October 21th
2008
11:22 AM
My husband has been taking Lamictal now for 2 years. He had two seizures within 6 mo in his late 30's, one of which resulted in a car crash. Of course he is grateful for such medicine but as a partner and wife, I noticed lots of changes in him after he began the medication. He was irritable, had very low tolerance and a short fuse, was extremely distant and often mean - which in the end caused us to separate for some months. Although we are back together now and our relationship is doing very well, I notice other side effects, for example, he sleeps every time he sits still, etc.
HOWEVER, the real reason I am consulting this forum is to ask anyone (especially men) if they experience side effects related to sex. I know this is a tabu topic but things just aren't working as they used to and I am looking for solutions as he doesn't seem to question the side effects of this drug. This is starting to become an issue psychological issue now as well. Has anyone else experienced lower sex drives and complications during sex?
-- By biffy | Reply | Private Message me
October 18th
2008
11:41 PM
I had been on Lithium for a few months when the consistent weight gain and uncomfortable bloated feeling caused me to seek out a new treatment for my bipolar disorder. Deciding on Lamictal, I started the slow transition of lowering Lithium doses and increasing Lamictal doses. About one month ago, the transition was complete. I didn't seem to have any real noticeable side effects from the Lamictal but after about 2 weeks of being off the Lithium, my skin started breaking out with acne!! Terribly on my chin, cheeks and hair line. I am now wondering if the Lithium may have been keeping this symptom under control. Has anyone had an experience like this?
-- By 86beamer | Reply | (2) replies | Private Message me
October 6th
2008
12:31 AM
I have been on Lamictal now for 10 months, and I mostly love it.
But my IQ went down about 20 points. The first few months were very bad--I could hardly complete a sentence without forgetting one or two words. My short-term memory was scary bad--almost like blackouts where I wouldn't even remember events when reminded.
Those things have abated somewhat, but I am still having to adjust to a lower ability to think. I must make lists, I must repeat instructions and directions. Perhaps this is more about slowing down what was a hyperactive brain, but it is a side-effect that is hard to accept.
I am noticing a new side effect, though. I drop things all the time. I recently dropped a book I was reading--how does that happen?
Has anyone noticed this dropping, or any other clumsiness like this?
-- By marimac | Reply | (4) replies | Private Message me
September 30th
2008
1:31 PM
Has anybody had a problem with their gums thickening. It's actually the area behind my upper teeth not the gums around my teeth. As a result, my teeth are being pushed forward making me self conscious of my smile. I'd like to get off this medicine but the other medications seem just as bad. Has anybody had any luck finding alternatives to medication?
-- By ajbkd | Reply | Private Message me
September 29th
2008
11:29 PM
I have been on Lamictal for about 3 and a half yrs now for Bipolar 1. Overall, I have had a really great experience with the drug. I started with 100mg and then went to 200mg after a year and a half. Now I take 225mg as of a month ago. For about a year and a half I had the acne on my chin and then it went away suddenly (thought it was cutting out dairy from my diet though). I have been extremely fatigued for awhile now. 7hrs of sleep is not good enough for me so I end up taking long naps when I have the opportunity each day- I always want to sleep. I feel stupid and lack focus and motivation. I use to be a social butterfly and now I feel so exhausted when entertaining. I am a personal trainer and am in the business of making others feel better, but I seem to be feeling worse. I have experienced weight gain as well and that is hard for me since I use to be bulimic and have always had poor body image issues. I was on the NuvaRing for 5 months and it made me sooooo depressed so I finally got off that and feel better- don't mix those 2 drugs.
I am going to ask my doctor to take me off of it this week because I am ready to trust God with my mental health. I have a great support system to help me through the tough times and if I want to get pregnant, I have to go off it anyway.
September 29th
2008
2:12 PM
I have been taking Lamictal for about 2 1/2 years now. I have been taking 200 mg for two years. I have experienced very few side effect. Except vivid dreams and not sleeping well. I have always had vivid dreams but there is one I have had since the medication it was so awful that I can't stop thinking about it and it makes me feel suicidal. I have had many ups and downs in my life but never thought suicide to be a positive option. I don't think I would do it but I can't stand these awful repetitive thoughts. I have had less and less energy in the last 6 months or so. I thought it was because I was working to much. I have quit doing most the things I love. I have always been a high energy person. So I thought it must be the Lamictal. When I had complained to my doctor he said that it sounded like depression and normally they would increase the dosage but he would decrease it if I wanted. I went to 150 and then 100. I felt awful just like I used to before the drug. So I went back up to 200 and at least I didn't feel so awful. So I increased it to 250mg and I started to fell less depressed. Sometimes I have taken to much in the past because I forgot I had taken it and repeated the does. That is when I had the first bad dream that has haunted me since. Then I started to forget to take my medication off and on and that is when the depression started. Now I took the 250 and I had another haunting dream. This drug really has been a miracle for me. I have never felt this stable in my entire life! In the past I was trying to self medicate but since the Lamictal I have quit smoking pot and drinking. I don't like alcohol and drugs anymore because I don't like to feel altered anymore. Most of the symptoms everyone has described are how I felt before Lamictal and I feel better since. I will never go below 200mg or above again without a suitable alternative. I still can't get rid of the repetitive thoughts on 200mg. Typical anti-depressants have the opposite effect for me. Has anyone found a suitable alternative. I have heard that other drugs for bi-polar such as Lithium and Depakote have a sedative effect and I don't like that. I want to be my normal energetic self!
