July 7th
2009
12:49 AM
I have been taking 25mg per day of Lamictal for five days now. I am also on (and have been for five years) 200mg Zoloft per day. I was recently diagnosed bipolar (no surprise) and after seeing a psychiatrist, this was the med I chose, Lithium and Depakote being the other two choices, I felt that Lamictal would be the most appropriate in my case, because it is supposed to help with anger/rage issues, according to the leaflet provided by my Dr., as well as the 'rapid cycling' of my moods. So far I dislike this med, despite the fact I started it with optimism. Side effects are as follows:
Sleepiness - started the first day, I took the first dose the night before.
Lack of energy/motivation - I was doing ok as far as motivation was concerned until I started Lamictal, I was on a positive mood swing at the time, now, it's taking all my effort to stay focused and finish this.
Feelings of disassociation - I don't want to go anywhere, or see anyone, take any calls, etc..this is a problem I have had prior to Lamictal, but it suddenly got worse upon starting it.
Sudden anger/rage - I have felt overly aggravated at times, fast to discipline my son without taking a minute to think it over, it's pretty spontaneous. Day two scared me a bit, I have been making a serious conscious effort to not lose my temper or react suddenly. Today I actually had a spontaneous thought of suicide during a moment of anger, which also alarms me.
Loss of appetite - I'm a skinny guy, can't afford to lose any weight or go without eating, this stuff has pretty much killed my appetite, I'm forcing myself to eat at least once a day...and it isn't easy, I tell you.
Hypersensitivity to noise - Seems like the volume on everything has been amplified, it's making me nuts..
Unpleasant taste in my mouth - since day two. Hard to describe, sort of metallic.
Decreased urge to smoke - I have been smoking for 23 years, a pack per day regularly. I noticed at day two the urge to smoke was dramatically decreased, I smoked about eight cigs total today. Being asleep helped with that too, I'm sure...gotta be conscious to smoke, right? This would be the only positive effect I have noticed thus far.
At this point, I'm really not sure if I will continue with this med due to the above effects. I am a bit disappointed because I had hoped this would do the job and I could avoid the Lithium (icepick up the nose is the only thing left if Lithium doesn't work) and the Depakote, because the effects of those are far more serious by comparison according to what I have read and heard from others who have taken it.
I don't know what to do next, honestly. I have taken nearly every type/kind of antidepressant, Zoloft seems to do the most good, but I'm still having mood swings/cycling while using it, so a mood stabilizer was the plan to fix that...seems like I'm pretty much hosed.
July 5th
2009
1:08 PM
I was prescribed Lamictal around this time two years ago (July '07) for Borderline Personality Disorder. At first I thought it was great and I felt like it'd been a miracle drug -- the drive back home from the psychiatrist's office that day was such a feeling of relief because I was going to get my miracle drug, finally. Later the next month I moved away from home and began college in the lower half of the state and stopped taking the medication because I noticed that I feeling any difference, or experiencing any change in my moods. Infact, I felt exactly the same as I had before. I looked up the medicine derivative drug and found out that it has a "placebo-like effect with highly addictive qualities".... which made me think that once again, my problem is all in my head. I still feel like I need to be on some kind of medication, but I am not willing to part entirely with my authentic self just to make some other people's lives easier. If they think my mood swings and attempts at self-destruction effect them negatively, just wait until you are the one having them and you can't control them! I don't want to become a zombie, I don't want to lose my hair, and I don't want to gain 30 lbs, but I feel like there's nothing else I can do. But then again, there doesn't seem to be any drug that can help without the drastic side-effects.
Sheesh.
