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Lamictal and memory loss

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50 Side Effects posted for Lamictal

October 11th
2009
3:03 AM

I have been reading these posts for awhile now and am so glad to have found them.
I am a 25yr female with epilepsy and have been on lamictal for the past 4yrs. I changed from epilim because I was getting married and heard that lamictal was safer in case of pregnancy. Not long after I found myself getting very angry over small things and not being able to sleep. I thought this was just me so I tried to get myself together. It went on for some time before I gave up and got help. I was diagnosed with depression and given fluoxetine. This helped me get back on my feet but I did not want to be on it long term and have been of the fluoxetine 2yrs. I still struggle with my mood but is manageable which I am happy for.
I did not realize that the headaches and the memory loss I had were from the lamictal until I found this forum then it all made sense. I had always thought that I was staying up too late and hence getting headaches. As for the memory I often feel like a blithering idiot. Cant remember words and often the wrong ones come out its so embarrassing. So often I feel like I'm in a daze and life is passing me by.
After all this said I have not heard of any other drug that would be any better. I have found comfort in knowing that I am not alone in this. There are a lot of people that do not understand the effects of medication or take it seriously when I try to explain. If there is anyone out there that is keen to chat about epilepsy or lamictal I would love to talk.

-- By pippy | Reply | (4) replies | Private Message me

October 9th
2009
10:17 PM

Hey this is Kitykittysno and i just posted the first time the other evening. I have since talked with my doc about all of this and he believes that trying to come off Lamictal is just not working for me bc of all the symptoms I'm having as a result of it. SO...we're gonna take me back to 400 mg BUT this time, I'm gonna intermittently take them. Start like at 8a, 12p, 4p, 8p. I'm willing to try this bc I feel so awful so we'll see. HOWEVER, I did specifically ask him about these "side effects" and he did not denounce them but he did say, "that in his years of practice, he had not had a patient with these problems"....he told me that bc of other meds I take and with the severe anxiety I suffer with, that that has a lot to do with the memory probs and as far as they eyes, he feels it may just be age (im only 42) and I need to see my eye doctor. I am planning on doing that asap. BUT...for me, I'm really inclined to believe this has to do with Lamictal.
My doctor is a great guy...I don't think he's trying to dismiss me or my thoughts and feelings about Lamictal but...how do you explain it unless you've been there or are STILL there??? How can I be having such significant memory loss and deteriorating eye problems if not for L? I did ask him if there was somewhere I could go to just safely detox off this stuff and he said he was not aware of any place that knows how to safely take someone through that process. I think I will do what someone said in here about just slowly decreasing it yourself and suffer the "hell" until it's out of your body. I have no problem(s) taking any meds that will help my condition but there has to be SOMETHING that works better than this. I am very curious to see if taking this intermittently will help with the "drop off" feeling I usually get around 5p and also if it helps with the memory part. I dunno folks...I wish I had more answers than questions while posting in here. I welcome any advice or comments.
I want all of you in here to know that since I found this site, I've been praying for all of you. I'm sorry if that offends some but I believe in the power of prayer!

-- By kittykittysno | Reply | Private Message me

October 6th
2009
12:08 AM

Googled and found this site. Could not believe all that I read! I've been taking Lamictal for several years for Bi-Polar disorder. I also have GAD for which I control with another drug BUT...I guess it's been so long since I began taking Lamictal that I had forgotten, or did I ever even know, the side effects of it. First if all, the memory loss is incredible! Not being able to complete a sentence...never able to find a "word" that should be so simple to remember...going somewhere and within 2 seconds, forgetting what in the world I'm doing or where I'm going...happened today TWICE!
And to top it all off, my eyes are so bad...I didn't even attribute the L to this until I came to this site but it makes PERFECT sense! I feel such a sense of loss in my eyesight that it has begun to really scare me. I have not been to eye doc yet but plan too.
Also, someone mentioned in here that they feel the med just wears off before next dosage and that is exactly what I've been telling my doctor so at first, we just upped the dosage until I was on 450mg a day but even the, it still was not working. SO...now I'm decreasing and the doc added Depakote Er 250mg. But doc says I have to be almost completely off L to get fully on D. So...feel like crap a lot of the time!!
I'm like someone else on here who said, "just start fresh" and that is what I'd like to do but how do you go "cold turkey"? I know it isn't good! Even decreasing this L for the last several months has been hell!
I have been on a roller coaster of meds for 10 yrs. Have yet to find the "combo" that works! Sometimes I wonder if the diagnosis of BP was/is even correct.
Another person in here said he feels like he may have some side effects of OCD and I feel that way too. Nothing major but...enough for me to notice.
Damned either way, right?
One thing I DO KNOW is that I cannot take this eye problem anymore and now that I know my memory and all that other stuff has to do with L, I'm getting off it no matter what! I'm calling my doc tomorrow and we HAVE TO MAKE A PLAN!!!!!!!
I'm only 42 but my memory is that of an 80-yr old (except for my grandmother who died at 96 and could remember details of when she was 4 yrs old...lol) I guess it's good I can kinda laugh at all this but I DEF know it is not funny!!!
Anybody out there with insight to diff. meds...combo of meds?? I really am worn out!!
Right now, I am down to 375 mg of L and this has taken me several months now to decrease from 450mg...don't see the D working that well yet but it's only 250mg so...
I really am worn out!! My anxiety shoots through the roof bc of all of this! Esp. when I feel the L wearing off around 5p or so...
I'm game for any advice ( I did see where the one woman talked about changing the time you take this in the morning but that won't work for me)
Thanks!!

