Lamictal and medication

MAJOR loss of short-term memory and inability to concentrate.

I have been on Lamictal (for bipolar tendencies) for 3 or 4 years now. Overall it has been really great for me -- really calmed me and leveled me out like no other medication has.

Except that it has made me embarrassingly dumb. I have a graduate degree in electrical engineering, which is pretty worthless at this point because I cannot add two simple numbers in my head. My grammar and spelling skills have taken a nosedive. I took a grammar refresher class to try to boost it again, but I couldn't concentrate and can't remember what I learned. And even worse, sometimes I can't remember basic things like which way to flip the turn signal lever to signal left or right when I am driving.

I went up to 350 mg and it worked great (for the bipolar), but I could barely function at my job. So I've lowered it slowly to 150. My brain works a bit better, but still not well. Today in a meeting I was explaining something important and realized a couple minutes later that I was totally wrong -- I'd remembered incorrectly. So I had to interject later and explain that I'd been wrong. Things like this are very embarrassing and ruin my credibility at work.

But as I said the Lamictal has been amazing in other aspects. Ultimately I don't know if trading my brain for that is worth it, but for now it is because no other medication has worked. I worry though that even if I stop it in the future, my brain may not be able to recover, from lack of use.

Thank you all for your information. I am relieved to know I am not alone.

i have a friend who went after her husband in a ctalsudden rage after starting the Lamital, she loss huge amounts of hair and it conytinues to fall out , was put out of her house,broke up her family and is a complete mess. She was on adderall, suboxone and the n the dr gave her this,i was trying to figure out what was going on with her and i looked up the newest of her drugs lamital and found out what was going on . Mt advice to all you bipolar people find GOD no one is ever happy all the time and we all go through really hard times . I am sober and take nothing for the last 20 yrs. When i first got sober doctor tried to tell me to take antidepressant, I said ," the difference between us is when all else fails i go to GOD and you go to meds"" YOU wont break. We live in a society run by drug companies that you are not allowed to have emotion, they flat line everyone.and when it doesn't work they give you more drugs till you are a blob of a person. Get off everything{ except if you need it for ceisures } It could take a yr to completely detox, be patient and go to na meetings

I have been reading these posts for awhile now and am so glad to have found them.
I am a 25yr female with epilepsy and have been on lamictal for the past 4yrs. I changed from epilim because I was getting married and heard that lamictal was safer in case of pregnancy. Not long after I found myself getting very angry over small things and not being able to sleep. I thought this was just me so I tried to get myself together. It went on for some time before I gave up and got help. I was diagnosed with depression and given fluoxetine. This helped me get back on my feet but I did not want to be on it long term and have been of the fluoxetine 2yrs. I still struggle with my mood but is manageable which I am happy for.
I did not realize that the headaches and the memory loss I had were from the lamictal until I found this forum then it all made sense. I had always thought that I was staying up too late and hence getting headaches. As for the memory I often feel like a blithering idiot. Cant remember words and often the wrong ones come out its so embarrassing. So often I feel like I'm in a daze and life is passing me by.
After all this said I have not heard of any other drug that would be any better. I have found comfort in knowing that I am not alone in this. There are a lot of people that do not understand the effects of medication or take it seriously when I try to explain. If there is anyone out there that is keen to chat about epilepsy or lamictal I would love to talk.

I am on 75mg in the morning and 50mg in the evening (125mg/day total), for my seizure disorder. If I could get off of it I would because I know how bad psychiatric drugs are. I used to be on various antidepressants for about 4 or so years, until I learned that "mood disorders" are all a crock, and drug companies are making a killing off of all the psychiatric drugs. Did you know that it has never been proven that depression or bipolar or whatever is caused by chemical imbalances?? It has been proven, however, that psychiatric drugs mess up the brain. Do some research on this. Go to the sight ****** I am so thankful I am off antidepressants but my life will never be as good as it was before I ever put the first one in my mouth. I would encourage everybody who has been diagnosed with "bipolar" to slowly and gradually withdraw from your medication and don't give up until 6 months have past. It takes a very long time for the drugs to get out of your system and you will feel like you are going through hell as you withdraw but in the end it is all worth it. Back to the Lamictal, I have now been on it for about 4 years. It does not control my myoclonic jerks completely (I have Juvenile Myoclonic Epilepsy) but controls my grand mal seizures as long as I take care of myself. I have pretty much no side effects, except for possibly poor memory/forgetfullness/can't find the word I'm looking for/etc, and possibly some slight "ocd" tendencies. It is hard to distinguish from the leftover effects of being on antidepressants (which caused me a lot of anxiety, panic attacks, depression, etc), because I do have some mild anxiety left over from them, but has drastically improved. The man problem I am suffering now from the Lamictal is feeling the effects of it wearing off in the evenings. In the last few months I have been feeling that feeling on and off throughout the whole day!! And my myoclonic jerks are increasing. I really don't want to go up on my dosage due to the brain damage psychiatric drugs cause and all the bad side effects I could experience, but neither do I want to change medications because I am at a very stressful time in my life where I am already going through a lot of changes. No idea what to do. Just wish that God would heal me of my seizure disorder!!! (it is a kind I am told I will never grow out of) Even if I had to go through the withdrawal from the Lamictal it would be worth it! If only...

I too have memory loss. It is humiliating not to recall events with friends and family and people I have been introduced to. I cannot conversations, movies and names of bands. I am 43 and have been taking this drug for seizures. The seizure disorder is gone due to the drug. I have gained weight, awaken with a severe headache on several occasions behind my right eye, feel tired and dizzy after an hour of taking the drug and blurred vision. I thought it was early onset of Alzheimer ( i forget how to spell it though I am in the medical field). My generalized Doctor and my Neurologist say this is not from the medication but from age and normal. The quality of life is not as I would like. I feel like I am missing out on my own life. Thank God I came across this blog! I have been researching this drug on the net and NOWHERE does it state this as a side effect. This is the only med I take.

