag and try to breathe slowly. NOT from a panic attack. Granted, I was panicking because I was scared. Has anyone experienced this low phosphorus problem?? I will be coming off of Lamictal in the next week. Hasn't made my depression, panic attacks or sex drive any better. thanks.

-- By twinkie0044 | Reply | (2) replies | Private Message me

August 6th
2008
10:51 AM

I have been taking this since October of last year. not only is it my complete miracle cure, but the side affects vanished long ago. For people who have suffered as long as I can, I'll take some queasiness, horniness, and blurry vision over wanting to die DAILY any time. I love it. Love it love it love it.

Incidentally, I lost my job a few months back and stopped taking it and IMMEDIATELY went back to the worst I ever felt mentally. if you are taking this and would like to stop (or need to cause of lack of ins.) talk to your doctor. My experience with the immediate lack of mood control was awful.

-- By soyouthinkyourenuts | Reply | (1) replies | Private Message me

August 2th
2008
11:13 AM

I've been on Lamictal 200mg for a couple of months and let me tell you, I haven't had a f^@#!&g good night sleep since! I am a 33 y.o. male with Bipolar Disorder (hate that label) and I have a "slight" case of paranoia. The drug has allowed me to refrain from acting out on certain impulses, but not suicidal tendencies. OK... now I do have fully functioning parts (one in particular) which worked fine before this drug (you see where I'm going with this?). It SUCKS!!! Let's just say that there are certain things I'd rather not have happen prematurely (I am not laughing). I do happen to be great in that particular category, yet this strips me of any natural ability to fully indulge in such activities. Uuggghhhh... Give me my mojo back or just shoot me!

-- By five5five5five5 | Reply | (1) replies | Private Message me

July 28th
2008
10:14 AM

Has anyone developed tartive dyskenisia. It is involuntary body movements. Mine are in the mouth, like I am sucking on my teeth . It is very disturbing and listed as one of the side effects. It can occur in other parts of the body, like tapping.

-- By jbteapots | Reply | (4) replies | Private Message me

July 17th
2008
7:05 PM

I am 32 years old, and still have acne. I have been taking it for almost 14 years now. I know that Lamictal causes skin rashes. I asked my neurologist if Lamictal causes acne. He said no. I will never be able to get rid of acne, as long as I keep taking it. I have been seizure-free for over 2.5 years now. Dad won't let me get off of it, and be on primidone only. It's more important to keep driving seizure-free, than to have clear skin.

-- By gameshowaddict | Reply | (6) replies | Private Message me

July 12th
2008
11:47 PM

I'm sorry to hear all the bad side effects you all had with lamictal. I was on lamictal for depression for about a month and a half. I started low, 25mg. But when I got up to 100mg I started to itch! No rash, just itch, about a half hour after I took it! I was in denial, of course, because I had been feeling on top of the world! I had a loss of appetite, which I needed due to the fact my migraine meds had me gain 40 lbs over the last 2 yrs and NOTHING would take it off. My energy level had come back....something the Abilify had taken away a year ago....I'm getting off that very soon. I hate it. It takes away mania for bipolar disorder, so they say, but I'm slightly different....borderline bipolar II,so it takes away my personality, my get up and go, my motivation, you name it. I'm only on 5mg. When I was on 10mg, it knocked me out....I'd get the kids to school, come home and sleep, and be in and out like a drug addict all day til it wore off in the afternoon. Anyway.....lamictal.....I'm back on it.........starting at 12.5mg a day, then 12.5mg 2x a day, etc up to about 50 or 75mg, no more than that. It was a great help to me so I'm not going to let myself get those darn itches again. I did notice a little bit of intestinal irritation in the beginning last time, but that was only for a few days. I take Wellbutrin and also take Topamax 250mg.....and have a ton of hair falling out....and acne, so i feel for those of you with those symptoms. And yes, I still get migraines and still am depressed. But life goes on....I have kids to raise. I just cry in the shower and in the car. The best to all of you....good luck with your meds! Keep on trying!