-- By kittykittysno | Reply | Private Message me

September 18th
2009
11:22 AM

I've been taking Lamictal for almost 3 months. I've been struggling with mood problems for 14 years always being diagnosed with depression and being put on anti-depressants that did nothing to help. Finally a doctor dove a little deeper and diagnosed me with Bi-polor disorder. Lamictal and Trazodone. I stopped taking the trazodone because it made me feel like a zombie and made me gain weight. I have since lost that weight and am not having any weight gain problems on just the Lamictal. I am however having problems with headaches and actually eye aches if that makes sense. My eyes always feel dry or tired or something like that. I am also having trouble with memory loss. I often go to do something and forget what it was on the way there. At work i find myself stopping on my way to a task and wondering "where was i going, what was i going to do?" I'm also having trouble with spelling and like the others here it was never a problem before. But i will put up with these because Lamictal has made such a difference in my life. I feel more stable and stronger in the face of stress than i ever have before. Right now i'm just on 100mg maybe things will get worse when my dosage is raised but right now the side effects are bearable and in my opinion worth it.

-- By nessakae | Reply | Private Message me

September 17th
2009
3:44 PM

Well, about a year ago I was put on Lamictal and didn't experience any side effects, but was also on Lexapro, Trazodone, and Klonopin. I stopped all of the medication besides the Klonopin as I was doing well. However I recently was put back on a low dosage of Lamictal as a mood stabilizer. It's been a week. The only side effect I'm having is headaches! I have a headache all day long. Tylenol doesn't help, it doesn't go away. Once my dosage increases in a week I will only be on 50 mg of Lamictal. I just want the headaches to go away. Did anybody experience headaches while first taking the drug? I'm scared of all of the postings of memory loss and hair loss. I sleep fine, I'm not anxious, I had my first vivid dream last night since I started taking the drug. I don't want to go back on an anti-depressant. Any opinions?

-- By rockerinthefreeworld | Reply | (1) replies | Private Message me

August 21th
2009
8:25 AM

I too have memory loss. It is humiliating not to recall events with friends and family and people I have been introduced to. I cannot conversations, movies and names of bands. I am 43 and have been taking this drug for seizures. The seizure disorder is gone due to the drug. I have gained weight, awaken with a severe headache on several occasions behind my right eye, feel tired and dizzy after an hour of taking the drug and blurred vision. I thought it was early onset of Alzheimer ( i forget how to spell it though I am in the medical field). My generalized Doctor and my Neurologist say this is not from the medication but from age and normal. The quality of life is not as I would like. I feel like I am missing out on my own life. Thank God I came across this blog! I have been researching this drug on the net and NOWHERE does it state this as a side effect. This is the only med I take.

-- By cranberrytwisted65 | Reply | (1) replies | Private Message me

July 27th
2009
3:55 PM

Lamictal with lithium was the latest sentence for a lifetime of depression. Not only did the depression then intensify over anything I've dealt with for the last 40 years, but anger, rage, weight gain, memory loss, difficulty communicating, (could this be dementia at 60 yrs?) and loss of taste especially coffee and chocolate were now defining my life. I had been a happy, productive, exciting, witty, professional self-employed woman. So, I've been reducing my 250 mg dosage for the last 6 weeks with Dr. oversight. My last dose of 25 mg was last Wednesday. Throughout this experience, I've experienced confusion, head aches, zombie days, spatial disorientation, muscle weakness, muscle spasms, jumbled speech and thinking, and THE FOG. But, guess what? Today, I'M BACK. My head is clear, I have a plan for the day and I'm 4 pounds lighter than I was last Thursday. The surprise about the weight is that we went to dinner in restaurants twice in this last week and I haven't taken any special steps to lose the pounds. I knew it was time to evaluate myself without medication when the Dr. wanted to add just one more medication to level off the mood swings. Of course, this is a continuing drama, but it's great to be able to see me without the drug-colored lenses. I would not have done this without Dr. supervision, and I'm so glad he co-operated with my wishes. Sometimes you just have to throw the project away and start fresh. Have a beautiful day.

-- By crazyinparadise | Reply | Private Message me

June 22th
2009
5:44 PM

I have taken Lamictal for about three years since I was 19. I feel like I'm experiencing the memory loss of a 60- or 70-year-old. I've always been quick and witty with impeccable grammar and spelling. These days, I struggle to remember words and their meanings, spellings and pronunciations.

I can't remember conversations I had with people half an hour before or items on my to-do list. I MUST write everything down. Sometimes, if it's in my planner, I still don't remember to do it.

It has affected me in my college classes, on the job and in my relationships. I hate the feeling that I'm less intelligent and quick as I used to be when I'm just 22. My short-term memory is shot.

Along with memory loss, I struggle to focus (always have been a straight-A student), follow conversations and often feel confused and need people to restate their thoughts so I can understand.

It's just so embarrassing to be so spacey. I didn't put it together until my sister (also on lamictal) told me about the memory loss and it clicked. At least there's a reason for my new-found stupidity.

Thanks for telling me doctor. Oh wait, she didn't.

