August 13th
2008
1:39 AM
I too have been on a regimen of 750mg of Levaquin for an infection on my leg. On day 2 I could not figure out why my upper keft arm was hurting me so much. I as so many others, wrote it off to hanging drapes and cleaning out my pantry. Four days later the pain started in my right arm and again, I was trying to figure out what in the world was going on. It's an intense pain like I've never had before. I have Crohn's disease so I wrote some of it off to that as well. I saw my Doctor today and didn't even think about telling her about the Levaquin (different Doctor prescribed it). As I lay in bed this evening unable to sleep I decided to do some research on Levaquin as it was the only thing I could think of that was causing problems. Boy, did I discover something. Thank you all for posting your issues on this website. I will be seeing the prescribing doctor tomorrow and will let her know the outcome of the drug and will make sure that I will never be taking Levaquin again. Too bad we can't get this word out to everyone being prescribed this drug. It's dangerous and hardly worth it. There has to be something else out there that we can take. .
-- By sore | Reply | (1) replies | Send Private Mail
August 2th
2008
10:50 AM
My 81 year old mother, who has Diabetes and Blood Pressure (and who is on eleven medications) was given a prescription for 750(!!!) mgs of this drug, by the doctor's physician assistant for a mild upper respiratory infection. Four days later, she ends up in the hospital delirious and confused, with pain in her back and legs. She recognized no one. After a few days, and constant intravenous fluids, she came back to herself. She's always been sharp as a tack, and in pretty good shape for her age. When she was brought to the hospital, they thought she was stroking, and of course, she couldn't tell them that she was just prescribed this medication. All her battery of tests came back negative for stroke. Her useless doctor never even showed up at the hospital. If she had, she could have told them about the prescribed Levaquin. When she was released from the hospital, I called the pharmacist and asked what medication that she was taking could of caused this - and he said without a doubt, the Levaquin. This stuff is absolute poison and should not be on the market. How it got approved, I don't know - maybe kickbacks to them - for sure kickbacks to the doctors who prescribe it and claim side affects are very rear with this medication. If you are every given a prescription for this - ask your doctor for something else.
-- By momofmeezer | Reply | (2) replies | Send Private Mail
August 1th
2008
11:17 PM
Hello All, My Levaquin nightmare began on June 18th, 2008. The side effects I had were so unbelievable, most of you, if not all of you will believe this. I had severe night sweats which would transfer over to a extreme cold chills, which would allow me to sweat like crazy. Bathed in Sweat. I thought there were small needles all around me and poking me everywhere. My feet, toes, knees and buttocks tingled like there was no tomorrow (and still are to this day). When and how can I make these side effects go away. I'm sick of them. I no longer have the night sweats or the bitter chills, I'm now totally aware of want is going on around me, while taking the med and several days after I couldn't even tell you my name. The bridge of my nose, and running across to my ears tingled like crazy and my ears rang all the time, and they still ring once in a while still. I need to know when this feeling of tingling in my hands, feet, knees, legs and humming in my ears will go a way. Help! I think this drug needs to taken off the market. I took a total of 17 pills. My first scripted was for 15 days and by not knowing any better less then a week later and another doctors appointment, and one more script, which I filled. I took two pills from that bottle. My husband called the doctor and she told him this wasn't normal. She told him that I was to stop the med asap, which I did and I'm still having these awful tingling. If anyone, anyone has any suggestion of how to get those med out of my system I would certainly appreciate it. God Bless each and every one of you. May you all find relief.
-- By teaa | Reply | Send Private Mail
July 31th
2008
8:25 PM
my legs are swollen up really big.. i have taken this for 9 days im scared any suggestions???
-- By clyde | Reply | Send Private Mail
July 18th
2008
1:58 PM
I was prescribed Levaquin 500 MG for a sinus infection5 days ago. After completing my third dosage I felt a sensation on my toes as if something was biting me. Then it started on my fingers, hands and up and down my arms. My toes and fingers started to swell. The rash then came up the backs of both legs. My feet felt as if they had been burnt very badly.They look like they have been very badly burned. I phoned the doctor and was told to take Benadryl (2 pills) ever 6 hours and to come into the office first thing the next morning. I did and was told to never take Levaquin again. I was prescribed Augmentin. Two days later and I still have the red burnt look on the tops of my toes and the sides of my feet. It looks terrible!
-- By pap1823 | Reply | Send Private Mail
July 14th
2008
8:09 PM
2 yrs. ago my husband had been on Vancomycin for an infection from a hip operation. He had an allergic reaction and was given Levaquin in the ER. Not long after the dose was given, he was not able to walk at all his fever spiked and he said he was blind at one point. It did not last but since then he had been slowly declining. He has trouble with his inner ear balance and he can hardly lift his right foot to clear the floor. He bearly feels anything from the knee down on both legs. We have been to many specialists/neuros, MRIs, nerve conduction test and there is nothing to show what is the cause. Can anyone tell me how we could find out for sure if Levaquin may be the culprit.
Sue
-- By sue58 | Reply | (2) replies | Send Private Mail
July 12th
2008
11:13 AM
After 3 days of Levaquin at one 500 mg pill per day for a sinus infection and swollen lymph node, I suffered severe pain in the calf muscles of both legs and am only able to walk short distances, if at all. This started yesterday and I have stopped the drug, am icing my calfs, relying on friends to help me, and praying that there has been no permanent damage.
-- By mokreth | Reply | (1) replies | Send Private Mail
July 9th
2008
6:57 PM
July 8,2008
In October 2007 I had surgery to remove a salivary gland. Due to severe infection, I was on 500mg of Levaquin for 20 days and an additional 10 days of Avelox. While taking the medication I suddenly had severe leg and knee pain. At times I could hardly walk. I would be awake a night with severe pain in my knees and legs. I also had the tendon in my left shoulder start "snapping" while sitting in a chair. My shoulder became so bad at one point that I could not lift my arm. I never related any of this to Levaquin until at a later date learning of this kind of damage. My shoulder finally got better after weeks of not using it. I still am experiencing pain in the muscles and tendons in my legs. I have just started seeing my doctor about it this past week. She has me taking Celebrex, which has helped somewhat. I keep hoping that tendons will heal eventually.