Lamictal with lithium was the latest sentence for a lifetime of depression. Not only did the depression then intensify over anything I've dealt with for the last 40 years, but anger, rage, weight gain, memory loss, difficulty communicating, (could this be dementia at 60 yrs?) and loss of taste especially coffee and chocolate were now defining my life. I had been a happy, productive, exciting, witty, professional self-employed woman. So, I've been reducing my 250 mg dosage for the last 6 weeks with Dr. oversight. My last dose of 25 mg was last Wednesday. Throughout this experience, I've experienced confusion, head aches, zombie days, spatial disorientation, muscle weakness, muscle spasms, jumbled speech and thinking, and THE FOG. But, guess what? Today, I'M BACK. My head is clear, I have a plan for the day and I'm 4 pounds lighter than I was last Thursday. The surprise about the weight is that we went to dinner in restaurants twice in this last week and I haven't taken any special steps to lose the pounds. I knew it was time to evaluate myself without medication when the Dr. wanted to add just one more medication to level off the mood swings. Of course, this is a continuing drama, but it's great to be able to see me without the drug-colored lenses. I would not have done this without Dr. supervision, and I'm so glad he co-operated with my wishes. Sometimes you just have to throw the project away and start fresh. Have a beautiful day.

My 8yr old son just started Lamictal five days ago, yesterday he started having severe muscle/leg pains..What do I do?

Hello. I just finished the one month starter pack of Lamictal for depression. I've been noticing some strange things going on with me lately but did not make the connection to the Lamictal until I spoke with my pharmacist (while picking up my official prescription). Mainly the info warned of dizziness, sleeping issues, heart racing and sinus issues. I have had ALL of these. Two weeks into taking the medication I can't sleep well at night. I wake up and my heart is racing. I have to go watch TV to settle down. Plus, I'm extremely EXHAUSTED all day. And finally, the worst symptom is my sinus issues. I have constant mucous in my throat and pressure in my sinuses. I have the worst headaches. I'm popping Advil to deal with my sinus pressure. It's agony. Plus, I'm not motivated and I think I'm a little depressed. I'm going to discuss getting off this medication with my doctor tomorrow.

I was prescribed Lamictal around this time two years ago (July '07) for Borderline Personality Disorder. At first I thought it was great and I felt like it'd been a miracle drug -- the drive back home from the psychiatrist's office that day was such a feeling of relief because I was going to get my miracle drug, finally. Later the next month I moved away from home and began college in the lower half of the state and stopped taking the medication because I noticed that I feeling any difference, or experiencing any change in my moods. Infact, I felt exactly the same as I had before. I looked up the medicine derivative drug and found out that it has a "placebo-like effect with highly addictive qualities".... which made me think that once again, my problem is all in my head. I still feel like I need to be on some kind of medication, but I am not willing to part entirely with my authentic self just to make some other people's lives easier. If they think my mood swings and attempts at self-destruction effect them negatively, just wait until you are the one having them and you can't control them! I don't want to become a zombie, I don't want to lose my hair, and I don't want to gain 30 lbs, but I feel like there's nothing else I can do. But then again, there doesn't seem to be any drug that can help without the drastic side-effects.

Sheesh.

I have taken Lamictal for about three years since I was 19. I feel like I'm experiencing the memory loss of a 60- or 70-year-old. I've always been quick and witty with impeccable grammar and spelling. These days, I struggle to remember words and their meanings, spellings and pronunciations.

I can't remember conversations I had with people half an hour before or items on my to-do list. I MUST write everything down. Sometimes, if it's in my planner, I still don't remember to do it.

It has affected me in my college classes, on the job and in my relationships. I hate the feeling that I'm less intelligent and quick as I used to be when I'm just 22. My short-term memory is shot.

Along with memory loss, I struggle to focus (always have been a straight-A student), follow conversations and often feel confused and need people to restate their thoughts so I can understand.

It's just so embarrassing to be so spacey. I didn't put it together until my sister (also on lamictal) told me about the memory loss and it clicked. At least there's a reason for my new-found stupidity.

Thanks for telling me doctor. Oh wait, she didn't.

I have been taking Lamictal for just three weeks. The most troublesome side effect for me has been nasal congestion and the inability to smell or taste anything. Has anyone experienced this and found relief after reaching the maintenance dose after the starter pack?
Is there anyone who has found relief from this in any way? I'm not sure I can tolerate not being able to breathe and am hoping that it goes away soon.

I feel somewhat reassured that it's a possibility that my memory loss is a side effect of lamictal. I was diagnosed with BP I and the medication has done wonders. I still get very depressed sometimes, but not as severe as it was without the med. I experience(d) rapid-cycling which I was told is less common for this disorder.
My short-term memory is horrible. Sometimes have trouble remembering conversations and even things that happened a short time ago. For example, I recently played a few games of pool with my son and on our way home, I couldn't recall whether or not I won any of the 3 games. It's pretty embarrassing and scary when someone "catches" you or notices that you have completely blanked. I have to write things down if I want to discuss them with my therapist, because I won't remember what my issues were within the last week or two. Sometimes, when someone asks me if I remember something, I act like I do, because I probably should remember it. Again, I feel like an idiot because I don't. At work, it's not too much of a problem, because I insist that everyone sends me a reminder email, so I have a task list to work from instead of recalling things from memory. I also get completely lost in my train of thought during conversations. I tend to go off in tangents and completely forget what point I was trying to make.
I also have trouble focusing and my mind is always because obsessing over some thought, usually something negative. I feel like I waste a lot of time doing unproductive thinking. I'm not sure if this is a symptom of the disorder of not.

I was diagnosed as having Bipolar Disorder/with severe panic and anxiety disorder in 2000. I had been sick realistically since I was around 11 years old. Suicidal thoughts, and uncontrollable mood swings. I have been on Lamictal (200-400mg) per day along with Klonopon for my panic disorder, since 2001. I do experience a slight memory loss from time to time, but feel that it is not the medicine but that sometimes I am not really focused on the conversation, or my environment. I have also experienced very vivid dreams, sometimes nightmares that are overwhelming. But I think it is cool that I can remember my dreams now, because sometimes they are worth remembering. I would never consider going off of the medication, for it has saved my life. I am a completely different person now. I am very happy. I do experience sleepiness a few hours after taking Lamictal, but if I take it at around 3pm, by the time I get off work at 5, I am not tired yet and have no problems driving. Some of you should try this method. I think a lot of other side effects are just in people's heads.