-- By nemequittepas | Reply | (2) replies | Private Message me

May 31th
2009
1:46 PM

I feel somewhat reassured that it's a possibility that my memory loss is a side effect of lamictal. I was diagnosed with BP I and the medication has done wonders. I still get very depressed sometimes, but not as severe as it was without the med. I experience(d) rapid-cycling which I was told is less common for this disorder.
My short-term memory is horrible. Sometimes have trouble remembering conversations and even things that happened a short time ago. For example, I recently played a few games of pool with my son and on our way home, I couldn't recall whether or not I won any of the 3 games. It's pretty embarrassing and scary when someone "catches" you or notices that you have completely blanked. I have to write things down if I want to discuss them with my therapist, because I won't remember what my issues were within the last week or two. Sometimes, when someone asks me if I remember something, I act like I do, because I probably should remember it. Again, I feel like an idiot because I don't. At work, it's not too much of a problem, because I insist that everyone sends me a reminder email, so I have a task list to work from instead of recalling things from memory. I also get completely lost in my train of thought during conversations. I tend to go off in tangents and completely forget what point I was trying to make.
I also have trouble focusing and my mind is always because obsessing over some thought, usually something negative. I feel like I waste a lot of time doing unproductive thinking. I'm not sure if this is a symptom of the disorder of not.

-- By jl_cle | Reply | (2) replies | Private Message me

May 19th
2009
12:18 PM

I was diagnosed as having Bipolar Disorder/with severe panic and anxiety disorder in 2000. I had been sick realistically since I was around 11 years old. Suicidal thoughts, and uncontrollable mood swings. I have been on Lamictal (200-400mg) per day along with Klonopon for my panic disorder, since 2001. I do experience a slight memory loss from time to time, but feel that it is not the medicine but that sometimes I am not really focused on the conversation, or my environment. I have also experienced very vivid dreams, sometimes nightmares that are overwhelming. But I think it is cool that I can remember my dreams now, because sometimes they are worth remembering. I would never consider going off of the medication, for it has saved my life. I am a completely different person now. I am very happy. I do experience sleepiness a few hours after taking Lamictal, but if I take it at around 3pm, by the time I get off work at 5, I am not tired yet and have no problems driving. Some of you should try this method. I think a lot of other side effects are just in people's heads.

-- By klsmith2 | Reply | Private Message me

April 27th
2009
7:07 PM

As with others on this forum, memory loss is a side effect I'm experiencing with Lamictal. In fact, it's THE only side effect. I began taking Lamictal three years ago, and have maintained a dose of 300 mg a day. My short-term memory is practically non-existent. I have to write EVERYTHING down, and sometimes that isn't even enough. I've been known to forget what I've read only minutes before. I used to pride myself on my impeccable spelling, and now I'd say I'm at a fifth-grade level. In fact, I feel like I'm about ten years old. I've been taken to task over and over by employers who are frustrated with my poor performance. I've lost one job and due to lose another any day. Sure, my mood is stabilized, but for what good if I can't even support myself? I would definitely go off this medication if there was a good chance I would get my memory back, but I haven't come across anything in my internet travels that indicate this is a possibility!

-- By clarice | Reply | (1) replies | Private Message me

March 24th
2009
2:24 AM

When I started my little emotional rollercoaster @ age 35, they classified me as being bi-polar with generalized anxiety disorder. I put myself into a treatment center after feeling like I was going to go crazy. I used to work in the medical field and I should have known better. They doped me up on 1000mg of Lithium, and 9oomg of Depakote. Lithium can be hard to regulate and dangerous; coming from a person who can sneeze and lose two pounds Depakote just turned out to be a fat pill (180 to 210 in three months). I went through the guinea pig stage Every SSR they put me on had a very bad side effect, Paxil being the worst. After two days of taking it the racing thoughts and feeling out being out of control made me want to jump out the window. I could not even call 911 as I felt I would go even more insane. I really almost did not make it through it. I discussed it with my new Dr. and he suggested Lamictal. I have been on Lamictal for over 4 years at 300mg a day. It has stabilized my moods but I still argue with the doctor about my diagnosis as I feel I am more Cyclothymic , my mood swings are not as pronounced and can last from a few hours to a few days. Since first taking the med I noticed the memory loss, my train of thought going out the window, bloated, the feeling of having a fever, but not. One of the most important affects, if I am an hour or so late from my regular scheduled dose I get dizzy and my shoulders and neck start to tingle and get numb. Just two weeks I requested an increase in the dosage to 400mg to see if it would help with my underlying depression that every other combo has not addressed. Since then I have been a bit more of a whack job. (Emotionally)Two days after the increase I had a very hyper mania day, I had to leave work early for fear I would lose control of my mouth, do or say something very ADHD. I took two days off and seemed to be fine after that. This Sunday I went downhill as soon as I woke up. I wanted to cry, but couldn’t and I did not know why; I felt void of emotions except for sadness, lacked the energy to want to deal with people, even my other half, wondering why I was even here. (Physically) I have noticed heart palpitations and muscle spasms in my face and arms. I looked up side effects and found this site and wanted to add to it. I have tried just about everything out there that I can and nothing will really work as good as this one. Combos with it do nothing for me either. It really freaks me out that the thing I am taking so I do not feel the way I do is making me feel that way to the extreme. I am letting my Dr. know that I will be taking myself off this dosage.