-- By robin43 | Reply | (1) replies | Private Message me

July 8th
2008
6:46 PM

I am on the second week of the orange starter pack. It was prescribed for bipolar. After about the 3rd or 4th day of taking Lamictal, I noticed a side effect that I haven't seen mentioned elsewhere. I seem to stay in a permanent state of sexual arousal (In other words, horny). Has anyone else had this side effect and does it go away? Except for this, the Lamictal has helped my bipolar tremendously. Please help!!!

-- By sarcasticme | Reply | (2) replies | Private Message me

June 24th
2008
8:10 PM

I have been on Lamictal for one week and feel terrible!! I'm using the meds to treat bipolar. My chest feels tight...I am exhausted all day...feel as if I am in a daze...headaches...muscle aches. I don't know if this is just side effects seen in the beginning and will subside with time?? I really feel bad.

-- By tlauren | Reply | (1) replies | Private Message me

June 10th
2008
8:46 AM

I have been on Lamictal for about five months for bipolar II. I has been increased slowly over these months and I am now up to 300 mg a day. I have a tendency to sometimes forget things but remembering numbers has never been a problem for me. In fact I can look at someone's tag number driving down the road and remember it for days. Phone numbers of people I have known for 20 years would stick and I wouldn't even have to call them on a regular basis to know the number. However, recently while trying to use my bank debit card at the store I was asked to enter my PIN number and totally could not remember. I tried it several times but it never came to me. I felt like a fool!. At this time, that was three days ago and I still cannot remember it!

This is very, very distressing to me. I feel like something has been wiped clean and that I will never get it back.

My Lamictal dose has been increased in the last couple of weeks and I thought maybe Lamictal or one of my other meds could be making this happen so I started researching and found this site where other people were complaining of memory loss while on Lamictal.

Headaches are another common side effect for me while on this med. It has really helped me emotionally and I need to know if the memory loss is just going to be a temporary thing and it will get back to normal or if I will be forgetting more and more over time. PLEASE HELP!!!

-- By jasonslilgal1 | Reply | (8) replies | Private Message me

May 24th
2008
4:06 AM

I have been on Lamictal and Topamax for approximately 4-5 years now. I also take effexor. I have a seizure disorder. At first everything was alright, however now I have been having double vision, staggering, memory loss that has occurred slowly within the last two years or so, and of course as with most meds the usual diarrhea or constipation. I wonder how long does it take being on medication for these side effects to kick in? I read all literature whenever I start a new medication even if it is a OTC drug. (over the counter). I just got out of the hospital and am being sent from one doc to another. I feel like a guinea pig in a lab! Please help!

-- By twtyfrk66 | Reply | (3) replies | Private Message me

May 12th
2008
10:06 PM

What side effects? I have taken Lamictal for 6 weeks. I am on a steady dose of 100mgs. I started out with severe depression (unipolar), and have also been diagnosed as bi-polar and borderline personality disorder. So who knows what I have other than to say that I have felt like a train wreck for 3 yrs. All the other meds I have taken did not help my constant cycles of severe depression. I felt like I was in a fish bowl and the world was going on around me, I could see it but was not a part of it. It was hell on earth. Other meds would help somewhat on certain symptoms, but nothing ever brought my life back to a level where I could say I felt joy and was truly happy until I started Lamictal. 2 weeks into the start of Lamictal (50 mgs), I woke up to a miracle. I realized I felt joy, I was laughing without trying to. I felt refreshed and prepared to go out in the world and face the day with a positive outlook on everything. My side effects so far have been nil. Not one thing...no pain, no headaches, no weight gain, no memory loss, no dizziness, no hairloss. Am I the only one? I know these meds effect people differently but wow, I am in heaven. I hope all of you eventually find something that works for you because I really felt ( before Lamictal) that I would never feel good again! Hallelujah! I do! bless you all!

-- By nickimouse42 | Reply | (3) replies | Private Message me

May 10th
2008
7:53 PM

I was wondering if high doses of Lamictal can cause seizures. I am prescribed 200 mg 2x daily. I accidentally took 800 mg for a few days after switching from 2 100 mg tabs 2x daily. What followed was miserable. I had this weird vision-thing like a microfiche on its side, running very fast. I got dizzy, then had trouble walking. By the time I got to the hospital, I was having severe tremors, and the (dumb) hospital did not give Ativan for 45 min.after this started. The doctor said it could not be a seizure, because I was slightly aware at times, and could answer questions. I can't remember almost all of it, nor about 24-48 hours after. They had to administer 10 mg of Valium in the ambulance on the way to a separate hospital. The thing lasted for over an hour, I guess, and my husband (who has seizures from childhood also) says it was terrible- full generalized seizure. What ticks me off is that later they called it an anxiety attack, without knowing about the Lamictal doses. Has anyone ever heard of something like this?