July 3th
2008
12:17 AM
Question for you all. I have been on levaquin for 6 days 750 mg. For the last 3 to 4 days my hands have been killing me and it is getting worse, my knees, and shoulders hurt now. After reading your remarks I am calling doc first thing in the morning. Please let me know if you have any advice for me.
-- By talentbeauty | Reply | (4) replies | Send Private Mail
June 29th
2008
11:04 AM
My husband was prescribed Levaquin on June 4 for a spider bite. He took 750mg for 10 days. The bite healed well and we are thankful. Last night he began having terrible joint pain in his hips, legs and elbows. After reading all the posts I"m convinced it is caused from this medication. Other than Tylenol I don't know what to do for him.
-- By 47140 | Reply | Send Private Mail
May 7th
2008
8:19 PM
I have a question to any and all of you who have posted. I have similar symptoms to just about all of you minus any rash but mostly I have pain and some weakness in my right side particularly my shoulder and arm with some tremors in my pinky and ring finger and some pain and weakness in my right thigh. Insomnia and anxiety have also been a big part of the symptoms. Additionally when I take a hot shower my fingers twitch really bad then subside after about an hour...weird. My question is to some of you who have been going through this for some time is does this subside or even better go away over time? I have been off this stuff for just about a month now and things seem to be a little better but it might be that I am just getting used to the symptoms. Thanks
-- By lcelce | Reply | (2) replies | Send Private Mail
May 7th
2008
1:00 PM
As you may recognize, I have posted here before. I had tremendous problems after being given Levaquin which included a distal bicep rupture and numerous CNS problems. Recently I have developed yet another "condition". I have been very dizzy in the mornings and have had very headaches along with vision changes. After some checking, it has been determined that my fasting glucose level is 143 mg/dL first thing in the morning. Obviously, I now have a sugar problem. I am not overweight, not generally unhealthy, and I am very active! I have read elsewhere that after Levaquin, sugar clearance is a problem. Well, I am here to confirm that. When will this stop?
-- By antileviquin | Reply | (1) replies | Send Private Mail
April 22th
2008
6:03 AM
I have taken several rounds of Levaquin, and recently Avelox. After taking 2 rounds of levaquin for a sinus infection last spring I experience many of the myalgia type symptoms, and was tested for Rheumatoid Arthritis, and Lyme's disease, all negative... eventually felt better. I never attributed to the medication. Last fall I again had a sinus infection levaquin again, 2 rounds of 5 days in February, and then Avelox early April. I have never been sicker in my life. I have had many of the CNS effects, and the joint and muscle pain. Agonizing pain that I had never experienced. worse than passing a kidney stone. I am feeling a bit better, and heading back to work today after being unable to go for 10 days. I have also developed some eye problems, that are being managed with drops. I am trying to eat naturally and drinking lots of water. I pray this will go away, and want to warn everyone not to take this medication! Still have back and hip pain, pain in my feet, insomnia, headaches, and anxiety...but is not as severe as 10 days ago. My prayers are with all of you suffering from the side effects of these dangerous drugs.
-- By seabird08 | Reply | (3) replies | Send Private Mail
April 19th
2008
7:30 PM
My son has been battling sinusitis for a few months . I didn't know sinusitis could be so bad. His doctor prescribed Levaquin three days ago and I read the side effects and realize it was a risk because my son has seizures.After 2 dosages and sleepless nights with headaches and him not being able to function I've stopped giving it to him.
Thanks for such a great website!
The benefits don't out-weight the risk.
April 16th
2008
5:18 PM
Well I posted a couple weeks ago and thought I would update. I intially thought I had no symptoms but lately it seems that in the morning getting out of bed that my muscles are extremly tight in my legs from my calf to my ancles. They seem to stretch out ok after a few minutes but i wondered if the damage has already maybe be not reversable. I just happen to have been seeing a physical therapyst for surgery I recently went thru for another problem altogether. I mentioned this drug to him and he had not heard of it. I told him of the tendon problems people have experienced. I asked him if he knew of any drug that can cause this effect and he stated cortizone can. He says its acks in destroying tissue, cells that act in supporting the tendon and allows them to stretch. . So knowing that a drug can actually cause the same symptoms some of you have experienced I am a believer now. I can see how this drug can possible reak havoc on any part of your body. So since i seem to have been feeling possible symptoms I was wondering if any- one has felt muscle aches and leg stiffness issues and how long after stopping the levaquin were the symptoms felt and what did they progress into if anything and did they subside and or go away all together. To me it seems that if this is about damage then its possible that just simple stretching can cause the tendon to snap. I can also see why some people may have recurring injurys. This would be a sign that one does not heal or the healing process is greatly lenghtened. I do plan on eating better and using some supplements to help.
-- By crapshot | Reply | (1) replies | Send Private Mail
April 12th
2008
1:27 PM
I was on the medication for several days. I developed a rash that traveled down my blood vessels on the outside of my body. It both hurt & itched. I went back to the doctor & he had doctors & nurses from all ends of the clinic coming to look at me. The rash was diagnosed as vasculitis & was the worst case they had ever seen. One of the doctors even did a biopsy on one fo the larger masses, but it was negative. They had never seen anything like that before. It took 9 months to get over the rash - like big boils that were on the blood vessels. It was so unsightly that I wore pants all summer long. Fortunately I only had it on my arms & legs. I now have scars where the boils had been.
-- By lyzard95 | Reply | Send Private Mail
March 24th
2008
10:18 PM
Well, I am not posting a side effect. I actually stumbled upon this website while trying to look up whether hypoglycemia is a side effect of Levaquin. I am a physician assistant and routinely prescribe this medication. Unfortunately ALL medications have the potential for causing many many many different side effects. Obviously one has to weigh the benefits of using the medication with the risk of side effects. And certain side effects are obviously more common than others. While I appreciate the point of a website like this, it is very frustrating for me, as a clinician, to read someone posting things that are absolutely untrue which can potentially cause undue distress or worry for everyone who may read it. I am referring to the person who wanted "to let everyone know of the relationship between levaquin and vancomycin." Her only source for this WRONG information is a nurse who told her daughter. Did she ever think that the nurse could be wrong and that maybe before posting something like that she should ask a pharmacist or a physician. Vancomycin and floroquinolones are not related pharmacologically!!!!
