Levoxyl and joints

I was on Levoxyl .175 for 6 years and found it was the only one that worked for me. I do have pain in my joints ,but defiantly have arthritis, I have anxiety and panic but have had this stuff my entire life. About 4 months ago my doctor had me cut my .175 in half despite my level was in the normal range,all it did was wack my thyroid out and now my TSH is 18.4 .Instead of giving me my .175 back he felt I may be getting to much with it (though my levels were always normal on it) and put me on .100.
I did notice when he changed it,I felt nervous and bad for a week now its been 2 weeks and I feel like I always did so far the only difference is im having trouble with constipation and stomach pain and I have nausea ..Not sure though if its the Levoxyl or something else going on.

I have been on Levoxyl for about 9 years and have felt awful. I have had weight loss, dry hair, thinning hair,dry skin, muscle aches, migraines and the list goes on. I just got out of the hospital Monday after 4 days of testing of my heart and lungs. I was admitted for racing heart. The doctor's conclusion was anxiety! They said that Levoxyl has nothing to do with my rapid heart rate. The endocrinologist prescribed taking levoxyl .050 on day and .075 the next also a beta blocker, Xanax and Zoloft. I can not take any of these meds b/c they make it almost worse. I KNOW it is not Anxiety and it from the Levoxyl but what do I do?? I am a mess right now can not be in this condition with four young kids and a husband. None of the doctors would say it was the Levoxyl and instead prescribed more and told me to check up with blood work in 6 weeks. I took the .050 yesterday around noon and by 7:30pm my heart rate picked up again and continued until 4:30 this morning. I can not sleep more then 2 hours at a time and wakeup feeling like I am crawling out of my skin. PLEASE let me know of any solutions.

5-12-08 Was put on 25mcg in Mar. 08. because of Hashimoto Disease &
Hypothyroidism. At first had more energy & no symptoms. After a month
severe pain in joints especially in hands & left wrist. Muscle spasms in
thighs, calves & shoulders. Neck & back pain. Also headaches. Am
bloated all the time and can't seem to lose weight. Force myself to stay
active, but difficult to do. Irritable because of pain. Oh yes, on l-7-08 my
TSH was 4.270 & 4-29-08 my TSH was 4.430 & Dr. doubled my Levothyroxine to 50mcg & after that above symptoms doubled to
excruciating. After reading this web site no one mentioned extreme dry
mouth, throat & nose with a metallic taste in their mouth as I have. Let
me know if anyone has had this problem. Thank God for this site & thank
all of you that confirmed my problems was not in my head like doctors
want you to think. Thanks M.

I love this page! I have been taking Levoxyl for about 6 months now and my joints are killing me. Especially my wrists and ankles. It hurts to even pick up a half gallon of milk or hold my kids. I am also so exhausted all the time. I was put on 50mcg when I started the medicine but I was not having any symptoms before I started taking the medicine. I am trying to wean myself off of the pills and am down to 25mcg. I am taking b12 and b6 to help fight the fatigue. I also am having a huge problem with my periods, I get them every 2 weeks, and they last a week. This is not fun at all. I am also getting cold sores like crazy. Before I started taking this medicine I would maybe get 1 a year, if that. Now I get at least 1 a month, sometimes 2. It is really frustrating. My skin has changed, so dry and I look like I have aged 10 years. My hair is brittle. I am looking into a more natural route to take, maybe the Armour thyroid would work.I have been to the Doctor who just tells me that it is not my medicine and could be something else. I know it is not something else. All of these symptoms started right after I started to take the medicine. I am going off of it to hopefully feel better. Thanks so much for all your posts out there!!!

i have felt terrible on synthroid it just gets worse every day and i have been on it for 6 weeks now i feel very anxious tired my skin is parched my sinus is worse i have weakness in my joints i don t sleep well i am extremely depressed and i have thought of taking my self to the hospital many times and my appetite just went away the second day on this drug i have lost too much weight and with it went strenght too i don t feel like doing anything i use to do maybe it was the surgery of removing my thyroid or the treatment i went through for the cancer maybe it was being with out a thyroid or replacement for 3 weks which is what you must do for the treatment but after the 3 weeks and i went on synthroid .137 i have felt nothing but horrible

I've been taking levoxyl for 8 months doe to thyroid cancer.From the beginning I've had insomnia,chest tightness, no menstration for 4 months, now I am having arthritic pain in my joints and it affects my hands, I've been to the dr. he dosen't seem concerned about it I'de like to know what I can do to help all this if the dr. can't.