-- By ngf98 | Reply | (3) replies | Private Message me
August 31th
2008
5:42 PM
my son has been on lamictal for over ten years for the control of petit mals
he is also autistic and has associated learning difficulties he is on 750 mg a day and we seem to have reached this level due to the doctors uping his med when he was having behavior problems and now over a period of time he has been having anxiety. agretion .hostility. frenzied abnormal excited moods .loss of balance and coodination problems . museal problems in legs which is leading to his ability to walk.. poor gate nervousness . irritable.and these symptoms are not there all the time but have been rearing up on a more regular basis and after a lot of research on line and reading i have come to the conclusion that its time to remove him from this medication with medical supervision i must add the problem is that lamictal has only be on the market for about 16 years and there is not much information on long term use and also my son just gets on with his life the best way he can and can not tell you what is happening to himself due to his autisum but these problems have been going on now for some time and gets put down to behavior problems which is not the case i believe it is the lamictal that is doing this to him so he is coming off it the absences are a less problem then the side affects i think over ten years on lamictal is enough.
August 28th
2008
12:40 AM
I have been taking Lamictal since October of 2007. I experienced some of the symptoms (muscle pain in the head and neck) before I started the medication. I have experienced panic attacks since July of 2005. I have had mild heart palpations since I was in my mid 20's (I'm 36 now). I have had what I would consider a below normal energy level since my mid 20's also. Ok so like everyone else I am thinking I'm a hypochondriac! However, I was diagnosed August 28th 2007 with having Lyme’s Disease and also Hyper-Thyroid (same time, same lab-work). Two weeks later I was diagnosed with Bi-Polar Disorder (this is one thing I knew I was battling but didn't know how to handle it). My physiatrist started me on Lamictal and I did the standard ramp up to 200mg. I also was started on a 90 day treatment of Dyoxicycline for the Lyme’s and Methimazole for the Hyper-Thyroid. I was very very weak and was only able to stay awake for short periods of time (4 to 5 hours max). Just an fyi, I am not overweight, lazy or unmotivated. I have the physical appearance of perfect health. This, I think works against me as the Dr's seem to think I'm just whining. Mater of fact; my Primary Care Physician never tested me for Lyme’s. I went to an Urgent Care Center which tested me for Lyme’s disease and I came back positive (they also tested my Thyroid levels and found the problem with my THS levels) I told my Dr the results and he insisted I have same test done again. Guess what, new tests, same results.
My symptoms today are very similar to what I have seen posted many times. Muscle pain (entire body, some areas worse than others), heart arrhythmia, racing heartbeat, intense palpitations, nausea, foggy “un-plugged” mind, fatigue, weak muscles, muscle cramping (especially after repetitive motion, such as strumming a guitar), panic attacks (much more severe) and the latest addition to the group, Insomnia. Muscles pain in my head, fore-head, jaw, temple, neck (front and back), shoulders, is terrible to say the least. The pressure in my fore-head (right under my brow) makes me feel like I need to close my eyes or rest (resting does not relieve anything). The front of my neck is so tight at times it feels like my jaw is being pried down. I could go on and on.
On my quest to find out what else is going on with my body I have had 2 Echocardiogram’s on my heart and abdomen, 2Nuclear Stress Tests, blood work out the wa-zoo, MRI of my brain, 2 CT’s of my Head and Neck, Chest X-rays, Endoscopy, Colonoscopy, and all revealing nothing.
Most doctor’s I have encountered seem to want to treat the symptoms, not the problem/disease. I believe I know why; we (the ones who are there for solutions) tell them what the symptoms are (how we feel). We of course are thinking “this will help with a diagnosis of the problem/disease”, when in fact (I feel); the doctor’s thought process stops there. They don't know what’s wrong with you but they do know what your symptoms are so....bingo, let's treat the symptoms. Don’t misunderstand what I am saying. I’m not saying, “Most doctor’s don’t know what they are doing” or “don’t take your meds”. I am saying you and I are one of the 20 to 30 patients most doctor’s see daily (100+ weekly). They may be caring and good people but they are just as human and fallible as you and I. My advice is this; (and I am taking my own advice) don’t always “pop” into your body what the doctor suggests/prescribes, without doing your own research. Heck most of us won’t buy a car or more importantly, send our kids off to a college with out doing your own research (we just don’t trust those shinny brochures). Your body and your health are worth you doing your own research. Just keep in mind, Pharmaceutical Reps are always at your Dr.’s office (sit in the waiting room for 10 minutes and I’m sure you will see one). Reps are paid to do one thing; encourage (push) the Dr.’s to promote use of the Pharmaceutical Companies drugs.
My wife and I have been doing our own research on Lamictal (after a year of taking this stuff) and the side effects associated with this drug. We have searched through many (many,many) web sites for information and we have talked with pharmacists and Dr’s for opinions. Although I’m am not thoroughly convinced that Lamictal is the cause of all of my symptoms, my wife and I have decided to lower my Lamictal slowly from 200mg to 100mg. I am now taking 150mg daily (three days now) and plan on staying at this level for a total of two weeks before lowering to 100mg. I do fear dropping the dosage to quickly (potential side effects) or lapsing into a mania. To help avoid a manic episode my wife and my immediate family are all “up-to-date” with my course of action. They are on “Red Alert” and have promised to keep a close eye on my behavior patterns and moods. (I don't want to put them through another hyper-mania episode, its much too devastating). I do want so badly to feel healthy and alive again and at this point I am rather frustrated with the Dr.'s ability to help me achieve this goal. Remember it is called “Practicing” Medicine. So now I’m going to practice a little, very carefully and cautiously.