-- By downtheshore | Reply | (3) replies | Send Private Mail
March 21th
2008
7:05 PM
My finance was prescribed Levaquin for a food borne bacterial infection. On day 4 of the antibiotic, he broke out into a horrible body rash. It is all everywhere from scalp to toes. It started as a small rash under the arms and by the next day it was a small bump-like rash all over. Then it got splotchy...red and white... we went to the ER and they gave him the usual steroid and anxiety control drugs to help but he now looks as if he has a sun burn and is developing bruse-like purple patches all over his legs and groin. He is almost convulsing due to the pain. Has anyone had this reaction?
-- By dmarsh101477 | Reply | (1) replies | Send Private Mail
March 15th
2008
1:54 AM
Recently took a twenty day run of 500 mg Levaquin for a cellulitis infection that popped up after a knee surgery. It seems that unlike most people I tolerate the drug pretty well. The only side effect I have noticed is a little muscle stiffness when I wake up which is quickly remedied through light stretching and a warm shower. After being put on this medication I looked up it's side effects and was frightened by how many people have had terrible and debilitating side effects. Next time I'll trust my doctor and not look them up. I think any lost sleep and nervousness can be attributed to worrying about side effects that never came up.
-- By railguncannon | Reply | (8) replies | Send Private Mail
February 20th
2008
9:53 AM
Hi,
I took Levaquin for one day, the first pill out of a pack of five.
Next day I had severe pain in legs back, shoulders and across my chest,
I thought I'd had a heart attack. I immediately suspected the medication
because it was the only one I had taken.
The pain is still with me but it only three days out, am hoping that it
will go away. Recently today I have begun to notice knee pain.
Anyway I have warned everyone I know not to take Levaquin under any circumstances.
February 6th
2008
9:27 PM
I took Levaquin last January. The day after I finished it, I had severe swelling of my ankles, knees and pain in my hip. I was unable to bend my legs. Prednisone reduced the swelling, but the pain in my hip continued. It is a year later and my hip is still extremely painful. I have had x-rays, an MRI and nothing shows other than a strain injury. I cannot walk up the stairs and when I am on my feet more than 15 minutes the pain returns. I have had injections and epidurals and nothing helps. Prior to the Levaquin, I had no problem whatsoever with my hip. I wear a TNS unit which helps, but nothing, even medication eliminates the pain.
-- By gg12ddd | Reply | Send Private Mail
January 30th
2008
3:51 PM
Hello Everyone ---
I just wanted to share my story and hope that it helps others. On December 20th I was prescribed Levaquin to help clear up a bad case of Bronchitis that I had taken a Z-Pac for a week earlier. I still had remnants and the doctor saw as fit to give me the Levaquin to help me get over what was remaining. I had a 10 day supply of the 500mg Levaquin prescribed to take once a day. After (2) two days of taking the medicine I noticed that I was having a slight amount of pain in my left knee, and by the 23rd of December it hurt to walk or stand or sit. The pain was just a dull ache however; it would also become sharp with any movement. Just to let you know I finished all of my 10 day supply, not knowing that the Levaquin was what was causing my problems. I am a healthy 31 year old male that has a 3 year old daughter, so I am always on the go. However, beginning the 24th & 25th of December the pain had spread from my left knee to my right knee, ankles, as well as hip bones. By the end of my prescription my pain was all over my body, it hurt to sleep, it hurt to move, however, taking 800 mg of Motrin every 6 hours seemed to help ease the pain but never seemed to knock it out. I tried everything from Tylenol to Aleve...however, Motrin was the best. Not knowing what had caused my problems, and getting tired of being in pain I went to see my family medical physician on the 7th of January. He ran me through the mill with test to figure out what was going on. Nothing out of the ordinary, I was a little anemic, however, that had nothing to do with my problems. We talked about the Levaquin, and he as most doctors dismissed the chance of that being the case. However, he did prescribe me 200 mg of Celebrex per day, and told me to take Tylenol as needed to help with the pain. After taking the combination of those drugs for 10 days, I called his office back and told him I was still having problems not as strong as before and I could tell I was getting a little better however movement was still bad, so he referred me to a Rheumatologist. I saw the Rheumatologist on Jan. 22nd and he seemed to help more than anyone else, he also did some blood work, however, nothing out of the ordinary once again, he also check for arthritis, and nothing came of that either. He believes that the medicine was the root of the problem, and until it is gone from my system nothing I am going to continue to have problems. He upped my Celebrex to 2 times per day, and told me to take Tylenol Arthritis 2 pills 3 times a day...this combination has almost knocked away all of the pain. I can still tell that I have problem areas such as my wrist when opening the car door; however, hopefully those will go away in time. Apparently, according to him there is a small amount of people in the world that is allergic to fluoroquinolone drugs and do not know it until they take one of these. I go back to see him again on the 12th of February hopefully I will be back to normal, however, I do have one burning question in my mind…what happens if I get off the Celebrex? Hopefully he will be able to answer that one for me. For anyone out there that is having these same problems as I have you might want to recommend for your Doctor to prescribe you Celebrex and see if will help you…
January 23th
2008
12:49 PM
I can not believe I found this web-site. I honestly felt like I was going crazy and that this was in my head. I was prescribed Levaquin for a sore on my finger to fight infection. I was taking 750mg every morning, once a day. The morning of the 8th day, I woke up and felt like I had been ran over by a truck. I felt foolish telling my family even the "back of my knees hurt." By the evening of that day, after laying in bed for just 45 minutes, I couldn't put down my right leg or put any pressure on it. I haven't taken the Levaquin for 24 hours now and it still hurts to try to open doors because my hands are so cramped. Does anyone else feel dizzy? All of sudden I just won't beadle to focus and my head hurts, only last a few seconds, but it is definitely there. Does anyone feel they have long term pain or affects of this drug? This is unbelievable that so many of us fell this way. Just yesterday I was at the doctor because of the pain. He instructed my to stop taking the Levaquin and told me, he has never hear of anyone feeling this way, but it is listed as one of the side effects and is very rare. Apparently it isn't that rare!! Glad I found you guys.