After reading a number of the letters posted I feel so connected with you all, my heart goes out to you all because I too am on Levoxyl.. I have experienced practically every symptom that I have read and it is not in your head even though the doctors may not know what the problem is they will just treat it with other drugs instead of just changing your medication. I had my thyroids removed 5 years ago and still having problems every time I go to the doctor they are changing my medication. I too have been on different antidepressions and am having problems with my joints and swelling. My sister noticed my skin darkening and I was told that my liver was not good. I know there is so much going on that I still have not addressed but it cause money to go to the doctors and that is a problem but to all of you keep the faith and remember no one knows how you feel but you.

I had most of my thyroid removed in 1997 due to a tumor attached to the thyroid. My thyroid was working fine but following surgery I became hypothroid. I started with synthroid and then quickly was switched to levoxyl. I have been suffering with arthritis symptoms for the past 5 years to the point of last spring being put on methotrexate. I Have pain in my feet and have difficulty walking most of the day...especially in the morning. I have joint pain and swelling in one knee, one wrist, and a couple of joints in one hand. Methotrexate is a chemotherapy drug used to treat rheumatoid arthritis. I have been diagnosed with RA but it does not show up in any blood tests. In addition, if you look at the signs and symptoms of RA I really only have around 50% of them. I just found this website and I am shocked to find so many people sufferning from the same arthritis symptoms while using levoxyl. I stopped taking the drug (levoxyl) two days ago after insisting my doctor remove me from this drug and switch to Amour thyroid. I took several of the emails listed on this website to help convince my doctor that there is a problem with this drug. I will post an email in a couple of weeks with any improvements in my condition. By the way, the methotrexate was not working!!

I was taken off of synthyroid 15 months ago. I had 75% of my thyroid removed in 1999. I gained 24 lbs in 15 months. I don't know what this doctor was thinking. I was put on Levoxyl 2 weeks ago and can't stand the sick feeling in my stomach and the pains in my joints all over my body. If anyone has been on medication successfully without side effects please let me know what your taking. I felt like a big whiner until I saw that other people are feeling the same way. Does everyone elses doctor say that there are no side effects to this medicine and that it's not the medicine making you feel this way. Please e-mail me at Stormy5563@aol.com with any comments. I love to know that I'm not alone and losing my mind.

1/5/04
About two years ago my entire body fell apart. I was told that my thyroid was not working, a couple of months later I was told that I also had acid reflex. I have been taking Levoxyl (.075mg) going on two years now.
My joints hurt so (hips, knees, shoulders,elbows, and knuckles) sometimes I feel slightly nauseau.
In the past few months the pain has worsened. I mentioned this to my doctor and he gave me some sample pain pills used to treat arthritice. I also mentioned tightness in my chest and pains under or next to my rib cage. The good old doctor sent me for an ultrsound and everything was normal, next he sent me to a doctor that ran a scope down my throat and everything was normal as could be having acid reflex. I am so tired of the run around, my body feels like I am beyond my years. I just want to be able to sleep a full night once again.
My husband said that he heard that virgin coconut oil is not good for your health. Who do you believe?

I have been on levoxyl for 2 months. I started at .05, then .075, and now I am on .125. I feel much less tired than I used to but I have felt more pain in my fingers and top of my foot as the dosage increased. It feels like a burning sensation in my joints. Is this the drug?

I am a 33 year old otherwise healthy woman with a family history of thyroid disorders. I have been on LEvoxyl for 2 weeks and initially I had diarhea, which has stopped but I now have pains and aches in my joints and muscles..especially in my hands. I have not lost any weight yet (although I had gained alot before on the med) I also now have a little swelling in my neck..is this a normal side effect and will it go away?

I have all these complainants and I have tingling in my lip and tongue. I feel bad all the time and have pain in my right side and in my joints. I have a bad liver but I think it is causing it to be worse. It melts in my mouth half the time before I can drink water. My throids have gone back to normal. But I am tired of taking stuff that makes me sick. I had to go on Protonix for the acid reflux that I have now.