As a foot note; I have recently (past two weeks) been re-tested for Lyme's with a negative response. I am keeping in mind Lyme's test are very inaccurate (still hoping this one is accurate). My thyroid is under control and normal, so.... let's see if dropping below 150mg of Lamictal will eliminate some of these other symptoms. I will keep you posted.
Erik
August 13th
2008
2:34 PM
My doctor prescribed lamictal after I reported hypomanic symptoms from prozac. The first couple of days on lamictal I thought it was the miracle drug; it really eliminated my mood swings. But as the days progressed, I began to have the following disturbing side effects:
- terrible insomnia (waking in the middle of the night and can't go back)
- horrifying violent dreams (of animals and people being hacked to death with machetes... interestingly, I reported this to my doctor and her response was, that just means your brain is adjusting to the chemicals...easy for her to say, she's not waking up with terrible memories of these disturbing dreams)
- weird pains and stiffness in my neck with swollen lymph nodes in the neck
- increase in anxiety and feelings of panic
- increase in feelings of anger and agitation
- feeling of detachment
- thoughts of suicide and the meaninglessness of life
- carbohydrate cravings and weight gain of nearly 4 pounds in 2 WEEKS!!
(weight had previously been stable for years)
These symptoms all appeared after taking the lamictal after only 2 weeks. Even though my doctor recommended actually INCREASING the dose of lamictal and/or adding prozac, I decided to wean off the lamictal (I was on the smallest dose of 25 mg) as an experiment to see if the symptoms would go away...
YES they did!! Every single one of them went away and were COMPLETELY gone after the second day of discontinuing the lamictal.
I know that this medication is being touted as the new miracle cure for bipolar II especially, but I think more clinical studies need to be done on lamictal. This experience was a very scary one and not unlike that reported by others on this site.
-- By lrs38 | Reply | (1) replies | Private Message me
August 10th
2008
10:11 PM
I've been on Lamictal for about 5 months now. I recently have had some horrible side effects. I've had the acne, brain fogginess and weight gain all along. About a month ago I was hospitalized for having a blood phosphorus level of 0.6 which is dangerously low. The symptoms around that day were nausea, feeling like I couldn't breathe, hyperventilation, heart rate of 120-130, tingling sensations from my nose to my toes, diarrhea and almost blacking out. Of course, the ER doc thought I was having a panic attack and told me to breathe into a bag and try to breathe slowly. NOT from a panic attack. Granted, I was panicking because I was scared. Has anyone experienced this low phosphorus problem?? I will be coming off of Lamictal in the next week. Hasn't made my depression, panic attacks or sex drive any better. thanks.
-- By twinkie0044 | Reply | (2) replies | Private Message me
July 31th
2008
12:07 PM
I have been on this med (25 mg) for eight days to treat SSRI resistant depression. Three days ago I developed flu like symptoms, with fever and vomiting. While I have hypertension I have also seen an increase in my BP even though I am taking my BP medications. However the most difficult to deal with side effect is extreme tooth pain that started when the flu symptoms did. It is so painful I have to eat soft foods. I have had no dental problems in over 25 years. Has anyone else had this effect?
-- By me4taichi2 | Reply | (2) replies | Private Message me
July 28th
2008
10:14 AM
Has anyone developed tartive dyskenisia. It is involuntary body movements. Mine are in the mouth, like I am sucking on my teeth . It is very disturbing and listed as one of the side effects. It can occur in other parts of the body, like tapping.
-- By jbteapots | Reply | (4) replies | Private Message me
July 27th
2008
7:29 PM
I was on 100 mg Lamictal for about 3 months and all I can say is this medication was a nightmare for me. I do have a history of depression, and have recently been diagnosed for Bipolar 2 (which by the way I believe I am not bipolar and that what I had was extreme stress and anxiety from a high pressure job), anyway the medication put me in the hospital. I was at work feeling OK and next minute carried out on a stretcher into an ambulance. I experienced confusion, more anxiety, hair loss, tremors. I also had seizures at work during the few months of taking the medication. My eyes were rolling back and forth. How scary! I also had sores in my mouth and my doctor said it was probably an infection or tooth problem. I never had these kinds of mouth sores before and surprise surprise they (and all other symptoms) went away after I stopped the medication.
I am only feeling normal now and it has been about 5 months after my hospital incident.
The hospital was very scary as well.
I have two children and I do not need to get all messed up on medication.
I am taking another path now and feel much better these days.
No more Lamictal or any other "Mood stabilizers" for me.......
-- By nomeds7 | Reply | (1) replies | Private Message me
July 19th
2008
6:37 AM
I have been trying to come off this medication after being on it for several months up to 150 mg. I didn't realize I needed to taper off so gradually, so I started cutting up my pill for several days at smaller dosages and then I just tried to go two days without and the withdrawal symptoms are horrendous. My head feels like it has imploded, high blood pressure feeling, dizziness, high anxiety, confusion, pressure all over, blurred vision, constant tick in my eye over the past few days, insomnia, trouble breathing, body aches, sick feeling, extreme fatigue, nausea. I just had to go back and take some more out of desperation. It's so frightening.
Taper off this drug S L O W L Y!!!!
July 17th
2008
12:31 PM
Think long and hard BEFORE you take this medication. I was prescribed a psychotropic cocktail by an irresponsible doctor and was on 200 mg of Lamictal a day ... I am not bipolar ... was part of depression treatment. Like a fool, I continued to take it. It took away my ability to think, my motivation ... it robbed me of my life for nearly two years UNTIL I saw an article on the BBC website that literally saved my life. I am now medication free and happier than I've been in years!
There are NO long term studies out there for Lamictal yet ... you are playing with fire if you are taking it for anything other than epilepsy and even then it's sad, but has to be taken to control the seizures.