Hi, I have been reading all the postings and my heart goes out to everyone. I been there, done that. Myself, I have a seizure disorder and been on Lamictal since 2003 (I can't recall/remember) - I had tried 5 other seizure meds that didn't work for me. For quite a while now I take 600mg a day and Keppra 250mg to control my seizures. I lost my driver's license twice so far (I know that is the rule in CA) , and once not long ago (I got my license back) I got totally lost in my town, which I used to know like the back of my hand. I thought I had lost my mind. I asked my doc if I was getting demenia and he said oh no you are too young (53). I have also learned doctor's (for the most part) are idiots too. They don't think outside the box for us. I can't spell anymore, get depressed easily. I really want to work, but I can't. I have tried time and time again, but (yesterday) it just about did me in...people explained to me how to do things on the job many many times but I couldn't retain any thing. People just looked at me as if to say what planet did you come from. I cried on the job so hard I wanted to disappear. I am so sick of my family saying "I know you can't - don't remember this or that..... I can hardly bare that. Now I have a potential kidney problem. Suppose it is from these meds? I am really scared.

"Bipolar cocktail" is an excellent way to articulate my medication regimen as well lol. I've been on Wellbutrin for about 8 years, and recently increased my dosage of Lamictal dramatically. (I'm on Lexapro too, but I don't think it's relevant to this situation.) Immediately after the increase in dosage, I started having greater difficulty with my cognitive abilities, a whole lot of trouble speaking (that pulling the word out of my head issue), short-term memory worsened beyond the little ability I had left from the rest of the side effects of my other medications, and other examples of brain mushiness :) Anyway, I recently brought this up to my doctor- she said these symptoms sound more like side-effects of Wellbutrin, and Lamictal is supposed to have few to none except a rash. But I haven't had a change in my Wellbutrin dosage in something like 5 years. Has anyone heard anything similar to this from their doctor? It doesn't make as much sense to me as it being a side-effect of Lamictal does...

"Bipolar cocktail" is an excellent way to articulate my medication regimen as well lol. I've been on Wellbutrin for about 8 years, and recently increased my dosage of Lamictal dramatically. (I'm on Lexapro too, but I don't think it's relevant to this situation.) Immediately after the increase in dosage, I started having greater difficulty with my cognitive abilities, a whole lot of trouble speaking (that pulling the word out of my head issue), short-term memory worsened beyond the little ability I had left from the rest of the side effects of my other medications, and other examples of brain mushiness :)

Anyway, I recently brought this up to my doctor- she said these symptoms sound more like side-effects of Wellbutrin, and Lamictal is supposed to have few to none except a rash. But I haven't had a change in my Wellbutrin dosage in something like 5 years. Has anyone heard anything similar to this from their doctor? It doesn't make as much sense to me as it being a side-effect of Lamictal does...

As with others on this forum, memory loss is a side effect I'm experiencing with Lamictal. In fact, it's THE only side effect. I began taking Lamictal three years ago, and have maintained a dose of 300 mg a day. My short-term memory is practically non-existent. I have to write EVERYTHING down, and sometimes that isn't even enough. I've been known to forget what I've read only minutes before. I used to pride myself on my impeccable spelling, and now I'd say I'm at a fifth-grade level. In fact, I feel like I'm about ten years old. I've been taken to task over and over by employers who are frustrated with my poor performance. I've lost one job and due to lose another any day. Sure, my mood is stabilized, but for what good if I can't even support myself? I would definitely go off this medication if there was a good chance I would get my memory back, but I haven't come across anything in my internet travels that indicate this is a possibility!

I was diagnosed with peti-mal epilepsy aprox 17 years ago. I tried many different anti epileptic drugs and had many negative side effects from teeth problems to depression and none of which controlled my seizures. 12 years ago I went on lamictal (600 mg a day) and I haven't looked back, I feel I have my miracle. So far I have no side effects, am completely seizure free and I have a life. BEFORE lamictal some side effects were poor concentration ( when reading a book I could not remember what was written on the top of the page by the time I got to the bottom), little co-ordination with sports (most times I could not catch a ball when thrown to me, this caused a lot of social problems), forgetfulness and I was quite clumsy. I hope you all can one day find a medication that works just as well for you or even better a cure. My heart goes out to you all.

I am on this medication for seizures. Besides all the other side effects being posted (typing, speech, spelling, forgetfulness, etc), I have EXTREME daytime sleepiness. To the point that I will not/cannot drive and have to stay where I'm at until I "wake up". I have been off work for 5 months, but had to go back for financial reasons. I work partial days and go home and take a nap, which the neurologist prefers I don't. Anyone experiencing daytime sleepiness (disorders)??? Thanks

hi i have posted before you i have been through all you said what to do then there are some positive points r there this tab lamictal generally suits the people who does not react to other med as vaporate ,carbamazine,lithium it works differently from other tabes i think people say that while you take a medication there are side effects and there r problem so with every every thing you put into your stomach why you eat food it is because it is necessary to keep you alive wee r leaving in science age people in the past the people who use to have symptoms like bipolar disorder and schrizophenia use to either suicide or where burned to death thinking they r wiked thingk even positive side of this and friend look at each problem separately don't mix them and try to find answer increase your reading learn more about this disease read self help books and eat the tabes you need to eatwe r not wrong people just taking this tablets to feel well but normal people to live normally live life and enjoy it fully ............i have acne problem thinking of using accutane i hope it will work