-- By hlutz874 | Reply | (1) replies | Private Message me

May 7th
2008
2:43 AM

I felt suicidal and got migraines/nausea/vomiting when I was first started taking Lamictal. Then I was on a steady dose of 100mg and I felt better than I've felt in my life with no other side effects except the tendency toward minor skin irritations. I've just gone up to 150mg just to see if that's better, but I'm having suicidal urges, migraines, nausea, vomiting. I expect that will clear up soon and then I'll know if this is a good dose for me.

My psychiatrist warned me about feelings of suicide as a possible side effect. She also told me that as the dose goes up, mental disorganization increases. So we're trying to find the right balance of anti-depressant effect and spaciness.

-- By 31yocaucmale | Reply | (2) replies | Private Message me

May 3th
2008
2:27 AM

Hi. I went on Lamictal April 2007 after being diagnosed w/ BiPolar. The key issue that brought me to the psychiatrist to begin with was acute depression following a divorce, move cross country, losing my job and my only son going off to college. All the big stress factors - short of death in family. Nonetheless, I was nervous that one year after all these crises that I was, if anything, feeling worse. I had been able to handle all the changes during them, but now that they were over all I wanted to do was sleep all day.... Anyway, I had been on Paxil for years re anxiety, and my psychiatrist decided to keep my on the Paxil till I tolerated the Lamictal, then get me off the Paxil..... Well, the 20 mg of Paxil and the 100 mg of Lamictal worked great, I thought; the Lamictal really raised the bottom.... BUT, apparently Paxil fuels mania, so after a few months, I was taken off the Paxil completely and my Lamictal went up to 200 mg. Almost IMMEDIATELY upon going to 200 mg Lamictal my ankles / feet / legs got enormously swollen. Plus, I noticed that my hair started to fall out // thin out.... Plus -- and I don't know if this is the Lamictal or the absence of the Paxil, but I sob uncontrollably almost 24/7. The sobbing and anxiety and sense of dread and sadnessness has persisted even when the Lamictal was dropped to 100 mg and the shrink added first Clonazepam .5 mg, then when that wasn't calming me, changed me to 1mg Xanax -- each as needed. The Xanax isn't helping me either, and now I also feel paranoid. So, in short: Lamictal at 200 mg makes my feet / ankles / legs swell or suffer edema; Lamcital as low as 100 mg makes my hair thin out; and either the Lamictal or the loss of the Paxil or these anti-anxieity meds (Clonazepam or Xanax) are making me paranoid, profoundly sad and depressed, panicked, anxious, stressed out and, most urgently, make me sob uncontrollably 24/7... My shrink says that we should use anti-depressants with bipolar, and that Paxil fuels the mania, but I tell you, I'd rather be manic and screaming at everyone than so depressed that I'm fearful and sobbing constantly.... Any answers out there: Any anti-depressants for your bipolar?

-- By mcgreek | Reply | (2) replies | Private Message me

April 29th
2008
12:15 PM

I HAVE BEEN ON THE LAMICTAL FOR 5 MONTHS NOW( FOR MINOR BI POLAR EPISODE). AT FIRST I FELT A LITTLE "SPACEY" AS I HAVE INCREASED MY DOSAGE EACH TIME I NOTICED VERY PAINFUL MENSTRUAL CRAMPS, WORSE PMS, EXTRA LONG MENSTRUATION CYCLE, JOINT PAIN IN THE HIP, FORGETTING EVERYTHING( LOSS OF SHORT TERM MEMORY), AND EXTREME TIREDNESS IN THE DAY AND NOT SLEEPING AT NIGHT. I HAD BEEN ON 75MG A DAY ( 2 IN AM, 1 IN PM) AND THEN UPPED MY DOSE TO 100MG(2 IN AM, 2 IN PM). THE SIDE EFFECTS ARE WORSENING, ESPECIALLY THE JOINT PAIN. I HAVE ALSO NOTICED PANIC ATTACKS AND IRRITABLENESS THAT I HADN'T HAD BEFORE. WORST OF ALL, IS THAT I HAVE GAINED ABOUT 27 LBS WHILE TAKING THIS MED. HAS ANYONE ELSE HAD ANY OF THESE SYMPTOMS? PLEASE REPLY TO TELL ME THE BEST REMEDY.