June 28th
2008
11:29 AM
wow! lamictal. im taking it for bipolar and it sounded so great due to the fact that it concentrates on the "lows" more than the "highs" and since i've been battling depression and suicidal thoughts since the 4th grade i thought this would be a wonderful addition to my medication. i would keep the seroquel at night and only take during the day "as needed" i was told there weren't very many side effects, just following starter kit exactly and i wont get that terrible rash. i didn't have access to a computer until a few days later after my first dose. so i didn't really get a chance to do much research. the first night i was surprised i felt a little loopy. didn't thank much of it. BUT several day late i felt i had the mind of a child. my speech slowed, my motor skills were off i felt heavy in body but light in the head. i could produce simple words. i knew the meanings of the words just had know actual word for them and would have to try to explain these words. stupid me started a new medication just before having to study for an exam( i was not expecting such a quick start of side effects) wow! i had no short term memory. could barely function. it was hard to even order a cup of coffee. of course there were other side effects such as pounding headaches and muscle soreness but they were nearly as annoying as the mental side effects. i started out at a low dose of just 25 mg. i had to stop taking it so my head would clear up and i could actually function just to take my exam. im not cleared up all the way yet but i do feel better. im sure my psych teacher will understand. ....but something im curious about is a weight limit issue. it really seems the side effects shouldn't have started so quickly and so intensely. i haven't been able to find anything about weigh a certain amount to take certain dosages. does any one know about this? should lower weights start even slower? im am a few pound below 100 and im thinking that might be why it hit so hard. considering its the weekend im not going to talk to my pdoc until maybe after my exam about stopping than restarting, but i do plan on restarting and giving it more time for the side effects to clear up
-- By sloans | Reply | Private Message me
May 24th
2008
4:06 AM
I have been on Lamictal and Topamax for approximately 4-5 years now. I also take effexor. I have a seizure disorder. At first everything was alright, however now I have been having double vision, staggering, memory loss that has occurred slowly within the last two years or so, and of course as with most meds the usual diarrhea or constipation. I wonder how long does it take being on medication for these side effects to kick in? I read all literature whenever I start a new medication even if it is a OTC drug. (over the counter). I just got out of the hospital and am being sent from one doc to another. I feel like a guinea pig in a lab! Please help!
-- By twtyfrk66 | Reply | (3) replies | Private Message me
April 29th
2008
12:15 PM
I HAVE BEEN ON THE LAMICTAL FOR 5 MONTHS NOW( FOR MINOR BI POLAR EPISODE). AT FIRST I FELT A LITTLE "SPACEY" AS I HAVE INCREASED MY DOSAGE EACH TIME I NOTICED VERY PAINFUL MENSTRUAL CRAMPS, WORSE PMS, EXTRA LONG MENSTRUATION CYCLE, JOINT PAIN IN THE HIP, FORGETTING EVERYTHING( LOSS OF SHORT TERM MEMORY), AND EXTREME TIREDNESS IN THE DAY AND NOT SLEEPING AT NIGHT. I HAD BEEN ON 75MG A DAY ( 2 IN AM, 1 IN PM) AND THEN UPPED MY DOSE TO 100MG(2 IN AM, 2 IN PM). THE SIDE EFFECTS ARE WORSENING, ESPECIALLY THE JOINT PAIN. I HAVE ALSO NOTICED PANIC ATTACKS AND IRRITABLENESS THAT I HADN'T HAD BEFORE. WORST OF ALL, IS THAT I HAVE GAINED ABOUT 27 LBS WHILE TAKING THIS MED. HAS ANYONE ELSE HAD ANY OF THESE SYMPTOMS? PLEASE REPLY TO TELL ME THE BEST REMEDY.
-- By babybee2002 | Reply | (4) replies | Private Message me
April 3th
2008
5:09 AM
lamictal controls seizures if you take it at the right time. i am on 200 at night and 200 in the morning plus epilim. sometimes i just sit and cry wen im trying to concentrate on reading books i have to study or trying to remember work i learnt at school which has left my brain. im failing school not matter how hard i try, i study all the time then the next day i have forgotten it. im so young and i havnt even started my future yet and i may have screwed it already. failing exams because i forgot wat i learnt the night before hurts so bad. its hard to say "hey everyone the reason i failed is because lamictal screws my memory" i know thats what it is. i was extremely intelligent before i started taking it, but now im a failure. i guess deep inside i know really im not a failure, but lamictal makes me one. : ( p.s add a constant hand tremor and sudden jerking movements every now and then.
-- By noddy123 | Reply | (7) replies | Private Message me
March 28th
2008
1:21 PM
I have been taking Lamictal for a few months now. I have horrible pains, tingles in my feet and legs. At times I feel like I am getting electric shocks in my feet. I started at low dosage of 25mg and now up to 175mg. I am taking this medication with Lexapro 10mg for depression and bipolar. I am also diabetic and thought maybe these pains are from neuropathy. I got tested for neuropathy and it was negative. I am not weening myself off of Lamictal and my leg pains are subsiding a bit. I now have a bad headache. My nose has been running to and I have bad waives of nausea throughout the whole time I am on this medication. I hope when I am fully weened off that this side effects will go away.
-- By dusti54 | Reply | (1) replies | Private Message me
March 24th
2008
1:27 PM
I built up to 150mg and was on it for 6 months. I couldn't feel a difference on the medication, but did experience the side effects mentioned above -- blurred vision (had lasik treatment and had to have one eye enhanced as my vision changed so much), dizziness, trouble falling and staying asleep (need to take a pill) and trouble formulating my words. I thought at 39 I was going through menopause. I took myself off of the Lamictal and Abilify last Monday - one week ago, and would really like to know how long these drugs stay in your system. Most recently, my teeth have started to hurt and I feel very shaky.