-- By curare | Reply | (3) replies | Private Message me

March 15th
2009
9:13 PM

I have been taking 200 mg. of Lamictal (now Lamotrigine) for 5 years. I have had cognitive issues for probably about three years at least. Memory loss, sudden loss of flow in conversation, completely forgetting words and the spelling issue which was previously impeccable. It's embarrassing and frightening. I can't get through ANY given day without losing my belongings over and over again. I feel disabled (seriously) and I jokingly tell people I need an "aide". The scariest thing was last week I was going to return an item to the store and COMPLETELY forgot my PIN # for my debit card. I have been using the card nearly daily for a year and a half!!! It panicked me but I thought of course I would remember it later. NOT!!! Never again, it's gone!!! That's when I decided to search the internet for "severe memory loss" and came upon this blog. I didn't even think of the Lamictal. And I pride myself on my thorough research!!! Certainly the doctor never mentioned this side effect and I just gave it up to being 49!!! A little early for Alzheimer's!!!

The funny thing is I have also had skin problems (acne) for the first time in my life the past couple of years with it really getting bad last summer. I weaned myself off the Lamictal b/c I had read it could cause acne (another thing the doctor never told me). Well, I was completely weaned and omg, the mood issues were severe!!! So reluctantly I titrated back up to the 200 mg dose and immediately my mood was stabilized.

I don't know what the h--- to do, but something needs to change. The memory thing is terrifying!!! No wonder I am having so many problems with my job!!!

Maybe a new med, maybe not . . . My main issue was severe depression (both situational and chronic) which Lamictal seemed to stabilize. Do the benefits outweigh the side effects??? I think NOT . . .

FRUSTRATED IN MICHIGAN :(

-- By brendainmichigan | Reply | Private Message me

January 27th
2009
3:04 PM

45 years old, female, diagnosed bipolar II in 2006. On Lamictal for 2 years. Initially, very positive effects of Lamictal - felt "normal" and stable for the first time in years. Didn't notice any side effects. Gradually increased from 200 to 400 mg per day 6 months ago as I still experienced mood swings with a tendency towards depression. I have been on 400 mg/day since August 2008. It is difficult to say what are the side effects of the medication, and what are "natural causes". Since doubling the dosage, I experience memory loss and increasing cognitive problems (slow thought process, difficulty putting together coherent sentences in discussions, fumbling for words. I have spent more than one hour on this posting!). I sometimes wake up during the night drenched in sweat. It could be that I'm menopausal, but I find it unlikely. Mood swings have perhaps become less pronounced, but I would like to regain my mental capacity. I plan to cut back to 200 mg of Lamictal - and perhaps some day learn to live with bilpolar II without medication and a lot of help from my friends and loved ones.

-- By siri | Reply | (1) replies | Private Message me

January 27th
2009
12:11 PM

I have taken Lamictal for 2 years now, I increased my dose a few months ago. It curbed my rage issues, and continued to stabilize my mood swings.I have had the side effects of some memory loss, problems recalling things in the past, minor things, like what happened in movies I may have seen in earlier months. I have hair loss, more than usual when not on the drug. I have definite speech issues, I can never relay what I am trying to say. I feel stupid. I am consulting another psychiatrist to discuss the side effects. I really don't like not being able to remember things as much as I did before I took this drug. I really, really don't like the lack of the ability to speak fluently or even to get the words out. It is embarrassing, it makes me look almost like I have a mental retardation. It sucks. I also am disappointed that my spouse seems to think all "our" issues are because of my mood disorder and if I somehow when I disagree with him and want to address these issues, then my medication is not working. I know if I am raging more or if I have an increase in anger, then I need to go on higher meds or change meds. But, as my psychiatrist said to me, not all my issues in life are all my fault.
Generally, lamictal is working, but I would like to have a greater memory recall and I would definitely like my speech problems to be resolved and it sure would be nice if my hair would become thick again.Also, I have some twitching problems occasionally, it is annoying too. I still have racing thoughts and panic attacks too, it has not changed those issues. Oh, and another side effect is headaches in the back of my neck at the top where my head meets the spine, they are annoying and if I take ibuprofen, I get even more stupid and spacey, almost like I am checked out. My older kids notice more than my spouse does. My older kids also let me know when I am raging more, in a better way than my spouse does. My advice, let those whom you can trust be the one's who give you feedback on how you are doing, rather than someone who doesn't want to take ownership for their own issues, that way you can truly trust if the med's are working or if they are at the right dose. This along with your psychiatrist's help and help from family and your own assessment will keep you on the right track.

-- By bellebarbie | Reply | Private Message me

January 7th
2009
10:36 PM

I have been very concerned about my memory loss. It is so humiliating. I am a teacher. Today at work I said to my co-worker, "OMG, I forgot to mark Makayla absent!" She gave me that look. "We don''t have a Makayla this year." I feel like such an idiot and am afraid someone is going to tell my principal that I'm losing it. I am also unable to spell. This was never a problem before. And my vocabulary? I don't have words to describe it. LOL. I'm 44 and thought for sure that I had early onset Alzheimers and also severe arthritis because my hips hurt. So glad it's drugs, not me.

Has anyone noticed any vitamins, foods, etc. that helps? I will be devastated if I have to ditch my nightly glass of wine! Anyone relate?