Reading over some of these posts and wanted to share my experience w/Lamictal. Been on it over 2 year, 400mg/day. Sever bipolar with mixed & rapid cycling episodes. Oh YEA...I have side effects too: blurred vision that comes and goes, super klutziness, confusion, hard to complete sentences sometimes (just can't find the words sometimes for the simplest sentence!), dizziness, prone to broken blood vessels under the skin when bump into something or carry loaded grocery bag over my arm, jittery, short term memory loss, feeling really stupid like my brain isn't working sometimes. BUT...I will stay on this med because it rally works for me and the above effects are and bad, just frustrating. It took me a good 5-6 months for the meds to work as they should. Be aware that it won't make things perfect, mood swings and even moderate episodes can be expected. I am pretty much in a constant state of mild/moderate mania (2 hr sleep/night, hi energy, talk to fast, mind racing,etc), which is fine for me, as it really curbed the depression (maybe only 1 day every 2 months now and its NOT a BAD downer) I have found the drug is a good "stabilizer" keeping me mostly in a normal to moderate swing...never any severe swing. If the side effects are not unbearable, stick with the med, just be patient. It sure works for me. Learn to laugh at the klutziness and stupid moments and understand its the med and you. GOOD LUCK TO YOU ALL!

I have been on Lamictal now for almost 3 months for bipolar. I'm still not sure if it is helping or not. My husband says I seem better, but I feel almost the same as before if not worse. Has anyone noticed any major changes in their menstrual cycle? I'm on the pill and it would usually last 4-5 days with moderate bleeding. Now I get more annoying cramps than before but my period only lasted 2 days and it was more like spotting than a period. This makes me nervous, but my doctor said that it is more likely the risperdal that I had taken for a month when I also started taking the lamictal, but I don't agree. I recently went up to 200mg (1 morning, 1night). The morning one knocks me out but the night one has been keeping up!? I also feel less coordinated (hard to balance, knocking stuff down, klutzy). Also, it has been hard to put words together and recall correct information. Now I have to say" I think I heard or I think I remember". If I really need to remember something I have repeat it or really concentrate on the information. I used to not have to do that. Another thing I've noticed lately is hand and knee pain. Makes it difficult exercise to lose the 20 lbs I've gained. I don't know, personally I think I will give it one more month and if I still feel the same, I'm going off of it and looking into natural alternatives.

Well on 2-15-09 my sister in law died just shy of turning 39. She had severe depression, As of three years ago she began starving herself. She would go weeks without eating or drinking anything. She was in and out of the hospital through out the years. She started taking Lamictal six days prior to 2-15-09. The Dr. said she had made a mistake and wrote 100mg where it should had been 25mg. The doctor's later stated it didn't matter if they wrote 1mg it would have happened eventually.

Now we had called her on her birthday three days prior to 2-15-09, and she said the medication made her feel weird. That night she fell to sleep and did not wake up but for only a brief minute in the hospital. After being asleep for a day she was rushed to the hospital were a battery of test were run. She had begun to have liver failure and sepsis. The doctor's had her airlifted to a hospital four hours away where liver specialist were available. She arrived there and withing a few hours her lungs collapsed, her kidneys began to fail, and she had two heart attacks where she finally died at 11:10 pm on 2-15-09.

So I am here to make you aware. This is the side affect no one has talked about yet. Now she had no rash. She had weekend her system by not eating. Other than her depression she was OK. The doctor's don't know if she had an allergic reaction or not. The autopsy will be arrive in 40 days. With just some fatigue and weird feelings she continued to take the medication for the six days. I read on and on and I see so many symptoms, this would be a great time to evaluate with a profession because lets face it we really don't know the long term affects. It could be doing damage to your internal organs, or not. I feel if your body is showing you signs that are not normal than it is a good indication that your body is telling you that is cant tolerating it to well. So at least your getting the signs you might want to see what else is out there. As God is my witness we wanted her healthy and to not suffer so I really do have only good intentions for you all.

The funeral is today.

It is hard to tell what side effects come from which med but after reading other peoples experiences I think that its easier to put my finger on. I have been taking Lamictal and Lexapro since last spring/summer. I started to feel a lot better as soon as I started the Lamictal. I have a history of being severely depressed all the time. It has been a long road in search of the correct combo of meds. We added Lexapro and I got even better. I was on Wellbutrin and Topamax before this and it was too much drugs in my system causing loads of anxiety. I heard Topamax makes you Dopey so I was happy to get off that. I don't notice Lamictal doing the same thing. I think clearly now, but I do have trouble crying - which is fine with me. I am so sick of fucking crying everyday. Aren't you??? The whole point of treatment is to increase the quality of life and These drugs have definitely helped me to be happy which is all I care about. However, I do still wonder what I would feel like without them. It is tempting to stop once you feel this good. Why cant i just be able to feel this good naturally. WHY WHY WHY .

I have been on lamictal for a year & it has been the best. However I feel like I'm stupid on it. I took some a semester off of college & when I returned I was not the same. I feel like a dumb idiot. I have always been great at math & now I cannot catch on. Now what used to take me approx 2-3 hours to read a chapter in a school book, it is taking me around 8-10 hours. I accidentally forgot to take my meds last night & I was able to focus & understand my readings. I read my chapter in 2 hrs. I took it a few hrs ago & have been reading the same page for the past 2 hrs. Does anyone else have this problem?

45 years old, female, diagnosed bipolar II in 2006. On Lamictal for 2 years. Initially, very positive effects of Lamictal - felt "normal" and stable for the first time in years. Didn't notice any side effects. Gradually increased from 200 to 400 mg per day 6 months ago as I still experienced mood swings with a tendency towards depression. I have been on 400 mg/day since August 2008. It is difficult to say what are the side effects of the medication, and what are "natural causes". Since doubling the dosage, I experience memory loss and increasing cognitive problems (slow thought process, difficulty putting together coherent sentences in discussions, fumbling for words. I have spent more than one hour on this posting!). I sometimes wake up during the night drenched in sweat. It could be that I'm menopausal, but I find it unlikely. Mood swings have perhaps become less pronounced, but I would like to regain my mental capacity. I plan to cut back to 200 mg of Lamictal - and perhaps some day learn to live with bilpolar II without medication and a lot of help from my friends and loved ones.