-- By dducrocq | Reply | Private Message me
March 16th
2008
11:26 AM
I started taking Lamictal about six weeks ago for epilepsy. Now keep in mind, I was on Dilantin which worked great for 17 years and then suddenly stopped working. I have been in medication hell since then. First Topamax made me dumb as a rock. I would space out all the time. Worst drug ever. Then Keppra which was better in that my memory/ability to speak came back but I had these intense ups and down. I had rages constantly. Now I'm on Lamictal. So far, it's better than the Topamax and the Keppra, however the dreams are very intense as are the night sweats. I'm also experiencing much hair loss. Fortunately I have a full head of hair but I'm afraid I will eventually lose it all.
-- By lintriago | Reply | (9) replies | Private Message me
March 12th
2008
12:51 AM
I CANT BELIEVE THIS! on *** i read good things about this medication. I've been on it for about 8 months. lately i have felt like crap and tired and cant sleep. i get paranoid I'm using too much cleaner in my bathroom and just many things. the last 4 or 5 days I've had muscle aches i thought was the flu and a horrible migraine. memory loss.. i feel foggy. i feel like i can contain my mood better but I'm wondering what to do.. when i forget to take it i get messed up but IT CAUSES memory loss WHICH causes u to forget to take it! i have bad anxiety and trouble sleeping. i feel even now. dude I'm confused at this very moment.
-- By melissa323 | Reply | Private Message me
February 28th
2008
12:38 PM
I haven't taken this drug yet I am about to go get it from the store and I do not know when to take this medication. Morning or night? I already have racing thoughts at night so I do not want to be more awake at night than I already am. I also suffer from a weight issue, is this medication going to help me loose or gain weight? I cant afford to gain a few, I can afford to loose a few. I also suffer from back pain now so I do not want that to increase. Anyone have any helpful tips for me?
-- By kiridiane | Reply | (4) replies | Private Message me
February 26th
2008
4:34 PM
I have been taking Lamictal for about 2 months now. Started at 25mg and now at 150mg. I also take 10mg Lexapro and 1 mg of Ativan daily. I was diagnosed with bipolar-2 about 3 months ago. I'm not sure if this is the right combo for me. Most of my problem is with severe irritability followed by moderate anxiety and mild depression. I have never had a Manic episode just Hypomania which the doctor said is my anger and Irritability. I have been on every SSRI (anti-depressant) for the last 12 years, which does help the depression, but it increases the anger and irritability. Another Dr told me I am not bipolar-2, I just have GAD (generalized anxiety disorder). Not sure what to do anymore, the Lamictal is giving me bad headaches and dizziness and nausea. So now I take Meclizine for the those symptoms. Is there just one pill to help all these symptoms? Has anyone had any luck with Buspar??
-- By 1hybernator | Reply | (3) replies | Private Message me
February 20th
2008
11:06 PM
This is a total nightmare and i need advice! I was on Lamictal for a year and about six months into my health began to slowly deteriorate. It started with shortness of breath and heart palpitations and eventually attacked every system of my body. My symptoms are muscle pain, spasms and knots to the point that i can't turn my neck sometimes, joint pain (mostly knees), stabbing floating pain everywhere, headaches, frightening tingling in my extremities and a few times my entire body, sore throat, flu-like feelings, stomach cramps, bloating and heartburn. The list goes on. I have been off of it now for two weeks. My psychiatrist has never seen this type of reaction before and is not convinced it is the Lamictal. I have been to every single type of doctor and the ER twice, had extensive lab work, CT scan and two MRIs. I have been off Lamictal now for two weeks and am not feeling much relief. I am so scared and frustrated and please need advice. Has anyone else experienced this? Does it ever go away? I feel like I am literally living a nightmare with no-one to turn to for advice because no-one seems to know ANYTHING!!!!
-- By humphrsa23 | Reply | (10) replies | Private Message me
February 11th
2008
6:51 PM
I am always tired and kinda shaky I cant figure out if its the Lamictal or Seroquel which ever I am stopping it when I find out what it is I cant handle the side effects I am very sensitive to the side effects of any meds.
-- By shady3685 | Reply | (2) replies | Private Message me
February 7th
2008
4:30 AM
I started taking Lamictal in September 07 for bipolar. Started with 25mg and now on 150 daily. I\ Since being on the medication, I feel like Ive lost my sense of self. I find it difficult to keep a conversation going and i lack creativity, I'm just not as witty and sharp as i used to be. I used to write and draw a lot but i have trouble creating inspiring works like i used to. I sleep away too much and have too many weird dreams.
I never really struggled with bad depression but have had some manic episodes. Lamictal has stabilized me, but i fear too much stabilizing. haven't had any manic episodes, but I feel my self and my life slipping away. Theres gotta b something better out there.
-- By calikid86 | Reply | Private Message me
January 27th
2008
1:00 AM
While I still have times of depression and the occasional bout of caffeine induced manic time- my life is livable and in control. A few occasions I have been without medication for 2-3 days and experience some pretty awful depression. It takes a few weeks before it evens out again. I live in fear during those times that the Lamictal (200 mg) will stop working for me and my life will return to its unpredictable hell. Antidepressants alone do not work for me. I have read that restarting Lamictal after being without it/completely off it has ineffective results. I believe Lamictal has given me my life. I read some of these entires and I am afraid for some of you- so many drugs and combinations.