Stacy
January 19th
2008
6:41 PM
Well I started Levaquin on the 17th of January for a bladder infection, and I took 2 pills and I have had nausea and watery diarrhea, so after reading all your postings about it I am not going to continue this medication
-- By mama123 | Reply | (2) replies | Send Private Mail
January 17th
2008
5:25 PM
I started taking Levaquin last Friday ( the 11th) for a severe sinus infection. I was prescribed 750 mg for 5 days. I finished that but my sinus infection didn't improve so I was prescribed another 5 days of 750 mg. I took the pill yesterday and today ( totally 7 pills) I noticed on about day 2 or 3 that my legs felt tight, but thought it was a normal side effect. Then my lower back. I wasn't in serious pain at all so I ignored it. Today my knees, knuckles, shoulders, elbows, are extremely sore and i get sharp pains every now and then. It also hurts to sit for too long. I started researching the drug and now am so terrified after reading all these horror stories. Has anyone had this only last while taking it and not for months afterwards? Or am I pretty much in this for the long haul. And to the people who say that it lasts for months or years is it pain that disables you from working and doing daily things? I'm only 23 and I live a very active life and I'm totally freaked out now. PLEASE HELP
-- By barbaral | Reply | (4) replies | Send Private Mail
January 10th
2008
12:38 AM
I went back to my PCP today. Yes the one that gave me the Levaquin. He was very nice and even agreed it was the Levaquin I took back in December. He said that these types of side effects we all are describing are RARE (I would have kicked him for all of us, but my legs hurt to bad).
But he did acknowledge pain and my symptoms (listed in my December post) and prescribed me Prednisone for my ligaments and Lyrica for my nerve pain. He also said it was going to be a long haul. I know that some of you are dying to telling why these meds are bad too, but I am going to try it because I haven't really been out of my bed for two weeks.
I just wanted to let you all know, that maybe some doctors are starting to listen... and that we should keep speaking out and warning others about the HIGH risk of our side effects.
-- By queensoccermom | Reply | (4) replies | Send Private Mail
January 9th
2008
6:42 PM
I am a very healthy 21 yr old. I have always had a slight problem with urinary tract infections, nothing major tho. Doctors in the past always prescribed an antibiotic, usually Macrobid. I went in to see a doctor at MEA that gave me 3 samples of LEVAQUIN. They were each 750 mg. Within 3 days of taking the pills I was unable to get out of bed. My stomach pains were so severe I had to constantly bend over to relieve some of the pain. I had no appetite. My chest hurt so bad I couldn't talk loud, laugh or cough without crying from the pain. My fingers began to swell and became numb. I could barely sleep and when I did it was a very restless sleep. I woke up during the night one night and couldn't feel anything in my left shoulder. It has been close to 8 months since I took LEVAQUIN. I still have problems with my joints hurting horribly. I see spots like you would see after a camera flash in my eyes all day everyday. The bottoms of my feet still hurt if I stand still for a long time. LEVAQUIN is so dangerous. PLEASE BE CAREFUL!!!
-- By lindsay863 | Reply | (2) replies | Send Private Mail
December 30th
2007
5:47 PM
I took my first Levaquin pill at 8:30 at night. A short time later, I felt kind of funny, like my mind was separate from my body. I figured that I was just sleepy. Then, my bottom lip felt slightly itchy & swollen. I told my husband I might be having an allergic reaction, but he couldn't tell any difference in my appearance. Next, my bottom gum started to feel swollen. When I went to the restroom, I noticed a red bump on my upper thigh. I was becoming suspicious, but tried not to worry about it. Then, I felt my face flushing, but it didn't appear red enough for my husband to be concerned about. I checked on my legs a few more times & after seeing more red dots appearing, I knew I was having an allergic reaction. I popped 2 Benadryl pills & yelled at my husband to take me to ER. My face was burning so badly, I had to open the windows on the way too cool off. I calmed myself down by telling myself that it was just my adrenaline. When I got to ER, it was 10:30, but it felt like only an hour had passed since I took the Levaquin. I told the ER staff I was having a mild allergic reaction, but in reality, it was worse than that. I waited patiently until I looked in the mirror & saw that my neck was pink & covered with hives & welts. It came on so suddenly that I freaked out & ran for help. They quickly administered steroids & said it was good that I took Benadryl. By then, more hives started to appear on my body. I noticed red patches on my hands, too. Although I could breathe alright, my throat was real dry & I was having a hard time swallowing. The doctor said the Benadryl was making my throat dry. I gradually started to feel better & my head started to feel more clear. Two hours later, most of the hives disappeared & I was dismissed. The next day, however, I woke up with tightness & dull tingling in my knee joints & areas above my wrists. I figured it was due to dehydration. By the end of the day, the tightness went away in those areas, but traveled to the areas above my thumbs. That finally went away, too. After reading the side effects, I now know that Levaquin was to blame for those uncomfortable sensations.
-- By teresak | Reply | (1) replies | Send Private Mail
December 7th
2007
11:02 PM
I took Cipro at 200 milligrams / 6 pills / 6 days about a month ago.
I cannot/barely sleep, I'm constantly wired.
My left leg voluntarily/involuntarily twitches sporadically.
My body feels like some kind of horrible "bubbles" build up and are then released...everywhere...probably some kind of circulation thing, I don't even want to know.
My legs have nerve pain occasionally, my right arm has pain occasionally.
My digestive tract has rare pains and is irritable/snazzy...I don't know when I'm full, I barely know when I'm hungry.
I have to force myself to urinate, as my body does not give me the "I'm full, empty me" signal anymore.
I get white lines of light that streak across my vision rarely.
I lost most of my emotions except the humor I receive when I think how horrible it is. I would not wish this on my worst enemy.