-- By babybee2002 | Reply | (4) replies | Private Message me

April 21th
2008
11:43 PM

my son has been on it now for about 4 months and has tried to commit suicide in the process of a 5 week change from keppra to the lamictal.then had to take dilantin until reached full dose of the lamictal which for him is 150mgs 2 xs a day at first the keppra made him fly in to rages so that was blamed for the suicide attempt.but just a few days ago he said that he was having weird feelings again. so i don't know what to do. waiting to hear back from the dr.i would just like to know if anyone else has experienced such severe thoughts from taking this med or if passably it could be not a high enough dose.i don't really know anymore by the way my son is only 15 and he is on the lamictal for seizures.any feedback would be greatly appreciated.

-- By kellgaer | Reply | (2) replies | Private Message me

April 12th
2008
9:20 AM

Behold the rash. I was doing so well on this med (compared to Topamax and Keppra). I finally thought, "Hey, I am on a med that isn't going to make me stupid or psychotic.". I woke up this morning with a rash on my neck. I've phoned my neuro's service and am waiting for a call back.

I'm wonder what the early systems of SJS are? What does the rash look like? Mine is (and I looked via a cell phone pic because it's not visible due to its location) red with these bumps all over it. It doesn't itch but it burns a little bit.

-- By lintriago | Reply | (1) replies | Private Message me

April 7th
2008
2:56 PM

I am on Lamictal 75mg (down from 150) Lexapro 10mg (down from 20) and Clonazapam (3mg daily) - Here are my side effects

easy bruising, unusual eye movements when my eyes are closed, fatigue, loss of appetite, tingling in lips and all throughout body, daily headaches, grinding teeth - my teeth hurt so bad in the mornings, Loss of memory, shortness of breath.

This all scares me greatly - I am under a phychiatrist only doing NO blood work and he just keeps moving my meds up and down! I am so frustrated and afraid (after doing research and my family medical history) that the problems I was having before going to this dr. is due to a thyroid disorder.

anyone else feeling any of these symptoms?

-- By melsthrifty | Reply | (2) replies | Private Message me

April 7th
2008
3:16 AM

I was on Lamictal for 4 years and after the first year I suddenly started having all kinds of teeth and gum problems for no discernible reason. But since Lamictal has the possible side effect of "sores or blisters on the inside of the mouth" I wondered if it could be related.

I did a Google search and am coming up with no experts yet, but lots and lots of posts connecting anticonvulsant meds, particularly Lamictal, Topamax, Neurontin, and Depakote, with dental problems. Dilantin is well known for causing gum disease and breaking down tooth enamel, loosening of teeth, and even breaking down of jawbone tissue.

I don't think the experts have connected the dots yet, but is anyone else having this problem?

-- By absisback | Reply | (11) replies | Private Message me

April 4th
2008
4:34 PM

My chronic pain has really increased since being on Lamictal for 15 months for bipolar. I have had fibromyalgia for years. The bipolar developed after that. Since starting Lamictal, I have developed headaches so severe that I have been off work 3 times in the past 7 months, inc. 5 weeks recently. I've always had headaches, but these new, more severe headaches are non-stop. I have to take 3 time-release 100 mg codeine tablets every day, plus Gravol to keep the headaches bearable. Even then, many days I end up bed-ridden. I've also developed chronic, very bad plantar facsiitis in my left foot since starting Lamictal. I did weeks of intensive physio, plus swimming therapy to no avail. Finally had to get a cortisone injection in my foot.