-- By allisanne | Reply | Private Message me
January 5th
2008
10:31 PM
I have been experiencing a flu like symptom for over a year now. They started about 2 months after I began taking 350mg of lamictal a day. Symptoms include exhaustion, headache, soar/achy throat, post-nasal drip, TONS of nausea, lack of digestion & regurgitation of food. I am tired and feel warn out all the time... I have had everything checked by doctors and they've found no health reasons to explain these symptom's.
HAS ANYONE ELSE EXPERIENCED THIS????
-- By tsavin | Reply | (8) replies | Private Message me
December 26th
2007
12:15 AM
Been on it for almost 5 years, 400 mg a day. Don't know what the official word is on long-term use, but I have had the following problems: recent weight gain and long-term extreme exhaustion/fatigue. Although I haven't changed the dose in years, the fatigue seems to be getting worse. I am on other meds, so I don't know if it is for sure the Lamictal causing these effects, but there is a good chance. I'll see as I lower the dose, under doc supervision, of course. Take care, all.
-- By julesy | Reply | (2) replies | Private Message me
December 22th
2007
1:03 PM
I think a very, very important thing to keep in mind is how differently medications will work for different people. While it seems many of you have had horrible experiences with it, I surely don't think this is the case for everyone, including myself. I've been diagnosed with bipolar-II and have been on Lamictal for several months, currently at a dose of 150mg. I've found it had dramatically brought down my rapid cycling and decreased the severity of my depressive episodes. Though I still have mood swings, they are less frequent and less intense/disabling.
As far as side effects go, I've never been one to experience many side effects from any medication I've been on. With Lamictal I've begun having headaches and also difficulty with focus, concentration, and short term memory. I'm much more spacey than usual and often will get distracted while having a conversation with someone and forget what we were talking about. My psychiatrist believes these indicate ADD and has prescribed me Ritalin, which I refuse to take because I'm convinced that these problems are side effects of the Lamictal. I've experienced weight loss, but this also may be due to the 200mg Wellbutrin I am also taking.
Although I've experienced more side effects with Lamictal than any other drug, for me I'm willing to continue giving it a try because of its effect on my moods.
November 14th
2007
9:48 AM
I'm having serious side effects currently. The onset of the side effects began after taking Lamictal for over 2 months. I started slowly on 25 mg and gradually increased to 200. I felt a great improvement in Bipolar disorder-mood swings- at 100mg but was told that is not the theraputic dose, so we increased to 200mg.
I had no side effects until the rash began to appear. At first only on legs, then arms, then neck, then face...and surprisingly in private areas. Unbearable itching. Rash continued to rage even after a pack of steroids. Swelling became apparrent in face and entire body. Slight difficulty breathing. Went to the ER and received another dose of steroids intravenously. The rash continues to improve but is still extremely itch. The swelling improved for a couple of days but is back. Had one day of severe headache. It has been 14 days and today I am experiencing blurred vision in the left eye, and new swelling in the tongue.
I sit at home with an Epi Pen next to me waiting to hear back from the doctor.
All of this is so unfortunate because I felt more stable than I have in years while on the medication. I'm feeling very concerned about my continuing side effects. Don't know what to expect.
-- By unfortunate | Reply | (2) replies | Private Message me
October 30th
2007
12:23 PM
I have been on Lamictal for almost a year now and everything seemed to go okay until almost three weeks ago when I had to increase my dosage from 100 to 150mg and my Lexapro to 15mg. In the last couple of weeks, I have gained 7 pounds and I am really depressed. I have an eating disorder (bulimia) and because of this, I profusely purge my food in fear of gaining a dramatic amount of weight again. I am going to see my psychiatrist next week because all of this is going to cause me to crash.
-- By leaforever32 | Reply | (4) replies | Private Message me
October 22th
2007
6:29 AM
On October 5th 2007 I experienced auditory hallucinations but their different than the others. I hear my thoughts directly outside of my head and they repeat the thought continuously until another thought happens. Sometimes their are thoughts that I have previously thought of and they won't go away. It starts from the moment I wake up in the morning until I go to sleep in the evening. Sometimes they sing like a choir and sometimes they talk my thoughts. Children's, women, men, and one old man. Sometimes it's a mechanical voice. I started taking Lamicatal in August. I started with 25 mg. for two weeks. Then I increased it to 50mg for two weeks. Then I increased it to 75 mg for two weeks. Then I increased it to 100mg for two weeks. Then I increased it to 125mg and I took this for one week and that's when these auditory hallucinations got worse. Now I only take 50mg and the auditory hallucinations will not go away yet. Before I started taking Lamictal I was on Cymbalta 20mg. I needed to stop taking this medication as that it caused abdominal pains, severe headaches, nausea, I started hearing other peoples thoughts and conversations. I was only Cymbalta for one year. I never was able to hear peoples thoughts before taking Cymbalta and I never heard hallucinations before taking Lamictal. Years ago I was taking Paxil 20mg and this medication increased the abstract visual dreaming and the zoning out. The reason I started taking Lamicatal was that in the evening while I was sleeping I would sometimes get startled in the middle of the night with abstract visual dreaming and it hurt my head. Also I was zoning out occasionally during the day. Kind of like daydreaming but no visual dreams. Lamicatal did stop this but this side effect is driving me insane.
-- By doreilly | Reply | (2) replies | Private Message me
October 19th
2007
1:55 PM
I have never had any sid effects with this medication and have taken it for 3 year now. I guess that it depends on your chemistry that you have side effects, I go to thereapy for bipolar and there are some that have had effects and there are some that I havent. For those that have had side effects that are not serious, they will go away in a couple of days, but for those that have had serious effects should contact your dr. In order for it to work, or for any medication to work, you have to take it to get into your system, so I have nothing but postive things to say about it... there are somethings that you can not take with the lamictal which may increase side effects, for example you can not drink grape fruit juice, or orange juice , because it decreases the strengh of the medication..