I have taken Lamictal for 2 years now, I increased my dose a few months ago. It curbed my rage issues, and continued to stabilize my mood swings.I have had the side effects of some memory loss, problems recalling things in the past, minor things, like what happened in movies I may have seen in earlier months. I have hair loss, more than usual when not on the drug. I have definite speech issues, I can never relay what I am trying to say. I feel stupid. I am consulting another psychiatrist to discuss the side effects. I really don't like not being able to remember things as much as I did before I took this drug. I really, really don't like the lack of the ability to speak fluently or even to get the words out. It is embarrassing, it makes me look almost like I have a mental retardation. It sucks. I also am disappointed that my spouse seems to think all "our" issues are because of my mood disorder and if I somehow when I disagree with him and want to address these issues, then my medication is not working. I know if I am raging more or if I have an increase in anger, then I need to go on higher meds or change meds. But, as my psychiatrist said to me, not all my issues in life are all my fault.
Generally, lamictal is working, but I would like to have a greater memory recall and I would definitely like my speech problems to be resolved and it sure would be nice if my hair would become thick again.Also, I have some twitching problems occasionally, it is annoying too. I still have racing thoughts and panic attacks too, it has not changed those issues. Oh, and another side effect is headaches in the back of my neck at the top where my head meets the spine, they are annoying and if I take ibuprofen, I get even more stupid and spacey, almost like I am checked out. My older kids notice more than my spouse does. My older kids also let me know when I am raging more, in a better way than my spouse does. My advice, let those whom you can trust be the one's who give you feedback on how you are doing, rather than someone who doesn't want to take ownership for their own issues, that way you can truly trust if the med's are working or if they are at the right dose. This along with your psychiatrist's help and help from family and your own assessment will keep you on the right track.

I have been taking Lamictal for 8 years for the clinical diagnosis 'double depression.' I now have no depression so for me this medication as been a miracle.

I take 100 mg at bedtime. I have very vivid dreams every night which I do remember upon waking. Whatever I am thinking about or watching on TV seems to be the theme of my dreams so I have stopped watching frightening movies or television.

I also experience balance problems, I have difficulty reading out loud, and thinking of words when I am having a conversation. My cognitive problems are not with thinking but rather verbal expression. I have a lot of problems with three dimensional thinking, as in reading blueprints.

I suppose as my doctor suggested you have to decide if the quality of life is improved weighed against the side effects. As my doctor said "you'll have to decide whether you want to be depressed or clumsy." This is a no brainer for me after many years of depression.

My son who is just 17 has been on the drug for just a week and the very first day he was on it he experienced severe back pain. He was not able to stand up. It got worse, he felt as though he had to eat continuously or he would vomit, the more he ate the more nauseous he became. This is not somatic, because he had no idea that I had added a new medication to his regimen. He has ADD and a mild mood disorder. I have stopped the medication and will notify the doctor tomorrow. He was only on the medication for 4 days. I am a nurse practitioner and this medication is not worth the multitude of severe side effects for the diagnosis of mood stabilization.

I started the drug Lamictil about six weeks ago at the insistence of my Doctor and my wife because I suffer from SAD (Seasonal Depression brought on by long periods of darkness and cold - winter). Recently I noticed that I can barely get out of bed and that my feet hurt. I am a trained athlete and my workouts have been essential for controlling my sadness and now my depression is worse than ever and as a side benefit I have tremendous feet and leg pains, rage issues, thoughts of suicide and extreme sadness. I have also broken out in a rash which could be Johnson-Stevens disease - all because those two nitwits didn't want to deal with my occasional sadness. They just threw me under the bus -IF YOU ARE TAKING THIS GET OFF IT and if you are seriously depressed ask your health provider for something more stable. No matter what your condition is short of seizures, this medication is not the answer.

I started taking Lamictal about a year ago. When I began treatment, I immediately experienced really bad, vivid dreams. They got progressively worse and continue to this day. About 3 months after I began treatment, I began to experience severe hair loss. Several tiny clumps of hair (a hand-full of individual strands) would come out of my hair during washing, and when I combed it after showering. This has occurred every day, and continues. I've lost about 2/3 of my hair and spend more than 5 minutes each day teasing my hair in the bald spots so people can't tell, but the parts in my hair get wider every day. I can't swim in public, go dancing, or go anywhere that might lead to my hair getting sweaty and falling out of shape.

In addition, at the end of every day, I feel like I'm catching the flu. I have a fever of 100, feel achy and have the sniffles. It got so bad that I actually went to the doctor and he prescribed antibiotics for what he said was sinusitis, which is a side affect of Lamictal. I felt better for a few days, then went right back to feeling ill.

I've also experienced periods of intense anxiety and anger. Out of the blue, for absolutely no reason. Constipation is also a problem.

This is not what I signed up for. I'm talking to my doctor next week to get off this crap. There is no good alternative in this category of medication, either. They're all poison with multiple severe and sometimes life-threatening side effects. Screw that. I'd rather be slightly depressed.

My daughter, who is 22 yrs old now, has been on lamictal since January (seizures which came out of the blue after being ill for 2 years) this year. She ended up in the hospital for most of February with vomiting and diarrhea. She was first diagnosed with celiacs, then gastroparesis, all the time the neurologist is telling us it ABSOLUTELY CANNOT BE THE LAMITCAl...now, she has had some twitching and the doctor increased the lamictal from 100mg 2xs daily to 150mg 2xs daily. Well, the diarrhea, which she's already on all kinds of stomach/bowel medicine, never really resolved but now with the increase is worse. I just called and will take her back on Friday, but think we need to find a new doctor, Good luck to everyone. and God help us all.

well i have no sexual desire and it is really hard for me to climax which sucks since im only 19 and i have been with my boyfriend for 4 yrs. he is so good to me and is really understanding. i am going to my doctor tomorrow to try something different ... i am only slightly depressed so this is completely not worth it .. it is really taking a toll on me and our sexual relationship. also i feel that with lamictal i am at such a constant experiencing euphoria is almost impossible. i just cant do it anymore ... it is more depressing then how i actually felt depressive wise before i took this medication. and let me tell u i have been on this for a while and it seems that the lack of desire seems to get worse everyday

My husband has been taking Lamictal now for 2 years. He had two seizures within 6 mo in his late 30's, one of which resulted in a car crash. Of course he is grateful for such medicine but as a partner and wife, I noticed lots of changes in him after he began the medication. He was irritable, had very low tolerance and a short fuse, was extremely distant and often mean - which in the end caused us to separate for some months. Although we are back together now and our relationship is doing very well, I notice other side effects, for example, he sleeps every time he sits still, etc.