I hate being like this; I like my job and was used to leading a very active life, despite the fibromyalgia, before I went on Lamictal. I briefly tried Lithium recently, but it had a whole other set of side effects, so I am really frustrated.

Has anybody else had increased or new pain since being on Lamictal?

Rosslyn

-- By rosslyn | Reply | (1) replies | Private Message me

April 3th
2008
5:09 AM

lamictal controls seizures if you take it at the right time. i am on 200 at night and 200 in the morning plus epilim. sometimes i just sit and cry wen im trying to concentrate on reading books i have to study or trying to remember work i learnt at school which has left my brain. im failing school not matter how hard i try, i study all the time then the next day i have forgotten it. im so young and i havnt even started my future yet and i may have screwed it already. failing exams because i forgot wat i learnt the night before hurts so bad. its hard to say "hey everyone the reason i failed is because lamictal screws my memory" i know thats what it is. i was extremely intelligent before i started taking it, but now im a failure. i guess deep inside i know really im not a failure, but lamictal makes me one. : ( p.s add a constant hand tremor and sudden jerking movements every now and then.

-- By noddy123 | Reply | (7) replies | Private Message me

March 29th
2008
11:14 PM

I went blind on 150 mg of Lamictal. I couldn't see anything. My eyes were blurry all the time. I couldn't figure out what it was and when I weaned off of the Lamictal, my sight came back. Not to mention, it did absolutely nothing for my mood whatsoever.

-- By stackmama | Reply | (2) replies | Private Message me

March 28th
2008
1:02 AM

THIS IS MY 8TH DAY ON LAMICTAL 25MG AND I WOKE UP SO DIZZY THAT I ALMOST FELL OVER. I HAVE BEEN THIS WAY ALL DAY IT LIKE COMES AND GOES FAST. IM DIZZY NOW..
I HAVE NOTICED MUSCLE ACHES BUT I THOUGHT THAT IT WAS THE ATENONOL 25MG I TAKE FOR PALPITATIONS BECAUSE IT LOWERS YOUR POTASSIUM. IM THINKING THE LAMICTAL DOES THE SAME LOWERS YOUR POTASSIUM WHICH CAUSES THE MUSCLE PAIN AND ETC.. SO I BEGAN EATING BANANAS AND SEE HOW THAT GOES. MY DOC SAID THAT IF YOU TAKE A ANTIDEPRESSANT AND YOU ARE BI POLAR YOU CAN HAVE SERIOUS REACTIONS TO THE MEDS. SHE TOLD ME TO "NOT" TAKE A ANTIDEPRESSANT.
I WAS ON THIS MEDICINE BEFORE AND WAS UNSURE ABOUT A SIDE EFFECT OF ULCERS IN MY MOUTH AND STOPPED IT. I REALLY WANTED TO CONTINUE BECAUSE IT MADE ME FEEL GREAT(only got to 50mg then)
I HAVE ACTUALLY FELT PRETTY GOOD MORE GOOD DAYS THAN BAD EXCEPT YESTERDAY AND TODAY I HAVE BEEN REALLY TIRED ALONG WITH THE OTHER.
MY QUESTION IS WILL THESE SIDE EFFECTS GO AWAY???? AND I DON'T WANT TO REALLY EAT MUCH.
I REALLY LIKE THAT I AM NOT MOODY ANYMORE LIKE I WAS AND I GOT MY SEX DRIVE BACK AND I DON'T WANT TO GO OFF IF I DON'T HAVE TOO.. HOW LONG DO THE SIDE EFFECTS LAST??
AND IS IT WORTH STICKING IT OUT?

-- By imasgu | Reply | (1) replies | Private Message me

March 25th
2008
6:37 PM

I also am having a difficult time with memory loss. I have a very short term memory. I never used to be this way. Before I started taking Lamictal, I was taking Depakote. I haven't been on Lamictal for that long, so I do not know if my previous medications have caused my memory loss. I also get dizzy sometimes and I'm feeling out of breath lately. Some other medications I've taken are: Zyprexa (which gave me type I diabetes); Abilify; Risperadol; Adavan...the list goes on, unfortunately. I have been taking anti-psychotic drugs since I was 16, and I am 37 years old now. God help me!