-- By fadness1 | Reply | Private Message me

December 5th
2008
7:47 AM

I have been taking Lamictal for months (not really sure due to the memory loss from taking this drug).
I can't seem to remember ANYTHING. My spelling has been reduced to a 4th grade level and trying to find the correct words in a conversation is horrible. The lack of coordination is only a slight problem, mostly at night. I started on 25mg nightly and currently taking 400mg. Nausea, vomiting, depression, feeling guilty about everything I have everdone or said, headache.
I am going to tell my doctor about these symptoms and hopefully he will reduce my dosage. I didn't have all theses problems on lower dose.

-- By drec59 | Reply | Private Message me

August 19th
2008
3:22 AM

Hey, I cycle, so who knows if some of this is the meds or the BP roller coaster..

What I do know:

Memory Loss ***
• Rash like Poison Oak if I increase too quickly *12.5 mg
• Heart Racing + Mind Racing (part of all this right)

GROUCHY at work regardless of meds.

-- By tamarrow | Reply | Private Message me

August 13th
2008
5:57 AM

hair loss, memory loss, weight loss, confusion, hand shaking

-- By xomajenta | Reply | (2) replies | Private Message me

August 4th
2008
11:55 AM

memory loss, panic attack, vision, speech, chest pain, tiredness, loss of sex, headache 3-4 days, loss of food, weight gain, acine, leg pain, swollen feet, muscle problem, hair fall out, hair gets thinner, stomach ach,, double vision, staring.

-- By jessica31mg | Reply | (2) replies | Private Message me

August 3th
2008
10:01 AM

The only side effect that I have experienced with Lamictal (300 mg's a day), is memory loss. My short term memory is like Swiss cheese. Unless there was a major event, I can't remember what happened two weeks ago. Anything that is over a month ago, I will remember the event, but not which month it was in. I write everything down and I mean everything that I will have to remember at some point in time. I even have problems finding my way around my neighborhood if I'm under any amount of stress.
Other than that, the drug is great. I have no mania and or weight gain. It's really helped me a lot.

-- By kguthrie | Reply | Private Message me

July 18th
2008
10:05 PM

I have been on Lamictal for a few months and I started out on 50 mg and went up two 100 mg within two weeks time - Everything was fine until I went off of it for 5 weeks and then back on it pretty suddenly. Ever since then I have had chronic nausea (constant feeling of car sickness). There are times when I wake up with it in the morning and go to sleep with it at night. Nothing will help except fountain coke (I don't know why, but it works) but the pain always winds up coming back within a few hours.

I ALSO HAVE BEEN EXPERIENCE THE FOLLOWING AS WELL

Memory Loss ***
• Messing Up Words + Speech Comes Out Backwards ***
• Loosening of Teeth
• Sores and Blisters on Inside of Mouth
• Soreness and Heaviness in the Legs + Occasional Muscle Aches
• Headaches (Not so much anymore)
• Heart Racing + Mind Racing
• Trouble Writing + Spelling ***

-- By jlg813 | Reply | Private Message me

June 10th
2008
8:46 AM

I have been on Lamictal for about five months for bipolar II. I has been increased slowly over these months and I am now up to 300 mg a day. I have a tendency to sometimes forget things but remembering numbers has never been a problem for me. In fact I can look at someone's tag number driving down the road and remember it for days. Phone numbers of people I have known for 20 years would stick and I wouldn't even have to call them on a regular basis to know the number. However, recently while trying to use my bank debit card at the store I was asked to enter my PIN number and totally could not remember. I tried it several times but it never came to me. I felt like a fool!. At this time, that was three days ago and I still cannot remember it!

This is very, very distressing to me. I feel like something has been wiped clean and that I will never get it back.

My Lamictal dose has been increased in the last couple of weeks and I thought maybe Lamictal or one of my other meds could be making this happen so I started researching and found this site where other people were complaining of memory loss while on Lamictal.

Headaches are another common side effect for me while on this med. It has really helped me emotionally and I need to know if the memory loss is just going to be a temporary thing and it will get back to normal or if I will be forgetting more and more over time. PLEASE HELP!!!

-- By jasonslilgal1 | Reply | (8) replies | Private Message me

June 8th
2008
6:00 PM

WOW. I have been taking Lamictal for about 4 months for my BP and up until now I have never known all the side effects. You see, I am uninsured and am forced to go through MHMR. They (at best) give you an idea of what the side effects are. It is very difficult to even get a one on one with an actual doctor. You sit in a chair for 2 minutes and walk out with a bad full of drugs. Needless to say, my mood hasn't been "stabilized", in fact, I think it's worsened. What's worse is that between the weight gain and the loss of my short term memory I feel FAT and STUPID; causing me to be even more depressed. I never even thought that the memory loss was related to the Lamictal; the weight gain, maybe. Today I thought, "let me check this out." and I stumbled upon this blog. THANK GOD! I mean I'm sorry that we are all suffering but I'm relieved to know that it's not ME. Thanks for sharing all, and good luck!

-- By lisarv | Reply | Private Message me

May 24th
2008
4:06 AM

I have been on Lamictal and Topamax for approximately 4-5 years now. I also take effexor. I have a seizure disorder. At first everything was alright, however now I have been having double vision, staggering, memory loss that has occurred slowly within the last two years or so, and of course as with most meds the usual diarrhea or constipation. I wonder how long does it take being on medication for these side effects to kick in? I read all literature whenever I start a new medication even if it is a OTC drug. (over the counter). I just got out of the hospital and am being sent from one doc to another. I feel like a guinea pig in a lab! Please help!