HOWEVER, the real reason I am consulting this forum is to ask anyone (especially men) if they experience side effects related to sex. I know this is a tabu topic but things just aren't working as they used to and I am looking for solutions as he doesn't seem to question the side effects of this drug. This is starting to become an issue psychological issue now as well. Has anyone else experienced lower sex drives and complications during sex?

I had been on Lithium for a few months when the consistent weight gain and uncomfortable bloated feeling caused me to seek out a new treatment for my bipolar disorder. Deciding on Lamictal, I started the slow transition of lowering Lithium doses and increasing Lamictal doses. About one month ago, the transition was complete. I didn't seem to have any real noticeable side effects from the Lamictal but after about 2 weeks of being off the Lithium, my skin started breaking out with acne!! Terribly on my chin, cheeks and hair line. I am now wondering if the Lithium may have been keeping this symptom under control. Has anyone had an experience like this?

I have been on Lamictal now for 10 months, and I mostly love it.

But my IQ went down about 20 points. The first few months were very bad--I could hardly complete a sentence without forgetting one or two words. My short-term memory was scary bad--almost like blackouts where I wouldn't even remember events when reminded.

Those things have abated somewhat, but I am still having to adjust to a lower ability to think. I must make lists, I must repeat instructions and directions. Perhaps this is more about slowing down what was a hyperactive brain, but it is a side-effect that is hard to accept.

I am noticing a new side effect, though. I drop things all the time. I recently dropped a book I was reading--how does that happen?

Has anyone noticed this dropping, or any other clumsiness like this?

Has anybody had a problem with their gums thickening. It's actually the area behind my upper teeth not the gums around my teeth. As a result, my teeth are being pushed forward making me self conscious of my smile. I'd like to get off this medicine but the other medications seem just as bad. Has anybody had any luck finding alternatives to medication?

I have been on Lamictal for about 3 and a half yrs now for Bipolar 1. Overall, I have had a really great experience with the drug. I started with 100mg and then went to 200mg after a year and a half. Now I take 225mg as of a month ago. For about a year and a half I had the acne on my chin and then it went away suddenly (thought it was cutting out dairy from my diet though). I have been extremely fatigued for awhile now. 7hrs of sleep is not good enough for me so I end up taking long naps when I have the opportunity each day- I always want to sleep. I feel stupid and lack focus and motivation. I use to be a social butterfly and now I feel so exhausted when entertaining. I am a personal trainer and am in the business of making others feel better, but I seem to be feeling worse. I have experienced weight gain as well and that is hard for me since I use to be bulimic and have always had poor body image issues. I was on the NuvaRing for 5 months and it made me sooooo depressed so I finally got off that and feel better- don't mix those 2 drugs.
I am going to ask my doctor to take me off of it this week because I am ready to trust God with my mental health. I have a great support system to help me through the tough times and if I want to get pregnant, I have to go off it anyway.

I have been taking Lamictal for about 2 1/2 years now. I have been taking 200 mg for two years. I have experienced very few side effect. Except vivid dreams and not sleeping well. I have always had vivid dreams but there is one I have had since the medication it was so awful that I can't stop thinking about it and it makes me feel suicidal. I have had many ups and downs in my life but never thought suicide to be a positive option. I don't think I would do it but I can't stand these awful repetitive thoughts. I have had less and less energy in the last 6 months or so. I thought it was because I was working to much. I have quit doing most the things I love. I have always been a high energy person. So I thought it must be the Lamictal. When I had complained to my doctor he said that it sounded like depression and normally they would increase the dosage but he would decrease it if I wanted. I went to 150 and then 100. I felt awful just like I used to before the drug. So I went back up to 200 and at least I didn't feel so awful. So I increased it to 250mg and I started to fell less depressed. Sometimes I have taken to much in the past because I forgot I had taken it and repeated the does. That is when I had the first bad dream that has haunted me since. Then I started to forget to take my medication off and on and that is when the depression started. Now I took the 250 and I had another haunting dream. This drug really has been a miracle for me. I have never felt this stable in my entire life! In the past I was trying to self medicate but since the Lamictal I have quit smoking pot and drinking. I don't like alcohol and drugs anymore because I don't like to feel altered anymore. Most of the symptoms everyone has described are how I felt before Lamictal and I feel better since. I will never go below 200mg or above again without a suitable alternative. I still can't get rid of the repetitive thoughts on 200mg. Typical anti-depressants have the opposite effect for me. Has anyone found a suitable alternative. I have heard that other drugs for bi-polar such as Lithium and Depakote have a sedative effect and I don't like that. I want to be my normal energetic self!

my son has been on lamictal for over ten years for the control of petit mals
he is also autistic and has associated learning difficulties he is on 750 mg a day and we seem to have reached this level due to the doctors uping his med when he was having behavior problems and now over a period of time he has been having anxiety. agretion .hostility. frenzied abnormal excited moods .loss of balance and coodination problems . museal problems in legs which is leading to his ability to walk.. poor gate nervousness . irritable.and these symptoms are not there all the time but have been rearing up on a more regular basis and after a lot of research on line and reading i have come to the conclusion that its time to remove him from this medication with medical supervision i must add the problem is that lamictal has only be on the market for about 16 years and there is not much information on long term use and also my son just gets on with his life the best way he can and can not tell you what is happening to himself due to his autisum but these problems have been going on now for some time and gets put down to behavior problems which is not the case i believe it is the lamictal that is doing this to him so he is coming off it the absences are a less problem then the side affects i think over ten years on lamictal is enough.