-- By bettyannfromjapan | Reply | (1) replies | Private Message me
March 24th
2009
2:24 AM
When I started my little emotional rollercoaster @ age 35, they classified me as being bi-polar with generalized anxiety disorder. I put myself into a treatment center after feeling like I was going to go crazy. I used to work in the medical field and I should have known better. They doped me up on 1000mg of Lithium, and 9oomg of Depakote. Lithium can be hard to regulate and dangerous; coming from a person who can sneeze and lose two pounds Depakote just turned out to be a fat pill (180 to 210 in three months). I went through the guinea pig stage Every SSR they put me on had a very bad side effect, Paxil being the worst. After two days of taking it the racing thoughts and feeling out being out of control made me want to jump out the window. I could not even call 911 as I felt I would go even more insane. I really almost did not make it through it. I discussed it with my new Dr. and he suggested Lamictal. I have been on Lamictal for over 4 years at 300mg a day. It has stabilized my moods but I still argue with the doctor about my diagnosis as I feel I am more Cyclothymic , my mood swings are not as pronounced and can last from a few hours to a few days. Since first taking the med I noticed the memory loss, my train of thought going out the window, bloated, the feeling of having a fever, but not. One of the most important affects, if I am an hour or so late from my regular scheduled dose I get dizzy and my shoulders and neck start to tingle and get numb. Just two weeks I requested an increase in the dosage to 400mg to see if it would help with my underlying depression that every other combo has not addressed. Since then I have been a bit more of a whack job. (Emotionally)Two days after the increase I had a very hyper mania day, I had to leave work early for fear I would lose control of my mouth, do or say something very ADHD. I took two days off and seemed to be fine after that. This Sunday I went downhill as soon as I woke up. I wanted to cry, but couldn’t and I did not know why; I felt void of emotions except for sadness, lacked the energy to want to deal with people, even my other half, wondering why I was even here. (Physically) I have noticed heart palpitations and muscle spasms in my face and arms. I looked up side effects and found this site and wanted to add to it. I have tried just about everything out there that I can and nothing will really work as good as this one. Combos with it do nothing for me either. It really freaks me out that the thing I am taking so I do not feel the way I do is making me feel that way to the extreme. I am letting my Dr. know that I will be taking myself off this dosage.
-- By curare | Reply | (3) replies | Private Message me
February 27th
2009
5:18 PM
I have been on Lamictal now for almost 3 months for bipolar. I'm still not sure if it is helping or not. My husband says I seem better, but I feel almost the same as before if not worse. Has anyone noticed any major changes in their menstrual cycle? I'm on the pill and it would usually last 4-5 days with moderate bleeding. Now I get more annoying cramps than before but my period only lasted 2 days and it was more like spotting than a period. This makes me nervous, but my doctor said that it is more likely the risperdal that I had taken for a month when I also started taking the lamictal, but I don't agree. I recently went up to 200mg (1 morning, 1night). The morning one knocks me out but the night one has been keeping up!? I also feel less coordinated (hard to balance, knocking stuff down, klutzy). Also, it has been hard to put words together and recall correct information. Now I have to say" I think I heard or I think I remember". If I really need to remember something I have repeat it or really concentrate on the information. I used to not have to do that. Another thing I've noticed lately is hand and knee pain. Makes it difficult exercise to lose the 20 lbs I've gained. I don't know, personally I think I will give it one more month and if I still feel the same, I'm going off of it and looking into natural alternatives.
-- By diddlesquat | Reply | (1) replies | Private Message me
August 31th
2008
5:42 PM
my son has been on lamictal for over ten years for the control of petit mals
he is also autistic and has associated learning difficulties he is on 750 mg a day and we seem to have reached this level due to the doctors uping his med when he was having behavior problems and now over a period of time he has been having anxiety. agretion .hostility. frenzied abnormal excited moods .loss of balance and coodination problems . museal problems in legs which is leading to his ability to walk.. poor gate nervousness . irritable.and these symptoms are not there all the time but have been rearing up on a more regular basis and after a lot of research on line and reading i have come to the conclusion that its time to remove him from this medication with medical supervision i must add the problem is that lamictal has only be on the market for about 16 years and there is not much information on long term use and also my son just gets on with his life the best way he can and can not tell you what is happening to himself due to his autisum but these problems have been going on now for some time and gets put down to behavior problems which is not the case i believe it is the lamictal that is doing this to him so he is coming off it the absences are a less problem then the side affects i think over ten years on lamictal is enough.