-- By twtyfrk66 | Reply | (3) replies | Private Message me

May 12th
2008
10:06 PM

What side effects? I have taken Lamictal for 6 weeks. I am on a steady dose of 100mgs. I started out with severe depression (unipolar), and have also been diagnosed as bi-polar and borderline personality disorder. So who knows what I have other than to say that I have felt like a train wreck for 3 yrs. All the other meds I have taken did not help my constant cycles of severe depression. I felt like I was in a fish bowl and the world was going on around me, I could see it but was not a part of it. It was hell on earth. Other meds would help somewhat on certain symptoms, but nothing ever brought my life back to a level where I could say I felt joy and was truly happy until I started Lamictal. 2 weeks into the start of Lamictal (50 mgs), I woke up to a miracle. I realized I felt joy, I was laughing without trying to. I felt refreshed and prepared to go out in the world and face the day with a positive outlook on everything. My side effects so far have been nil. Not one thing...no pain, no headaches, no weight gain, no memory loss, no dizziness, no hairloss. Am I the only one? I know these meds effect people differently but wow, I am in heaven. I hope all of you eventually find something that works for you because I really felt ( before Lamictal) that I would never feel good again! Hallelujah! I do! bless you all!

-- By nickimouse42 | Reply | (3) replies | Private Message me

April 7th
2008
3:16 AM

I was on Lamictal for 4 years and after the first year I suddenly started having all kinds of teeth and gum problems for no discernible reason. But since Lamictal has the possible side effect of "sores or blisters on the inside of the mouth" I wondered if it could be related.

I did a Google search and am coming up with no experts yet, but lots and lots of posts connecting anticonvulsant meds, particularly Lamictal, Topamax, Neurontin, and Depakote, with dental problems. Dilantin is well known for causing gum disease and breaking down tooth enamel, loosening of teeth, and even breaking down of jawbone tissue.

I don't think the experts have connected the dots yet, but is anyone else having this problem?

-- By absisback | Reply | (15) replies | Private Message me

March 25th
2008
6:37 PM

I also am having a difficult time with memory loss. I have a very short term memory. I never used to be this way. Before I started taking Lamictal, I was taking Depakote. I haven't been on Lamictal for that long, so I do not know if my previous medications have caused my memory loss. I also get dizzy sometimes and I'm feeling out of breath lately. Some other medications I've taken are: Zyprexa (which gave me type I diabetes); Abilify; Risperadol; Adavan...the list goes on, unfortunately. I have been taking anti-psychotic drugs since I was 16, and I am 37 years old now. God help me!

-- By mkaye07 | Reply | (2) replies | Private Message me

March 12th
2008
12:51 AM

I CANT BELIEVE THIS! on *** i read good things about this medication. I've been on it for about 8 months. lately i have felt like crap and tired and cant sleep. i get paranoid I'm using too much cleaner in my bathroom and just many things. the last 4 or 5 days I've had muscle aches i thought was the flu and a horrible migraine. memory loss.. i feel foggy. i feel like i can contain my mood better but I'm wondering what to do.. when i forget to take it i get messed up but IT CAUSES memory loss WHICH causes u to forget to take it! i have bad anxiety and trouble sleeping. i feel even now. dude I'm confused at this very moment.

-- By melissa323 | Reply | Private Message me

February 8th
2008
12:20 AM

Where do I start? For as far back as I can remember, I have been taking antidepressants. I have tried them all. Celexa, Wellbutrin, Effexor, Cymbalta, etc.. About 3 years ago, I crashed. You all know what that feels like. I went to see the "pill doctor" which is what I call the psychiatrists. He prescribed more antidepressants, Lithium 600mg per day along with Lamictal 200 mg per day for moods and Ambien CR-12.5mg to sleep. Side effects included, weight loss and gain, hair loss, memory loss, confusion, thyroid issues, no sex drive and sleeping too much with wako dreams. BUT is was better than what I was feeling at time. Last month I could not take it any more so I had a second opinion by another Pill Dr. Oh my God! This Pill Dr REALLY opened my eyes. He diagnosed me with a resistant to antidepressant type of depression. No bipolar but mood disorders. He warned me off of Cymbalta 60mg to 30mg to 0mg (antidepressant), and took me off the Lithium and increased my dose of Lamictal from 200mgs per day to 300mgs per day. What a difference it made. I have never felt better. I am sleeping less, have more energy and a much more positive outlook on life. I am scared that this won't last but I hope it will. Lamictal has been a godsend for me. My lesson is get a second opinion on your condition. A fresh set of eyes can see things that others don't.

I also have to remember that every case is unique. Every person has their own set of problems to deal with. Kids are emotionally demanding and draining. You are not different from others who suffer.