-- By draco9898 | Reply | (2) replies | Send Private Mail
November 29th
2007
2:15 PM
I had been suffering from a lingering sinus infection that lead to having Epididymitis (testicular pain). My doctor gave me Levaquin (750mg)/day for 14 days. I read and check with the her about the drug. On the third day I woke up with a terrible itch on my legs. I took my dosage for the day at 7 AM and by 8AM I was in the ER. I had such a reaction to Levaquin that my blood pressure had dropped to 71/49. As soon as I started to feel the effects of reaction I took Benadryl. That saved my life.
-- By phred1 | Reply | (1) replies | Send Private Mail
November 28th
2007
1:47 AM
My son is 16 years old, a wrestler, and was in excellent health. He developed sinus issues and had surgery on September 17, 2007 (he had a headache on the left side of his head which the ENT said was due to sinus issues). After sinus surgery, the doctor prescribed Levaquin for 10 days. After 4 days, I called his doctor and told him he was getting worse and not better. The doctor said not to worry. After that he had sleepless nights, felt like the room was moving away from him, became dizzy and light headed. Then the joint pain came. First in his thumbs, then wrists, elbows, knees, and ankles. He developed severe headaches in the back of his head. The headaches were moderate to severe and with him 24 hours a day. He became extremely weak and his dizziness continued. He was tested for many diseases through numerous blood tests, had a spinal tap, MRI, MRA, CT of the spine, CT of the sinuses, x-rays of the knees, and an EEG. All came back normal, except his sinuses were still swollen which is normal after sinus surgery. He has seen numerous medical doctors (primary, pediatrician, two neurologists, allergist, two Ear Nose Throat) and is now seeing a pediatrician in UCLA and has appointments to see more UCLA doctors.
He has been out of school now for a couple of months. Luckily, the school has him on home instruction and sends teachers to the house and he is maintaining his honors classes. To give you all hope, he does appear to be getting better, but it is a very slow recovery. Up until two weeks ago, some days were okay and some days were pretty bad. It comes and goes like that. At first I never suspected Levaquin, but stumbled across the side effects when I was trying to research what was wrong with him. The only thing I found that had helped some people was taking high doses of magnesium (the kind ending in "ate" is better absorbed). I was and still am nervous about giving my child a lot of any type of vitamin, but no one was able to make him better, so I gave him 250 mg three times a day for three days. It could be just a coincidence, but about 3 days after I stopped giving him the magnesium, all of the joint pain was gone except for his knees, which still hurt if he bent down.
After a couple more weeks, he still had severe headaches, knee pain, some dizziness and some weakness, so I thought I would give it another go and gave him magnesium three times a day for 4 more days. After the 4 days of magnesium, he started on a new medication called Lyrica. His knee pain is almost gone and his headaches are minor with only an occasional flair up. I can see in his eyes and how he reacts that his is feeling better than he has in a long time. He has always been a happy kid, but I can tell he has his special spark back.
For the last two weeks, I just give him one 250 mg of magnesium a day, multi-vitamins, and Lyrica. By the way, one of the blood tests I requested was for magnesium, and it showed his level was normal. So, I have no idea if it is time that is making him better, the magnesium, or the fact that he is taking Lyrica. He will still continue to go to the doctors, none who believe Levaquin could be a cause, until he is completely back to normal. I believe that Levaquin was likely a culprit in his overall health issues, especially since no one can figure out how my healthy, energetic son suddenly became so ill he could no longer go to school. For the past two weeks now, he has had good days mixed in with okay days (no bad days though!!!) He has had only 2 weeks so far of better health and we hope it continues to get even better. Good luck to all of you and my prayers are with you. I hope somehow this will help someone.
-- By martinsmom | Reply | (2) replies | Send Private Mail
November 3th
2007
4:11 PM
I wish I had seen this page BEFORE I finished 5 days of Levaquin 500. The meds were prescribed for a post-upper-respiratory infection hacking dry cough that had been going on for nearly 3 weeks. I finished the meds 4 days ago and still feel super crummy. Levaquin did nothing for the cough (acunpuncturist stopped it with with several well-placed needles in my outer ear) and - before I saw this page - thought of asking the doctor for another round since I was still sick and seem to be getting worse. I have intermittent headaches, a racing heart, blurred vision, am so tired I never want to get out of bed. I'm also having a recurrence of sciatica in one hip and thigh and - new symptom! - the foot on that side is so sore it's hard to put my weight on it. I was told to report any joint or tendon pains but, according to the doctor, "they are very rare." I'm sure he told me about the symptom to protect himself "just in case" but it was clear he really didn't believe there would be problems. I took the medicine for three days, then stopped for a day because I didn't feel well. Then I thought, "Suck it in - there's only 2 pills to go and then you won't infect anyone. You don't want to be Typhoid Mary for the next antibiotic-resistant killer strain of some bug or another, do you?" I am devastated to think these symptoms will persist as long as people on this site say they will. I keep thinking I can sleep this off, or that I'm really sick with something that requires a different antibiotic. ( And how stupid is THAT?) But, from what I've read here, that's not likely to be the case. I'm 67 years old and already have compromised immune system plus sleep apnea, high blood pressure, narcolepsy, and asthma. Is there anyone out there who has been able to resolve these symptoms in less than three months? I refuse to believe I have to feel this way for the foreseeable future. And boy, am I mad! At myself as well as at the doctor. I usually research everything before I take it, but this one just slipped under the wire.
-- By notoveryet | Reply | (2) replies | Send Private Mail
October 28th
2007
7:41 PM
I am a physician and have prescribed levaquin to many people. I have had some of them complain of what they thought were serious and variable side effects but mostly I attributed their problems to anxiety and hypochondiasis. I now know differently. I took levaquin, and for over a year I have had serious CNS anxiety, insomnia, joint and tendon pain, and widespread peripheral neuropathy. It has been an awful time and since realizing that the effects are often long term I have been able to identify many other patients who have developed serious long term problems with anxiety, depression, arthropathy and tendonopathy, neuropathy and possibly endocrine effects like gonadal failure and worsening of diabetes. There are no long term studies done post marketing to identify these effects and to unify all of these problems into one syndrom of fluoroquinolone toxicity. This is a big problem and I believe thousands of patients have been adversely affected by the use and misuse of levaquin and probably the other fluoroquinolone antibiotics. I have other colleagues who are beginning to recognize the long term consequences of levaquin and the fluoroquinolones. More research and study needs to be done. In the mean time I am sure that Johnson and Johnson, Ortho- Mcneil, will continue to refute that the incidence of serious adverse reactions is much higher than they report.