August 18th
2008
7:27 PM
I took lamictal alone for about 7 years it seemed to stabilize my BP, but always complained of fuzzy thinking; the doctors never took my concerns too seriously...8 years ago I said enough is enough to my new meds guy and went off of it. Having tried a few combinations since then and recently feeling depressed the doctor suggested lamictal. I was against it at first but it was his number one suggestion, so I tried it. This time in combination with other my meds.
Talk about fuzzy on 200 mgs I am down right daft. I was on my way out of it, but I think it may be helping my moods. I can't ask for any insight as this one is really up to me. thank you EHE
August 2th
2008
8:05 PM
I'm taking Wellbutrin and Lamictal (150 mg for both) for at least 5 months now, as a mood stabilizer. Like many people have said on here don't let these bad reviews scare you away from trying it, at the very worst you will take it and not like it so you can stop. But for me it was amazing how it stabilized my moods. I didn't expect it to be so noticeable. I had tried Topamax right before but it was terrible for me- it made me sooo out of it and I had a very hard time talking (finding the right words, pausing in sentences frequently) Lamictal didn't do that to me. I have started to get acne on my jawline like many others have posted, I didn't think it would be related but I've NEVER had acne on my jaw and cheeks they are really tiny bumps of acne, but a lot of them. The reason I started to look at this site for people's side effects was now I have terrible neck soreness and stiffness. I mean BAD. It's slowly working it's way to the middle of my neck as the day goes on and feels like it's going down the middle of my back as well. Very weird, I haven't exercised or done anything in the past 4 or 5 days that would have pulled a muscle, so make what you will out of it but I'm going to stop taking this drug. It's unfortunate because I really did like it and am worried how my moods will be after stopping it. But TRY IT, it has been at least 5 months of me being more stable so that alone is worth the clarity. Also, I'm a woman with usually heavy periods but didn't have that side effect with this drug and I lost weight didn't gain any with this one either, but I'm sure that had a lot to do with the Wellbutrin which is notorious for weight loss rather than weight gain. Also, if you start to feel good at a low dose as I did DON'T INCREASE IT! I hate hearing people say their doctor's wanted to get them to the "therapeutic dose" even when they felt good, your more likely to have neg. side effects if you go higher than you need. Everyone is different in how their body metabolizes the medicines. Do your research and hold your ground, make sure you have a doctor that will listen to you, that's key.
-- By ery6811 | Reply | Private Message me
February 23th
2008
4:19 PM
I have not taken a drug with so few side effects. Dose up to 200mg. Outstanding med for bipolar disorder.