-- By gurapf | Reply | (1) replies | Private Message me

January 14th
2008
5:50 PM

Hello! I've been taking Lamictal for about 6 years now. I'm diagnosed as BP II and have the most difficulty with depression. I currently take 500 mg-- 400 mg at night and 100 mg in the morning. I have to say that Lamictal has been very good to me for the most part. As long as I don't put myself into extremely stressful positions-- such as my last job-- I do quite well. I also take a combination of supplements with Lamictal which seem to give the extra push that I needed to completely get out of my last depression. I take 1000 mg EPA (fish oil), B-100 Complex, Folic Acid, Cal-Mag, multivitamin (high quality, organic), Vitamin D (at least 1000 mg) and a few others.

I notice that when I take it at night if I don't go to sleep right away, my mouth and tongue will tingle. Sometimes when I take it in the morning, I feel foggy and dizzy and sometimes get vertigo. Every now and then the side effects seem to get worse, which I am not sure about. I started searching on the internet because I've been noticing that the "tip of the tongue" problem has been occurring more and more often. I often cannot think of the word I want, simple things even. As others have mentioned, I also have difficulty with memory. I am still very successful, currently pursuing a 2nd Master's Degree, but have noticed that achieving the same level of quality of work takes a lot more effort than during my previous degrees.

I do have some periods of anger/irritability and have recently been sleeping a lot, though it probably has a lot more to do with the time of year-- winter with less light-- than anything else.

I am particularly worried about my memory loss and inability to sound "well-spoken" in a setting which demands that of me. It is frustrating! I don't want to do any lasting harm on my brain. After increasing to 500 mg from 400 mg, I have noticed more of these brain issues, but I'm also doing so much better mood wise!

-- By maggie22 | Reply | (3) replies | Private Message me

November 22th
2007
6:58 PM

I was treated with lamictal for bi-polar II . It did help even out my mood which swung to deep depressions and rare (unfortunately) hypomania. After an increase in dose I had so much pain in my back and hip joints that I needed help to sit down, stand up, tie shoes, lift anything. I am only 40!

I stopped the med in June, but the pain is still there. Continually, not as bad as it was before, for sure, but I still have to prop myself up for simple lean over tasks, and my hip joints throb. I have to support myself to flip in bed or get out. I was doing yoga, and running as well before I started lamictal. I was extremely flexible!, and now can still barely touch my toes.

has anyone else had this lingering pain?

-- By skgsunshine | Reply | (2) replies | Private Message me

August 21th
2007
9:26 AM

I have been prescribed Lamictal for seizures, and am currently taking 400mg daily, with my 300mg of Dilantin. Had horrible side effects this weekend-nightmares, exhausted, worsening depression, crying jags, difficulty swallowing. Has anyone else experienced mood changes for the worse while on this drug?

-- By gusgus | Reply | (6) replies | Private Message me

June 22th
2007
4:45 PM

I have been taking Lamictal for just over a year. Some of the side effects have been noticable for a few months, but others seem to just be appearing and getting worse. I have loss of balance and coordination, my vision is gettng worse, I have a hard time concentrating and finding the right words, I forget how to spell common words, I have short-term memory loss and feel spacey. I can always figure it out, but it takes longer. I began doing Pilates every day about 3 months ago and still cannot get the routine down and it is just as hard for my muscles as it was in the beginning. I can't seem to lose weight and have horrible acne on my face. I had 2 seizures before beginning Lamictal and am suppose to be on it for 2 years before trying to go off. Without insurance though, I am unable to do follow-ups w/ my neurologist and she seems unconcerned and unsypathetic to my situation, not giving me the time of day. She never even told me all of these side effects could develop, much less that they might begin long after I started taking Lamictal. Has anyone had these side effects after having taken the Lamictal for so long then stopped taking the Lamictal? Will these side effects go away after I stop taking it??

-- By dalinay | Reply | (9) replies | Private Message me

June 16th
2007
1:54 PM

This is a nightmare. I have been on Lamictal 200 mg, tab in morning, for approx. 5 months. About 3 1/2 months ago I started getting muscles aches and weakness, muscle overuse problems, fluid retention ( like 12 pounds), stayed in a trance with very little short term memory. Thought it was everything but this medicine....I am an avid athelite, yes, even at 51. So, I blamed myself for not slowing down. Quick exercising totally, for 2 months, iced 3 times a day on leg muscles. Finally after making it to the summer without a mental breakdown, I went to the emergency room and a new internist to get checked out. Blood work, thyroid, hormones,ok.... Really don't care what they think , I can not walk, it hurts like hell. The Dr. did tell me to get off Lamictal....ok 7th day and I have some relief but it is not complete. Called manufactures, interesting, yes- these are side effects!!! But the studies are limited. Listen , unless you have seizures, get off this medicine... you read the full disclosure of side effects and then search yourself......It can ba a huge FOOOOOPA.....And you are the fool that will end up holdling the bag, not the manufacturer. Hopefully I will get better. Right now , I just trying to stay calm.

-- By jeb51 | Reply | (16) replies | Private Message me

May 7th
2007
5:51 AM

I'm on seroquil, lamictal, trazodone and I have all of these side effects.....increase in blood sugars, great anxiety, irritation, agitation, memory loss, heart racing, difficult breathing and swallowing, retention of water, headaches that cause me to have to stop all activities, jerky movements that keep me awake or eliminates even short drives in the car, hot vs cold, my perception of things are not as they use to be, muscle aches that keep me from even getting out of a chair or in and out of a car sometimes, nausea, vomitng, nasal swelling, mind racing, memory loss, hair loss, nails thin, no energy great fatigue!