I hope that those have stopped taking Lamictal ( which is a big no no anyway, and have been advised to ask your doctor to futher assist) that will give another try and take it longer than a couple of days.
Since i have been on it, I have had no problems with all of what bipolar traits are, there is a difference between bipolar and being depressed.
Flbipolarcub
-- By flbipolarcub | Reply | Private Message me
September 21th
2007
8:23 PM
I have been taking 200 mg of lamictal for about 3 years. I am on no other medication. I too have the dry hacking cough that never ever goes away. All day and all night. Dry hacking cough that sometimes leads to gagging. It is terrible. I have had chest xrays, breathing tests and no one can find a reason for the cough. It started about the same time I started this medication and I believe it is the cause. I also experience pain in muscles, it's a roving pain that seems to show up in different places daily, sometimes muscle spasms. My stomach is always nauseated. Very little short term memory, runny nose all the time, constant feeling of having a cold, blurry vision, sensitive to light, little red bumps that appear on my skin, itch, then when they disappear, a scar is left like a cigarette burn. I am reducing the amount of lamictal I take as of this week. I am now only taking 175 mg and will for another week then go down to 150 mg. I am hoping some of these side effects will go away, if not I have to get off of it altogether. It's funny, because I didn't have all these side effects when I first started taking it. Seems the longer I take it the worse it gets. Just can't handle it anymore. wf
-- By wfount | Reply | (2) replies | Private Message me
September 18th
2007
12:24 PM
I have experienced a lot of weight gain since I started taking Lamictal a year-and-a-half ago. I'm glad I hear others have experienced the same thing, as I thought it was just from what I was eating. I have gained over 40 pounds since I started taking the medication.
I also understand that Zoloft (which I take as well), alone or in combination with other meds, can can cause you to sweat a lot. I have been sweating way more than normal in the last year (since I started the Zoloft). I thought it was due to the weight gain, but apparently it's the meds.
Oh, the joys of brain medicine!
-- By jukaswo | Reply | Private Message me
August 21th
2007
9:26 AM
I have been prescribed Lamictal for seizures, and am currently taking 400mg daily, with my 300mg of Dilantin. Had horrible side effects this weekend-nightmares, exhausted, worsening depression, crying jags, difficulty swallowing. Has anyone else experienced mood changes for the worse while on this drug?
-- By gusgus | Reply | (6) replies | Private Message me
August 21th
2007
7:41 AM
I was on Lamictal 125MG at night for PTSD and anxiety for over 4 years - it took over 6 weeks to come off of it and it was very difficult - I felt sick most of the time - nauseaus, dizzy, migraine, tired, joint pain, anxious, mood swings. I have been off of it for 2 weeks now and I am still having headaches, dizziness, tired all the time, horrible dreams, difficulty sleeping and I wake up in the middle of the night gasping for air with out of control heart palpatations. I have not had night terrors in years. Is this a side effect of coming off of the medication? I learned in my research that this had not been FDA approved until I had been taking it for quite some time - is that ethical medical practice?
-- By tdg | Reply | Private Message me
August 13th
2007
11:42 AM
Started Lamictal after a suicide attempt. Thinking this drug would help, I took the medication with anticipation. I have been taking it for 2 1/2 years, and starting having night terrors, weight gain, exhaustion, don't have the drive I used to, and now it is affecting my sexual behavior (and not in a good way). I used to come home from work, and want to work in my yard and be proud of what I accomplished. However, within the past 3 or so months, I've almost given up. Beings I'm best known for my ambition, and attention to details, (probably on the anal side) I have been told that I have changed. I have had memory laps, trouble focusing at work, feeling as though I am inferior to others, and trouble with the driving aspect also. Sometimes I'll forget where I'm going, and take the exact opposite turns than I should. Although my income just meets my billings, and my credit score is excellent, I am having trouble keeping track of when they should be paid, even though I put them on my calendar. I do find my credit score is falling, and fast. I am seeing my MD, and the psycho-therapist on a regular basis. I am weaning off this medication, but have only been doing this for 1 week. I can't wait til the end of all this depression and still don't understand why they mark me as a bio-polar person. Also, I have never experienced seizures. I wish all of us luck and patience in our endeavors. Let's all think of each other, and thanks for letting me know that I am not alone.
-- By itzmeee2003 | Reply | (2) replies | Private Message me
July 30th
2007
7:50 AM
Started Lamictal for Bi-polar II after two weeks of taking low dose, I felt so much better and focused. Then I got a sore on left side bottom tounge then an inner ear infection, and left side swollen glands under my jaw and on my shoulder blade. I went to a Dr. and she said no rash keep on medication. I have always been really healthy. I've never had these reactions ever to anything else I have teken over the years.
I also take Clozapan 0.05. This helps to calm me instantly.
I am going to continue for now, because I feel better in my mind.
-- By lu2 | Reply | Private Message me
July 19th
2007
6:49 PM
Took mostly for seizures, but have been informally diagnosed with Bipolar II.
Had tremors at night, almost immediately, marked anxiety, weight loss, strange heat flashes, severe headaches (already have a migraine problem), complete w olfactory hallucinations (could have been breakthrough simple seizures, or headache auras).