-- By reynolds | Reply | (4) replies | Send Private Mail
October 21th
2007
1:24 PM
I had a chronic cough which got worse and developped into bronchitis. My doctor gave me 10 days of 500 mg levaquin. Ten days later I went back, still coughing, even though the bronchitis was a bit better. He gave me another prescription for 7 days of levaquin with a refill.
A week or so into this routine, my legs started to hurt a lot. I thought I was just out of shape and needed to get back to the gym and do some stretching exercises. I could barely climb the stairs to the gym, but I must say that after working with the trainer and stretching a lot (and it hurt a lot) I was able to walk easier and the pain lifted quite a bit. . . for a while.
I also have developped total diarrhea, which made sense to me; because I was trying to kill bad bacteria in my system which I thought was causing the bronchitis.
Fortunately, last week I decided to go to another doctor because I wasn't getting better and I felt my old doctor was just overwhelmed by the health care system and was just going through the motions. This doctor, an ENT doctor, immediately diagnosed me with LPRD (acid reflux which goes all the way to the vocal chords, resulting in cough, tightness in the throat, etc.) I know he's right because I have felt the acid reflux thing at night when I have eaten late and had a couple of glasses of wine with dinner.
Tomorrow I'm heading to a gastro doc to attack the diarrhea, but I wondered if the leg pain had anything to do with the levaquin, since it came about after a week or so on the stuff. and lo and behold found all these postings which have now scared whatever shit I have left out of me!
I'm off to get some magnesium, as someone suggested and would appreciate any other tips anyone might have. My only tip is that stretching out your legs and butt muscles, does temporarily help a bit.
October 19th
2007
7:08 AM
WOW, OKAY I WAS PUT ON LEVAQUIN FOR A RESP. INFECTION. I HAVE ASTHMA THAT IS SET OFF BY ALLERGYS AND INFECTIONS. I COULD NOT BREATH AND WENT TO THE DR. THEY SAID I HAD AN INFECTION GAVE ME 5 DAYS OF LEVAQUIN.. BY THE SECOND DAY I COULD NOT SLEEP, MY BODY WAS HURTING. BUT I JUST PUT IT OFF AS THE INFECTION. COUPLE DAYS LATER MY KNEES STARTED HURTING AGAIN I PUT IT OFF AS JUST DOING TO MUCH AND NOT SLEEPING. I CALLED THE DR TO LET THEM NO I WAS STILL NOT FEELING WELL SO THEY GAVE ME ANOTHER ROUND OF LEVAQUIN. I TOOK THE 6TH DOSE WHILE I WAS AT WORK WITH IN 3 HOURS I COULD NOT EVEN WALK UP THE STAIRS TO THE 2ND FL SOMETHING I DO EVERYDAY. SO I THOUGHT I WOULD LOOK UP THE SIDE EFFECTS I THOUGHT I HAD SAW SOMETHING ABOUT PAIN. THATS WHEN I READ A LOT OF SIDE EFFECTS.. I HAD SWELLING IN MY ANKLES .. MY HANDS, WRITST, ARMS, SHOULDER, LEGS, ANKLE, AND KNEES HURT SO BAD. THERE WAS NOT A MUSCLE IN MY BODY THAT DID NOT HURT. I CALLED THE DR THEY SAID TO STOP TAKEN THE LEVAQUIN, WELL IT HAS BEEN A MONTH. I HAVE SLOWLY FELT BETTER, BUT I HAVE SPENT THE LAST FEW WEEKS FEELING LIKE I HAD SOME KINDA JOINT DECEASE. AND YESTERDAY MY LEGS STARTED HURTING AGAIN AND MY LEFT ANKLE IS SWALLEN. IT SEEMS LIKE EVERY TIME IT RAINS MY LEGS HURT. LIKE I HAVE ARTHRITIS OR SOMETHING. PLEASE IF YOU ARE STILL HAVING PROBLEMS LET ME KNOW...
-- By jedgemon | Reply | Send Private Mail
October 17th
2007
8:51 PM
Well....an update on my update. Legs aching again. I thought the symptoms were gone. Apparently not. Leg pain and nausea. I am just hoping against hope (and praying!) that these are not permanent. I've been off the Levaquin for 2 weeks+ now after being on it for 12 days. This drug is a nightmare.
-- By lizd3 | Reply | (1) replies | Send Private Mail
October 12th
2007
6:54 PM
I went on levaquin-2 rounds of it, due to pneumonia. I felt very out of sorts and discombobulated. Dizzyness, word recall problems, insomnia, diahrrea. My tongue was coated with a thick white film. One night my tongue and my hand felt very disconnected to me, and I had a strange but familiar taste or sensation in my mouth but I couldn't name it. It lasted 3 or 4 minutes. I think I may have had a petit mal seizure. I have been having trouble with my vision, things I read are blurry now, and I have never worn glasses, or had vision problems before. I have been off of this medication for 6 days now, and I am still feeling some of these side effects. I rarely have any side effects from medications. I will never take this again.
