Levoxyl and hips

Wow, what an eye opening experience it is to read all these posts! I was just about at the end of my rope thinking something was horribly wrong with me. Now I firmly believe it's the Levoxyl that is wrong.

I went on thyroid meds about a year and half ago for just slightly under active thyroid. I was actually lulled into it because the Doctor assured me it was a completely safe medicine and taking it would help me lose weight. Always a welcome thing. So I started on 50 mcg. I noticed some degree of improvement. I was sleeping better and having more energy during the day. Next checkup, the levels are in the normal range but just barely. So he doubled the dose. Two weeks later I broke out in a horrible itchy rash. I actually thought about the meds but then I didn't change meds, I was just taking more. I called the doctor and he said, "No this medication won't do that." So I change detergent, soap, everything I could think of and nothing worked. Finally I said, enough and I skipped a dose. During the day the rash got a lot better. Next morning I took another one and within and hour I was itching like crazy again. I stopped taking them, waited a week and called the doctor again and told them. His reaction was "You have to take this." I said, No, I don't and I won't. He actually argued with me that the rash could not be caused by the meds. Now I realize at that point I should have called another doctor but he's in my town, convenient, yada, yada, yada. Anyway he called me in another med which he said was the same active ingredient but different brand. Enter Levoxyl. I've been on 100 mcg for 3 months during which time I have felt progressively worse. Most of these things I didn't attribute to Levoxyl until later. Initially I noticed I was having the hot/cold flash thing. I have no comfort zone. I'm either flushed and sweating or chilled so my nights are spent constantly either searching for cover or kicking it off. Next thing I noticed is that my breasts would swell. Naturally that was a concern but about the time I would decide I needed to see about it, they would be normal for a few days. Sleep? What's that? Tired all the time. Started having confusion and forgetfulness. I even told my co-worker I thought I was losing my edge. I was all of a sudden forgetting things I had done automatically for over 15 years. Then the really scary stuff started. I would wake up in the middle of the night with my heart racing and feeling like I was in a fight for my life. I was afraid to go back to sleep. Joint aches and pains across my upper back, my knee. Tingling in my feet. It just keep getting worse and worse. Still didn't think of Levoxyl. Then Monday of this week I didn't have a pill to take. I forgot to get it refilled. Monday at lunch I told my husband I felt better than I'd felt in months. Tuesday took the regular dose. By noon the mental fog was back, back was hurting and I just felt like crap. Tuesday night went to bed early because I was so tired. 11:40 woke up with the worse anxiety attack I've ever had. Heart was pounding and I was breathless. Wednesday morning I got up and the light came on. I did not take the pill. Entered Levoxyl in google and found this site. I am so angry at my doctor I can hardly stand it. I even went to the official Levoxyl website and all these side effects are listed except for the swelling breasts and confusion but I've noticed several posts here that list those. During those two days I didn't take the freakin' pill both problems improved greatly. This morning, I reluctantly took half a pill. I plan to to that every other day for a few days then skip two days, then three, until I'm off of it. I don't know at this point what I'll do about my thyroid but I won't take this stuff and I won't ignore feeling like crap again. This is crazy. Where is the FDA? Oh yeah, being entertained by the drug companies. What a shame.

Thanks to everyone who has taken the time to post here. It is a sad commentary when we can't rely on our doctors to take care of us but we sure can't. If he had just told me about the bone loss, I would never have started this drug in the first place. My Mother suffered with that and that is something I would not trade for a few lost pounds and a little more energy. No thanks.

ive been on levothyroxine for about 6 years...... for an underactive thyroid gland and i am stunned reading all these side effects as for about 4 years ive suffered from severe joint paint, fatigue ,very low moods , foggy brain, mood swings hair loss, all i want to do is sleep and even then im still tired.
I am 35 and feel about 80 as my back hips legs calfs and feet all hurt so bad.
I have been to the doctors so many times and got no where.
ive been told your in pain because your depressed( who would not be depressed ) but i said i am depressed cause im in such pain.
i remember asking once if it was due to the thyroid or the drug and the doctor said your levels are fine and the drug gives no side effects.
I feel like stopping it right now to be honest.
I only got it after my third pregnancy and i remember reading once it can correct itself as it could be caused by pregnancy ????? any ideas.
ive copied and pasted a lot of these comments and i will be making a trip to doctors to be fobbed off again im sure ....but its worth a try

All I can say is WOW! I did a search for Levoxyl side effects because in the 2 weeks since my dosage has gone up (200 mcg) I have had a constant headache and my entire body just aches, especially my hips, legs and knees. I have a hard time sleeping because I can't get my knees in a comfortable position. I do have arthritis which has not really bothered me in over a couple of years and this is not the same as my arthritis pain. It is more of an overall achiness and it feels like my bones are sore. I am also having eye twitching occasionally, but I am not sure if that has anything to do with it. What should I do?

Has anyone experienced muscle tightness. I am having a tough time with tight muscles in my neck and hips.

Ihave been on Levoxyl for about 2 1/2 yrs now. I am now taking 100mg. I ache in my hips and arms and sometimes have a sore throat. I have gained weight (about 20lbs) and feel confused and almost like a panic attack at times. My vision is shot and now I'm going for laser surgery. My libido have been effected by this too and that has caused problems. I have not lost any hair but my hands swell from time to time. Please let me know if anyone has any suggestion for this. I don't want to stop taking it for fear something will happen.

1/5/04
About two years ago my entire body fell apart. I was told that my thyroid was not working, a couple of months later I was told that I also had acid reflex. I have been taking Levoxyl (.075mg) going on two years now.
My joints hurt so (hips, knees, shoulders,elbows, and knuckles) sometimes I feel slightly nauseau.
In the past few months the pain has worsened. I mentioned this to my doctor and he gave me some sample pain pills used to treat arthritice. I also mentioned tightness in my chest and pains under or next to my rib cage. The good old doctor sent me for an ultrsound and everything was normal, next he sent me to a doctor that ran a scope down my throat and everything was normal as could be having acid reflex. I am so tired of the run around, my body feels like I am beyond my years. I just want to be able to sleep a full night once again.
My husband said that he heard that virgin coconut oil is not good for your health. Who do you believe?

I have been taking Levoxyl now for about 6 months, 75mcg and have developed pain in my hands and hips, I have also lost most of my sex drive and find it extremely frustrating at best. I plan to stop this medication and determine if the side effects are coming from this product. I was told I would feel much better with more "pep" and all I feel is tired and in pain.

I am having tingling and sweling in my hands and they fall asleep and also my hips ache could this be from a to high of dosiage of levoxyl???

JUST CHECKING OUT ABOUT LEVOXYL BECAUSE I AM REALLY LOSING A LOT OF HAIR, THINKING OF STOPPING IT SLOWLY, DON'T KNOW WHAT TO DO.BEEN ON IT ABOUT A YEAR NOW.I REALLY DO FEEL DEEP TIRED KIND OF ACHINESS IN MY HIPS AND LEGS, I HAVE FMS SO I DIDN'T KNOW WHAT WAS WHAT, BUT AM NOW WONDERING.