Felt detached from myself and others. But the most disturbing symptom of all was auditory hallucinations. I have no history of psychosis and this only happened after starting Lamictal. Basically I could hear a constant chirping sound, subtle, but loud enough at night to keep me from sleeping unless my radio was playing to distract me from the sound. Could it have been a new form of seizure? Maybe, but regardless, the sounds started at the time I started this drug. Plus, according to a psychiatrist, I had no signs of psychosis, just the unexplained phantom sounds. One last possibility: Maybe an inner ear problem. Still would like to look into that.
People are right when they say this is still an experimental drug. If I had known what I was getting myself into, I never would have tried this drug to begin with. If any of you have had auditory hallucinations on this drug, without a history of any sort of hallucination or psychosis, PLEASE respond here and let me know about your experience. Thanks!
-- By drugsensible | Reply | (4) replies | Private Message me
July 11th
2007
5:43 AM
I began Lamictal in Jan 07. About a week after I began it I noticed excess production of phlegm. I mean crazy phlegm production to the point I needed to spit every few minutes. I also noticed that I began to have difficulty breathing at times. I had no rash.
In February I developed a fever, chills, shortness of breath, severe fatigue and severe leg cramping in both legs. I thought I was having a heart attack it was so bad. I went off the drug and the symptoms subsided however now I am severely fatigued at times and my breathing is still not quite the same as it was prior to the medication.
May 3th
2007
10:28 AM
I'm starting to see small itchy patches of skin in random places on my arms, and even above my eye. I have only taken lamictal since Feb. and on a low dose i experienced no problems it is the first medication that has ever worked for me, I'm Bi-Polar II. Once they stepped me up to 200 mg i got really sick and started to develope the rash...Does that mean i have to stop taking it? I'm really confused.
-- By kittykatknj | Reply | (3) replies | Private Message me
April 27th
2007
9:09 PM
This may sound a little strange ... I was prescribed Lamictal off label for OCD. A lot of my obsessive-compulsive behavior is related to an insatiable need for male attention, in addition to an overwhelming need to check and fix my apperances - what my doctor calls BDD (Body Dismorphic Disorder, which is closly related to OCD). I started taking 50 mg of Lamictal, and after several months, ended up at 250 mg. My behavior didn't really seem to change and I didn't feel any side effects ... well, for the most part. I have taken SO many different kinds of medications for depression, OCD and social anxiety, and they have ALL had some side effect or another than made it impossible for me to continue taking the drug, no matter what the upside was. Dizziness, nausea, blurry vision, sexual side effects, memory loss, headaches, etc. You name the side effect, I've experienced it, but NOT from Lamictal. The only side effect I had from Lamictal wasn't really a "normal" side effect. It was fitting to my situation and my initial need for the drug. After being on Lamictal for a while, I felt nothing different in myself - no aching, nausea, vision issues, or forgetfulness ... just an extremely weak libido. And, I'm not talking about the sexual side effects that normally come along with taking certain medications. Where you just completely lose you sex drive, and the idea of sex ends up being totally disgusting to you. I didn't lose my sex drive - I just lost all my flirty, provocative, sexy, cheeky behavior. I use to want to take sexy pictures of myself for my boyfriend and things like that, and it all completely went away. I don't know if Lamictal is supposed to have sexual side effects - I don't think it is - but this was my experience with it. I want to continue taking Lamictal because it does curb some of my behavior that normally ends up putting me in danger and getting me in trouble, but I truly feel like a huge part of me is dead inside. I feel that my sexuality is a big part of who I am, whether I like it or not, and I miss it. I'm probably going to stop taking the medication JUST b/c I miss that certain part of myself. I would, however, recommend Lamictal to anyone with OCD who wants to try and control certain obsessive behavior. It seems to do the trick
-- By muddy81 | Reply | (1) replies | Private Message me
November 1th
2006
1:26 PM
my baby is on lamictal and his cheeks are red and he had troble sleeping please advice
-- By shenaza | Reply | (1) replies | Private Message me
October 31th
2006
7:18 PM
Lamictal is not bad for everyone. I was taking it for 6 years at a doseage of 50ml per day with absolutely no side effects at all. I started reducing the doseage to 25ml per day and then every second day as decided to give medication away (for epilepsy) as have had no episodes for 5 years. Been a bit dizzy and think it may be because of quitting the meds. Anyone else had this ?
-- By sue573 | Reply | Private Message me
May 6th
2006
8:54 PM
This was a curse for me.
I'm a sharp person with perfect coordination and a quick mind, and this medication reduced me to a slow, clumbsy, stumbling, muttering moron. I've walked right into walls, given up on talking because my words always came out slurred, and I never made too much sense because I didn't use the words in their context.
I ALSO had a sore throat, runny nose, rashes to no end, fever, chills, I wouls sweat like I've never seen before... I'd wake up in a literal pool of my own sweat... dizzy, MIGRANES... oh the headahces I had...
And, I'm not sure if it's just my mind playing tricks on me, but I swear my tourettes became about 10 times worst on this stuff.
-- By intoxart | Reply | Private Message me
October 30th
2008
5:41 PM
well i have no sexual desire and it is really hard for me to climax which sucks since im only 19 and i have been with my boyfriend for 4 yrs. he is so good to me and is really understanding. i am going to my doctor tomorrow to try something different ... i am only slightly depressed so this is completely not worth it .. it is really taking a toll on me and our sexual relationship. also i feel that with lamictal i am at such a constant experiencing euphoria is almost impossible. i just cant do it anymore ... it is more depressing then how i actually felt depressive wise before i took this medication. and let me tell u i have been on this for a while and it seems that the lack of desire seems to get worse everyday
-- By buddy5 | Reply | Private Message me