-- By lwalter | Reply | (5) replies | Send Private Mail
October 12th
2007
7:38 AM
About 4 months ago I was put on a 10 day treatment of 500 mg Levaquin, because of an on going sinus infection. I took the pills for 5 days and experienced muscle twitching, weakness, dizzyness, upset stomache, irregular fast heart beat, extreme anxiety, I had this weird tingling numb feeling from my knees down and couldnt sleep at all. I called my doctor after 2 days of the medication and told her about my side affects and she told me to continue the medication. After 5 days went by I looked up this web site and was shocked to hear that I wasnt alone. I threw away the rest of the medicine and prayed I wouldnt have long lasting affects. I continued to have muscle twitching, cramping, and weakness for the next 3 months and my leg muscles would ache and tighten by themselves. I have played sports my entire life and had just gotten done my season of college basketball before I got sick and after I took this medication I could barely walk up the stairs without feeling like I was going to pass out. I was in and out of the hospital having blood tests they tested me for lyme disease, and did 2 cat scans of my head. I went to a neurologist and had tests done worrying it was ms or als and they sent me to have an MRI of the brain and my neuroligist asked me if I had been on any medications and I told him levaquin. After 3 months of crying myself to sleep being put on about 8 different medications to control my anxiety my neurologist diagnosed me with BFS. BFS is a neaurological disease that affects your nerves. It is not life threatening but many people suffer because of the anxiety that comes along with the disease and I get muscle twitching all over my body and feel tired most of the time. It took me to get a long time to feel even a bit better but I began taking magnesiun, B12, Potassium, and other ones to help nerve function and a mild anxiety medication and I have felt a little better. Nobody believed me when I told them my illness was from levaquin but after I was diagnosed I realized that just 5 pills may have ruined my life. Now today I have my good days and bad. I just turned 21 but I cant drink or have caffiene because of BFS. I met the love of my life about 3 weeks after I got out of the hospital and I knew we were meant to meet because his step father had passed away a month before. His step father took levaquin for an infection and his kidneys and liver failed 11 days later and he passed away. I was so devastated when my boyfriend told me about this and called my parents to tell them how SCARED I WAS. I am dealing with what this medication has done to me by staying positive, and telling as many people as possible about how bad this medication is. I wish I would have rad this site before I took those 5 pills but I didnt. Levaquin should not be on the market and I will pray for those who have had the same heartbreaking experience as myself.
-- By jenna16 | Reply | (3) replies | Send Private Mail
October 1th
2007
7:53 PM
OMG, I thought it was just me! I went to my doctor because of an ongoing infection and the worst cough I've ever had. I was given Levaquin 750mg and a steriod shot. Then it went down hill from there. My ankles began to swell, then my fingers and hands. I had a very hard time using my hands to open my back door and it even hurt to use my stapler at work! Then other joints began to hurt, like my neck and my knees. It was painful to get up or sit down. I tried to get up and get ready for work one morning, but I just stood in the shower crying because my entire body hurt. I went to an emergency clinic and asked them to start doing lab work to find out what's going on. I felt like I was 90 years old and had been suddenly stricken with menopause, lyme disease, fibromyalgia,arthritis and migraine. All the lab came back normal. I went back to the doctor that gave me the drug (handful of samples) and was referred to a pain and joint center. I am still trying to recover from this drug. .
-- By alrightythen10 | Reply | (3) replies | Send Private Mail
September 6th
2007
3:40 AM
I am a 27 y/o male in good physical condition (i did a triathlon 2 months ago) I was prescribed levaquin 750mg a week ago for an throat infection and fever. After the first dose I had sever abdominal pain (like someone was stabbing me). After the 3rd dose my back started to hurting and my calf's cramped up. I stopped the medication immediately. It has been 5 days since I stopped the medication and I have a burning sensation on my back. It is on both sides and stretches around toward my stomach. It feels like I have bad sunburn but there is no redness, swelling or discoloration. I also still have fever and muscle spasms all over my body (mostly in my legs). I went to my doctor yesterday and he is running a bunch of blood testes and I hope he can find a way to treat the symptoms. Does anyone know how long this should last? I just want it to go away so I can get on with my life. Any help or suggestions are appreciated.
-- By agolsen1 | Reply | (3) replies | Send Private Mail
September 5th
2007
10:57 AM
I was a healthy 59 year old woman until my doctor prescribed Levaquin for a minor eye pain. I was taking 500 mg. a day for 6 days and on the seventh day I broke out with thousands of hives all over my entire body.I also had severe chest pains and a terrible pain in my back and jaw. I thought I was having a heart attack. The doctor examined me and took an EKG. I had a normal EKG it was not a heart atatck. My physican precribed benadryl and sent me home. A few days later I started with a terrible burning in my esophagus and stomach , and the terrible hives continued. I went back to my doctor and he precribed Zyrtec. The Zyrtec helps the hives to "sleep". I find that 22hours into the 24 hour pill I start to see all of the hives popping out and itching. The doctor gave me a fat free .diet and sent me on my way. Two days later back to see my physican. I told him I was still in severe pain. My stomach and esophagus were on fire and that I was having terrible pain in my diaphram when bending over. I insisted that he refer me to a gastointerstional doctor as an emergency or I was going to the Emergency Room now. He sent me to a Gastro Doctor and upon examining me he said I had GERD. He also precribed a Fat Free Diet, and gave me a pill called Zegrid. This did not help at all. I than made an appointment for an Endoscopy. The findings are acute inflamation in the stomach and inflamation in the esophagus. I also have a hiatal hernia. The doctor told me to double up on the Zegrid.. The Biopsy will be back in two weeks. My pain continued so I called the gastro docor and he gave me Carafate. I continue to have the burning, the hives, pain in my diaphram and back, and now a feeling that I have something stuck in my throat. I never had any of these issues prior to taking Levaquin. I am going back to the doctor today as I have added naseua to the list of my complaints. I eat very lightly and drink very little as when I drink I sometimes get terrible pain in my diaphram. I have been to my primary physican 8 times, gastro 2 times, I have had about $500. in prescriptions, EKG's , Sonograms, Endoscopys, and Biopsys. I am starting to wonder if the medical profession set me up. Levaquin is poison to some people. Why did my doctor give me this medication for an eye ache.? It may be too late for me to debate the use of this medication that I took blindly,but maybe someone out there will read my story and think before they blindly take a medication that may change there life forever. Does any one out there have any of the same issues from Levaquin? Thanks for reading my story. Cheri
-- By 1437cheridemeo | Reply | (3) replies | Send Private Mail
September 4th
2007
9:12 AM
My dad was prescribed Levaquin for bronchitis. After three days he could hardly walk the pain in the achilles in both legs hurt so bad. He was walking outside and his right foot gave out. The achilles tendon ruptured, it is totally separated. He is awaiting an MRI today and options for repair. This medication is dangerous and has serious side effects, please be careful....better yet do not take it.