I have been taking Lamictal since October of 2007. I experienced some of the symptoms (muscle pain in the head and neck) before I started the medication. I have experienced panic attacks since July of 2005. I have had mild heart palpations since I was in my mid 20's (I'm 36 now). I have had what I would consider a below normal energy level since my mid 20's also. Ok so like everyone else I am thinking I'm a hypochondriac! However, I was diagnosed August 28th 2007 with having Lyme’s Disease and also Hyper-Thyroid (same time, same lab-work). Two weeks later I was diagnosed with Bi-Polar Disorder (this is one thing I knew I was battling but didn't know how to handle it). My physiatrist started me on Lamictal and I did the standard ramp up to 200mg. I also was started on a 90 day treatment of Dyoxicycline for the Lyme’s and Methimazole for the Hyper-Thyroid. I was very very weak and was only able to stay awake for short periods of time (4 to 5 hours max). Just an fyi, I am not overweight, lazy or unmotivated. I have the physical appearance of perfect health. This, I think works against me as the Dr's seem to think I'm just whining. Mater of fact; my Primary Care Physician never tested me for Lyme’s. I went to an Urgent Care Center which tested me for Lyme’s disease and I came back positive (they also tested my Thyroid levels and found the problem with my THS levels) I told my Dr the results and he insisted I have same test done again. Guess what, new tests, same results.
My symptoms today are very similar to what I have seen posted many times. Muscle pain (entire body, some areas worse than others), heart arrhythmia, racing heartbeat, intense palpitations, nausea, foggy “un-plugged” mind, fatigue, weak muscles, muscle cramping (especially after repetitive motion, such as strumming a guitar), panic attacks (much more severe) and the latest addition to the group, Insomnia. Muscles pain in my head, fore-head, jaw, temple, neck (front and back), shoulders, is terrible to say the least. The pressure in my fore-head (right under my brow) makes me feel like I need to close my eyes or rest (resting does not relieve anything). The front of my neck is so tight at times it feels like my jaw is being pried down. I could go on and on.
On my quest to find out what else is going on with my body I have had 2 Echocardiogram’s on my heart and abdomen, 2Nuclear Stress Tests, blood work out the wa-zoo, MRI of my brain, 2 CT’s of my Head and Neck, Chest X-rays, Endoscopy, Colonoscopy, and all revealing nothing.
Most doctor’s I have encountered seem to want to treat the symptoms, not the problem/disease. I believe I know why; we (the ones who are there for solutions) tell them what the symptoms are (how we feel). We of course are thinking “this will help with a diagnosis of the problem/disease”, when in fact (I feel); the doctor’s thought process stops there. They don't know what’s wrong with you but they do know what your symptoms are so....bingo, let's treat the symptoms. Don’t misunderstand what I am saying. I’m not saying, “Most doctor’s don’t know what they are doing” or “don’t take your meds”. I am saying you and I are one of the 20 to 30 patients most doctor’s see daily (100+ weekly). They may be caring and good people but they are just as human and fallible as you and I. My advice is this; (and I am taking my own advice) don’t always “pop” into your body what the doctor suggests/prescribes, without doing your own research. Heck most of us won’t buy a car or more importantly, send our kids off to a college with out doing your own research (we just don’t trust those shinny brochures). Your body and your health are worth you doing your own research. Just keep in mind, Pharmaceutical Reps are always at your Dr.’s office (sit in the waiting room for 10 minutes and I’m sure you will see one). Reps are paid to do one thing; encourage (push) the Dr.’s to promote use of the Pharmaceutical Companies drugs.
My wife and I have been doing our own research on Lamictal (after a year of taking this stuff) and the side effects associated with this drug. We have searched through many (many,many) web sites for information and we have talked with pharmacists and Dr’s for opinions. Although I’m am not thoroughly convinced that Lamictal is the cause of all of my symptoms, my wife and I have decided to lower my Lamictal slowly from 200mg to 100mg. I am now taking 150mg daily (three days now) and plan on staying at this level for a total of two weeks before lowering to 100mg. I do fear dropping the dosage to quickly (potential side effects) or lapsing into a mania. To help avoid a manic episode my wife and my immediate family are all “up-to-date” with my course of action. They are on “Red Alert” and have promised to keep a close eye on my behavior patterns and moods. (I don't want to put them through another hyper-mania episode, its much too devastating). I do want so badly to feel healthy and alive again and at this point I am rather frustrated with the Dr.'s ability to help me achieve this goal. Remember it is called “Practicing” Medicine. So now I’m going to practice a little, very carefully and cautiously.
As a foot note; I have recently (past two weeks) been re-tested for Lyme's with a negative response. I am keeping in mind Lyme's test are very inaccurate (still hoping this one is accurate). My thyroid is under control and normal, so.... let's see if dropping below 150mg of Lamictal will eliminate some of these other symptoms. I will keep you posted.
Erik

My doctor prescribed lamictal after I reported hypomanic symptoms from prozac. The first couple of days on lamictal I thought it was the miracle drug; it really eliminated my mood swings. But as the days progressed, I began to have the following disturbing side effects:
- terrible insomnia (waking in the middle of the night and can't go back)
- horrifying violent dreams (of animals and people being hacked to death with machetes... interestingly, I reported this to my doctor and her response was, that just means your brain is adjusting to the chemicals...easy for her to say, she's not waking up with terrible memories of these disturbing dreams)
- weird pains and stiffness in my neck with swollen lymph nodes in the neck
- increase in anxiety and feelings of panic
- increase in feelings of anger and agitation
- feeling of detachment
- thoughts of suicide and the meaninglessness of life
- carbohydrate cravings and weight gain of nearly 4 pounds in 2 WEEKS!!
(weight had previously been stable for years)

These symptoms all appeared after taking the lamictal after only 2 weeks. Even though my doctor recommended actually INCREASING the dose of lamictal and/or adding prozac, I decided to wean off the lamictal (I was on the smallest dose of 25 mg) as an experiment to see if the symptoms would go away...
YES they did!! Every single one of them went away and were COMPLETELY gone after the second day of discontinuing the lamictal.