-- By mkaye07 | Reply | (2) replies | Private Message me

March 16th
2008
11:26 AM

I started taking Lamictal about six weeks ago for epilepsy. Now keep in mind, I was on Dilantin which worked great for 17 years and then suddenly stopped working. I have been in medication hell since then. First Topamax made me dumb as a rock. I would space out all the time. Worst drug ever. Then Keppra which was better in that my memory/ability to speak came back but I had these intense ups and down. I had rages constantly. Now I'm on Lamictal. So far, it's better than the Topamax and the Keppra, however the dreams are very intense as are the night sweats. I'm also experiencing much hair loss. Fortunately I have a full head of hair but I'm afraid I will eventually lose it all.

-- By lintriago | Reply | (9) replies | Private Message me

February 28th
2008
12:38 PM

I haven't taken this drug yet I am about to go get it from the store and I do not know when to take this medication. Morning or night? I already have racing thoughts at night so I do not want to be more awake at night than I already am. I also suffer from a weight issue, is this medication going to help me loose or gain weight? I cant afford to gain a few, I can afford to loose a few. I also suffer from back pain now so I do not want that to increase. Anyone have any helpful tips for me?

-- By kiridiane | Reply | (4) replies | Private Message me

February 28th
2008
9:27 AM

I've been on Lamictal since December, i started out with 25mg, then to 50mg and now at 100mg which is where my doctor said I should be. I am taking Lamictal for a seizure disorder. Now I'm not bashing the drug but when I was taking 25 and 50mgs it was fine, I loved it. Seemed to work instantly. But now that I'm at 100mg the weight gain problem started. I have always tried to watch my weight so the only thing i can blame for not being able to take the weight off now is the Lamictal. I have been eating right, got back into the gym, watch my caloric intake as well as fats and carbs. Seems like for every pound i lose i gain right back in a day, it is awful. I did go thru a bad depression around the beginning of the year which I gained some weight from, but trying to get it off now is the hardest I've ever tried in my life. I am now 20 lbs heavier than I was since December. Has anyone experience this? And please tell me the outcome. I want to know if its me or is that a common effect that is now really greatly expressed as a side effect.

-- By mmc43068 | Reply | (2) replies | Private Message me

February 26th
2008
4:34 PM

I have been taking Lamictal for about 2 months now. Started at 25mg and now at 150mg. I also take 10mg Lexapro and 1 mg of Ativan daily. I was diagnosed with bipolar-2 about 3 months ago. I'm not sure if this is the right combo for me. Most of my problem is with severe irritability followed by moderate anxiety and mild depression. I have never had a Manic episode just Hypomania which the doctor said is my anger and Irritability. I have been on every SSRI (anti-depressant) for the last 12 years, which does help the depression, but it increases the anger and irritability. Another Dr told me I am not bipolar-2, I just have GAD (generalized anxiety disorder). Not sure what to do anymore, the Lamictal is giving me bad headaches and dizziness and nausea. So now I take Meclizine for the those symptoms. Is there just one pill to help all these symptoms? Has anyone had any luck with Buspar??

-- By 1hybernator | Reply | (3) replies | Private Message me

February 23th
2008
4:19 PM

I have not taken a drug with so few side effects. Dose up to 200mg. Outstanding med for bipolar disorder.

-- By iqman41 | Reply | (1) replies | Private Message me

February 20th
2008
11:06 PM

This is a total nightmare and i need advice! I was on Lamictal for a year and about six months into my health began to slowly deteriorate. It started with shortness of breath and heart palpitations and eventually attacked every system of my body. My symptoms are muscle pain, spasms and knots to the point that i can't turn my neck sometimes, joint pain (mostly knees), stabbing floating pain everywhere, headaches, frightening tingling in my extremities and a few times my entire body, sore throat, flu-like feelings, stomach cramps, bloating and heartburn. The list goes on. I have been off of it now for two weeks. My psychiatrist has never seen this type of reaction before and is not convinced it is the Lamictal. I have been to every single type of doctor and the ER twice, had extensive lab work, CT scan and two MRIs. I have been off Lamictal now for two weeks and am not feeling much relief. I am so scared and frustrated and please need advice. Has anyone else experienced this? Does it ever go away? I feel like I am literally living a nightmare with no-one to turn to for advice because no-one seems to know ANYTHING!!!!