-- By longdeborah | Reply | (1) replies | Private Message me

April 27th
2007
9:09 PM

This may sound a little strange ... I was prescribed Lamictal off label for OCD. A lot of my obsessive-compulsive behavior is related to an insatiable need for male attention, in addition to an overwhelming need to check and fix my apperances - what my doctor calls BDD (Body Dismorphic Disorder, which is closly related to OCD). I started taking 50 mg of Lamictal, and after several months, ended up at 250 mg. My behavior didn't really seem to change and I didn't feel any side effects ... well, for the most part. I have taken SO many different kinds of medications for depression, OCD and social anxiety, and they have ALL had some side effect or another than made it impossible for me to continue taking the drug, no matter what the upside was. Dizziness, nausea, blurry vision, sexual side effects, memory loss, headaches, etc. You name the side effect, I've experienced it, but NOT from Lamictal. The only side effect I had from Lamictal wasn't really a "normal" side effect. It was fitting to my situation and my initial need for the drug. After being on Lamictal for a while, I felt nothing different in myself - no aching, nausea, vision issues, or forgetfulness ... just an extremely weak libido. And, I'm not talking about the sexual side effects that normally come along with taking certain medications. Where you just completely lose you sex drive, and the idea of sex ends up being totally disgusting to you. I didn't lose my sex drive - I just lost all my flirty, provocative, sexy, cheeky behavior. I use to want to take sexy pictures of myself for my boyfriend and things like that, and it all completely went away. I don't know if Lamictal is supposed to have sexual side effects - I don't think it is - but this was my experience with it. I want to continue taking Lamictal because it does curb some of my behavior that normally ends up putting me in danger and getting me in trouble, but I truly feel like a huge part of me is dead inside. I feel that my sexuality is a big part of who I am, whether I like it or not, and I miss it. I'm probably going to stop taking the medication JUST b/c I miss that certain part of myself. I would, however, recommend Lamictal to anyone with OCD who wants to try and control certain obsessive behavior. It seems to do the trick

-- By muddy81 | Reply | (1) replies | Private Message me

May 28th
2005
5:13 AM

I started Lamicatal May 19th, 2005. I was warned by my doctor of dangerous rash and itching. If so, stop taking medication, call him if not too bad that I need to call 911 to go to the hospital. On my print out from the CVS pharmacy is clearly stated: Serious (sometimes fatal) skin rashes have occured while using this medicine. Immediately notify your doctor if you develop any type of rash. If this medicine is the cause of the rash, the medicine must be stopped. Even after stopping this medicine. It is still possible for the rash to cause permanent or life-threatening scarring along with other problems.

Possible Side Effects:
drowsiness, trouble sleeping, dizziness, nausea, vomiting, loss of appetite, muscle aches, double vision, blurred vision, fatigue, weakness, headache, shakiness, or clumsiness.

Symptoms of an Allergic Reaction include:
rash, itching, hives, fever, swollen glands, swelling of the lips or tongue, painful sores in the mouth or around the eyes, severe dizziness, or trouble breathing.

Symptoms of Overdose:
may include unusual dizziness, serve headache, unusual sleepiness, involuntary eye movements, and loss of consciousness.

I starting itching really bad the second day on the medication. To the point I had huge bruises allover me. I got a spurt of energy that I have not had in several years the second night but not since then. I can't go to sleep at night. Even taking 6 Tylenol PM and a Klonapin I don't get sleepy until around 9 to 100am in the morning and then I sleep all day long. I have started to have frequent headaches, suspious bumps around my mouth area. My muscles ache, too. It is Memorial day weekend so I can't call my doctor but I am going to on Tuesday. I have (MDD) Major Depression Disorder, Manic Depression, (TRD) Treatment Resistent Disorder. Nothing I have taken thus far has helped me with my depression.

Does anyone have first hand knowledge on ECT treatment? I am seriouly considering this procedure. I am desperate but I have no insurance or money because I haven't be able to work for 9 years now. This is the only thing that has kept me from getting the ECT treatments, is money! I have contacted every Talk show, hospital, clinical trials and no luck in finding free help with ECT.

Any ideas, guidance or suggestions would be most appreciated, I am dire to get help soon or I won't make it.
Sincerely,
Lost Hope

-- By sava102503 | Reply | (3) replies | Private Message me

July 21th
2004
9:13 AM

I have just started taking Lamictal and typically have sensitivity to meds. I take it for mood stabalization along with effexor xr 150 mg. Moy dose of Lamictal is only 75mg right now. But I have been getting acne again which I haven't had to deal with in over a year and a half. I go my occassional pms pimple or two even but now I am constinantly fighting the blemishes, including a couple of new ones on my back which I haven't gotten in probably 7 years. Frustrated is an understatement. But it is good to hear others are experiencing similar systems and I am not as confused finding the cause for this. Memory loss, lack of focus, disorientation,confusion are also the scarier of the side effects I have been experiencing. Today something new and very scary happened. For a split second I had to grab my desk at work cause I literally felt like the room was spinning. Not see swirls or anything but like when your on the til-a whirl at the amusement part. Does anyone have any idea what that could have been? I have been feeling a bit dizzy since also. Anything neurological really scares me. Does anyone also know what other mood stabilizers if they have taken any have little side effects from their experience?

-- By jennifer890 | Reply | (1) replies | Private Message me


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