-- By iqman41 | Reply | (1) replies | Private Message me
February 21th
2008
5:03 PM
I was put on Lamictal about a year ago after the Dilantin I was on stopped working after 25 years. Tried Fursuit but the anger and extreme tiredness almost lost me my job. I found this site since I'm coming off Lamictal. I was still having seizures and the doc just kept upping the meds. At 400mg/day I found I couldn't stop laughing (I do Stand up comedy as a hobby) My chest was killing me after 2 days of euforia and couldn't sleep. Vision was so blurred I couldn't see a thing. I told my doc I've had enough and I'm coming off the drug as slowly as I can manage. After a few months I'm down to 125 mg this week and coming off it 25mg a week. so far seizures have been about 1 per month but that might increase. I'm finding the withdrawal side effects worse than the drug. Leg pain, chest pains and found out my blood pressure has gone thru the roof. Would like to know if that has happened to anyone else. It went down a bit after I reduced my dosage last week so I see a conspiracy. I have noticed my vision improves as the drug wears off during the day but I can't concentrate at work. would like to hear from others with epilepsy that are having problems with this drug and to give me any feedback. Figure If alexander the Great can create an empire with epilepsy and no drugs then I'll take the seizures over the meds
-- By iambroke2 | Reply | (1) replies | Private Message me
February 20th
2008
11:06 PM
This is a total nightmare and i need advice! I was on Lamictal for a year and about six months into my health began to slowly deteriorate. It started with shortness of breath and heart palpitations and eventually attacked every system of my body. My symptoms are muscle pain, spasms and knots to the point that i can't turn my neck sometimes, joint pain (mostly knees), stabbing floating pain everywhere, headaches, frightening tingling in my extremities and a few times my entire body, sore throat, flu-like feelings, stomach cramps, bloating and heartburn. The list goes on. I have been off of it now for two weeks. My psychiatrist has never seen this type of reaction before and is not convinced it is the Lamictal. I have been to every single type of doctor and the ER twice, had extensive lab work, CT scan and two MRIs. I have been off Lamictal now for two weeks and am not feeling much relief. I am so scared and frustrated and please need advice. Has anyone else experienced this? Does it ever go away? I feel like I am literally living a nightmare with no-one to turn to for advice because no-one seems to know ANYTHING!!!!
-- By humphrsa23 | Reply | (13) replies | Private Message me
February 8th
2008
12:20 AM
Where do I start? For as far back as I can remember, I have been taking antidepressants. I have tried them all. Celexa, Wellbutrin, Effexor, Cymbalta, etc.. About 3 years ago, I crashed. You all know what that feels like. I went to see the "pill doctor" which is what I call the psychiatrists. He prescribed more antidepressants, Lithium 600mg per day along with Lamictal 200 mg per day for moods and Ambien CR-12.5mg to sleep. Side effects included, weight loss and gain, hair loss, memory loss, confusion, thyroid issues, no sex drive and sleeping too much with wako dreams. BUT is was better than what I was feeling at time. Last month I could not take it any more so I had a second opinion by another Pill Dr. Oh my God! This Pill Dr REALLY opened my eyes. He diagnosed me with a resistant to antidepressant type of depression. No bipolar but mood disorders. He warned me off of Cymbalta 60mg to 30mg to 0mg (antidepressant), and took me off the Lithium and increased my dose of Lamictal from 200mgs per day to 300mgs per day. What a difference it made. I have never felt better. I am sleeping less, have more energy and a much more positive outlook on life. I am scared that this won't last but I hope it will. Lamictal has been a godsend for me. My lesson is get a second opinion on your condition. A fresh set of eyes can see things that others don't.
I also have to remember that every case is unique. Every person has their own set of problems to deal with. Kids are emotionally demanding and draining. You are not different from others who suffer.
-- By gurapf | Reply | (1) replies | Private Message me
December 22th
2007
1:03 PM
I think a very, very important thing to keep in mind is how differently medications will work for different people. While it seems many of you have had horrible experiences with it, I surely don't think this is the case for everyone, including myself. I've been diagnosed with bipolar-II and have been on Lamictal for several months, currently at a dose of 150mg. I've found it had dramatically brought down my rapid cycling and decreased the severity of my depressive episodes. Though I still have mood swings, they are less frequent and less intense/disabling.
As far as side effects go, I've never been one to experience many side effects from any medication I've been on. With Lamictal I've begun having headaches and also difficulty with focus, concentration, and short term memory. I'm much more spacey than usual and often will get distracted while having a conversation with someone and forget what we were talking about. My psychiatrist believes these indicate ADD and has prescribed me Ritalin, which I refuse to take because I'm convinced that these problems are side effects of the Lamictal. I've experienced weight loss, but this also may be due to the 200mg Wellbutrin I am also taking.
Although I've experienced more side effects with Lamictal than any other drug, for me I'm willing to continue giving it a try because of its effect on my moods.