-- By humphrsa23 | Reply | (10) replies | Private Message me

February 19th
2008
1:17 AM

I've been on Lamictal for about a year (for bipolar). Tried lots of anti-depressants and this has made a huge difference. I take it with Effexor. The big thing I want to add here is that I have done better on only 75 mg of Lamictal a day. They tell you it isn't a therapeutic dose but who knows what is for sure for each of us!? When I went up to 100 mg many of the things people say here happened worse. I went back down to 75 and have been so relieved to be semi-normal feeling--the best I've felt in many years. If you feel better at a certain dose, why do they insist on going up so far? Something to think about. I do have more acne, jawline rash that itches and definite sore muscles. I too have gained at least 15 lbs this year, not eating any differently--and they say it doesn't create weight gain! For me, the side affects are the lesser of the evils for now. I know it's made me more sane and that is huge.

-- By lloyd213 | Reply | (1) replies | Private Message me

February 16th
2008
9:52 AM

My son is diagnosed bipolar II mixed episodes. My son is on 1500 mg of Depakote, which the doctor increased as he was starting him on Lamictal. He also introduced and increased Seroquel. His personality is flat, his hands shake, he's gained 40 pounds and he sleeps after every dosing and naps in between. I was the one who suggested the Lamictal because I've read so many success stories about this drug. But I didn't realize that the doctor was planning to increase the Depakote. My son responds well to Depakote but it doesn't help in regard to his severe depressions or his irritability. Is there a way to sort out what is causing what?

-- By kist | Reply | (2) replies | Private Message me

February 11th
2008
6:51 PM

I am always tired and kinda shaky I cant figure out if its the Lamictal or Seroquel which ever I am stopping it when I find out what it is I cant handle the side effects I am very sensitive to the side effects of any meds.

-- By shady3685 | Reply | (2) replies | Private Message me

February 9th
2008
9:40 PM

so far i like it, but me being on this med does this mean I'm bipolar?? doc said i was not but thinking he thought i would freak if i was... Also he gave me a sample pack, I have great insurance but what is the cost of this med??

-- By benedict26 | Reply | (2) replies | Private Message me

January 19th
2008
9:19 PM

I've only been on Lamictal for about 3 weeks now. I started taking it the day after Christmas. I take 25MG twice a day, with .5MG of Klonopin 3 times a day. I have been diagnosed as Bi Polar II, with very deep bouts of depression and suicidal thoughts. So far the Lamictal has been working for me. I have noticed that if I don't take it in the morning when I am supposed to, I let little things get to me. But as soon as I remember to take it, I feel better in a short amount of time; but that could also be the Klonopin. Anyway, the only side-effect I've noticed so far is that I started my period a week and a half early, and I have been on it for 2 1/2 weeks now. And it keeps getting heavier and that is very annoying.

Are any other females having period issues? Or is it just me? I can't find any other sides that list heavy bleeding or early periods as a side-effect.

-- By tifakiki7 | Reply | (5) replies | Private Message me

January 14th
2008
5:50 PM

Hello! I've been taking Lamictal for about 6 years now. I'm diagnosed as BP II and have the most difficulty with depression. I currently take 500 mg-- 400 mg at night and 100 mg in the morning. I have to say that Lamictal has been very good to me for the most part. As long as I don't put myself into extremely stressful positions-- such as my last job-- I do quite well. I also take a combination of supplements with Lamictal which seem to give the extra push that I needed to completely get out of my last depression. I take 1000 mg EPA (fish oil), B-100 Complex, Folic Acid, Cal-Mag, multivitamin (high quality, organic), Vitamin D (at least 1000 mg) and a few others.

I notice that when I take it at night if I don't go to sleep right away, my mouth and tongue will tingle. Sometimes when I take it in the morning, I feel foggy and dizzy and sometimes get vertigo. Every now and then the side effects seem to get worse, which I am not sure about. I started searching on the internet because I've been noticing that the "tip of the tongue" problem has been occurring more and more often. I often cannot think of the word I want, simple things even. As others have mentioned, I also have difficulty with memory. I am still very successful, currently pursuing a 2nd Master's Degree, but have noticed that achieving the same level of quality of work takes a lot more effort than during my previous degrees.