-- By jonifrench | Reply | Send Private Mail
August 19th
2007
10:05 AM
I was diagnosed with a bacterial infection six days ago and injected with Levauin, followed up by 500mg/day. The morning after the injection, my legs started aching as though I had run a marathon, particularly my shins, calves, ankles. Today, I woke up in more pain than before and am starting to notice knots in my shins. Every step is becoming more painful than the next, and I don't know how to fix this. I stopped taking Levaquin yesterday, but this problem keeps getting worse. Has anyone else had this experience, and when do the knots go away and the pain cease? Thanks for any info.
-- By kww | Reply | (1) replies | Send Private Mail
August 14th
2007
12:28 AM
OMG, I was on Levaquin for approx 4-5 weeks, 500mg twice a day. I have muscle aches, deep body aching, feel like I ran a marathon, my feet hurt so much that I have to limp when I get up to walk, my legs feel like lead, strange pains throughout my body at any time of day or night, my right foot swelled slightly, and my right hand is stiff and I have to pry it open in the morning. Today I felt so weak, I thought I would pass out.
I've been off this drug for almost two weeks now, with no end in sight from these side effects. Why the heck are doctors still prescribing this drug. Anybody interested in a class action lawsuit against the manufacturer?
August 12th
2007
6:34 PM
OK, It has been 1 week now since my wife has stopped taking 750mg and 3 ER visits later and there is still no end in sight! Can someone please tell me when the side effects will go away?!?!?!?!
Original Post
WHY IS THIS DRUG STILL ON THE MARKET???? My wife is in severe pain after taking just 2 days worth of 750 Levaquin. Fear of dying, legs trembling, vomitting, hips and back pain, headaches, and severe stomach pains! Does anyone know how long this willl last? It has already been 3 days since she stopped taking the pills! DO NOT TAKE THIS PILL!!!
August 12th
2007
12:27 AM
Thank God for this forum. It's my second day taking this poison and I am feeling AWFUL ..insomnia, anxiety, flu like sympotoms and all this time I was thinking I was going crazy. I am just worried about what would happen if I stop taking it, but at this point I can't feel any worse. It is obvious to me now that we cannot put our heath on anybody's hands, except ourselves. I can't believe this things is still being prescribed after everything I've read about it.
-- By mapgaps | Reply | (2) replies | Send Private Mail
August 8th
2007
6:35 PM
WHY IS THIS DRUG STILL ONTHE MARKET???? My wife is in severe pain after taking just 2 days worth of 750 Levaquin. Fear of dying, legs trembling, vomitting, hips and back pain, headaches, and severe stomach pains! Does anyone know how long this willl last? It has already been 3 days since she stopped taking the pills! DO NOT TAKE THIS PILL!!!
-- By lombardophil | Reply | (2) replies | Send Private Mail
August 6th
2007
5:55 PM
Severe leg pain. Feet feel as though I ran a marathon on rocks. They feel bruised. Can not sleep at night becuase my muscles in my legs just ache.
-- By dlusk1 | Reply | (3) replies | Send Private Mail
August 2th
2007
10:34 AM
Just an update! First off, PLEASE I implore you, CONTACT the mfg! They need to submit these side effects to the FDA which can alert and prevent this from happening to other unsuspecting patients like ourselves!
Okay just got back from the dr's (rhumotologist) Good News, Bad News and Good News! First she knew IMMEDIATELY what was going on and this is what happens with this drug (to those who get the burning of the knees and muscle pains) you get tendonitits from the medicine and it works so rapidly it breaks down all your muscles in your legs, joint areas ect. Your arms and hands bounce back easily because they're not weight baring joints for the most part, however, the legs, knees, ankles are not so easy to build back up. The bad news is that this did happen and it is going to take 3 to 6 months of aggressive therapy (my choice on aggressive, I could have done low impact, but I don't have the patience, would rather brave the pain and get it over with!) to build your muscles back to where the medication broke them all down. The other good news is that it will go away (according to dr.) So I am VERY optimistic and have a great outlook now!
To the poster who asked about gaining weight, I lost weight, had nightmare, sleeplessness, tremors and nausia, all that disappeared (tremors being the longest lasting out of them) pretty much after I stopped the medication. The knees, ankles and thigh muscle contractions, are still going strong but I am being careful where I was not before I knew what was going on and now I am looking forward to getting back to the gym and therapy and get this over and done with!
Okay PLEASE again EVERYONE www.levaquin.com will give you the manufacturer's information, PLEASE contact them, PLEASE if they are forced to put warnings on the lables, then someone else will know when to stop taking the medication if they start to feel muscle pain and burning. Thanks everyone and I hope everyone is feeling better!!
-- By lazacka | Reply | (1) replies | Send Private Mail
This registry is a place to share positive or negative side effects of using Levaquin. If you directly experienced a side effect while using Levaquin, then we encourage you to enter it here. Please note that entries here are the experiences of individual users, and in no way means that you or anyone else will experience the same side effect, since the same medication affects people in different ways. Please always contact your physician.
-- Please see our disclaimer
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by stacy888, 2 replies, updated 2 days ago.
August 27th
2008
10:55 PM
I am diabetic 2- and was given levaquine 700 mg for two nights to recover from urinary infection. I hardly could sleep first night and was uncomfortable all night. The second night when I got sleep at mid-night, I was fully awakened in next hour by palpilation of heart which hurt my neck and left side down to the legs. I was rushed to cardiologist and was under gone all the necessary tests from sonograph to stress to necular . The heart did not show any damage but I am now suffering from irregular palpilations and my left shoulder is very tender occassionally causing masular pain on left side of my chest. I can not lift a gallon of milk with my left hand and am complled to rest in the middle of the day otherwise I start hurting iin my chest. I hope no one is given this strong doses and that at night. Please go for old antibiotics in milder forms to begin to cure.
-- By sp49 | Reply | Send Private Mail