I know that this medication is being touted as the new miracle cure for bipolar II especially, but I think more clinical studies need to be done on lamictal. This experience was a very scary one and not unlike that reported by others on this site.

I've been on Lamictal for about 5 months now. I recently have had some horrible side effects. I've had the acne, brain fogginess and weight gain all along. About a month ago I was hospitalized for having a blood phosphorus level of 0.6 which is dangerously low. The symptoms around that day were nausea, feeling like I couldn't breathe, hyperventilation, heart rate of 120-130, tingling sensations from my nose to my toes, diarrhea and almost blacking out. Of course, the ER doc thought I was having a panic attack and told me to breathe into a bag and try to breathe slowly. NOT from a panic attack. Granted, I was panicking because I was scared. Has anyone experienced this low phosphorus problem?? I will be coming off of Lamictal in the next week. Hasn't made my depression, panic attacks or sex drive any better. thanks.

I have been on this med (25 mg) for eight days to treat SSRI resistant depression. Three days ago I developed flu like symptoms, with fever and vomiting. While I have hypertension I have also seen an increase in my BP even though I am taking my BP medications. However the most difficult to deal with side effect is extreme tooth pain that started when the flu symptoms did. It is so painful I have to eat soft foods. I have had no dental problems in over 25 years. Has anyone else had this effect?

Has anyone developed tartive dyskenisia. It is involuntary body movements. Mine are in the mouth, like I am sucking on my teeth . It is very disturbing and listed as one of the side effects. It can occur in other parts of the body, like tapping.

I was on 100 mg Lamictal for about 3 months and all I can say is this medication was a nightmare for me. I do have a history of depression, and have recently been diagnosed for Bipolar 2 (which by the way I believe I am not bipolar and that what I had was extreme stress and anxiety from a high pressure job), anyway the medication put me in the hospital. I was at work feeling OK and next minute carried out on a stretcher into an ambulance. I experienced confusion, more anxiety, hair loss, tremors. I also had seizures at work during the few months of taking the medication. My eyes were rolling back and forth. How scary! I also had sores in my mouth and my doctor said it was probably an infection or tooth problem. I never had these kinds of mouth sores before and surprise surprise they (and all other symptoms) went away after I stopped the medication.

I am only feeling normal now and it has been about 5 months after my hospital incident.

The hospital was very scary as well.

I have two children and I do not need to get all messed up on medication.

I am taking another path now and feel much better these days.

No more Lamictal or any other "Mood stabilizers" for me.......

I have been trying to come off this medication after being on it for several months up to 150 mg. I didn't realize I needed to taper off so gradually, so I started cutting up my pill for several days at smaller dosages and then I just tried to go two days without and the withdrawal symptoms are horrendous. My head feels like it has imploded, high blood pressure feeling, dizziness, high anxiety, confusion, pressure all over, blurred vision, constant tick in my eye over the past few days, insomnia, trouble breathing, body aches, sick feeling, extreme fatigue, nausea. I just had to go back and take some more out of desperation. It's so frightening.
Taper off this drug S L O W L Y!!!!

Think long and hard BEFORE you take this medication. I was prescribed a psychotropic cocktail by an irresponsible doctor and was on 200 mg of Lamictal a day ... I am not bipolar ... was part of depression treatment. Like a fool, I continued to take it. It took away my ability to think, my motivation ... it robbed me of my life for nearly two years UNTIL I saw an article on the BBC website that literally saved my life. I am now medication free and happier than I've been in years!
There are NO long term studies out there for Lamictal yet ... you are playing with fire if you are taking it for anything other than epilepsy and even then it's sad, but has to be taken to control the seizures.

wow! lamictal. im taking it for bipolar and it sounded so great due to the fact that it concentrates on the "lows" more than the "highs" and since i've been battling depression and suicidal thoughts since the 4th grade i thought this would be a wonderful addition to my medication. i would keep the seroquel at night and only take during the day "as needed" i was told there weren't very many side effects, just following starter kit exactly and i wont get that terrible rash. i didn't have access to a computer until a few days later after my first dose. so i didn't really get a chance to do much research. the first night i was surprised i felt a little loopy. didn't thank much of it. BUT several day late i felt i had the mind of a child. my speech slowed, my motor skills were off i felt heavy in body but light in the head. i could produce simple words. i knew the meanings of the words just had know actual word for them and would have to try to explain these words. stupid me started a new medication just before having to study for an exam( i was not expecting such a quick start of side effects) wow! i had no short term memory. could barely function. it was hard to even order a cup of coffee. of course there were other side effects such as pounding headaches and muscle soreness but they were nearly as annoying as the mental side effects. i started out at a low dose of just 25 mg. i had to stop taking it so my head would clear up and i could actually function just to take my exam. im not cleared up all the way yet but i do feel better. im sure my psych teacher will understand. ....but something im curious about is a weight limit issue. it really seems the side effects shouldn't have started so quickly and so intensely. i haven't been able to find anything about weigh a certain amount to take certain dosages. does any one know about this? should lower weights start even slower? im am a few pound below 100 and im thinking that might be why it hit so hard. considering its the weekend im not going to talk to my pdoc until maybe after my exam about stopping than restarting, but i do plan on restarting and giving it more time for the side effects to clear up

I have been on Lamictal and Topamax for approximately 4-5 years now. I also take effexor. I have a seizure disorder. At first everything was alright, however now I have been having double vision, staggering, memory loss that has occurred slowly within the last two years or so, and of course as with most meds the usual diarrhea or constipation. I wonder how long does it take being on medication for these side effects to kick in? I read all literature whenever I start a new medication even if it is a OTC drug. (over the counter). I just got out of the hospital and am being sent from one doc to another. I feel like a guinea pig in a lab! Please help!