November 3th
2007
11:25 AM
I was diagnosed bipolar a year ago and worked my way up to 200 mg of Lamictal a day but recently desided to wean myself off of it as I have found some chinese herbs that will stabilize my moods without the side effects. Since being on Lamictal, I have had horrible pain in my left foot when I walk and it just kept getting worse. The pain got so bad I could not stay at work. I am a welder and have to be on my feet all day but after two hours I would be in so much pain and have to take tylenol 3 with codeine just to make it through an 8 hour shift. I am now down to 25mg of lamictal and soon to be totally off. My foot is now healing and I feel great personally. I am not irritable or moody but am taking Chinese herbs . I noticed when I got myself down to the 100 mg level then went to 75 mg of Lamictal, I got really sick like I had pnuemonia and I had severe chills, bad headache, swollen lymphnodes and very nauseated with no appetite for three days. I lost 5 pounds during this time. I got through it but felt like I was haveing a illegal drug withdrawal big time.
Lamictal was poison to my system. I feel great now. I can now start to run and exercise again. For anyone who has interest, go to Ron Teegaurdens Dragon Herbs web site and find a natural way. you will be much happier.
Lamictal is bad stuff.
anonymous
-- By dragonwitch | Reply | (1) replies | Private Message me
October 15th
2007
6:48 PM
After 1 week. I experienced moods that I had never encountered before. I had extreme irritability and dark thoughts. I wanted to get rid of my pets. Hated my kids, and hated everything. People at work or on TV, I felt like killing them. I felt like a walking time bomb serial killer. I immediately stopped taking the Lamictal after 1 week. I could tell a difference by the next day. I was still depressed but not suicidal or full of hate that I experienced on the Lamictal. This type of side effect can happen with any mood stabilizers or anti depressant type drugs. I'm glad I knew this, or I would have killed my pets, family and myself.
-- By mmjazz | Reply | Private Message me
July 19th
2007
6:49 PM
Took mostly for seizures, but have been informally diagnosed with Bipolar II.
Had tremors at night, almost immediately, marked anxiety, weight loss, strange heat flashes, severe headaches (already have a migraine problem), complete w olfactory hallucinations (could have been breakthrough simple seizures, or headache auras).
Felt detached from myself and others. But the most disturbing symptom of all was auditory hallucinations. I have no history of psychosis and this only happened after starting Lamictal. Basically I could hear a constant chirping sound, subtle, but loud enough at night to keep me from sleeping unless my radio was playing to distract me from the sound. Could it have been a new form of seizure? Maybe, but regardless, the sounds started at the time I started this drug. Plus, according to a psychiatrist, I had no signs of psychosis, just the unexplained phantom sounds. One last possibility: Maybe an inner ear problem. Still would like to look into that.
People are right when they say this is still an experimental drug. If I had known what I was getting myself into, I never would have tried this drug to begin with. If any of you have had auditory hallucinations on this drug, without a history of any sort of hallucination or psychosis, PLEASE respond here and let me know about your experience. Thanks!
-- By drugsensible | Reply | (5) replies | Private Message me
June 16th
2007
1:54 PM
This is a nightmare. I have been on Lamictal 200 mg, tab in morning, for approx. 5 months. About 3 1/2 months ago I started getting muscles aches and weakness, muscle overuse problems, fluid retention ( like 12 pounds), stayed in a trance with very little short term memory. Thought it was everything but this medicine....I am an avid athelite, yes, even at 51. So, I blamed myself for not slowing down. Quick exercising totally, for 2 months, iced 3 times a day on leg muscles. Finally after making it to the summer without a mental breakdown, I went to the emergency room and a new internist to get checked out. Blood work, thyroid, hormones,ok.... Really don't care what they think , I can not walk, it hurts like hell. The Dr. did tell me to get off Lamictal....ok 7th day and I have some relief but it is not complete. Called manufactures, interesting, yes- these are side effects!!! But the studies are limited. Listen , unless you have seizures, get off this medicine... you read the full disclosure of side effects and then search yourself......It can ba a huge FOOOOOPA.....And you are the fool that will end up holdling the bag, not the manufacturer. Hopefully I will get better. Right now , I just trying to stay calm.