I do have some periods of anger/irritability and have recently been sleeping a lot, though it probably has a lot more to do with the time of year-- winter with less light-- than anything else.

I am particularly worried about my memory loss and inability to sound "well-spoken" in a setting which demands that of me. It is frustrating! I don't want to do any lasting harm on my brain. After increasing to 500 mg from 400 mg, I have noticed more of these brain issues, but I'm also doing so much better mood wise!

-- By maggie22 | Reply | (3) replies | Private Message me

January 9th
2008
12:23 AM

Is this a forum for trashing Lamictal? I've been on it for a year and it probably saved my life. If you have negative effects from taking it, why not drop it and try something else? I'm glad I never read all of these horror stories, as I'm sure it would have scared me enough never to have tried it. That would have been a shame .. I've never felt as symptom free as I do now; I sleep well and dream well, put in long days in my business and never have a problem remaining focused and alert. The perfect cocktail for me turned out to be 250mg Lamictal twice a day, 25mg Trazodone at night, and 40mg Citalopram. I feel really fortunate that my psychiatrist only feels the need to visit with me once every 6 months just to check in. If I miss a day, my wife notices immediately as I start to swing "up" again. Drawbacks? The cost (about 7 bucks a pill), and some weight gain which may have happened anyway .. (I'm 52). If you have the insurance to cover it, I say give it a try.

-- By better_off_with_lamictal | Reply | (2) replies | Private Message me

January 5th
2008
10:31 PM

I have been experiencing a flu like symptom for over a year now. They started about 2 months after I began taking 350mg of lamictal a day. Symptoms include exhaustion, headache, soar/achy throat, post-nasal drip, TONS of nausea, lack of digestion & regurgitation of food. I am tired and feel warn out all the time... I have had everything checked by doctors and they've found no health reasons to explain these symptom's.

HAS ANYONE ELSE EXPERIENCED THIS????

-- By tsavin | Reply | (8) replies | Private Message me

December 26th
2007
12:15 AM

Been on it for almost 5 years, 400 mg a day. Don't know what the official word is on long-term use, but I have had the following problems: recent weight gain and long-term extreme exhaustion/fatigue. Although I haven't changed the dose in years, the fatigue seems to be getting worse. I am on other meds, so I don't know if it is for sure the Lamictal causing these effects, but there is a good chance. I'll see as I lower the dose, under doc supervision, of course. Take care, all.

-- By julesy | Reply | (2) replies | Private Message me

December 19th
2007
7:17 PM

I've been on Lamictal for the past 2 years. I had suffered from depression from the age of 15, which was subsequently diagnosed as bi-polar at age 37 and treated with Lamictal at 39. I started on 25 mg increasing to 100.

It literally changed my life. I felt completely normal, without having lost my personality and didn't have these huge ups and downs. My short term memory, which was never very good, has become worse.

I have now got a rash. This maybe because I was feeling so great, that I didn't take my tabs for a few days, then resumed at my normal dose.

I have moved and so am no longer in contact with the doctor who prescribed this to me. I just can't bear to go back to the space I was in before I took Lamictal and am going to try starting at a low dose and building up again.

Good luck to anyone trying this. For my bi-polar condition it literally changed my life. I was never really happy before, and I can say that i am often content these days, and positive.

-- By simone185 | Reply | (1) replies | Private Message me

November 22th
2007
6:58 PM

I was treated with lamictal for bi-polar II . It did help even out my mood which swung to deep depressions and rare (unfortunately) hypomania. After an increase in dose I had so much pain in my back and hip joints that I needed help to sit down, stand up, tie shoes, lift anything. I am only 40!

I stopped the med in June, but the pain is still there. Continually, not as bad as it was before, for sure, but I still have to prop myself up for simple lean over tasks, and my hip joints throb. I have to support myself to flip in bed or get out. I was doing yoga, and running as well before I started lamictal. I was extremely flexible!, and now can still barely touch my toes.

has anyone else had this lingering pain?

-- By skgsunshine | Reply | (2) replies | Private Message me


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