-- By jeb51 | Reply | (16) replies | Private Message me
May 28th
2005
5:13 AM
I started Lamicatal May 19th, 2005. I was warned by my doctor of dangerous rash and itching. If so, stop taking medication, call him if not too bad that I need to call 911 to go to the hospital. On my print out from the CVS pharmacy is clearly stated: Serious (sometimes fatal) skin rashes have occured while using this medicine. Immediately notify your doctor if you develop any type of rash. If this medicine is the cause of the rash, the medicine must be stopped. Even after stopping this medicine. It is still possible for the rash to cause permanent or life-threatening scarring along with other problems.
Possible Side Effects:
drowsiness, trouble sleeping, dizziness, nausea, vomiting, loss of appetite, muscle aches, double vision, blurred vision, fatigue, weakness, headache, shakiness, or clumsiness.
Symptoms of an Allergic Reaction include:
rash, itching, hives, fever, swollen glands, swelling of the lips or tongue, painful sores in the mouth or around the eyes, severe dizziness, or trouble breathing.
Symptoms of Overdose:
may include unusual dizziness, serve headache, unusual sleepiness, involuntary eye movements, and loss of consciousness.
I starting itching really bad the second day on the medication. To the point I had huge bruises allover me. I got a spurt of energy that I have not had in several years the second night but not since then. I can't go to sleep at night. Even taking 6 Tylenol PM and a Klonapin I don't get sleepy until around 9 to 100am in the morning and then I sleep all day long. I have started to have frequent headaches, suspious bumps around my mouth area. My muscles ache, too. It is Memorial day weekend so I can't call my doctor but I am going to on Tuesday. I have (MDD) Major Depression Disorder, Manic Depression, (TRD) Treatment Resistent Disorder. Nothing I have taken thus far has helped me with my depression.
Does anyone have first hand knowledge on ECT treatment? I am seriouly considering this procedure. I am desperate but I have no insurance or money because I haven't be able to work for 9 years now. This is the only thing that has kept me from getting the ECT treatments, is money! I have contacted every Talk show, hospital, clinical trials and no luck in finding free help with ECT.
Any ideas, guidance or suggestions would be most appreciated, I am dire to get help soon or I won't make it.
Sincerely,
Lost Hope
October 18th
2004
10:35 AM
I have been taking lamictal for about two months now, slowly increasing about 25 mg a week to insure that I do not get the serious rash. I am not at about 150mgs a day now. I really do not like this drug. I waited patiently to feel different, better, for my moods to stabalize, and in place of feeling that way, i have been somewhat disoriented, more emotional, at a loss for words and I generally feel "stupider." It is a horrible feeling, i am usually very quick to my feet, and now i am lagging. In addition, I have been having very vivid, intense dreams, that I never had prior to taking lamictal. All I want to do is get off of this drug, however, i have to do so slowly because of this rash, and that too will just be another long waste of my time.
-- By katiebm | Reply | (1) replies | Private Message me
September 6th
2009
9:40 PM
I am trying to find out if anyone has experienced 5 minute delayed reaction from Lamictal. My 18 year old son has been on Lamictal for over 3 years. He started out at 200 mg, had a breakthrough seizure after 1 1/2 years and is now on 600 mg. Since they increased him, he has episodes about every two weeks where he feels really dizzy and then forgets what just happened five minutes before. His short term memory is getting progressively worse. You wouldn't know anything is wrong if you were talking to him, but since he has had four grand mal seizures, he knows something is up. Any ideas would be greatly appreciated.
-- By jojocart | Reply | (1) replies | Private Message me